We have a new member on board here at AgingCare, who asked another member a question: Why will you not care for your parents in your home? I think that is an EXCELLENT topic for discussion.
If you are willing to take your folks into your home to provide care for them, why are you willing to do it? What are the pros of that situation?
If you are unwilling to take your folks into your home to provide care for them, what is the reason for that unwillingness? What are the cons of that situation?
So my reasons would be that I am simply not that good a person. That I have limitations I recognize. That I find/have found it very difficult to live with rational and healthy people I chose to marry or to bear as children, let alone to be in care 24/7 of someone who is a danger to self or others if I am not right there, basically attached at the hip.
So human inadequacy? Selfishness? Limitations? Failure at Sainthood and sacrifice? I can leave the labeling to others. I don't much worry about the opinions others have of me. I know myself and I know I do the best I am able with what I have.
In my case it is a brother. It would not have been different had it been a parent, and I had possibly the best parents in the world.
I don't feel that we should have to put ourselves before the judgement of the rest of the world, and I don't feel we have any right whatsoever to judge another, or the rest of the world. I am fine if people feel better/feel they need to judge me. And that's about all I can say about it. As to the pros and cons of caring for someone in the home? I think the forum is pretty clear on that from 100s of members.
Great discussion question.
Take a look at the responses you will see here to this question, and then take your time making a decision. It's tough, I know. But do not let FOG guide you: Fear Obligation & Guilt.
There are many ways to 'care give'. The way I choose to do it is from my home, with mother living in her own place, with her own care givers, her own friends, her own entertainment, and her own staff of people to toilet her, shower her, change her soiled linens, do incontinence care and laundry.
As a result of that, I can maintain SOME level of a relationship with my mother as her daughter instead of her care giver, which wouldn't turn out well at ALL.
Also, personalities. My mom, and my INLAWS, when the only visit - expect that since they are the elders and we are still "children" in their eyes - that they call the shots. Major annoyances like how we raise our son. Minor annoyances like expecting us to clean up after them, cater to their meal times and preferences, their comments on how we dress, wear our hair, decorate our house, etc. After a few days we are counting the minutes until the visit is over - I cannot imagine coming home after a stressful day to more of this.
Not caring for them in my home is not pushing them out onto an ice floe. They are not comfortable using internet - I can and do help them fill out prescription forms online for RX mailing, understand bills, online bill pay. I will help them navigate finding care whether in home (theirs) or in assisted living. But I will chose what I take on and not have it dumped on me. Things that can be brought in and paid for (housecleaning, meals) i'll not take on just because they don't want to pay. But I will help with what they find frightening - like navigating insurance and Medicare.
by the way - they birthed and cared for you - yes, means that you will care for them, but it doesn't require that you care for them in your home, to the detriment of your sanity and your marriage. Have your spouse be the heavy if you cannot say "no" but if you know a situation is going to be horrible - why on earthy would you put yourself into that position? There ARE alternatives!!!
Any thoughts?
I will make certain that they are taken care of, safe and living in a nice facility.
It was up to my parents to plan for their senior years, not mine. Fortunately they both did a good job at that. In turn they expected me to do the same and I did.
Neither had any desire for me to live with them or to live with me.
The more I read here, I see that in many cases the child moves in with the parent because they cannot support themselves or they want to protect their inheritance. Unfortunately, these parents can live a very long time, and the child becomes a prisoner and at the end up with no inheritance anyway.
frankly, I visited a lot of nursing homes, etc. both my parents had visited a lot of homes when they had my grandma living with them. We all knew how simply awful they are. I promised my folks (just as they promised grandma before me) that they would never be placed in one as long as I could prevent it,
I admit that I didn’t foresee the dementia taking away the parents I knew, Sometimes it felt like all I was doing was tending to the bodies while wait till it was over. That was the hardest part. I was in mourning for the loss of my Mom for a year already before she passed.
for some people I can understand that their family circumstance (obligations and finances) make it impossible. But for me, that was a time I am glad I had with them...even though at the time, there were a lot of times I questioned my own sanity for doing it,
also, I should mention that they were financially well off and had insurance policies good enough to pay for caregivers to be in-home 4-6 hours a day...so the burden was not so heavy on me.
I think it's an 'act of love' to care for our parents in ANY way we choose to, frankly. It's when we ignore them or ditch them that it's not an 'act of love'. My mother is in memory care right now which is an excellent, privately owned place, and we already have an excellent nursing home picked out that she likes even better than the memory care, but it's not time for SNF yet. So, not 'all homes' are simply awful. Lots of them are simply wonderful.
Just sayin'.
She and I had often laughed about the fact that we never could, or WOULD, be able to live with each previous to her fall, and darned if she wasn’t absolutely right.
After 9 months, 2 of which involved me sleeping on the floor next to her bed, she entered a fine local SNF, and her last 5 1/2 years were spent there in peace and comfort. She was doted upon by the staff, and I visited every single day and her sisters visited every afternoon.
She came to live in my house because I loved her and hoped she’d respond better there than anywhere else. I found that that was not the case.
She entered the facility when I realized that even with full time help, it wasn’t possible to give her all she needed in my home.
1. She needs 24\7 round the clock care. Can’t even turn herself over in bed. Immobile & obese.
2. I will not buy a handicapped accessible van so I would never be able to leave the house without her. Have you priced those things??? If I did take her, a third person would still have to come along because I could not push a shopping cart & her wheelchair at the same time.
3. I still have kids at home. They, along with my husband are my 1st obligation & priority.
4. My home is very small & would have to undergo major renovations to be handicapped accessible.
I’ll just stop with those 4, but there’s more.
the main reason is that I refuse to move to their state. I have a husband and young children and it would be impossible and completely detrimental to our livelihoods if we packed up and moved to their state. They refuse to move back here too so....that is the main reason.
then there is again the fact that I have a husband and children. I honestly don’t believe that it is possible to take in elder parents who can no longer care for themselves without putting THEM before everyone else including yourself. I really don’t. And I am not willing to put my parents before my husband and children. Before myself? I don’t want to say I am willing to because I know in my heart I would. My husband and kids come before me, it’s just nAtural. But what I know I can’t and won’t do is put my parents before them. My kids play sports, have friends, we have friends. I won’t give up all of that so that my parents can live the rest of their days in my home or their home instead of a nursing home. We wouldn’t be able to balance it out if I was taking care of an elderly parent! They are both already at the point where physical activity is out of the question. We wouldn’t be able to bring them to very many places with us. And sorry not sorry but I’m not going to give up our hobbies and favorite family outings! We go hiking regularly, we all love it. My parents cannot hike, period. Moms breathing & overall physical health is too bad, she doesn’t have the strength. Neither does dad. There’s very few things we could do with them. I am not willing to give it all up. Nope.
Then...like Alva, I know my limitations. I’m not the most patient person. There’s no way in heck I could wait on them hand and foot, answering every beck and call. Doing literally everything for them. Compared to their cousins, my kids are very independent and that is probably due to my lack of patience, I let them do a lot of things on their own because I don’t have the patience to do it for them! Then there is the fact that I am absolutely worthless during an emergency. I’m seriously. I am not the person you want by your side during a medical emergency because I panic. I’m useless. When my son was 2 and ran in to a corner wall & busted his forehead open I was completely useless! Thank God my husband had taken the night off work and was home. I couldn’t even go in to the room after we heard the sickening thud and my son crying! I KNEW it was bad and flipped out! Then after hubby brought him in the kitchen and said he needed to go the ER, I thought “ok we need to put clean PJs on him” and then proceeded to run down the hall to the linen closet to get the clean PJs! We don’t keep clothes there LOL! I literally yelled out OMG what do I when I didn’t find PJs in there! So if my parents fell or had another health crisis that elders face, I couldn’t handle it. No way.
And personal care? Nope. Can’t do it. Won’t do it. I can hardly handle my own kids when they puke! No way I could handle a grown adult. And dealing with incontinence, toileting, blow outs, soiled clothing & sheets? HELL NO. No way could I change my parents diaper and wipe them clean. Nope. That is way beyond my limit. Nope nope nope.
I could keep going but I think I made my point. Some of us are just not cut out for giving and have too many other responsibilities as well.
She did move in with me at a later date and stayed nearly 15 years. At first It wasn’t so bad and I am not sure exactly how I felt about it. I guess the major feeling was that I felt like I should do it. I wanted to be there completely for her. I think I accepted it as my fate and blocked out my own desires.
My mother is a perfectionist and that was hard as a kid to deal with and just as hard as an adult to deal with. Rarely can a perfectionist be pleased. So that alone would stop me now. We don’t have the power to change anyone. We don’t want anyone to try and change us. So if we aren’t compatible, it won’t be a harmonious relationship. I learned to despise ‘passive aggressive’ behavior also. I can handle a disagreement but just be open and honest please. I hate that she couldn’t do that. Just be direct.
On a practical level it is nearly impossible to meet all of the medical needs. It’s exhausting!
All privacy is lost. So it puts a strain on a marriage and children. When conflicts arise it effects everyone in the home.
Anyone can live with small changes.
Little things change, if a parent can’t have spicy food or salt in their diet, cooking has to be modified for them. Ramps built for walkers and so on.
I became resentful because as the ‘only daughter’ I was expected to be the primary caregiver and mom and siblings constantly criticized. Mom was also good at pitting us against each other. She hated if I set boundaries with her. That was her ‘payback’ to me.
It changes a relationship if someone is living with you. If you don’t live with them you can go back home and take a break in peace but if they live with you then you are stuck!
I remember years ago Dear Abby or Ann Landers asked a question if people would marry and have kids again. An astonishing amount of people said they would not, interesting huh? Same with caregiving. No one really knows how badly it can turn out until it happens to them. Just like how a marriage can lead to a divorce.
I haven’t been divorced so I don’t know first hand how painful that is. I can only imagine it is a horrendous disappointment and possibly long awaited relief of a failed relationship.
That is how I feel with my mom no longer living with me. My brother and SIL have her temporarily until she is placed somewhere. Am I coping? As best as I can? Painful memories? You bet. Relationship now? None. Will that change? Who knows? Doubt it. Relationship with siblings? None. Will that change? No, I tried for too long. I do not nor will I ever have the power to change anyone. I’m done. The kindest thing they could ever do is to just let me live in peace for the remaining years of my life. Do I hate anyone? Gosh, I don’t want to harbor hatred. So, no. I can be disappointed in past occurrences but life is too short to spend time hating and being miserable. Were there good times as well? Yes, good times too.
My birthday is coming up so maybe I am being a bit more sentimental.
Am I glad my caregiver days in my home are over. Indeed I am but I am also grieving for a painful ending. Don’t know if anyone understands how that feels but it’s where I am at the moment. Almost like a death without closure.
I am grateful to all who helped me see the light at the end of the tunnel.
I wanted her with me.I knew we were so lucky to still be together,after she came so close to leaving me 9 and a half years before she did.Just a half of an inch and I'd have lost her then,so everyday was gravy.
Sure,we had alot of rough days,but we got through each one together and she taught me alot about strength and fighting to live,what mattered and what didn't and about facing things with grace.
I received some great gifts through those years taking care of Mom and I'd do it all again in a heartbeat.
I am so happy that your overall experience was positive.
Dad always said he does not want to burden his children and has the means to live comfortably in whichever facility that will meet his needs. Mom fully expects her children to take care of her.....in her home for the remainder of her days. No, no and no. Currently we are biding our time until the need arises for placement in AL (which is probably in the not so distant future). She will kick, fight, and scream all the way, but neither my sister nor I have the patience, the time (we both have our own immediate family commitments) or the stamina to do this. Mom has lived a charmed life and has much to be grateful for.......she chose to be selfish, manipulative, and miserable towards her daughters. A sad commentary for a life that had the potential to be so joyful. You reap what you sow, but you also learn from the mistakes of others. My glass is and always will be half full.
My brother, who does nothing for her, never has, is the great white hope, perfect in every respect.
She expected me to do everything for her, my brother nothing'
I had enough, I let her go.
I was usually always tense and stressed after being with her. I became very resentful that my time wasn't valued at all, that nothing was expected on the part of my brothers (they weren't local), and that I supposedly OWED her. I can't imagine if she'd moved in to my house!
Nearly 5 years ago now she had some muscle strains and became nearly helpless, so I spent 8 days and nights in her condo. It was awful. She was obsessive about how every.little.thing was done. That was the last time I did any hands-on care for her. When she started only showering 1x/week because it was hard to climb into and out of the tub (even with things to help that we installed), I did not offer to be her shower monitor. She could have hired someone, and she chose not to.
Why not? Too much abuse from both of them in the past. I may be able to forgive, but I do not forget, nor have either of them changed. The details do not matter, although I have written some of them in other posts. I have developed a spine and very firm boundaries and I refuse to allow them to cause me more pain.
On the other hand, my brother has Dad live in his basement suite most of the year. He and Dad get along, mostly because my brother is male and never challenges Dad. Me, I stand up for my rights and what I feel is right.
There are no cons for me is not providing hands on care. If my parents have cons, that is their problem.
I should add, I am in BC Canada, and although there are waiting lists for residential care, publicly funded beds are available and costs a persons pension. Similar to Medicaid in the US, but without the spend down factor. Yes we have private facilities with the high costs often mentioned here, but there are affordable alternatives.
Being cared for in a private home can be very isolating and unstimulating for seniors (a sterile environment) especially if it is just them and a single caregiver. A care facility that is in close proximity where the family can visit for as much as they want and then leave seems to be the ideal arrangement. This is, of course, assuming that the LO is in a trustworthy place.
Often, well-meaning people commit to caregiving without really understanding what they are signing up for. No one can ever fully imagine how physically, emotionally, financially and relationally draining it will probably be. This forum has been extremely instructional to me. As an only child to a (challenging) single parent, I've made known to her what my limits will be and she understands and agrees. I've also already "released" my sons of ever even considering this for me and my husband. I'm unwilling to do it and unwilling to have my children to do it for me.
No matter how sick Mother was,we always went to her Art group and Bridge Club and PEO luncheons and ofcourse the beauty shop and many days we went shopping or out to eat or had a picnic lunch in the park,or went to the library or Barnes and Noble,etc.
My Uncle,her faithful brother visited every day and brought Mother and I special treats he cooked or flowers from his garden.A lady from Mother's Hospice came 3 times a week and gave Mom backrubs and we fed the birds and walked around the block everyday.Some days I wheeled Mother through the house and we explored and she told me about things and every Halloween,I dressed Mother up in her Lady GaGa costume and we answered the door together and gave out the cupcakes we had made the night before .We celebrated all the holidays and decorated had some great times &.Sometimes we put on the TV and went to You Tube and I put in her favorite songs and we listened to those and even sang together,we did lots of things so Mother and I kept busy and made alot of wonderful memories together&.She did much better at home in her comfort zone and she certainly wasn't bored&.Along with her oxygen and breathing treatments, in a wheelchair and everything else,we continued to live the best we could.
Mother did alot better at home than she would have in a NH,I'm sure.
When there I have no privacy until I go to bed. She wants to know what time I will arrive from work if I am going to be late, who I am with, where I am going, etc. I know she enjoys having me there in the evenings for the evening meal. On weekends I go to my own house and look forward to having that little bit of time to myself, see my own kids, grand-kids, friends, etc. If I take a vacation (which I am next week and which are my goals for 2020 and 2021) she doesn't like it. I have two living brothers, one of whom is mentally ill and unable to help. He wouldn't anyway even if he was not sick. My other brother ignores her most of the time (maybe has her for dinner once a month) but for her the sun rises and sets with him. Tired of that too. Unequal treatment, unequal responsibilities. She's always going on about how busy he and his wife are with their business, house, etc. Am I'm not?
Having said all that and done this now for 3-1/2 years, I can say unequivocally that I will not move her into my home to care for her when I retire in two years. She will sell her house and that money will pay for AL. She has had her life. I want to have mine. When her parents were old and sick she did very little for them and refused to take in her dad at the end of his life.
I have told my adult children that I am not interested in living with them if/when the time comes that I cannot care for myself. I don't want to spend their inheritance, but I don't want to live with them either.
Stigma: If a woman does work outside the home.
One is NOT better than the other.
Try not to exploit your differences.
Be kind.
Question though? Did anyone while at home wish that they were working at a ‘paying job’ and what about those with ‘outside paying jobs’, ever wish that you were home even if it meant sacrificing a paycheck? Such a controversial topic, isn’t it? Comes down to choice. One isn’t better than the other as sendhelp has stated so well.
So many of us caved into guilt. Even against our own desires, our own better judgment, knowing deep down in our souls that it’s not a good idea. We still do it out of obligation. Hate to call it dumb, but what else is it? Confused maybe? VERY confused! Brainwashed from a child.
My parents-in-law, however, are both frail but very much alive.
They, along with all 3 children, plus me as daughter-in-law, agreed many years ago that - as much as we genuinely love each other - there is no bloomin' way our collective personalities could *ever* allow our generations to blend households.
They did resist leaving their home, long after it became untenable. At one point my local SIL lived at their place for a few months, but she HAD to move after a while (to no one's surprise or disapproval).
Parents-in-law finally saw the light after too many ER visits (not life-threatening, but worrisome). They now reside in Independent Living. The facility also offers Assisted Living (on several levels) and Memory Care.
It was only the natural thing to do: having them move in. They took care of me when I was a child. I took care of them when they needed the help.
Circle of Life.