I am an only child and take care of parents in my home. Mother has mobility issues. I have written before about her complaints and my reaction to them. I dread going into her room in the morning because she always greets me with a list of complaints. I have tried not to engage with her. My first reaction is to feel guilty and to try to explain or fix whatever was wrong. Big mistake! For example this morning she said there was no water on the table. I pointed out that there is a full container of water on her table, but she says she can't use that container because it is not the right color. This is a new development because I didn't know that a container's color mattered. When I offer a solution she says I am complaining. She talks down to me and uses my full given name rather than my nickname. Then she says I should try to lie in her bed and see how I like it. To me it sounds like she is wishing me ill. I feel that she doesn't like me since I have been involved with her care. We had a fairly good relationship before her illness. She has not been diagnosed with dementia but I think with all the medication that she takes her personality has certainly changed. How can I protect myself from taking everything she says so personally. I know it is affecting my health and I am beginning to not like being around her.
This to me is a clear case of biting the hand that feeds her. She does it because she knows she can get away with it. She controls you because you're the one thing left that she can control.
There's no need to respond to her complaints, except if you want to point out that her complaints are baseless and counterproductive. If I heard the complaint about the color of the water pitcher, I'd tell her "If you don't like the pitcher, don't drink the water." When we were kids, my mother would tell us "Drink it or wear it." You can make the same point without going to that extreme. Basically, like it or leave it. Stop offering solutions. She can drink the water or not drink it. She's lucky to have a daughter who provides her with a bed in her own home with a container of water next to it. She needs to see that. Or not. But you need to see it, at least.
Really?
Could you describe it a bit, if you'd like to?
The thing is. It isn't obvious to me that when a person you love and get on with well is crabby for reasons you can perfectly understand, you feel personal culpability for everything that cross, unhappy person then finds fault with.
You can be sorry she's bed bound. You can be sorry she's rattling with medication. You can be sorry that she's feeling ill, frightened, frustrated, just plain sorry for herself even. All of those are legitimate grievances, to which the appropriate response is "oh dear, poor old you" and a hug.
But to start feeling that YOU are her problem, or that God forbid she's so envious of your youth and health that she's actually ill-wishing her own daughter...
That's... not a rational or even a common response.
So. I wonder. What was your "good" relationship built on?
My "pretty good relationship" with my mom was based on very limited exposure. I was able to hold it together and be sweet and nice for about an hour. Tops. After that, her politics, her illogic
( before dementia) and her way of thinking drove me mad. If I'd had to live with her or vice versa, I would have considered suicide or homelessness preferable.
Get her seen by her doctor. Get a needs assessment from your local Area Agency on Aging.
And if she starts to complain, try saying brightly "Oh I'll come back when you're in a better frame of mind"
BarbBrooklyn, before parents moved from Queens, New York, I saw them a couple of times a year. Always pleasant visits, but living now with people 24/7 that I haven't lived with in more than 30 years has been a major adjustment. Maybe I can never adjust because we are just too different. I do appreciate the questions because I can delve deeper into what is causing me to have such a strong reaction of my mother.
While your mother is still a person, she isn't the person she was. It does sound like she has dementia, but even if the change is "just" from losing her independence and being bedbound, the change is real.
Have you ever had a time in your life when your reactions were not "you"? I know that I am having a depressive episode when I am not "me." Several years ago I cried on the phone with my boss, and I snapped at a coworker I liked a lot. Definitely "not me" behavior. I made a psychiatric appointment. Also when I was in the hospital for an emergency I was clearly not in my right mind for several days. I apologized to a few people when I got well!
So I am not surprised that your poor mom, with her medical issues, loss of independence, and mobility problems isn't fully herself. And if she has dementia, there is serious physical damage in her brain. I think if she had been narcissistic all your life you would know it! More likely she is self-centered now because of her circumstances. But look up narcissism and see what you think.
Could you be a little over-sensitive from all these negatives of your mother's? For example "try to lie in my bed and see how you like it" I take to be similar to the often-used expression, "try walking in my shoes for a mile." I don't take it that she wants you to be sick, but that she wants you sympathize with what she is going through. Maybe a response like this is appropriate: "Mom, I can't even imagine what you have to cope with. You are doing amazing! I hope I can be as strong as you are if I ever do lie in a similar bed!" Acknowledge her feelings. Express sympathy and admiration.
For the water container comment I'm not sure I could keep from laughing out loud, but I would prefer to take it in stride as if it were a perfectly normal comment. "Oh. I'm sorry about that. Are there other colors you can't drink from? I'll put them on a sticky note by the sink so I can remember that. My memory isn't getting any younger!"
How can you stop taking things so personally? Remember that your mother now has some personality defects. She didn't ask for them and if she could really have an objective view of herself she'd probably be appalled.
Would you consider getting some counseling to help you cope with this very challenging situation? It is sad to dread seeing your mother every morning!
Mom: Have an apple.
Me: I don't WANT an apple!
Mom: Well, I guess you're not hungry then.
The pitcher thing made me laugh too, for this reason.
I haven't lived in the same town as my mother since I was 15 (I went to live with my father). Now that I'm staying with her and being her caregiver, I feel like I didn't know who she really is at all. And I love her, but I don't really like who she is very much!
You have to be pretty thick-skinned to be a caregiver, I think, whether that person has dementia or a personality disorder or is just cranky from pain, health problems, and declining independence. And you have to be really good at boundaries. If you're determined to keep your mom at home and out of a facility, I strongly urge you to get some counseling. That's going to be the thing you need to toughen up your skin and to become more able to set your boundaries with your mom.
The other thing that helps me a lot is this forum. This is one of the few safe places you will ever have to vent whatever you need to vent, and know that you'll find a lot of folks who've been through the same thing. Keep coming back! If you don't get it out SOMEWHERE, it will eat you up inside.
Also, as others have suggested elsewhere, look up "Fear Obligation and Guilt (FOG)" online. Lots of it is geared around dealing with dysfunction like personality disorders, mental illness, etc., but I think you'll find some helpful stuff out there.
How you respond will help you not take it personally.
Look up Narcissistic Personality Disorder. Don't attribute her behavior to Dementia, unless diagnosed as such by a professional.
When dealing with someone who has NPD, the worst thing you can do (although understandable) is to get defensive and explain your actions. Giving a rational basis for your actions only fuels her aggression; it is one symptom of NPD. Try being as "stoic" as possible, and resist the urge to respond. WARNING: this is very difficult, and requires constant vigilance...especially when your guard is down.
I have been dealing with the same situation as you, and made every mistake in the book. Age and the guise of Dementia can be an excuse for an underlying personality disorder which has been written off as being "critical", "cranky", or "opinionated". Look back at your relationship, and try to recall if there was a pattern of verbal or emotional abuse.
NPD is one of the most prevalent, if not undiagnosed, disorders there are...Google NPD, and you might find similar dynamics as your own experiences.
Chat back if you'd like; I have a large resource for this disorder.
Good luck!
I will admit that once, when my mom was at the stage yours is, I calmly said, "mom, I love you and want to take care of you, but if you feel I am doing such a poor job at it, we can go look at nursing homes." She was quiet for a bit... Then said she loved me. It only lasted about a day, then she forgot all about it again. Lol
After my stepfather passed away in 2011 and because of my own circumstances, I moved to the same city as my mom. That’s when I noticed the phobias and paranoia. For instance, she would not take her meds if she thought they were “old” - not expired, but more than a week sitting on her counter or in her bathroom cabinet. It could be anything - shampoo or body lotion. Same with food. I could not get her to understand expiration dates. It didn’t change her mind. Then I noticed she was spending all her money, which she had little of. She went every single day and got fast food for lunch. She would go to the store and buy two things and two days later do the same thing. She would write a check for cash of $100, and could/would not tell me what it was for. This, of course, was causing a shortage in her bank account where she would have to pay her bills late. I took over paying her bills (online), but she fought having me on her bank account.
I finally put my foot down and retained a POA, took away her checkbook and debit card and had my name added to her checking account.
Her health deteriorated by her own hand and she started falling. I had meals delivered to her so she would have at least one good meal a day. They would pile up in the fridge because she “got tired of them”. They would end up being thrown away, most likely because after two days they were “old”. So I stopped that service so someone else could benefit.
Mom has dementia, but I am convinced has some psychological issues as well. She would rather lie than tell the truth. She cuts up her clothes. Instead of asking me to get her something else or hem up her pants, she will just cut them off. Or if something is dirty, she will cut up a perfectly good blouse to sleep in. We have now hidden all the scissors in the house and the sharp knives.
She refuses to bathe herself and when I force her to have me do it, she complains the whole time. It’s like she has an aversion to water. God forbid I put lotion on her. She goes to her room and wipes it off.
At this point, my mom is still fairly mobile with a walker. When she doesn’t want to do something - like it’s bath day - she pretends to be sick or not feel well. It happens every. single. time. Sometimes I call her bluff and tell her that I need to take her to the doctor if she is sick all the time. Then she says “I’m not going to the doctor!”
She lives with my husband and me now and just after four months of this (and much more) I’m about to pull my hair out. I do the minimum to take care of her: feed and clothe and provide a place to stay. Other than that, I don’t like my mother anymore and it’s hard for me to be around her for more than 5 minutes.
I go through things with Mom where she will give me a hard time about doing something -- like trying to change her clothes. She gets mad, holds on to her shirt with a strength I didn't know she had (even when she can't walk). I can't even pry her fingers off of it. I look her in the eye and tell her that I am trying to help her. It doesn't work, though. I end up getting frustrated; and like last night, let her sleep in her sweatshirt and depends. It would be nice if she'd just appreciated my helping her. But, she doesn't fully understand (or maybe she does... I don't know). I can say that my mom, while I didn't see it too often growing up, she did have a way about her where she would tell someone to "go scratch" (as she used to say -- I was never sure what that meant :-)). So, I am thinking this is part of her personality. I fear, though, that we will end up not liking each other...
Is it at all possible to find her an assisted living or nursing home where she’ll be cared for and you get some peace?
Repeatedly on this site it’s explained how this happens financially.
Also have her assessed for mental competency. First and foremost do this. You’ll know where you all stand.
And don’t dwell on conversations nor overthink WHY she acts that way. She’s destroying your sanity and the only one who can save you is you.
Become educated on all the different solutions to both your problems. She needs a new home.
Really??!
Wow. A little harsh. I get what is behind what was said there, but the reality is it IS a very common response. While not entirely rational - particularly as seen through the lens of understanding dementia - that is unfortunately the pitfall of caregiving for a family member or anyone you have had a long-term relationship with.
A little more compassion and a little less judgment here, folks. Please.
Demstress, you should definitely look into the (ir)rationality aspect and coach yourself on some self-preservation techniques and responses. But considering the load you are carrying, I don't think you need to take time out to analyze your past relationship with your mom. Not really going to help the current situation because that mom is not really the one you are caring for now.
FWIW, I've been doing this for over 5 years and I still have occasional bad days when I take things waaaaay too personally. I know better, but I am human - and this vocation can be heart-breaking and soul-crushing.
Best wishes, hugs, and prayers for you - and everyone on this site!