I feel like I’m being taken to the cleaners - paying thousands a month for mom's care. I questioned why so much they say 3 square meals, a bed, 24/7 nurses & CNAs. I get that but seriously?? The total nursing or CNA care she gets per day is maybe 4 hrs per day. Oh wait she gets tv with 10 channels lol. Just really venting here. Anyone feel this way??
On another note I feel super guilty if I don’t visit everyday - it’s getting too much as her 6 week prognosis has turned into 5 months and counting. How do I handle this?
I hope it is mom and not YOU who is paying the Nursing Home. Mom's resources, including Medicaid, should be supporting her medical and housing needs.
Realize that the majority of those in a SNF as a long term resident are in some way under a federal or state program that is paying for their care. Like 60/70% are in a state LTC Medicaid program so that program is paying for their residential room&board costs. Almost all are on Medicare which is paying for most of the direct medical costs like the NH MD bedside visit or their going down to PT once or twice a week for “gait training”. The bill you see is probably just for the room&board costs (a day rate) and maybe a specialty medication management fee if mom is private pay.
There’s likely a good 10/15% in a NH that are also on hospice so are getting some aspects of their care paid by Medicare hospice benefit. I mention all these cause your mom may be eligible to be on a program that will cover some aspects of the cost of her care.
Review her statement and speak with billing office as to what options may be out there. It sounds like mom entered as a post hospitalization rehab patient and that has ended so now LTC resident? Is that it? If so, it might be….. again just might be… that this facility is really geared for rehab and NOT long term residential. If that could be the case, she needs to move into a NH that is way way more about residential care as those will have more activities and events.
if your mom, herself, does not have her own $ to cover costs, then she or you as her POA need to apply for LTC Medicaid. If the current NH does not participate in Maines LTC Medicaid program, unless you have enough $ to pay for care without it ever, EVER, likely to affect your own long term financial future, then your mom needs to spend down and go onto LTC Medicaid & move into a facility that does.
Barb is 100&1% spot on that your mom needs to spend her own money for her care. Not you. Unless you truly can afford to.
Without seeming rude, what did you expect for your money? Because if it was someone being with Mom on a constant basis, that will never happen. CNAs have more than one person they take care of. Rarely do they sit down to entertain the residents. Thats the responsiblity of the activities director. To keep the residents busy doing something. At my Moms AL, aides wore many hats. Besides getting residents up, toileted and dressed they had to make sure they were in the dining room for meals. At Moms AL, they were required to set the tables and serve the food. Some were medtechs so distributed the meds besides other duties. After dinner, those aides have to get their residents ready to go to bed. Get them all situated in their rooms dressed for bed and watching TV then come back later to out them to bed.
A NH is pretty much the same way. And now, there is a shortage of CNAs so the ones still working have more to do.
CNA's are wising up. The experienced ones go into private care only. Then they take work in a nursing home for one client who theyare hired privately for and they earn twice or more what the CNA staff in the nursing home is getting.
Imagine the property tax for the building/land that the facility sits on. There is also building insurance and liability insurance in case someone, be it a resident or staff, gets seriously hurt while on the premises.
There are other "contractors" such as a contract with a private ambulance service. Contract with a lawn mowing/landscaping company for weekly mowing and for snow removal.
Cost of cable TV service with outlets in many rooms, cost of those TV's, cost of telephone service for the building. Cost of internet service and all the laptops used by the staff.
If you think your grocery bill is high, imagine what it would cost for a senior facility doing 3 meals a day, plus snacks for inbetween. And managing special diets.
Cost of the laundry service or having commercial size washers and dryers, and the housekeeping staff that goes from room to room.
There are other costs connected with a nursing home, same with Assisted Living/Memory Care. But this gives you idea what the monthly cost is so high.
When my Dad had 3 shifts of caregivers at home, it was costing him $20k per month, yes per month. Dad was happy to know that when he went into Memory Care it was $7k a month, which felt like a real bargain for him.
If you're paying for this out of you're pocket, why are you doing so? Your mother should be footing this bill. If she can't afford to do so, apply for Medicaid.
Elder care is seriously expensive in a seriously expensive world. It is what it is, and complaining about it feels good to do, but won't solve a single thing.
My LO, whose judgement was never good even when she was "well", was on one of her neverending quests to find a better facility than the one she was in. To her, "better" just meant different... Anyway, she found one!!! She called to inform me of this, but was biting her lip over the cost and wasn't completely sure if she could afford it. I asked her how much? She said $280 per month and still hmmmming and hawing about the cost could she possibly pay that much. I informed her that the $280 is not per MONTH. It's per DAY. That calmed her down pretty quick and curtailed her constant asking to move and her "research" into new places. I already had her Medicaid pending at her current facility as it was the only way she could ever, ever afford that type of care as her total income per month is less than $2K. Caring for her at home was a failure, so I had little alternative. Yeah, the costs are crazy. Way back, my grandmother was paying $68 per day for my grandfather. Even that, at the time, was an insane amount of money.
After 1.5 years she had a medical event requiring hospitalization, rehab and was medically evaluated that she required to go to a SNF. She was transferred initially as a private resident costing $15K per month. 2 years later all her money was spent and we applied for Medicaid.
Here is a chart by state what SNF charge.
https://www.medicaidplanningassistance.org/nursing-home-costs/
I have NO issue with these fees. My only wish is that the medical staff - nurses and aides are paid fairly for what they do. These facilities must be staffed with the appropriate medical staff to cover 24 hr /7 days including holidays. Frankly, these healthcare workers are saints IMO for what they do considering the huge profits some of these facilities make as businesses. I do wonder where that $15K per month goes as I do not think it is spent on the healthcare staff IMO who deserve it.
I would not be able to provide this care level at home plus the medical monitoring, etc. Our mother is seen weekly by the staff physician - how could I possibly provide doctor evaluation at home with a wheelchair bound disabled elderly person? She is where she needs to be at age 95.
Who can afford to pay sometimes up to a thousand a month or more for a LTC policy?
Who can do this when they're raising a family they have to provide for and have bills to pay?
Nursing homes, hospitals, and any other service associated with care should not be allowed to charge what they do for services.
Nursing homes get away with it because that industry has lined the pockets of a lot of politicians to be able to get away with it.
I hate to be the one to tell you this, but your mother gets nowhere near four hours a day of CNA and nursing care. Even if she's a complete invalid who has to be spoon-fed she gets maybe 90 minutes a day of CNA care. If it's a shower day then longer.
Average cost for a NH in CT and I mean rock bottom quality and not eve in skilled care but long-term room and board care is about $10,000 a month (if paying out of pocket). If Medicaid or LTC is paying they can charge anything they want and they get it.
Make sure that you keep a close eye on your mother's money and her Medicare statements.
A nursing home will double-bill and they do it all the time. Medicare and secondary insurance pays and they still collect it in cash from the family. Make sure you always know who's paying for what. It could very well be that the NH is keeping her longer because insurance is paying and so are you. Talk to her regular doctor and see what they think about why 6 weeks has turned into 5 months. The nursing home staff and doctor will never give you a straight answer. Talk to her doctor. If you're able to, make an appointment for her to see her regular doctor.
So cutting cost is essential, cheap food and less staff.
The sad reality is people who work there are trying to do their best, there is no way they can provide good care with those conditions.
Cost in Canada for govt facilities is about $2,000 -$3000 per month, or pension ( average pension is $1100 plus $500 OAS) less $200 for personal spending. Any private facilities are starting at $ 4000 -7000 per person for dingy, dated studio.
Luxury (and I am using this term loosely)$ 10,000 and up monthly.
In the area that I live, it cost over a million just to purchase one acre alone, and banks only loan out 50% of the land value. Such building sites needs many acres for the size of the building, plus parking. Construction loans come in bits and pieces, and that's just for the shell of the building. Loans need to be taken out to do the inside of the building.
Building a facility cost multi-millions, there will be hefty mortgages. For older sitting facilities, it can cost a million just to remodel, thus new mortgages.
Someone who wants to start a nursing home needs a lot of investors who shell out money, and hopefully get some type of profit years down the road once the facility starts to break even. It is high risk, as the nursing home could find itself closing, thus the investors taking a loss. Some closed during the pandemic. Some closed because it was difficult to find workers.
NH, AL, MC, etc., are big businesses. They are there to make money, not to provide free services.
Just like a high end hotel may charge $500 a night, same goes for these places. My mom's highly rated nursing home (Medicare/Medicaid qualified) charges about $15K a month (we live in an urban area on the east coast) of the US. After spending down all of my mom's assets over about a 7 month period, then Medicaid picks up the bill. My mom has to hand over all of her Social Security check, all of her federal pension except for $93.00 per month and the total in her bank account cannot exceed $2.5K. So sometimes I have to write the nursing home and "extra check" to bring the total bank balance below the $2.5 K. There is only so much candy or snacks food I can buy or the limited clothing items she might need (they provide a "hospital gown," which they prefer at night "easier for clean up" if there are accidents). All to say not much I can spend her funds on at this point, not like she can go anywhere or do much now....My mom has a private room -- a luxury yes, but given her nocturnal and outburst behavior she would not do well with a roommate. They will allow one to decorate the room any way but no carpets. Some of others on her wing have brought in antique highboys, desks, beautiful artwork to make the room look like home. My mom refuses to "decorate" so her room is barren, her choice.
The "high level" (meaning they provided the highest level of additional services such as medication management, aids to come get them to take them to meals or meals delivered in the room, meal choices, cleaning, laundry) charge about $18K a month AND THIS IS TOTALLY PRIVATE PAY, no Medicaid coverage. The facilities we looked out were amazing, with lots of things to do, even an in-door pool and hot tub. But one has to bring in or pay for (monthly rental) all of one's furnishings and they require a hospital bed but Medicare may pay for that (about $3.5-$4K for the bed).
The "cheap" ALs were about $9, no private bath, no meals in the room (one has to come to the dinning room). These places are in actual homes and they may take 6-8 seniors. They have full time staff, but NOT an RN but RNs or other more skilled staff may visit one a week. [ A nursing home has to have an RN 24/7.] They want the residents out of their rooms most of the day (so the rooms can be cleaned and it is easier for a couple of low skilled aides to manage them if they are all together rather than ringing buzzers for this or that, or asking for help to toilet. One has to bring in all their furniture including a TV (or rent it monthly) and YES they too require the hospital bed be bought by the resident.
Good Luck!
An extra benefit from this is that all can go over to activities or to the “library” at the facility for others to share.
In many cases, the elderly people who do end up in these facilities either have no one or are difficult and miserably difficult to be with or their families can’t take care of them because they have to work and take care of their children or any number of reasons.
Planning is essential. Unfortunately, Medicare doesn’t pay for this - just for basic healthcare and then not everything. One has to be destitute practically to qualify for Medicaid and the spaces at facilities are limited because reimbursement require a lot of paperwork.
My MIL’s ALF costs $5,500 a month and she wanted to move closer to us. The answer was no. It would have been more expensive and we didn’t want to see her or visit her. She is so unpleasant, vicious and disagreeable, that we couldn’t have her living with us even when she asked to do so.. I told her there would be rules- about going to the doctor, no hoarding, no bringing her dog (would have to get rid of it), would have to adult day care, etc. What she really wanted doesn’t exist.. We think assisted living is worth every penny.
Finally, we visited a faith based facility but the only part open was independent living, which he couldn’t handle, but the lady said there was another section with a dr and nurses but no opening. A few days later, a place opened up, and incredibly he was allowed in. It turned out to be the very best anywhere I could get for him.
But the RN told me at his temporary stay as he had a very minor stroke at home, that I myself looked like I was on the verge of stroke. I was also raising four children in parochial school plus finishing up classes for a career change. Afterwards, I did find out I suffered some brain damage caring for him with COPD and dementia by observing I had developed some dyslexia.
These nursing homes hire dietitians to plan menus that meet all nutritional requirements, plus handlers to properly prepare food. Then you have the laundry people, the pharmaceuticals administration, janitors along with the nursing assistants, the administrative staff…to replace what the one resident used to be able to do for one’s self, all primarily due to aging disease.
So many don’t want to be a burden to their loved ones.
I always tell people to hire private aides. The experienced ones like me who come with sterling references don't work for the crap pay an agency offers. Yet, hiring a private pay caregiver will cost you a lot less than using an agency. Your loved one will get better care too.
Yes, this is expensive, but if your mom has only a few months remaining, I pray you have the resources to provide what she needs.
No, it's nor necessarily a recipe for disaster. If she has someone looking after her whrn the aide isn't there, she may be fine.
I had a client who I worked for a few hours a day, then her neighbor/friend would stop in for a couple of hours, the client would take a nap, and then her son is home from work.
She had dementia but didn't wander. She didn't try to cook or do anything. She sat in her chair and watched game shows.
An over zealous fanatic social worker from APS had her put into memory care against her will and her family's. She got placed because the social worker (and mind they too get "incentives" and "gratuity" when someone gets placed), brought in people to inspect the home and they deemed that it would need somewhere around $100,000 in renovations to make it "safe" for my client. It was an apartment on the fist floor, her son lived in the second floor. She did fine with her walker which fit in the bathroom. So the choice was pull all the equity out of her house and do the renovations and get 24-hour care so she could stay home for a little while until the money runs out, or placement and a nursing home will take the money then get her on Medicaid. They had no choice. The poor woman was miserable in the memory care facility and basically cried and starved herself to death.
There's nothing wrong with keeping a person at home for the money. They're not going to get better care in a facility.
I spent more than 5 years (daily, on average 8 hours/day - until her departure in June of this year, 2022) caring for my severely limited mother in a nursing home of a self-proclaimed "high end" continuing care retirement community where my mother had a Life Care contract (search for Vi Living). My mother was grossly neglected before I left my career and home and moved 3500 miles to care for her after I visited and found so many things wrong. For example #1 (of many I could share): When I was there to visit before I moved there, I asked the nurse what was going on with my mother's hearing, because I noticed she could not hear me unless I was in front of her. The nurse was unaware of any issue. The doctor stood 18 inches in front of my mother and asked if she could hear him. I took my mother to an ENT doctor and he removed at least 1/2" of wax out of each of her ears. Then she could hear fine. Of course, the facility did nothing to educate the staff or inform them that any unresponsiveness was due to her hearing, not her cognition. For example #2: A few months after I went back home to put my life in order so I could move, my mother started talking about Larry, who she was going to marry, who she was going to take trips with, etc. All my siblings heard about Larry - who was an imaginary friend or a spirit guide. Did the facility have any awareness: No. My mother was so emotionally and psychosocially neglected, she had to conjure up a companion. Once I arrived, Larry was never spoken of again.
BTW: In addition to the hundreds of thousands of dollars paid for the Life Care Contract (effectively a long-term care policy, for Life, but limited to one facility - the community's), my mother paid approximately $10,000 a month for a private room ($4500/month for the 1st year and half in a semi-private room, while she was on the waiting list for a private room).
I advise staying away from nursing homes whenever possible. Metaphorically they are warehouses for the elderly, bad zoos, prisons, or the like. Owners, management, and most staff treat residents as 3rd class citizens who have few rights. Most of the public shares that perspective. Yet, in fact, the resident's space is their HOME. They are entitled to the basic rights of every other citizen in their home.
There are extensive laws to protect residents (42 CFR §483) -- but NOBODY knows them or seriously enforces them.
The system is horrific, but in this country money talks so the compassionless profiteers get away with it.
Within the next few months I intend to have a website built -- adding as I have time -- excerpts from "our" story.
Everyone already knows this.
You were fortunate enough to be able to quit your job and relocate to take care of your mother. Most people can't do that.
For most people a nursing home is the only option because they cannot afford round-the-clock homecare (which Medicaid does not pay for and almost everyone ends up on Medicaid if they live long enugh). They don't have the resources to make mom or dad their life 24/7. Many didn't have wonderful parents who deserve an adult child to ever consider that.
Everyone has a nursing home horror story. Everyone pretty much knows avoiding a nursing home is best. Every person in a nursing home needs someone on the outside advocating for them and making sure they're decently cared for.
Nursing Homes and Rehab facilities mau have staff on duty 24/7, but that staff is thinly spread among residents. Between COVID and low wages, staffing care facilities is especially low right now.
You may have to live with the guilt of not visiting every day. That seems like a lot.
Yet if it's a nursing home or memory care, hand it right over.