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Mom is 80, in memory care facility. She has unspecified dementia, more akin to vascular or lewy bodies than Alzheimer’s. She has okay days and bad days. On okay days, she complains that she can't see well with her 4-year-old prescription eyeglasses. She also seems to have the condition where she misidentifies objects. She says "Please take me to get new glasses and I want sunglasses too."
Today I showed up and said "let's go get those new glasses." (I had made the appointment 2 months ago, the soonest available in this area.) Well, today happened to be a very bad day for mom. She was yelling and ultra delusional, talking to people in her head and insisting I talk to them also. She ranted that she was supposed to go move into her aunt's house on the water (she had packed clothes and notebooks into a bag) and she was NOT going to the doctor, it was all a trick and I needed to shut up and quit doing drugs.Then she went out in the hall and started fussing at other memory care visitors for walking past her room.
Two days ago we had a fairly lovely visit and she was somewhat normal-ish. She walked around a department store smiling and enjoyed some ice cream.
I can't take a yelling cursing woman into a family eye clinic, even if I could lift her.It's too bad they can't bring all that heavy eye exam equipment into senior care homes. She really does need better lenses.

Have you asked her facility if there is an optometrist who comes onsite? Some do schedule them and have residents sign up, but it might be only a few times a year so may not have happened yet since you've been there.
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Reply to MG8522
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Yes you should stop making appointments, and just buy your mom several pairs of different strength reading glasses and have her try them on and tell you which ones she can see better out of. They won't be perfect but they're better than nothing. And then take the other ones back.
Your mom would not do well trying to read the signs at the optometrists office anyway, so quit stressing over this issue and go buy her some reading glasses.
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Reply to funkygrandma59
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BlueHeron Dec 10, 2024
I love the idea of getting readers! That will also satisfy her need to have something that is new and colorful.
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No, I don't see any reason to take a yelling and delusional woman to the eye doctor. I really don't. Let us say she has something treatable but not EASILY treatable such as glaucoma or macular degeneration. What sense to work so hard to prevent blindness when there is already such ongoing unhappiness and torment? I really wouldn't do it, myself. I doubt she could even cooperate with any eye exam for glasses.
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Reply to AlvaDeer
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swmckeown76 Dec 19, 2024
Why prevent blindness? She's a human being and deserves top-notch medical, optical, and dental care.
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Mom is not going to be able to tell the doctor which lens she can see better from, when shes asked 1000 times! Think about what you're asking her to do! Cognitively decide which lens is better, A or B? Then C? I myself was struggling at the last exam and I have no dementia.

Imo, it's not possible to give a real prescription eye exam to an elder with this level of dementia. She'll wind up cross eyed with the totally wrong prescription for $500 at the end of the day.
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Reply to lealonnie1
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Can someone from the memory care place take her instead of you?

She might be doing this to get you to "visit" her instead of a legit need for glasses.

Next time make the appointment and regardless of mood take her. Odds are she will be "better" once she's at the appointment. But when it comes time to pay for new glasses she will start "the Show" again. I've worn glasses since I was 7 and I've seen plenty of senior citizens throw fits in eye clinics. Your mom won't be the last or first to do it.
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Reply to Jhalldenton
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I would buy her over the counter readers and be done with it. She will never test out right.
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Reply to MeDolly
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Has Mom got the money for 2 pairs of new RX glasses, running at least $250 each? RX sunglasses for what? Does she drive?

Get her some cheater readers at the Dollar store, and be done with it. Don't waste your time and energy making optometry appts. considering Mom's combative mental state. Does she also loose her glasses often? Wear them daily?

You can call her doctor who RXd the last pair, and tell him to increase the power.
Or tell Mom she may have cataracts and need surgery. That will stop her complaining. She may actually have them! I'd have a hard time helping anyone who tells me to shutup and stop doing drugs....Mother or not.

I flunked the DMV eye test 5 years ago, and found out I had them! I had 2 surgeries to remove them during 2020. Good luck!
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Reply to Dawn88
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BlueHeron, could you tell if your Mom needs glasses for "distance" or "reading glasses" or both? In the past has your Mom been tested for macular degeneration or cataracts?


Which type of doctor would your Mom be going to to see: ophthalmologist, optometrist, or optician? Today's ophtalmologist have state of the art equipment that makes it easier. Example, there is a computer (autorefractor) that can actually diagnosis an eye prescription. Mom would sit looking into a screen at a small picture and has to keep her eyes still, it only takes a couple of minutes.....


Then the doctor can put that prescription into the refractor machine to double check (that's the machine where one answers if A or B is better). The doctor can even check eye pressure without the need of eye drops.
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TouchMatters Dec 19, 2024
I think a person with dementia is unable to read.
Computer auto-refractor sounds interesting (new to me) although I doubt a person with dementia could keep themselves 'still' for a couple of minutes. She likely won't understand what is going on.
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Ask if the Memory car has a doctor who comes in to give eye exams.

My nephew has had glasses since 8 months old. When I asked the doctor how did they know the right perscription, they said by the refraction of light on the eye. So Mom will not have to go thru the lens thing. But, it may not be her eyes it may be her brain.
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Animallovers Dec 19, 2024
I agree that sometimes it isn’t the eyes but the brain. My mother has complained about not being able to read because she needs a new prescription. I took her to the ophthalmologist and it turns out that with her current glasses her vision is 20/20 in both eyes, which is better than mine! Her caregiver and I have come to the conclusion that it is her brain’s ability to process the information that is really diminishing.
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I went with my mother to eye doctor appointments when she had advanced dementia and was in hospice-type care, where we were trying to keep her comfortable and well without extreme measures. It didn't make sense to me to ask her to read eye charts when she was no longer reading and lived full time in a locked facility with 24/7 aides. She stopped wearing her glasses, and at that point we couldn't find them and I didn't replace them. She had glaucoma and the eye doctor agreed to let her renew her prescriptions for eye drops, without requiring an appointment, just to help her keep the vision she had. Discuss with her eye doctor what makes sense at this stage in her health.
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Reply to NancyIS
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Try again. It is worth it.
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Reply to Taarna
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We gave up on these appointments.. I did an “eye test” using signs in the MC halls to see how far she could see and I also gave mom things to read which she could do easily. She has Lewy {year 6} and everything is “broken”…that started year 2…..her glasses don’t work, her walker does not work, door knob is broken…always something not correct. Mom forgets the glasses, her teeth etc are an issue..If a pain repeats for a few days then I get concerned. Good Luck!
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Reply to Sadinroanokeva
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There are mobile Optometrist. Right before I hired one for my dad, he died. My mom was suppose to have cataract surgery, but now she is in Hospice Care. My point is, both were in personal care homes. It's not worth it when they have staged Dementia. There is a tie between sight and neurological issues. Also, it is very detrimental on your mom taking her out.
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Reply to Onlychild2024
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Ask her family doctor for a prescription of a mild dose of an anti-anxiety medication. That's what I did for my late husband (private-pay long-term care resident due to frontotemporal degeneration) whenever he had dentist and optometrist appointments. I left the medicine with his unit's charge nurse the day before with instructions about the time of his appointment and when she needed to give it to him. He was meek as a lamb when I drove over to take him to the appointments. The optometrist used a simplified exam to check the eyes of children who couldn't yet read. The dentist let me accompany my husband into his exam room, hold his hand, and keep his "Joy for All" animatronic cat on lap during the exam and when the dental hygienist cleaned his teeth. It also didn't hurt that both the dentist and optometrist were just a few blocks away from great ice cream parlors. I always promised ice cream for us after the appointments before we returned to his long-term care center.
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Reply to swmckeown76
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Wouldn't you have the same problem with making an appointment, only to have her be uncooperative the day of? I have to think appointments for an onsite doctor would be even harder to get. Where I live it's possible to call or even walk into an optical shop and be seen same day by their onsite optometrist. This is what my husband does. Sounds like that isn't available where you live.

I kind of like the readers idea. Much cheaper, and I would question how accurate of an exam a dementia patient would receive in the first place.
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Reply to iameli
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I understand.
* I would tell her you are taking her out to lunch or something she'd want to do.
* Ask MD if they can prescribe something to calm her down the day of an appt.
* If no charge for missed appts., I would continue to try - as long as you can manage the stress / energy expended on you trying. It is exhausting, I know.
* Do take her out for car rides (or lunch) in case she remembers - and when you do make the eye MD appt and tell her it is for lunch, she might believe you.
* Expect good and bad days.
* With dementia, she may act out in ways and time when you do not expect it ... so expect this might happen at any time.
- If I were you, I would enlist / invite a caregiver "friend' to join you both for 'lunch' so you have support to manage whatever behavior she may exhibit.
* Ask the eye MD office (manager) what they think - they may be experienced with dementia patients.
* Try to not take her words / behavior personally ("shut up"). I know this can be hard to do - it hurts no matter how prepared we (think we) are. Still, you need a buffer between her 'dementia' and you - and the real her.

*** I wonder if taking her glasses away so she can't see at all would help encourage her to actually want to go to an eye appt. You could try that as long as she doesn't walk or get out of bed with no one there to help her. And, the facility likely won't agree as it is a liability issue. A lot depends on who is with her and how often throughout the day.

Could you try dime store reading glasses?

Gena / Touch Matters
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Reply to TouchMatters
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BlueaHeron: She no doubt won't be able to pass the vision test, e.g. 'which is better A or B?'
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Reply to Llamalover47
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Have most of you who recommended readers ever used them? I had to use them after cataract surgery, and I was miserable. If your prescription is not the same in both eyes, readers can be very uncomfortable.
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Reply to Igloocar
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freqflyer Dec 20, 2024
lgloocar, that a good point. My reading prescription is different for each eye.
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Have your Mom tested for a urinary tract infection.
This UTI can cause the behaviors you mention to become worse.

Then, try again with the eye doctor at a later time.
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Reply to Sendhelp
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You need to find an eye doctor who is able to deal with Mom. You might even find someone with a private office nearby who would be willing to come over on a lunch break or after hours to see Mom in her own room. It is possible to do a good eye exam without automated equipment. Most eye doctors did that up until 20 years ago! And yes, there are still private doctors who will make time to work with more challenging patients. Contact your state optometric association and see if they can recommend someone. There are also groups of doctors who would have the patience and skills needed to evaluate Mom because they take training to work with special needs patients. Try searching through COVD/OVDRA (.org), OEPF, NORAvisionrehab and use their "find a doctor" links.
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