I'm looking for help making a decision about the seemingly endless replacement of Mom's hearing aids. She is 94 and living in a memory care facility, recently recovered from Covid, and is currently in hospice care. After a discussion today with a hospice counselor, I've learned that Mom has improved to the extent that she possibly will be taken off hospice care at her next evaluation! That was the good news. The bad news was in addition, I've been told she's lost yet another hearing aid. After having replaced them 5x since she was placed in memory care 3 years ago, I'm exasperated. I don't need to tell you how expensive hearing aids are.
I understand and recognize the consequences of not replacing the hearing aids. With verbal interaction curtailed, the rate of her dementia will accelerate. I don't want Mom to feel cut off in her interactions with others, etc. I do have compassion. There is money available for another replacement set of hearing aids, $4K, that comes with a one-time reduced replacement for $250. As I've said, we've done this replacement cycle multiple times. This doesn't count the many times I have searched her room with a fine-toothed comb and actually found the missing aids, but more often than not we never find them. It just feels hopeless now. Am I crazy to keep throwing money at hearing aids? Or am I cruel to say "Enough!"
Mom is gradually failing with her ADLs. She gets showering assistance, needs help occasionally with toileting, only partially ambulatory; sometimes okay with her walker but sometimes needs a wheelchair. I have enlisted the help of the staff to help Mom remove and put on her hearing aids, but still this happens. I wouldn't be surprised if they're not getting flushed down the toilet. How else could they completely vanish?
Has anyone else had a similar conundrum, and what did you do?
Someone here told me about little clips you can attach to the aids and clip the other end of the string to a shirt or collar. I never got around to trying it (she refuses to wear her aids now), but it was brilliant. It's what we used when our kids had pacifiers, so it'd be great for a hearing aid.
Trust me - I know how expensive hearing aids are. Even with the loss/replacement insurance that may be available, you still have to pay several hundred dollars when you lose them. Makes the <$20 price of the Oticlips well worth it!
https://clark.com/health-health-care/hearing-aids/
https://www.costco.com/hearing-aid-center.html
I also find it interesting that some models have an app for finding lost hearing aids (probably not the less expensive models).
https://www.truhearing.com/more-resources/what-to-do-if-you-lose-a-hearing-aid/
I wonder if any of the clips would work with a Tile or similar tracking device?
Then, I wander off into weird solutions like a "text me a picture of Mom's hearing aids" promotion and a case of M&Ms a week so anyone who sends you a picture gets a pack as a treat.
Now he is past the point of being able to.
So, we live, somehow, without them. We can't have conversations. Oh well...
I'm ok with it. At this point I just want to make it through each day.
I'm new to the world of hearing aids and now I see there's much more than I knew. Thanks!
Check with your mom's audiologist to see if the model she has can have little clips attached. We did that with my mom's and now have a small wire with little necklace-like fasteners on each hearing aid. The wire has a clip that can attach to her shirt, so if she pulls one out, it doesn't get lost. The only problem we've had is the caregivers pull her hearing aids out by the fastener and have broken them a few times. Fortunately, the warranty has usually covered the repair. Good luck!
OP IS NOT A FOOL.
Plus, "I've learned that Mom has improved to the extent that she possibly will be taken off hospice care at her next evaluation!"
If her mother is going off hospice and can return to some kind of "normalcy", that would include socializing and interacting with others, including staff. Hearing CAN be very important in keeping the elders more active and engaged.
Others have provided some good and useful suggestions. Your comment is neither useful or good.
OP, if you read these messages, understand this is TYPICAL for this person (sometimes posts under other usernames, all ending in 2166.) Please ignore, as most posts from this one are rude and obnoxious, hardly useful.
How often do you normally visit her?
What I'm thinking is that you could get a new pair and keep them in your own custody. Obviously this is not going to work if you can't get to visit her from one month to the next; but it is a reasonable thing to do, to wear them for particular conversations and for set periods of time - as opposed to day in day out, every day.
As with laundry, discussed a few days back on a different thread, hearing aid loss is so common it's taken for granted. That doesn't make it acceptable, but it is an absolute PITA to solve.
What has the NH had to say for itself? More than "shrug", I hope?
Based on my experience, they just consider this personal property and they aren't responsible for any of that.
Been there, done that. I didn't even complain when told her hearing aid(s) went through the laundry. It was when the brand new replacement went AWOL in less that 2 months that I ask for help with the replacement cost (these came with one time each replacements for about 400$.) The staff was more than aware of what I went through to find another provider and get her replacements. It took weeks to get it all done (had to get through several appointments without them too - fun with Mac Deg and all the testing involved, and PCP staff trying to give mom the memory test!)
Since these were rechargeable, I left the responsibility for the charge with the nurse - suggested taking the hearing aid at night before bed, charge it overnight and return it to her in the morning. That would avoid the "laundering" and being left in her room (under bed, in bed, on or under end table, etc.) So, it's not like they weren't aware of it!
As for OP keeping them in her custody, bringing them for visits, that kind of defeats the purpose. Hearing loss will get worse no matter what, but it will degrade faster when not "used." Plus one of the nice things about living in a facility is socialization. They can't socialize if they can't hear! One of my last visits before lock down, I met a newer resident. She sat at our table to chat a bit and told me she thought mom was stuck up or something because she wouldn't respond to statements or questions. I told her mom's hearing was very bad, not like she'll remember that though. The problem was after the newest loss they kept taking it away if she took it out, so it was OUT more than it was IN. Again, defeats the purpose to having the hearing aid! Just MO.
And as far as where they go, that is the big question. We had signs put up in my dad's room by the laundry hamper for staff to check all pockets before doing laundry. I think one pair he wrapped in tissues and tossed. So we also had them checking the trash but they quit doing that as it was probably too much to ask. Of course he was in private pay facility so the LTC center wasn't responsible.
Can she hear a little bit? Does she ask for them if she doesn't have them? If she can hear some and doesn't seem to miss them, then I would be hesitant to buy another pair.
The first doctor we switched to when moving her to MC near me tried that headset. You'd think it was some kind of torture device! She practically threw it at the doc! My solution for times she had the hearing aid in but couldn't quite grasp what was being said was to use the "Boogie Board" to write things down, she read it and then responded verbally.
IF the headset or something similar works, GREAT! I'd be all for that, but my mother wouldn't let anyone put that on her again.
I bought her one of those cords/wires that clip to her hearing aids and attach to her shirt but have not been able to get to see her to put them on. Hers get knocked off when she puts reading glasses on or takes them off. And, of course, masks are deadly on hearing aids!
Your moms hearing aids may be in other clients rooms. I know how much these things cost. At her age, I wouldn't buy another expensive set. Do as one of the answers suggested and keep them with you to use during visits or dr appts. I think WalMart has cheap ones now. I would invest in them. I wish you the best.
My husband is on his 2nd set and he will not clean them as they specified when purchased. His first set was $5K and he would wear them in the rain and refused to put a raincoat with a hood on it over them. Had to have them fixed 2 times and that was $500. They finally just quit all together and when the neighbors started calling to check on me because I had to yell for him to hear, he agreed to get another set. Another $3K and multiple trips to have them reset due to ear wax.