She’s upset, confused, has had short-term memory loss, but is now having mood swings and calling me constantly from her bed. I’m terrified she will never leave this place and is slipping away cognitively. I’ve heard dementia can unveil itself when elders are in a new situation. My sister also has mental illness and they live together, very codependent, and I can’t count on her for anything. Not even a visit. Trying to keep my own sanity dealing with both of them. My heart breaks for my mom. She’s in a diaper and terrified to fall again. It’s a nightmare and my nerves are raw. Any advice would be appreciated. I am a puddle of tears every day and don’t know what to do. Thanks.
Again, I am so sorry. Get rest and care for yourself so you can endure.
You are in the *crises stage* now.
Breathe. Ensure you eat, sleep, exercise if you can.
The future will be revealed slowly.
Note that *Delerium* can happen to the elderly. When unwell, injured, under stress, in crises, in hospital. Delirium differs from dementia & can lift.
One day at a time is good advice.
PS Tears are quite ok. I think of them as little gems of adjustment. Shed them as you need. (((Hugs)))
What injuries has your poor Mom sustained?
My husband has Parkinson’s and falls are more frequent. Recent one was terrifying, I just turn around to get him some water, few seconds, he fell backwards and cracked his skull. Imagine blood on white tiles, everywhere and so much I panicked, Luckily only few stitches were needed, but, reality is I know there is nothing to prevent falls 100% and staggering number of people fall everyday and die. Common with PD, that and choking which is more with disease advancing. I have to accept it, he is almost never alone, but, it takes only seconds.
Yes, it is common for our elders to become confused and have increased dementia in a strange place. Her sundowning may be worse too. You can speak with the care team about a mild med for anxiety. Be careful that she is not over medicated. Feel free to speak up if the meds are too strong.
Forget about help from your sister and do what needs to be done.
If mom has no fractures she needs to be at least moved to a wheelchair and be out and about.
Most important please take care of yourself. This is a very hard time for you!
Thank you for caring so about your mom..
I will say that my mother has improved, compared to where she was right after her accidents. Enough that she's living by herself, but she needs a lot of help. It took about a year and lots of doctors appointments to get her here. We are also aware that we can't do much until the next time she ends up in rehab and we can only hope the next time won't kill her.
If you believe in God hear some good words. YouTube has so many talks which will strengthen you.
Depending on your schedule generously share time with Mom. Puzzle/cards any board games or groom her if she is interested or listening to songs together. Just be there.
Take time for yourself too. Trust caretakers to do their job. Communicate with whoever is available. May God bless you and strengthen you. Anything is possible though God.
I know it’s not easy but hang in there. I did also find that my mindset affected her mindset. In other words, if I was calm, she was calm. It is an overwhelming situation, but it will get better. My mom is now more herself, and we are planning on getting her home as soon as she is able to. Much luck to you.
Be sure to get support for yourself via pastor, chaplain, other professional support; practice good self care, see your PCP, stay hydrated, eat nutrition conscious, exercise and get outside some each day..... Your mother is receiving care at the facility; so take care of yourself while she is there to build your own endurance.
1. Speak with her case manager and pcp re present concerns, and going forward options/prognosis...
This can change in a moments time...
2. Attend the " care planning" meeting most facilities have for pts. Get date and time from staff, case mgr
3. Be sure that she is being seen by facility social worker and chaplain
Speak with them about your mother's behaviors and changes you are noting.
4. Establish some manageable visit schedule, keep visits short and quality focused:. speak with your mother ( if she is able cognitively) about limiting phone calls.
* If she has dementia or other cognitive impairment, she will most likely not remember calling you, hence the repeat repeat repeat calls.
Start exploring with her PCP and facility staff your limitations in caring for her at home and your sisters illness;. Start to consider options for possible placement for your mother and/ or other choices that will accommodate her " safety" and well being as well as your own well being.
Practice deep breathing.....
Do not feel guilty about decisions that may need to be made. Be sure that POA status is in place.
My own mother has been living with me for 5+ years and as of last week is under Hospice care. I took it as far as I could without Hospice but she contracted a cough from a sitter and it has almost done her in.
So far, Hospice has been wonderful and they've gotten us everything that she has needed - supplemental oxygen, a nebulizer, diapers, pads, gloves, cleansing products, nurse visits, aide visits, 24/7 availability, etc.
It is exhausting work, but you will have no regrets. Having our loved one at home, in familiar surroundings goes a long way in keeping them comfortable and out of distress.
When my mom broke her hip she was in rehab for a couple of weeks after surgery, but they didn't keep her long enough because of medicare limits. She was not ready to leave. She had two bedsores, was very unsteady even with the walker, and was afraid like your mom is. She also had memory issues that were much worse than normal. Part of that was from the medications after surgery, which take a long time to get out of the system, and part of it was the extreme stress. It gets better as they improve physically! After rehab, because she wasn't ready even if they said she could leave, we moved her to a very nice assisted living place for a couple of months. She could get continual care there if needed, and she could heal more before leaving. We didn't tell the staff that she might be leaving, as we didn't know ourselves, but it turned out to be the best thing. It gave me time to recover from my own trauma over the situation, and time to think and plan for the next steps. Because of the lack of good home care staff, we ended up moving her out of assisted living into an independent living apartment. She likes it there (it took a while), she helped choose it for herself, and the social life helps take the burden off of my to be her "everything." I struggled with a lot of guilt, but then I learned to tell myself, "I did the best I could." Which I did. It has all turned out very well, and we don't have nearly the worries about her safety. Best of luck to all of you who are going through this. It's really hard, but you will get through it.
P.S., Mom doesn't remember most of what happened during rehab.
Aloha!
Emotionally she is still struggling and came home wearing incontinence briefs, using a walker and needing constant care, feeling helpless and sometimes, hopeless. I have tried everything but we just can't get back where she was.
My mom also fixates on things, has OCD behaviors and is getting to the point that she can't do anything for herself. This happens more often than you would imagine. I hope that your mom recovers. If I could do things over I certainly would never allowed her to stay in the TCU for so long. I would have brought her home and had the PT, OT done there.