I am the caregiver for my 89 yrs old mother I work from home 40 hrs a week I used to work nights so I didn't have to deal with her as much and I got a few hrs a late at night for my self recently got a new job which leave me with no me time whatsoever. I have two sisters and neither one seems to what to pitch in. They always have excuses, am I wrong to think they should be doing their part?
That said, you don't have to be the one either. Announce that you can't do it. And then don't.
If your mom insists on being her own POA then that's her right. And her obligation to handle her conditions.
If I knew 10 years ago how things were going to unfold, I would have made MUCH different choices and would NEVER have moved my parents in with me. So now I think my sister is the smart one that said NO WAY. She does allow a few day visit once a month which is great but still an imperfect "solution".
So, it's time to adjust your expectations. Expect nothing from your sisters. Get help for your mom so you can back way down. Maybe it's time for a facility for her? I'm looking into that option REAL soon for my mom.
I recommend you call the local Area Agency on Aging to ask for a "needs assessment" to help figure what level of care mom needs.
It is wrong for you to EXPECT that they will help.
And following that it is wrong for you to be upset with their decision.
With whatever income or assets mom has you pay for caregivers to provide the help that is needed.
If your sisters get upset by this, with what might be their inheritance going to pay for care gently remind them that this is the option that is viable for you and that moms assets are hers until she dies.
Have you tried getting your mom into Adult Day Care? It would give you a break, it would give mom a break and get mom some socialization.
Many will pick up in the morning and drop off in the late afternoon.
(sending you a PM so please check)
But you are wrong if you expect others to do as you wish them to do.
The sad fact I think you already know is that the Sisters will do as they wish to do with their own lives. You cannot make their choices; you can only make your own.
Skip the sisters and go right to the heart of this matter. This care may now be too difficult for you. Time to discuss with your entire family that it is now too hard for you, and you need all to discuss the next steps forward. Placement may be needed.
As long as their lives go on the way they want they won't even notice.
I'm not saying this will work. Some just aren't going to help and you can save yourself a lot of stress by just accepting it. Doesn't make it right, but don't bang your head against the wall. You're the only one who will get a headache.
You do have to remember that if they work the same hours that you do, it might be slim pickin's on when they would help during that time if they are already reluctant. Some will use the excuse of not wanting to use up their vacation time or they really don't have vacation time to use.
If mom has income, use it for care. As much as you can afford to use. Be sure to let both sisters know that you are dipping into the savings (if mom has any) to use toward her care. If mom has a house separate from yours, see if you can talk mom into selling and using her money for that. Use some to modify your home for her as well -- keep receipts. If they find out you're using 'their' inheritance, they might be a little more willing. As for the house, if you moved in to mom's house to take care of her - they may have justified their not being involved based on you getting a 'free' place to live (even though the work involved makes it far from free).
Like I said, it may not work at all. They may be able to see you struggle without any guilt at all.
You make good points, but it's not about pinpointing and writing down the exact things the person wants help with.
It doesn't work like that. Much of the time it's more about wanting and needing the elder to literally be out of the house for a period of time.
My sibling offers all kinds of advice on what I need to be doing for our mother. They speak plainly to me and will ask directly about what I need and are genuinely willing to help.
Here's what I need. Take mother to stay at your house two days a week. Make her go. Give me week-ends off where I don't have to deal with the mess, the smells, the tv blasting until late into the night, the complaining, the negativity, the fight instigating, and the gloom and doom.
This is what I need and want, but my sibling won't deliver because the truth is no one wants this in their house. All the other stuff like coming by for a visit or taking mom to lunch means nothing. My sibling has never taken mother to a doctor's appointment, ever and mother has a collection of doctors. That's all for me.
Sometimes people in caregiving can't make a list of what they need as help from others, when the only thing they really want is to for the elder to get out for a couple of days.
What exactly would you like them to do?
Maybe it's time to give up that role?
What is your mother's financial situation?
sending big hugs!
i disagree with some things you write. but we can just agree to disagree.
you wrote:
"be ok when they say no."
"Don’t resent others for what they won’t do."
i completely disagree.
----
:) i'm just writing here in general terms, not specifically regarding your message, Surviving:
...i do agree that anger will have bad consequences for oneself. to be in a constant state of anger, of course, can't be good for one's health.
...i don't agree that you shouldn't resent.
i absolutely resent my 3 older brothers for doing nothing to help, and i believe it's totally ok and right to resent them.
you shouldn't (i think), pretend like you're not angry.
i even think it's unhealthy not to be angry, when it's justified to be angry; bottle it up; pretend something is ok, when it's not ok.
i do think the siblings should hear your anger. scream at them, whatever, they deserve it; write a letter. get it out of your system. it doesn't matter if they don't read it. you said what you had to say. don't protect them from hearing your anger.
it's absolutely angering when things are unjustly distributed and you're the one doing all the helping. no it's not a choice. if you have a conscience you won't abandon your parents. you'll find some sort of solution (whether it's a facility, advocating for LO's needs with staff, making sure the LO is treated well, etc.). (i'm not talking about incredibly abusive parents/criminals/etc., whom you're estranged from). generally, your conscience won't let you -- totally -- abandon your parents, and do absolutely nothing. and if your siblings do nothing, you're left with the short end of the stick.
choosing between totally abandoning (and forever feeling guilty) and helping, isn't a choice.
...totally different example: "i'm giving you the choice between killing your friend, or your other friend. what do you choose?"...the point i'm making is, that not all things are really choices.
you absolutely didn't choose for everything to be dumped on you.
and siblings who run away from helping, often KNOW there is that ONE sibling who WILL help, so from their point of view it's "ok" to run away. --------------they count on you to do it. (secretly thinking, "ah it doesn't matter if i don't help, my sweet/responsible sibling will do it. thank God she/he exists!!!").
if you didn't exist, it's very possible, they wouldn't totally run away. they would be forced to do something.
i disagree that one shouldn't expect siblings to help.
one should even expect an apology from siblings, "i'm sorry. i don't want to help our parents, but the consequence of that is that YOUR life is totally affected. all the stress, problems have been dumped on you. ----- i'm sorry i did this to you. ----- and meanwhile, i'm having a great life, and getting richer and richer, my career is doing great. i have total peace of mind! yeay!... while you do the helping. and you're getting poorer and totally stressed out. i'm sorry. it's not right, from so many angles."
their inaction isn't just against the parents -- that inaction is against you.
if they cared about YOU, they would contribute help in some way, to make sure YOUR life is ok in some way.
----
dear Surviving,
i reply specifically to 1 thing you wrote. you said:
"And yes my relationship with my sisters is forever changed, not because of what they won’t do to help with Mom’s care, but because when I saw their true colors amidst this family crisis, I realized I didn’t really like the people they are."
----yes but those true colors ARE linked (i believe) to them not helping your mother. if they had helped a lot amidst the family crisis, you would have a different opinion of them right now: you might be saying, "my siblings were amazing. they showed their true nature, which is amazing, kind, respectful."
----
hugs, everyone!!! what i think...is...
..."whatever you say, whatever you do, sooner or later comes back to you."
...siblings, watch out!
I can assure you that the more you take on, the more they will let you. As SURVIVING said, either one of your siblings may not be willing to do everything that you have taken on. Brainstorm ways that they can and will help you, such as alternate weekends, shopping, cleaning, doctors appointments, etc. Try to take the approach of "teamwork" rather than "me" work. Don't think about it, call your meeting TODAY. I wish you the best.
Do some legwork to see what mom can afford or qualify for before you sit down with your siblings to have a very frank conversation. I know it's hard but try to look at the facts and leave emotion out of it. Tell them you need some assistance or you're going to have to make some difficult decisions with mom. They may not care and were hoping you would come to this conclusion because then it makes you the "bad guy" for placing mom and not them.
Paul, the 24/7 caregiver.
Stop accepting their excuses for why they won't help out and make they say the real reason.
It's understandable to refuse to become caregivers to needy elderly people and to not want to take on the colossal responsibility that comes with it.
Make your siblings own it and say it. They just don't want to help with their own mother. Excuses like having to work, having the kids, and everything else saves face and sounds better than owning the real reason. Nobody wants to look bad and I'm sure your siblings voice their "concerns" about how mom is being cared for and offer plenty of advice to you too. They probably also offer plenty of praise for how great a job you're doing.
Tell them you don't need palms thrown under your feet. You need help with mother's care. If they're not willing to help start looking at care facility placement for her.
hug!!
i totally agree.
and you wrote:
"Make your siblings own it and say it. They just don't want to help with their own mother."
"Excuses like having to work, having the kids, and everything else saves face and sounds better than owning the real reason."
EXACTLY. that's exactly what i want.
i want my brothers just to confess, say it!!!!
let my LO's hear them say it.
i'm putting my brothers right now in a position, where they'll pretty much have to confess.
hugs to all of us.
Now...there are plenty of people who would interpret that as us shirking our duties. We are 100% willing to help when and how we can. But there are definitely people who feel like one or both of us should be taking time off of work and moving over there to backfill to take care of him while they recuperate. So taking care of them and him. And I drew a line in the sand. DH has a disability of his own. Am I being selfish for not dragging us over there to help? I work from home sometimes 50-60 hours a week and I need the office set up I have at home and cannot replicate at his house. DH as well. We can't move our work from home set up over there, so we would have to take time off. Recovery from surgery can be weeks. So it makes more sense to hire someone.
Too many times, as a society, we have this expectation that hiring help is somehow dismissing our responsibility to care for someone. When the reality is that sometimes we can't do it ourselves. That is not NOT caring for someone or shirking our responsibility to provide their care. It is simply finding another way to do it. If we aren't physically able to do it, isn't it better to find and pay someone who is, than to put us all in the hospital to provide it.
FYI, the reason that my SIL needs surgery is directly related to her time providing care for my FIL. Caregiving related injury related to assisting a 300 pound man to do things - repeated injury to her hand. So sometimes knowing what needs to be done and admitting that you need help is the most important thing.
If your siblings are telling you no - as hard as it is to hear - they have their reasons. Yes, in an ideal world - they SHOULD help you. 100%. I wish we were able to help my SIL and BIL more but logistically it is impossible. We don't live there - they do. We are an hour away without traffic and the little time we have outside of work every day during the week would offer them nothing. And we already spend the weekend doing what we can. And we already give them any time during the week that we can for doctors appointments and multiple daily phone calls. Short of living there I don't know what more we can do. I also have my own mother and grandmother that I need to be able to help as well.
So you have to decide what you are willing to do, your siblings have to decide what they are willing to do. And then you bridge whatever else your mother needs with outside help. You have to take care of yourself too. That is equally important. They may not tell you the real reason, but if they don't you may just have to get the help you need so that you can get what you need too.
You don't mention if you also have brothers. If you do, they should also be part of the conversation. Before you meet with your sibs, though, you need to clearly define for yourself just what you are willing to do. Be realistic, you cannot spend all your spare time with Mom. You need time for your own appointments, emergencies, and personal time (plan for a bit more personal time than you think you need, you will need it later). Specify clearly to your sibs what your mother appears to require and what you can do. Prepare for several minutes of dead silence while they consider the implications. Do not back down. They will probably not offer to do much, but there could be some surprises. Be prepared to steer the conversation toward whatever other options you have researched.
An important considerations is what your mother can afford to pay for. She should pay for the assistance she needs. She should be aware that if nursing care is ultimately required she will need to spend down her estate before Medicaid will take over payments for her care. Many nursing homes will accept an older person as a paying resident and assist in converting her stay to a Medicaid-paid stay when it is necessary. Your sibs need to understand that if that is the plan there will be no inheritance beyond memorabilia. Everything of value must be liquidated to pay for care.
Just bear in mind that your sibs are entitled to make their own choices. You cannot force them to do anything at all. Remind yourself that you have CHOSEN to help your mother. How much you choose to do is entirely up to you. Be reasonable with yourself and be kind to yourself you do have the right to a life of your own. Your mothers needs must be secondary to your own needs. Good luck. This will not be easy. I hope you will find a good place of agreement with your sibs, even if it is not what you might be hoping for now.
One child does all the work with little to no appreciation. The other children are absent unless it is to lighten mommy or daddys pocketbook.
I have been a caregiver for a narcissistic mother from Hell for over seven years. Most of the other caregivers I know go through the same thing. I am sure most of the caregivers here would agree with me.
Hold your head high girl because you are head and shoulders above them in dignity and duty. Believe me at some point in time your hard work will be rewarded seven times more upon you. It always does.
Sending you a big hug and saying well done beautiful child
I never expected my sister to be able to do what I was doing. She eventually agreed to take mom every other weekend after mom had been with me for several months. I actually think she resents me for bringing mom home and expecting her to help.
The last straw for me was at Thanksgiving. Mom was supposed to go to her house just for Thanksgiving. I was hoping to get away for a day or two with my family for Thanksgiving. When I brought it up that I had made plans and would need mom to stay a couple more days, her response was a sarcastic, "That is great." Then went on to explain that she had a party to go to, was going to have a houseful over the Thanksgiving vacation, and that she was already going to miss her granddaughter's dance recital because it fell on her weekend with mom.
All of this is valid. I think had she said something along the lines of, "Gee I'm sorry, I already have plans for those days, I wouldn't have felt the sting as much.
But it felt like it was all about her social life. And maybe that is the truth, the real reason she doesn't want to help with mom.
So my head is constantly telling me to get over the fact that my sister isn't going to help as much as I want/need her to. My heart, though, says something else.
From experience, I can say that it is a waste of energy placing expectations on other people and expecting them to follow through on them. Take what help they offer and expect nothing more. You will save yourself a lot of pain and anxiety. Know that when your mom is gone, you will have done all you could for her. You will answer for what you have done and your sisters will answer for what they have done.
Take care and know there are a lot of people sitting in this boat with you. Come here for help or just to vent. It doesn't necessarily change your situation, but it helps to know that other caregivers know exactly what you're talking about.
"Mom needs you to be with her on xx day from time - time because I have some business I must take care of. Pick her up early."
An option could be "Mom needs care assistance. I have looked into hiring someone and it would cost xx$. Your part of that is 1/3 xx$ unless you would rather do it yourself".
You haven't mentioned the type of care she requires. Does she have any special needs?
I do not regret taking sole care of my Mom for 22 years. My sister refused to help even when I begged, always an excuse. For the most part it was fine with me that she didn’t help because everything has to be her way. But after Mom died my sister left me with the debt of medical expenses and funeral expenses because Mom put us both as beneficiaries on her life insurance. I was fine with my sister getting half of the savings because that was Mom’s wishes. Make certain that you use your Mom’s money for her needs and let you sisters know that you are doing this. I would not have believed that my sister would have hurt me so bad at the worst time in my life. She still will not communicate with me and it is over a year. So please read in these blogs about protecting yourself. Get POA, get a caregiver’s contract. Your sisters may help if they know there will not be anything left. For me the debt was not the worst part, it was the deceit and manipulation. I still feel angry and hurt and sad that I lost my my Mom and only family at the same time.
Like many others posted the non-helpers we begged for help always had an excuse, sometimes valid but not always.
To me the message sent when your loved ones refused to help is that their life and schedule is more important than yours,
This caregiving role is exhausting. My mother died October 25 2021 so I am no longer caregiving but now we are trying to clean out 55 years of junk. My parents never threw out anything so it’s been quite a job.
my brother and I are trying to clean up a little at a time. He lives close to mom house but works full time and I have a long drive due to Los Angeles traffic. Only 70 miles from my home to moms but 2-3 hours drive each way. This all makes it hard to get much done but we are getting there. Our sibling helps with this as about as much as he did with caring for mom and dad. Which is not much.
I am unhappy not to get more help but I don’t feel any guilt because I always did my part to help out. Good luck.
you wrote:
"Like many others posted the non-helpers we begged for help always had an excuse"
exactly.
it's incredible how similar so many of our stories are.
by the way, i like the term "non-helpers".
:)
i'm going to start using that.
(i have 3 brothers)
next message i'll write to them...
dear brothers, i mean dear non-helpers,
---
actually, there are no more messages from me to them. i've pretty much kicked them out of my life.