My 80 year old father had mitral valve replacement surgery on 2/2/22. We were told he would be in the hospital about a week and would be fine. Two days later, he had a major stroke. The doctors told my brother and I and my father that the stroke was minor and he would make a full recovery. We have since been told by different doctors that the stroke was major, in a very bad spot in the brain and that my father would die soon. He is failing to thrive now and has a lot of end-of-life signs, so he doesnt have long. But because of the stroke, he doesn't understand that. He keeps saying, "When I get home, I'm going to ..." "We should all go camping more this summer." "Do you want me to take a look at your car?" I don't know how to handle this! Should I tell him he's never going to go home? I tried asking him in a subtle way what his relationship with God was but he didn't understand. Should I even bother telling him he's going to die soon? Or should I just let him go on believing he's going to go camping again?
I would not phrase it in that exact way but ...
Dad needs to know the reality of his situation.
He needs to know the prognosis so that he can "get affairs in order" and make the plans that need to be made.
And the family needs to know what measures he wants taken : feeding tube, vent, CPR...if those decisions have to be made.
I look at death and life like this...
It's for enjoying every moment, not worrying about things you can't control.
If his memories of camping and the thought of possibly going again make him happy, let him be happy. Enjoy talking to him about camping and the fun times you've had. Dying is hard enough. You don't have to make it harder for him or you. Sing, laugh, share memories, view old pictures. That's such a better way than talking about death. We all waste so much time worrying about things instead of living. Living is sharing great moments with him, giving him peace on his own terms.
I would draw the line at lying. If someone asks for a complete assessment they should be given just that with full details. Except in extraordinary situations where it is apparent they can accept this info only in small doses, or perhaps not at all.
For people often accept such info on their own timetable. Sometimes they never do, and sometimes it takes time (and sometimes more time than they have) and sometimes they make it clear they do not want to hear it.
There's a big difference between responding to requests for information and volunteering info that may not be wanted. Or perhaps it is but not quite yet, not all of it anyway.
The key to caring for a dying person is providing whatever (emotional and physical) comfort you are able to provide. Which can indeed be difficult when you're contemplating your own impending loss.
In any case, assuming you do care for the man you need not delay saying so, in terms/ways he can understand. Now, while he's still able to.
Besides, yes he is going to die. But, you don't know when. It could be in days, months, or years from now.
Not all doctors are correct in their predictions. Talking about it could make your dad feel depressed, scared or confused. Why would you want to risk that?
All of us will die. All of us are getting closer to dying with each passing moment. What good will talking about it accomplish?
No doubt you’re going through a very difficult time with your father’s illness. Many of us in the forum know what it’s like to wrestle with these kind of decisions from our own past experience. My hope and prayer is that you will find answers and some comfort here in the advice offered.
Your father may not appear to know he’s dying on a conscious level, but his body and spirit do. It’s comforting to him to talk about home, future plans, and wanting to do something for his daughter. If I were in your shoes, I’d try to go along with it and rest assured in the knowledge that God knows your father’s heart and the kind of man he truly is. If your father experiences a time of clarity and wants to talk about his belief or asks for a clergy, be prepared to fulfill his wishes.
He may not be willing to face it, he might be wanting to spare you, or maybe he's even resisting it, but he already knows his life is about to be cut short, so may I offer you a little something that may make it easier for both of you?
Share stories and relive memories with him. Allow him to remember the good days and the love he gave and received.
Acknowledge him for the man he is and the person you have become. Let him know the life lessons you learned from him made a difference.
Clean up the messes you made over the years. I was 50 when I admitted to my dad that I stole the coins out of his (very valuable) coin collection to buy candy when I was 8 years old. I had forgotten about it (or maybe I didn't) but he hung on to it for 42 years. His response to me was, "Now I know you are a man."
Bring a tiny bit of joy into his life. The night before my dad passed, we stayed up late, drank scotch, watched Hannity, and argued politics. For him, that was a tiny preview of heaven.
Find out who he wants to talk to. Help him make phone calls, write letters, zoom, or whatever.
Muster up the courage to ask him how he wants to die. Let him know whatever happens he will die with dignity (or however he says.)
Seek out the humor in everything. Send him off laughing, not crying...
Maybe bring him a sleeping bag or a camping vest... he is going on a camping trip. Your job is to make him know there will be unlimited love when he gets to the campground and he made a huge difference and a giant contribution along his life-long journey to the campsite.
God bless Dad and his amazing child!
I am not negating your situation and the time left. I would not tell that news if not asked. I just would take each day at a time.
People tell me that I cannot know how I will feel towards the end of my life but I absolutely know that I would not want to continue living if I could not walk. I would not want to not be able to use the toilet. I would not want to be constantly catheterized. I would not want my family to endlessly walk the halls of a nursing home and witness all that transpires there. I would not want them to be me.
I hope the end comes for your family in a peaceful manner and you will know that there is no point to endless suffering.
Now, there is my mother, who is 89 years old and has dementia. She talks constantly about what we are going to do next summer; going to the beach, going fishing, whatever. We will do none of these things because she can hardly walk to the car. We don't tell her we won't do any of these things, she is unable to grasp reality, EXCEPT, she talks often about how God has been so good to her and she can hardly wait until He makes us all young again. Her faith in God is the constant and the most important anyway.
My thought here is that only you can assess what is best, but I would like to encourage you to read some Bible verses to him to prompt his thoughts toward God. It might prompt him to talk about how he feels. God bless you, this end of life stuff is so hard, and we are often blindsided at the twists and turns.
With your dad asking if he can look at your car, and bringing up the idea of camping, it sounds like he may have an idea that something is going on, and may be facing the reality of needing to live and appreciate what time he has left on this planet, and spend it with the people he loves. With him asking you if he can look at your car, he might also be looking to see how you respond, to gauge how serious his current condition is. So he might be in denial, but at the same time, it sounds like he is possibly seeking validation from your responses, instead of directly asking.
Thinking back, I can now see that my Dad was doing the same sort of thing, and I truly struggled with how to respond, just like you. I did NOT
want to say the words, "Dad, you're dying." What I ended up doing was responding to him by saying that I really would love to go camping, and yes, I would most definitely want you to check out my car, but before we can do any of that, we have to focus on YOU and your health right now. I told him the doctors were saying things weren't looking that great at the moment, but if he was able to show improvement, maybe we could start making some plans to do something adventurous. I also factually told him what his body was doing, according to what the doctors were telling me, but I didnt directly tell him he was dying. I would then tell him that if he feels like he can show improvement, we could work on some little goals and build from there, and hopefully we would be able to surprise those doctors, and that I am there for him if he wanted to talk about how he was feeling. I feel like that allowed him to have hope, and yet at the same time it helped him realize that it was a serious situation which needed attention. After some time, his thought process of mortality started to move through the different stages, and eventually he would start talking realistically about his future, and it helped when it came time later to talk about how the doctors were suggesting hospice care I always made sure he knew it was the doctors saying this, and not me.
He was unique though, because, he ended up actually doing that one goal of surprising the doctors. Initially, he wasn't supposed to make it through the night, and then they said maybe a couple of days, and then he got to the point of being discharged, but was told it would be weeks, possibly a few months. But a year later? He actually graduated from hospice! He continued on for another couple of years, but once he made another goal (his 79th birthday), he started to rapidly decline, and ended up back in hospice. This time, it was definitely different, and we both knew time was running out. He wasn't able to communicate well, but I tell ya what, he did end up reaching one more goal. The last time we spoke with full eye contact, I was telling him what day it was, and that in five days, it would be March 18th, which was another significant day for both of us (it would have been my first born's/ his first grandchild's, 30th birthday. She died from Leukemia when she was four). He held onto our eye contact for a few moments longer in acknowledgement, but that was the last time he was alert with me. Hospice said it would be hours, maybe a couple of days at that point.
Around 8am, on the 18th, I woke up to my phone ringing, and it was that final call I was dreading. He peacefully died at 7:55am, on March 18th, and I have no doubt my first born and my mom were there in spirit to welcome him, 'back home'. ❤️
Hang in there! 🙏
Let him speak his mind and don't judge what he says. Just accept it, strange as it might be to you.
Your truth may not necessarily match his truth at this time. Let him speak his mind and let it be.
It is normal that some people have end-of-life experiences that are unfathomable to family members or caretakers. Let him say what he wants and accept who he is during his inevitable transition. There are lessons in this experience that may surprise you. Good luck.
is truth, then it's up to God. Show him love while you have him, no one knows the hour of our death. Let him have his dreams. And good thoughts sent to you and your family.
Your task now is to support him in his reality, so when he talks about going home go along with it. Tell him you'd be glad if he'd look at your car. + Go with his flow and ask for his suggestions for a camping trip. We're all going to die, but until that day, let's support LIFE, not death.
"Hey Dad, don't talk about fixing the car or going camping, because you're dying and it's not going to happen." Really. Would you want to be slapped in the face with that reality? Hope is eternal and if it gives your Dad some comfort in talking about future plans, go with it. No need to rain on his parade.
My Mom constantly asked to go home (to her house not her girlhood home) when she was in rehab for a broken leg. The trauma of surgery, anesthesia, movement to rehab (then longterm NH care), was too much for her to rationally comprehend what was happening to her. I believe she was having little TIA strokes while in the NH. I kept telling her when her broken leg healed, she could come home. I knew in my heart she would never recover from it and would be wheelchair bound until she died.
That said, she couldn't even weight bear on that leg for at least 8 weeks, so she sat in a wheelchair most days. Though we visited daily for HOURS on end, her mental capacity and reasoning (she had slight dementia before breaking her leg) skills suffered tremendously. Honestly, it was more stressful to deal with my brother's perception of our Mom's situation than with our Mom's.
So I just let her think that when she healed and got stronger, she could come home. Hope. Her 3 months in NH care was extremely stressful for me to get the care she deserved, so I did everything possibly to make her stay there pleasant. She ultimately had another stroke 2 months in and her final days were with me in her room 24/7 caring for and loving on her.
I can sleep at night knowing I did everything I could for her to ease her mind and make her comfortable. Isn't that what we all want in the end?
It would be more helpful to talk about how great it would be to go camping again and to remember past camping times. Many people at the end of life talk about "going home" even if they are not consciously equating that to dying.
Yes, he may die soon, but maybe not today. Today he still has Today.
he obviously wants to live !!!