I am my father's primary caregiver and have access to his checking and small savings. I DO NOT STEAL from him. That said, I have a sibling that said 'he doesn't know WHAT I do with Dad's money and that I have been "living off him my whole life" Actually, my father would not be able to stay in his own home if I didn't live there with him. Even though the house is paid for his only income is SS and that is poultry. Just curious if anyone else has a scary sibling? Thanks.
I have come to the conclusion that those who are not directly involved in the caregiving do not have a clue as to the sacrifices we make. And some people are going to think the way they want to think no matter what. As long as you know you are doing the best you can as a caregiver, that's all that matters, not anything said by those that are ignorant or oblivious.
There seems to be no legal help as no one seems to know the law, Any elderly person in the UK is labelled Dementia and everyone gets paid for the label. Then the Mental Health Act comes in that can overpower a POA and decide best care in a nice expensive residential home with all kickbacks. And my mother is a very difficult lady so she would shortly be drugged. I need a Personal Assistant and a good lawyer but how do I pay for that?
My fathers was ruptured 5 x with catheters when it should not have been put in. The Geriatrician said it was not worth treating him he would only be back again.
The Ambulance crew cut up his backside and feet so badly just transforming him.#
The hospital gave him forced bed rest and tried to force me to sign a contract that I would only allow pharmaceuticals not the herbs my father has been on for 18 years.
Other Doctors outside the National Health System have been supportive but their hands are tied too. We are under a dictatorship in medicine where elderly get so drugged at every symptom it is rediculous. No one looks at nutrition as they are not trained. We are 30th out of 31 European countries in medicine but my father was forcibly held. Why. Because I wanted to use my fathers money on taking him to France to get him proper help using the money he earnt all his life but my eldest sister didnt want that used. And who gets listened certainly not the carer.
All I want to do is get my mother to Europe where the system does not involve Social Services and Proactive Care teams deciding the fate of your parent whether you like it or not.
I am comfort eating and highly stressed from 2 girls that have done nothing to support their parents but my mother adores one of them and gets fed they cant come to the house because of me etc but in fact they just dont want to.
I tried with all my heart and soul to prevent my parents in homes. I gave them my word I would not let it happen but never in a million years did I think that my sisters would be more interested in inheritance and money and a slaughter of my very soul.
I dont know what is going to happen as I havent got everything recorded. I have bank statements and piles of receipts. Everything costs and trying to keep money as you know what happens if you need extra help or if you run out you have a pop in and then are pushed to the home is best.
I think the UK is one of the worst places in the world to care for elderly because as a whole no one is caring.
Our National Health Service is being run down on purpose and they have no money and the staff are highly stressed so who sufferers, who's not to worry about - the elderly!
More than anytime in my life I want a legal people that could take on the NHS as on your own you do not have a chance. I have a Bachelor of Science and yet I am treated as a fool. And they are allowed to pump antibiotics into frail old people even when they dont have an infections and there is nothing you can do about it.
To have a system like this and two unconscious sisters more interested in putting their little sister down at any cost is telling me what? I have to leave and watch my mothers fate as I had to watch my father be butchered.
Force another catheter in from untrained people but if you say no I am the problem. God help the elderly in the UK and please God if there is anyone out there with any power help me create a holistic shared home.
Sisters - you need a society that truly understands the effects of Narcissism and understand when you are at the receiving end you can end up being the stressed out one whilst the Narcissist stays cool and collected on their mission to negate your very existence.
Will my sisters get their way? I was told my problem is attachment. I just wanted a safe spiritual ending - why are some of us trying so hard to care and the cold hearted get listened to?
She chose me to care for her and gave me full power over all of her care legally. I am not going to keep every reciept, document everything, I am too darn busy nor will I cater to those jacka$$es.
I do my best for her and keep her on a budget. If she had gone into a facility, she would have been flat broke by now and then what? Would either of them have stepped up and said "We will have her move in with us and pay for her expenses now that she is broke?" I don't think so. They would let her become the states problem. They have no clue what I do for her and how I have sacrificed my life, my career, my freedom and my sanity just to make sure she is safe, well taken care of and has money for however long she is here. They can both go straight to he (double hockey sticks!) I owe them no explanations. Go ahead and try to get a lawyer, they couldn't afford to try and fight me on this.
When I returned, I reunited with my mom. She had dementia and of course was on a downhill slope after brain surgery. But I knew she still loved me. I think they tortured her by continuing to bad mouth me as they were afraid of losing their goods in the will. One month before she got sick with her UTI, she sent me a card, thanking me for all the things I did for her. I will never forget that she had the capacity for that.
They rushed in to take over because of their guilt and projected their misgivings on me as they needed to blame someone. There were the ring leaders and the ones who went along with them. I can only pity them because it was hard work and they were not up to it. I was there for my mom and though I gave up so much, I feel like the lucky one now. It takes a strong, empathetic, and good person, to do what we have done. Was I perfect? H*ll no! I was stressed to the max. But I did the best I could with what I had alone and I can hold my head up with no guilt. They get to live with their bad behavior and lack of consideration for my mom and me. They brainwashed my mom so badly, the will was changed when I was on my healing journey. I found out a month after she passed. It has been a tough road. They showed their true colors and whether they ever had guilt or not (doubtful), it is over and I no longer have anything to do with them. What they did to me, they also did to my mom. Someday they might learn as I told them in my goodbye email was, "You will either be cared for or be put into caregiver role, then you might figure it out."
Human beings are capable of good and evil. I am always amazed at the difference and what path one chooses. As friend said, "One is born with the empathy gene." Hold your head high. You know what you are doing is the best you can. Don't let anyone destroy that! Hang in there!
I relate to your share, Moxy - "unloved" - painful, and something that takes time to cope with. That was much of my experience in my fragmented home, and it took me a long time to sort out the interwoven issues around my relationships to my family - but once I saw disabled brother's vulnerability to predators of many kinds, if I did not stand close to him - I did stand there and contributed much of my working energy to learning how to help, coach, find support and then find ways to tie the supporters together, all to get him past the stage of youthful rebellion, and learn how to learn from others and be helped.
I kept in touch with my family in other aspects - biding my time after disagreements, and I hated their pronouncements of interpretation of my character which blamed my personality or lacking social skills for the amount of difficulty I found in working with people - they had no idea, from their total distance, of the impact of fragmentation in helping services, how that makes them very ineffective in any support outside their institutions (and also not much help at times, within them.) They need to be helped to notice changes and target care.
I came a long way with my siblings over the years - my one older sister and I started by making up after I initiated adult times of her visiting me. Later, brothers. I'm now 73, and older brother who manages the money, is 80. He has learned that I take no direction from him, for I was the one who stayed close enough to see and find what was needed for the youngest disabled one. He took over money management after death of oldest brother, so he arrived after all my work had happened.
I've learned to get help or advice from him, and we have a basic arrangement for money - so I tend to relax, until i hear him object to me mentioning my struggle to deal with the cumulative cost to my own economic and physical advancement in life (I'm buried in clutter, and work to reduce and eliminate it - but that job in itself keeps me from doing the writing or pursuit of other career, for my own retirement income - and time to build on my interests, not disabled brother's.
Problem is, brothers have learned a formula, too often repeated in our countries here, that praise individual responsibility, and interpret any other version of life needs and care, as secondary to employment and jobs and investment money planning, and they think they can apply their wisdom learned in their business relationships to others.
Fact is, there are times of life where everyone is vulnerable, areas where some need special education to remedy gaps, and someone stable, not flying all around the world - to watch over them, and see what's needed. That's where the alternative ethic comes in, I think - if everyone enjoyed community, and did our best to show up and contribute to ongoing activities, we can find help and resources all around us - not from the limited venues offered in our system so based on ideals for people only in the workplace and of working ages.
You have done well.
Your sister is on your mother's bank account? Why aren't you the one on the bank account? (And why isn't your mother paying for her own doctor bills and medication? And for her food?)
I hope that you and your sister don't inherit equally from your mother.
Keep a running ledger of all purchases, receipts and daily chores/tasks/activities. I realize how overwhelmed you may already be, but it really doesn't take much effort to save receipts and make ledger entries over a cup of coffee. Also, if the cost of food and expenses to cover YOUR bills (since you're "working" as your father's caregiver now) are now a part of your father's expenses, so be it. I was my mother's full-time caregiver, with the exception of whenever I hired someone to give me a little break once in a while, and the only way I was able to do it was to have my mother pay for my car insurance, cellphone, gas, food, etc. This was simply because I was no longer able to work for myself. I gave up my career. I was "working" for her, and in a sense, working for my brother, whether he realized it or not, because I saved my family THOUSANDS of dollars by doing this.
I'm lucky in that I do have a reasonable brother, but he lives in another state and would have NEVER made the sacrifices I made for our mother. There have been times when he just didn't get it, and I needed to set him straight. Truth be told, if it weren't for me, our mother would have been forced to liquidate her estate and move into a nursing home. Or, perhaps, my mother would have had to hire an aide for $60,000/yr. I was NOT going to let my mother go into a nursing home, because she was mentally sharp and specifically wanted to spend her final years/days in her own home. In other words, as the full-time caregiver, I saved my mother (and brother) that financial burden. Point this out to your sibling. Demand respect and compassion, and certainly, if your father is mentally competent to be able to clarify this with your sibling, then he must. If he is able, then he owes it to you... AND to your sibling.
I made the decision to care for my mother out of my heart. It was a no-brainer for me to pack up my life and move in with her. People can think whatever they want (and they do), but the truth is in my heart, as I'm sure, it's in yours. Follow your heart, but cover your back with keeping good records.
I also kept a ledger with monies coming in and out and kept every receipt for every purchase. I only made purchases for little gifts and so on that Mom may need. No one in my family asked to see this which only proves further the lack of interest. The "oh, sis is taking care of it attitude prevailed"
Still, you never know who may pop up one day. I have receipts for every penny spent, as well photographs of the items.