My mother can see images if they are close and her hearing is almost gone. She can’t walk well and is confined to her LTC room. Thanks Covid. She relies on me for her sole entertainment. Even when she is allowed outside her room I’m not sure that will be enough for her. Most of the other residents have dementia or are non-verbal.
I've tried Alexa, magnifying glasses, sermons on the iPad but she can’t really work out how to use the devices and it’s a strain to hold the magnifier. I got an amplified phone but she still can’t hear and her hearing aids never seem to work. I’ve ordered a large print bible but what else is there?
When you say you provide your mother's sole entertainment, how do you do that? What sort of entertainment? And what sort of thing in addition to sermons, bible reading and so on used your mother to enjoy?
Also, there are fidget blankets available on Amazon. They have snaps, buttons, zippers and other things to just mess with while the blanket is on her lap.
The most important thing, though, is to try to get her functioning hearing aids. The isolation caused by being unable to hear is just awful, and with the correct hearing aids, could be minimized. Take her to a real audiologist and get her evaluated and fitted for good hearing aids.
My mom enjoyed the talking books, they mostly sent her ones from the YA section of the collection and that was OK because she didn't want sex or violence.
Music. By the very end when there was nothing else possible mom enjoyed music, if you load the ipod perhaps the aides could help her get it started.
Maybe a simpler remote for the TV,
https://www.amazon.com/dp/B01LY0FCQO?tag=aginginplaceorg-20&linkCode=ogi&th=1&psc=1
I'm coming back to add a rather discouraging thought; unfortunately sitting around waiting to die is very often what the last years are like even without a pandemic. While facility living can offer activities and companionship for some individuals in many cases the activities are too few and too banal and the friendships are transitory or completely nonexistent, especially for those with greater physical and/or cognitive deficits. It is what it is and unfortunately there are often no workable solutions.
I did take in an echo. All she had to do was say “Alexa play gospel music” or “daily sermon”. I also took in an iPad with one app-the bible. She is just not interested. Her expectation is that her kids will be there and do everything. But it’s just me.. even without the pandemic my brothers are not interested in seeing her. It’s understandable, she has always been pretty narcissistic. Incapable of true love and approval. As I am writing this I am thinking about my brothers advice to not let her suck the life out of me. “She will mess with your head”.
But...It’s my nature to go overboard in effort - but I honestly don’t expect my efforts to make her happy (?) just perhaps to alleviate any guilt. (Which begs the question-why do I have guilt?) maybe it’s more fear- LTC is a terrifying future. Not something I would wish on my worst enemy-even my mother. Which brings me full circle to providing her with as much creative outlet as I can. If she chooses not to use it then I am absolved of responsibility. But I am piling on her everything but the kitchen sink (=her kids 24/7 at her beck and call) when the kitchen sink is only thing she wants... hmm. Now I’m in a conundrum...
I’ve seen several discussions here about fiddle pads, I’m not using the right term probably, hopefully others will weigh in on that or you can do a search on past threads. May be called activity blankets.
They’re not for everyone, or you find the right kind for her, but they seem like a really cool idea. I tried to get my mother to handle various fuzzy toys and she wasn’t having any. :)
I got her a CD player that was made for people with cognitive issues (very simple to operate) and a variety of CDs, and a pair of headphones. When I put her in the headphones and started the music, she listened politely for a minute or so, then said "What are we doing?" LOL.
She also was not able to learn to operate the device or even remember it was there.
Every person with dementia is different, so it can take some doing to figure out what engages them.
They used to have the negative news on 24-7. NOW, "Alexa, Play Bing Crosby" and they adore hearing the music. Oddly enough, they never played music in my childhood or in later life, but right now, its been a life saver!
They've listened to all the oldies: Frank Sinatra, Bing Crosby, Englebert Humperdink, Perry Como, and more.
Often, my dad (dementia) needs to know when they died, or some other fact on the song they are singing. He knows he can ask Alexa: "Alexa, when did Bing Crosby Die?" He gets his answer, instead of bothering my mom for the next 20 minutes... and plays music again.
Here is a list of "crooners" from Wikipedia. Find her favs and start playing.
https://en.wikipedia.org/wiki/List_of_crooners
I pray this brings a sense of contentment and calm like it does for my parents!
Music (of all genres) is a big part of Alexa, but as Wendy wrote, questions come up and they can be answered.
My husband can play games (alone or with me or the caregiver).
Alexa - what is the question of the day? And, it keeps score for you.
There are lots of games - like Feel the Pressure. It starts with one question. The questions are usually multiply choice or true or false. The questions get harder as you go. You don't win a game until all ten questions are answered. Again, it keeps score for you. One can play individually or multiple people can play.
they gave my sister a light held magnify which helped, they gave her a watch that would tell her what time it was..
I know a blind man that had a computer that he just spoke to instead if typing anything..
My 96 yr old Dad only has a little sight in one eye and he is hard of hearing.
He too does not know how to use anything any more, even his Cell Phone.
If you have his phone on Speaker Phone then he's able to hear and talk on the phone.
You might try head phones for your mom to listen to music or for watching TV but you'd have to get the Caregivers to keep them charged.
You might buy your mom some modeling clay to play and make things with.
You might also try letting her make a necklace using oversized beads and plastic shoe lace size string.
Being in a Senior Home socks, especially at this time with covid.
Can she have a Roommate so at least she has someone to talk to?
You might consider hiring a Sitter to visit your mom a couple hours 2-3 times a week or as much as you can afford for companionship and they can talk and read to her, do her nails.
If it's allowed have her spend the weekend with you.
WI'll they let her have a pet visit?
Buy her a doll with ling hair that she can comb the hair and braid it.
Prayers
It is so difficult to help a sight impaired and hearing impaired person to enjoy life , I know from experience . I also know narcissist are the worst but I don't know your mum so I will simply address her physical issues :
Losing some of your senses must be a terrible and lonely affair , so like I do with Gilly , maybe if you make her environment rich in other ways she will feel better .
She can smell. How about a nice scent diffuser that changes scent ever so often . They're plug in and no danger to her . Some go into wall outlets directly and some are tabletop models .
My Gilly loves scented candles but he doesn't move much so they're no danger to him . A diffuser might work for your mom. What scent(s) would please her ?
Perfume or after bath creams might be nice .
She can touch, the fidget blanket is an excellent idea from a previous reply . Some have beads and zippers , Velcro badges etc .
Nice textured pillows and silky nightgown or pj sets . Just soft and comfortable clothing. Soft blankets and pillows . Velvet or faux fur .
Soff fluffy towels .
A nice fluffy rug under her feet.
Cosmetics or scented skin face cream to give her a beauty routine to adhere to .
She can taste . Treats and different flavours of cookies or cakes . Not sure if she can't have them but I know that food becomes very important to those who cannot see or hear . What are her meals like ? Can you have a " pizza day " or "fried chicken day "? Something to look foward to but again , not sure of her health concerns .
This one might seem crazy and please don't roast me but ...there are realistic robotic cat and puppy toys that purr, bark and move a bit like the real thing . She can't manage a pet but perhaps a facsimile will do .
There's a new one called Tombot, it's a puppy and sells for around $400 USD and you need to reserve your pup but it's worth a look at least ? You plug it in to charge at night and it has all day batteries they claim . Nuts sounding I know .
The cats , I've seen one called Ageless innovations Tabby cat on Roboshop selling for $ 109.89 USD. They're cute . (?)
They're really for anyone with memory issues but also loneliness so I suppose your mom qualifies as she needs something there to make her feel occupied.
That's all I can think of that doesn't require you to be there physically .
I know my list is kind of silly and I'm sorry if anything I've suggested is ridiculous but you have to try or at least consider anything at this point , right ?
Last on the list but first thing you should do , look after yourself .
I wish you good luck and self care.
L
Edit: I think they have over the ear headphones and other specialized headphones to use with a hearing aid. Probably not a good idea to use any Bluetooth headphones, because it could cause interference with the hearing aid.
You sound JUST LIKE ME!! My mother is 101, deaf (has lost 1 hearing aid during COVID lockdown along with her partial plate), blind, pretty bad dementia. It's been so many years that I've lived my life with concerns for Mother the dominating factor. At this age, she has lost interest in the Commission for the Blind's Talking Books. That was a huge help for years, though. If you haven't tried that yet, you should look into it. I wish I could give you other suggestions, but I am tapped out. There just is nothing left. I can't even go to her rooms in her assisted living facility due to COVID restrictions, and can only visit once a week in an assigned room for COVID visits. So...Mother just sits there in an old chair that used to be "Dad's chair", which she took with her to AL. Either that, or she just sleeps. And sleeps. And sleeps. The worries have consumed me completely over the years. There just are no more alternatives. I hope you have better luck than I.
Word Find puzzle books in large bold print may help. I also bought my mom an LED floor lamp with bright lights to help her read and do puzzles due to her declining vision from macular degeneration. Good luck!
Not sure how old your mom is. The portable phones work better when they are on speaker. My aunt, 92, uses her phone this way. Encourage her to write letters to friends. Maybe they will correspond with her and give her some entertainment.
My mother is 93, poor vision & hearing, and has Parkinson’s which causes her hands to tremor. She has hearing aids and I have them rechecked every 6 months since she continues to complain. But one thing I’ve realized is it’s not just hearing but processing that has caused trouble. She does hear, but it’s situational—when she’s tired or upset, she can’t process anything and interprets that as not hearing. Yet sometimes she can carry on a complete phone conversation if it’s someone very important to her. I know, though, that some of the processing may be impacted by the Parkinson’s. I do make a point to always speak loudly, slowly, and clearly—sometimes it works. I’ve gotten her very easy-to-use music players, headphones, wireless speaker I can crank up, and she has her favorite music on tapes & CDs—will not even let me play it for her.
She tells me she can’t see to read, but again, if someone sends her a text or link on her cell phone, she will read/watch. She has large-print books & Bible and Guidepost—just won’t make any effort.
I got her a big-screen TV, so she keeps news on all day (such a negative influence). She has all her favorite movies and movie collections on CD, but won’t let me play them for her—says she can’t stay awake. I assure her we can just restart from where she nodded off, but nope, won’t do it. She did, however, enjoy some Hallmark & Lifetime movies over the holidays, and even remembered how to record them.
She says she can’t smell or taste anything, so all the scented soaps & lotions have been a waste, yet she insists on bottled water because tap water “tastes bad,” and she complains about how terrible her meds taste. She asks me to buy certain foods that she’s hungry for but often complains how terrible it is not to taste anything.
I brought her into my home 11 months ago because we could no longer afford Assisted Living (although she continuously complained about that, too). She has always been a narcissist, done nothing for herself and always depended on her children to take care of her. Her needs have always come first and I can’t count the times she’s thrown her kids under the bus to get what she wanted. So I don’t expect her to be anything other than that now. I’ve found other ways to get my needs for love & acceptance met. Now I do for her what I am able to do because that speaks to who I am. I am kind to her, compassionate (what a lousy thing it must be to be as miserable as she is) and I know all of her responses to me are about who she is. I have always believed that as long as we are alive, we can grow and change, but it has to be a choice. She has not made that choice. It is sad to me, but I am not responsible for her emotional life. I am responsible for mine. I do what I can do—guilt has no place in my life. If we offer a parent a safe, healthy, loving environment and they are still bored or miserable, that’s their choice. It’s a cautionary tale that we won’t repeat when our children step up to help us.
"...I would like her to be able to do something to occupy her mind..."
"...Her expectation is that her kids will be there and do everything. But it’s just me..."
"...I am piling on her everything but the kitchen sink..."
You seem to be trying to live her life for her or at least live your life such that she is fulfilled. You say she's not intellectually curious and yet you want her to be.
Your brothers have established healthy boundaries because they perceive that she is an energy vampire. The amount of energy you are putting into a woman who seems content with sitting in a chair all day far exceeds the amount of relief you will feel if she engages in something for a few minutes. And then what? Start all over again trying to find something to occupy her time 7 days a week?
Technology has its limits. Even going back to basics - taste and smell - has its limits insofar as there is only so much food she can eat and fragrances she can smell at a time. I agree with those who have pointed out that you need to find balance in your life. And you are correct that you have nothing for which to feel guilty. It's a hard thing to accept the way some people are in old age.
You have to learn to adjust @ first. It highly magnified so much, you can can only see certain segments of a sentence @ a time. But if she likes to read, do puzzles fm paper, this is it. Took my mom a good chunk of time to not be too frustrated at first. It takes patience. But my mom loves to read. And, also, play Hoyle cards (computer DVD rom) on her computer. For hours. And reading things @ store; & recipes. She basically completely relies on it.
contact them at nlsbard.loc.gov
Just now I checked the internet, and it stated that the Alabama Institute for the Deaf and Blind will be built for both adults and children. This entry was made on November 24, 2020. Although you probably don't live in Alabama, there must be people who can guide you to know how to keep your mother interested in life through various media. Also there were entries on the following states for educational institutions: Utah, Arizona, Missouri and Montana. There may be others. Those educators who specialize in these kinds of materials are very special people, and I'm sure would be willing to share their ideas with you for your mother. I've been a caregiver for many years myself for my 89 year old husband, and have found it is necessary to do some necessary outreach from time to time. But once you get the right person, it's amazing how much help is available that you never knew existed! Hoping the above helps a tiny bit... Sometimes I think the word "triumph" is "try" with a lot of "oomph"... meaning
time doing research on the internet :).
blue tooth speaker for the neck or a small portable blue tooth speaker to improve the iPad and TV sound.
large piece puzzle apps for iPad
iPad to FaceTime family
build a simple family tree and use iPad to record her answers to questions about her family tree.
if she has a TV in her room with a large screen: DVD's of musicals; use the blue tooth speaker to pair with TV.
when available: sign her up to get her hair and nails done on a weekly basis.
The other idea is audio books. The Assisted Living facility that Mom was in did have some, but I am sure you would be willing to take in whatever you supply and help her set them up to listen to them. My Dad(dementia, Macular Degeneration, Parkinsons and heart failure), was never in Assisted Living - mom was caregiver., But he loved the Audio Books! It took very little time to set it up and he loved listening to them. Mom was also nearly deaf the last few years, but was able to listen with ear plugs (yes it took a bit to get her used to using them, but we finally made it).
You can find a huge variety on books for audio. In some places libraries will lend equipment and/or help with all that is needed.
You might find a site online, and use the Ipad as the source for her to listen to. Keep researching all kinds of deaf and blind organizations, you will be surprised what you can find.
Good luck. Stay safe and smile, you are doing you very best. Never doubt that!