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VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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"Background Capgras syndrome is characterized by a delusional belief that a person has been replaced by an imposter. It has been described in psychiatric and neurological (neurodegenerative and nonneurodegenerative) diseases."
"Capgras is a symptom that is as painful for the person with dementia to experience as it is for their family to see happening. Understand that Capgras and other symptoms, such as hallucinations, other delusions, anxiety, and depression, are symptoms due to brain changes and not how the person truly feels.Jul 20, 2016"
To be honest, this is a normal thing with people suffering from a Dementia which is a neurological disorder. How it develops? Probably has to do with how the Dementia progresses because the brain literally dies. Hopefully another member has experienced this.
My husband suffered from Capgras syndrome. He had mixed dementia/question of Alzheimer’s and I was the perceived impostor. It was extremely difficult for both him and for me and the matter what I said or did he never believed that I was his wife . He thought there were two of us and we were identical and one was his wife and one was his girlfriend. At times he would stand up and say I have to get home my wife is going to be looking for me and I’m so ashamed that I’ve been with you. You can imagine how that made me feel but then I had to keep remembering that it was his brain that was broken and not some thing that he had done in his past or that I did. At one point when I was taking him for a drive to the shore, he tried to jump from a moving car to get away from me because he thought that guy, his ex girlfriend was holding him hostage and he needed to return to his wife. The heartbreak was unending and finally I could no longer keep him home because he was trying to leave constantly day and night to return to his beloved wife whom he adored. We were married for 53 years we were high school sweethearts, and he was the love of my life as well, and he was never untrue to me and always a gentleman and very loving and considerate. This broke my heart as I could see his anxiety around this issue. He just passed away two months ago and although I know that he’s at peace now, I miss him every moment of every day, and I miss being able to go to the veterans hospital to see him and just hold his hand, or just give him a kiss. God bless you and good luck this is a horrible disease. Please consider donations to the Harvard brain and tissue donation research program. You can Google it online. We need so much more research on this topic to be able to protect our children and grandchildren if they should develop this in the future. Much love💜💜
MIL had/has (comes and goes in waves) it. She has time warps/replays that are also part of the symptoms. She is sometimes very aggressive when a wave is at its worst.
There is no "normal course" for Capgras. It is totally unpredictable. If you haven't contacted your LO's doctor, do so immediately. Capgras makes even the darkest parts of caregiving even more difficult. The caregiver burden is greater with CS. Get outside help as soon as possible.
From healthline.com:
"Caring for someone with CS can be emotionally demanding, especially if you’re the one they perceive as an imposter. To help someone with CS, here are some strategies to try:
Enter their realm of reality when possible. It can help if you try to understand how terrifying it must be. Avoid arguing with them or trying to correct them. Help them feel safe. If you’re unsure what to do, you can ask the person what they need or talk with a healthcare professional. Acknowledge their feelings. If possible, have the “imposter” leave the room. If this is you and you’re the caregiver, let someone else take over until the episode is over. Rely on sound. If you know someone is prone to CS, you can make sure the first way they register your appearance is with sound. Greet them out loud before you see them when possible."
While none of the above worked for MIL hopefully, some of it will for you!
I’m not sure by normal course of development if you mean how did they get it or what happens next? I think there is some agreement that brain damage is what causes it. But the symptoms can be varied as different parts of the brain are affected. I don’t read where there is much a doctor can treat besides the symptoms that are a result of having so much confusion in ones life.
My FIL had a form of the Capgrass delusion syndrome. His was the Reduplicative paramnesia. He thought he had two homes that were exactly alike, furnished alike etc. He had a bad fall that resulted in a brain injury. He seemed to have a full recovery after months in a hospital ICU and then rehab. This issue of the two homes didn’t show up for several years, after he had another fall that necessitated a hip replacement. Nine years after the first fall, he fell again and died.
Here is a link to the help topic on Capgrass on this forum. You might find it and the comments left by posters helpful.
Also Wikipedia has a good article on Capgrass and the other delusions that are caused by brain injury.
Additionally, you can use the search symbol (magnifying glass) on this forum and search for Capgrass and you will see many other threads on Capgrass. It sometimes helps to know you are not alone.
I am sorry you and your wife are having to deal with this.
Your comment... "Also Wikipedia has a good article on Capgrass and the other delusions that are caused by brain injury."
Please NEVER use Wikipedia as a resource for Medical Questions. Wikipedia authors are not experts. Reading Wikipedia is the same as reading comments here... opinions based on our personal experience or what we have heard (which is not a bad thing) but not based on years of research experience.
Always look for medical websites such as NIH, Mayo, Universities or Hospitals that are doing research etc.
Otherwise, you may be reading opinions rather than facts from experts. Anytime I have shared something I learned on the internet, providers assumed it came from Wikipedia and I had to quote my source or the discussion ended right there. In fact, anytime you plan to share something from the internet with your provider it helps to show them a printed copy so they will see it came from a reliable website.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
"Capgras is a symptom that is as painful for the person with dementia to experience as it is for their family to see happening. Understand that Capgras and other symptoms, such as hallucinations, other delusions, anxiety, and depression, are symptoms due to brain changes and not how the person truly feels.Jul 20, 2016"
To be honest, this is a normal thing with people suffering from a Dementia which is a neurological disorder. How it develops? Probably has to do with how the Dementia progresses because the brain literally dies. Hopefully another member has experienced this.
https://jamanetwork.com/journals/jamaneurology/fullarticle/794900
MIL had/has (comes and goes in waves) it.
She has time warps/replays that are also part of the symptoms.
She is sometimes very aggressive when a wave is at its worst.
There is no "normal course" for Capgras. It is totally unpredictable. If you haven't contacted your LO's doctor, do so immediately. Capgras makes even the darkest parts of caregiving even more difficult. The caregiver burden is greater with CS. Get outside help as soon as possible.
From healthline.com:
"Caring for someone with CS can be emotionally demanding, especially if you’re the one they perceive as an imposter. To help someone with CS, here are some strategies to try:
Enter their realm of reality when possible. It can help if you try to understand how terrifying it must be.
Avoid arguing with them or trying to correct them.
Help them feel safe. If you’re unsure what to do, you can ask the person what they need or talk with a healthcare professional.
Acknowledge their feelings.
If possible, have the “imposter” leave the room. If this is you and you’re the caregiver, let someone else take over until the episode is over.
Rely on sound. If you know someone is prone to CS, you can make sure the first way they register your appearance is with sound. Greet them out loud before you see them when possible."
While none of the above worked for MIL hopefully, some of it will for you!
Other great information:
https://parkinsonsdisease.net/clinical/capgras-tips-for-caregivers
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4004517/
https://www.google.com/search?client=firefox-b-1-d&q=capgras+and+caregiving
But the symptoms can be varied as different parts of the brain are affected. I don’t read where there is much a doctor can treat besides the symptoms that are a result of having so much confusion in ones life.
My FIL had a form of the Capgrass delusion syndrome. His was the Reduplicative paramnesia. He thought he had two homes that were exactly alike, furnished alike etc. He had a bad fall that resulted in a brain injury. He seemed to have a full recovery after months in a hospital ICU and then rehab. This issue of the two homes didn’t show up for several years, after he had another fall that necessitated a hip replacement. Nine years after the first fall, he fell again and died.
Here is a link to the help topic on Capgrass on this forum. You might find it and the comments left by posters helpful.
https://www.agingcare.com/articles/caring-for-a-loved-one-with-capgras-syndrome-197688.htm
Also Wikipedia has a good article on Capgrass and the other delusions that are caused by brain injury.
Additionally, you can use the search symbol (magnifying glass) on this forum and search for Capgrass and you will see many other threads on Capgrass. It sometimes helps to know you are not alone.
I am sorry you and your wife are having to deal with this.
Please NEVER use Wikipedia as a resource for Medical Questions. Wikipedia authors are not experts. Reading Wikipedia is the same as reading comments here... opinions based on our personal experience or what we have heard (which is not a bad thing) but not based on years of research experience.
Always look for medical websites such as NIH, Mayo, Universities or Hospitals that are doing research etc.
Otherwise, you may be reading opinions rather than facts from experts. Anytime I have shared something I learned on the internet, providers assumed it came from Wikipedia and I had to quote my source or the discussion ended right there. In fact, anytime you plan to share something from the internet with your provider it helps to show them a printed copy so they will see it came from a reliable website.