She’s upset, confused, has had short-term memory loss, but is now having mood swings and calling me constantly from her bed. I’m terrified she will never leave this place and is slipping away cognitively. I’ve heard dementia can unveil itself when elders are in a new situation. My sister also has mental illness and they live together, very codependent, and I can’t count on her for anything. Not even a visit. Trying to keep my own sanity dealing with both of them. My heart breaks for my mom. She’s in a diaper and terrified to fall again. It’s a nightmare and my nerves are raw. Any advice would be appreciated. I am a puddle of tears every day and don’t know what to do. Thanks.
It sounds like your mother belongs in a facility with 24/7 professional care. Ask the rehab people for an evaluation as to where she should go. Obviously your sister is not the right person to care for her, and, I believe her care is beyond you too.
Do either of you have POA?
With Love Sheila S
P.S. and some ice cream
First, put away your fears about your Mom. This is so that you can concentrate on the here and now. Listen to your Mom, really listen. Keep her focused on her recovery. Talk to her about what will be happening the next day. Talk about the future. Ask her about her expectations. Do not dismiss them. Talk to her and remind her of what she needs to do to get to those goals. (If she has a lot of pain, get the pain managed. It is very hard to concentrate or remember about getting well if you are constantly in severe pain.)
Talk to the PT to see if there are any exercises you can do with her to speed her recovery. I totally get that your Mom is afraid of falling (that is normal). Exercise with her to improve her core and her balance. Learn to use the gait belt. Don't think about the short term memory loss. If you are going through a traumatic event, you wouldn't behave rationally all the time either. Work with her so that you can transfer her to/from the wheelchair and the car so that YOU feel safe doing so. The PT/OT at the rehab hospital should be showing you this. Watch the PT/OT person work with your Mom. Watch how they handle her. Watch what they are teaching her. Try to reinforce those movements while you are there with her. Bring her some nutritious food from the outside. Foods high in Vitamin C are good.
Get a book and start a diary. Record her mood. Record what you see. Record what PT/OT did today. Record what happened today. With the entries, you can see if there are any correlations, and it is a great way to be able to see what has worked in the past and what hasn't worked. (BTW, don't expect "instant" changes...it might take 2-3 days or more before you see some improvement in an area.)
At the 2 rehab hospitals that my Mom attended, they both had social workers and patient coordinators (advocates?). These were the people who were non-medical, who could assist you in getting help and future assistance for your Mom. Record in the diary any pointers they have and use the diary to help you follow up on any actions you need to take. Don't rely on your memory. You may need to remember these things days, weeks or months later.
Do you have to do anything for your sister? If so, get a diary and record everything you need to do, or have done. If anything, this diary will be good if you need to get outside help.
And yes, a therapist to help you through this stressful time of your life is a good idea. The social worker or patient coordinator at the rehab hospital might have some names to try.
Diaper is good for now. However, if getting out of a diaper is a realistic goal for her, she will need to learn how to get from bed to toilet quickly and without falling. Remind your Mom of that.
Don't accept what the internet says as the absolute truth. What you read on the internet can limit your thoughts. Your Mom is a unique person. You are a unique person. Between the 2 of you, you can be part of the 5% that is the exception to the rule....but only if you listen closely and don't limit your thinking.
Don't pick up on her anxiety. You need to be the steady, rational person.
At 97, my Mom fell and had 2 screws put into her upper leg. Statistics would have had her dead within 1 year. After I got a different PT, she was able to walk with a walker without a gait belt, and she celebrates her 101 birthday this year. One year after the fall, she didn't remember much of her time in the rehab hospital except that the food was good (while she was in the hospital, she complained a lot about how bad the food was).
You can do this....one day at a time, one foot in front of the other....concentrate on your Mom. Put aside your own fears and limitations and work toward getting her back to where you and she want to be.
Get sister to see her psychiatrist to evaluate and treat her own mental health issues. If sister is not competent to live on her own, she may need new living arrangements - based on doctor's recommendations. Be supportive of the plan of care set out for her. Decide on which types of help you are able to give her. Communicate this to her and stick to your decisions.
Make sure to connect with loving, supportive people on a regular basis. A listening ear, a compassionate heart, and the occasional shoulder will help relieve some of this stress.
Don't think too far ahead. Be glad she is being taken care of for now and give Rehab a little time to watch for improvement. Don't plan on your sister's help. You do not need to visit your mother every day. Do the things that have to be done one day at a time. If your mother is participating in rehap and showing progress, he stay will probably be paid for for 20 or 30 days. You can re-assess the stiruation during that time.