In her very clear mind she decided against the risky surgery and chose to go home on hospice and die within all of her children and grandchildren around her. She is so very strong and has outlasted the days to a couple of weeks that the Drs predicted. She has been home almost a month. She is now in the active dying phase. How do we deal with outsiders telling us we should have made my mom have the surgery. She made the right decision for her. She was at peace. It’s getting so frustrating hearing people tell us what should have been done. We are taking great care of my mom & wouldn’t trade this for anything. My dad & sister both died of cancer in their 50’s mom is content about reuniting with them & the rest of her family. I’m so sad at the nerve of people
he had been in a lot of pain and almost passed out. Thank God I was
there and called my nephew to come fir him.
Maybe your family can convince her your not ready to let her go just because she is afraid of surgery. Maybe she will change her mind. One way she has no chance to live to see her family , spend Holidays celebrate birthdays enjoy grand children . The other way Surgery she at least
has a chance at life .
sirry your going through this it’s a hard situation to be in. But in the long run if she’s of sound mind then it’s all her choice. God Bless you snd your family stay strong in the Lord . 🙏🙏🙏💕
My opinion (unsolicited and truly none of my business)- it was your mothers choice and you respected her autonomy. God bless you and your family.
Frankly it seems like some people aren’t happy unless they are telling others how to run their business. If the shoe was on the other foot they wouldn’t like it.
I’m jumping ahead of myself because I didn’t read the whole comment but it burns me up when people tell others what to do when they aren’t living in the house nor are they the ones taking care of the patients.
When mom forgot how to eat and drink as a last resort I asked mom if she wanted to go to the hospital. She said yes. She had a very lucid moment. I asked her I'm calling 911 and take you. Is that what you want. She nodded yes. I simply took her off hospice, her Medicare took over, got the feeding tube, and reinstated her hospice afterward, and yes you can do that. I did it. You do not even need a doctor's order to reinstate it, because hospice never rejected her. She was on hospice for 2 years.
Best decision ever. Mom did not have to die slowly of DEHYDRATION and in fact her last days were very comfortable because all her needs were met. Granted the feeding tube was a *LOT* of work to keep clean and patent but she never bothered with it and never had a problem with it. I kept it covered with a "tube top" I got on amazon which was comfortable for her. I was also able to tell when she was actively dying because normally there were no residuals. When she had residuals I knew when to stop feeding her (it was not being absorbed), and called in my brother and she died exactly one week later. Still I was able to administer some comfort medications through the tube although I never did have to give her any psychotropics or narcotics. She died so peacefully -- she just opened her eyes, took two deep breaths and died.
My brother and I were able to organize prepaid funeral. I could not have done that without my brother present.
Mom died almost 2 years ago and I'm still suffering her loss. Less afraid of life though. I mean I don't have to worry about her anymore. I was her sole caregiver so that put a lot of stress on me, but I would cut off my own arm to have her back. Still, that's a selfish thought. Mom is better off where she is. She was eaten up with Alzheimer's. Still, regardless, I kept mom comfortable and surrounded by love and her own home, which was her universe.
Mom was sufficiently hydrated, and her skin was in perfect condition when she died. Ironically Alzheimer's disease did not kill her. She was insulin-dependent diabetes and years and years of insulin and chronic kidney disease (over 10 years of that) and liver disease did it, and she died age 90...that's a long life with all of those chronic diseases. I was her life support for years and years. Of all things she had I was able to keep her sugars in perfect check to the end.
People should be more sensitive about decisions, but tell them it is what she wanted -- but also remember death by bowel obstruction is a painful one. You spared her that. Just as I spared my mom of a slow agonizing death by dehydration. It can take TWO or more weeks to die without fluids.
Death is all of our fates. Mom was very lucky she was well cared for to the end. Not stuck is some freaking nursing home. I centered my total life on mom for years and years and do not regret it. I love mom and I would gladly do anything for her.
Now I have to deal with my own life. Back at work...going to university. But not a day goes by I don't miss mom because I love her so much.
That's the price of love--grief.
My dad had a blockage (tumor) at age 87. The dr said he could opt for surgery or die from an obstructed bowel (we were told this was a painful way to go). Opting for surgery would probably give him another year of life. He was given the pros and cons and decided to go for the surgery option. It was his decision.
He was already frail, had the surgery, and never regained enough strength to walk again. He lived another 17 months, 3 of those in and out of the hospital and re-hab.
During that time, he was in at-home hospice care, so as his primary caregiver, I enjoyed their daily personal care visits (bathing, shaving, oral care, diapering...great hospice agency!).
He did get to go to church a few times during those final months, two funerals of friends, twice to the cemetery to visit my mom’s grave. Yet, it wasn’t an overall good time those 17 months. He was depressed from my mother’s death just a month before his surgery. He managed with a good spirit just the same, but life never regained the quality it once had for him.
Absolutely, you have peace of mind that you allowed your mom to make the decision for her care with no pressure. Bless you, your mom, and family! You sound like a wonderful family!
I said "I respected my dad's wishes. Thank you, but this is personal, private and not up for discussion."
Prayers
End of conversation.
Recuperating from this surgery would have been horrible and she may have ended up with an colostomy bag. (Maybe ask these outsiders if that would be to their liking if this was happening to them). Too many people are told about surgeries and treatments that overly optimistic doctors recommend. At 86 the odds of other things going wrong are very high. It’s not unusual for people to live longer when they enter hospice. Who are these know- it-alls to presume they know better? They aren’t walking in her shoes.
god bless you your mum and the rest of the family. Love and enjoy every last day with your mum and yes she will be at peace and that is a great thing to have. Sandra.
So just say in future "I am sorry. Medical information is private and I am not comfortable discussing Mom's diagnosis, prognosis and choices with you. Please refrain from discussed medical problems with her. She is on hospice and she is actively dying. Please honor her wishes for peace so that I can allow you still to enjoy happy visits and memories with her her".
The end. Full stop. This is not their business, but people are busy-bodies, and that has been true forever.
I am so sorry for this loss. I am so thankful you are honoring your Mom's wishes and that you are at peace and she is being kept comfortable.
"She made the right decision for her. She was at peace."
"My dad & sister both died of cancer in their 50’s mom is content about reuniting with them & the rest of her family."
I sometimes feel like answering sarcastically but I learned it is pointless... They usually aren't clever enough to understand sarcasm. Then I sometimes say I am just following the doctor's advice and I trust her...
Here we say that you should prize the coin for the value it has...
I wish you and your family all the best!
Good for you for carrying out her wishes.
If you desire to give an answer, simply say, ‘This is her choice and we wholeheartedly support her.’ If they start spouting their shenanigans, walk away if you can’t stomach anymore or tell them, ‘I am not interested in what you have to say.’ Oh, whenever I have said that to an obnoxious person, they are usually stunned. Their egos are crushed!
‘Bullies or know it all’ types don’t like to be put in their place but I find it quite satisfying to do so when needed. Why should we care about offending someone who could give a ‘rat’s ** about us? I can’t think of a good reason, can you?
I am terribly sorry that you are dealing with this situation. I just lost my mom in April. She also had hospice care. Your mom made the best decision for her and that is all that matters. What others think is neither here nor there. It’s annoying but you know in your heart that their opinion is useless.
They are ignorant and most likely aren’t interested in changing their behavior. They may wake up if they end up going through a similar situation. Let’s hope for their sake and others that they will come around one day but I certainly wouldn’t hold my breath. Live your life exactly as you wish!
Wishing you peace as you navigate through this difficult transition in your lives.