While reading all your excellent answers, I keep seeing “Medicaid Waiver” mentioned. I was wondering if someone could explain what it is and how to qualify for one. We spend a small fortune on hubby’s home care supplies, large and small, with no help, including incontinence supplies. A small fortune we don’t have. TIA for your answers.
Waivers are why you hear that a just few states Medicaid readily pay for AL, but most states don’t pay AL at all. Skilled nursing care (aka a NH) is dedicated funding from the feds to the states as there is public law requiring those funds to be there to provide NH care, BUT AL is paid via a waiver with $ coming from a limited % of dedicated funds taken for the waiver. The states have to pony up the $ to fill in whatever the federal waiver $ doesn’t pay. States can very narrowly define eligibility for waivers.
The trend right now is to move from any waiver that is 1-on-1 like AL or at-home services to a PACE type of community based care where they go 2 -4 times a week 6-7 hrs for health care oversight, medication management, meals, activities. The one by us also provides transportation, gives out all sorts of tie-in’s, from energy efficient light bulbs to incontinent supplies and weekend ready meals to go. You do need to be a “dual” aka your on both Medicare & Medicaid as funding needs both payment streams to work. I’d try to find out if PaCE exists for you & hubs. The local Area on Aging should have info on what programs are out there. Good luck.
From a planning perspective waivers are hard to deal with as so much uncertainty for smaller providers, vendors, for families.
It looks like you might need to apply for the Home Care Waiver. It sounds a lot like Colorado's Elderly, Blind, and Disabled Waiver that my Mom received. In our case, and it looks like yours too, we had to apply for Medicaid and concurrently we applied for the waiver. The waiver is run by a gatekeeping company in Colorado, so we have to go through them for anything related to the waiver. We went through the department of human services in our county for Medicaid. For medicaid, we had to have less than $2000 in assets to be eligible. Since my husband and I had been paying for my mom's care for several months, ie, taking no rent or money for food, etc., she had over $7000 accumulated in her checking account. Luckily we had saved receipts, so we just submitted those receipts and had a check cut to us, and that along with receipts from my brother who had been taking care of her prior to us, brought her account down to the required less than $2000. So with a current bank statement that said her account was below the max, and info on all her other assets, like life insurance, burial insurance, pension plans, social security, etc. She ended up qualifying.
While all that was going on, (getting the info to the county rep) we had someone from the gatekeeping company stop by the house and interview my mother and myself to determine "need". From that interview she could see that my mom needed the waiver.
Basically from start to finish was 45 days or so. Maybe closer to 2 months. Now the waiver pays for aids to come in the house 11 hours a day, at no charge to my mom. It was paying for her to go to adult day care, but she stopped being able to do that because she became a 2 person transfer for a while.
The thing now is we HAVE to charge her rent and a fee for her groceries, etc, or her account will go up over $2000, since she gets $1800 a month in social security and pension. Basically she has to spend all her money each month or she will not be eligible for medicaid anymore and then no waiver.
So that's sort of good news, in that she can get now anything that tickles her fancy or that we think will help in her care.
The waiver is supposed to take care of home modifications too, but it is a huge hassle because they will only do it as a last resort, so we have to prove that we asked the city to do the stair lift and that they refused and THEN the gatekeeping company will send out contractors to bid on the job and THEN they will award the job to a company and THEN we have to wait for them to schedule to get it done. SIGH.
Anyway, hope this helps a little with the steps, from someone who has done the medicaid thing with help from my sister and husband.
We are not asking for the world. Help with his DME rental, help with incontinence supplies, maybe a way to get meds cheaper. I don’t hold out much hope for help, but if help is available, I’d like to know. Thanks again!
You really need to employ anyone to help you qualify. You just contact the dept. of Social services, apply for Medicaid, and tell tehm you want o apply for the Medicaid Waiver for in home long term care. If you qualify for Medicaid, they will then send out a Nurse and Social worker to do a preliminary assessment of needs, and they will determine if the patient qualifies for the Medicaid waiver. If they do then they will explain teh next steps for your state. Either their will ask you to pick a facilitator who will then be the go between patient and bodies that handle the approval of number of hours patient is qualified to obtain, etc.
You never have to pay anyone to help you through this process. So please double check why these people wna to charge you for something that is avaiable for no cost to you.
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