Me and my sisters live around the country, not in the same city as our mother. When we visit we try to clean but instead she assigns up jobs like sorting out batteries or reorganizing a shelf. If we try to push her to get help or if we try to clean up ourselves, she becomes very aggressive.
For the last 10 years her home has been quite dirty and filled with all sorts of things she doesn't need but she will not let us do anything about it, although she constantly complains that she can't get other things taken care of because her house is a mess and needs to be cleaned up. She has a long history of mental illness but she is functional and very smart.
She is now 88 and her health has declined somewhat in the last year, to the point where a friend of hers called me to state that the house was in very bad shape. We realize that we each need to visit her more and ensure that her house is safe for her to be in. We also realize that we need to visit her more to ensure that her home is safe.
She does not listen to any of her children so convincing her of the need to clean her home is not going to happen. She also lies regularly so she might say she is going to do something and then she does not.
We believe that having a home care aide come in to her house several times a week would provide her with some company, make sure her home is safe, and attend to errands, etc. However, her house is not clean or safe enough for an attendant to come to at this point. She says she would be willing to have a home care aide come in, but is not willing to have the house cleaned to the point where that could happen (which could be her passive aggressive of saying she doesn't want a home care aide in the first place).
My sisters and I feel we are at a standstill--we want to know that her living situation is not safe but short of forcibly removing her from the home and sending in a cleaning crew, what are our options?
When my mom was younger and brought crap from rentals home, she's get really pissed when that crap disappeared. My mom would stash it in her sun room, I'd find stuff piling up and toss it. Like I said, I claimed ignorance. H*ll, somebody stole it all for all I knew... As she got older, she'd forget about it, which made it a lot easier.
And if people truly feel their lives are in danger, and I was one of them with my mom for different reasons, well, you do what you have to do. No, no one should be required to die caring for elderly parents, and yes indeed, sometimes it's time to call in the big guns and get other help, for their sake as well as yours. One person, one body, one mind, can only give so much before, as you said, Madeaa, it sucks the life and vitality right out of you, leaving you less than you were before, and sometimes unhealthy in mind and body to boot. Do what's right for YOU. We all go above and beyond, but it shouldn't come at the cost of our own lives and well being. You've done all you can do, Madeaa. That's all that anyone can do. And when it's enough, it's enough. You make sure your charges are safe, but you also make sure YOU are, too. *hugs*
Geriatric psych was the best place for my mother. They ran brain scans to see why her behavior was so irrational since an extensive interview with me and they were able to meet and handle some of her behavior. Some of it was still so ingrained in mom, but at least now she wasn't a beast to deal with like previously.
Standingalone reminded me of a story with my mother. Her "baby" brother was an a-hole. He was trying to con her out of some money and I knew he was playing her something fierce. Well mom thought he was the cats meow and she would only talk to him and call him. So I started screwing with the phone. I told the AL staff about what was going on and since knowing mom's personality and issues, they worked with me soooooo well!! I would turn the ringer off so the phone wouldn't ring. When mom figured that out, I would undo the cord from where it was hidden by leaving it "in" but not. Then my "uncle" (mom's baby brother) started new methods, so I took action there too. I changed mom's phone number without ever telling anyone. Oh I went to the mat with mom and I have to agree with StandingAlone.... all costs. Believe you me I worked for it, but I got satisfaction knowing she was okay.
Did I also mention after exhausting days with her going to the mat that I also drank a lot? :X It was the only way I could chill out while my blood was boiling mad (literally!)
Those of you who say you wouldn't give your loved one a choice have no idea what I've gone through with her. How would you get her out of the house? Give me specifics. Or, get back in the house when she refused to let you in because you threw something away on the last visit? People would say, you need to take her for an evaluation? I'd ask, how? when she will not go. We've made appts and couldn't physically get her out of the house. Her reaction was like trying to put a cat in a tub of water! Give me specifics on how to do these things. I bet we've tried it.
We attempted to get an apartment or assisted living for her for a month or so. That way we could come in, triage, clean, and repair the home without her interference. Remember, legally we can not force her to do that (or go to a doctor, or take medication, or clean her house, or....and she knows that).
We tried APS (adult protective services) who came out, saw this situation, and after 3 months closed the case. This happened three times.
How then did we get her to the hospital? It took over three weeks to put together. Find the appropriate geripsych unit, get two of her doctors to write (and have notarized) that she is not competent to take care of herself...that's harder than you think, especially if she only has one doctor, take over her finances via successor trustee listed in her Trust, make a plan to get her to the hospital. That included her internist calling her to come in for an exam, my brother coming in to take her there, the doctor (we couldn't have done it with this man!) telling her he wants some blood workup taken at a specific hospital (the one with the geripsych unit) and talking her into going from his office straight to the hospital. (It took Dr. an hour to get her to agree that these blood tests). As my brother started driving her there, she changed her mind (nothing new). When he refused to stop, she attempted to get out of the car while it was moving, started beating the inside of the car with her fists (and, yes, StandingAlone, with her cane), then started on my brother. Because of the danger of the situation, my brother took her home to use the bathroom, etc. There he incurred verbal abuse that should never happen to anyone! He left to settle down and returned an hour later. He was able to coax her into the car and drove the 20 mins. to the hospital. The hospital had been primed and was waiting for her in order to direct her to the geripsych unit. She didn't have any paperwork to do since we, in conjunction with the dr, did it ahead of time. She still thinks a mistake was made, that she should have just had some blood tests.
Mom has refused to take any medications the drs at the hospital wanted her to try. She comes across as "delightful" to most people...for a while. They don't understand why "her kids don't help her". She'll forget what we (or anyone else) has done???? Not likely! I constantly hear about things missing that she accuses someone (usually me or my brother) of stealing 10 yrs ago.
StandingAlone, I am really offended by all your "I would make sure". I'd love to know how you would make sure. When people would say to me, you just need to do it, I'd ask how and no one could give me concrete plans of action. Or, the other phrase "you need to get her to...". Tell me how.
I hadn't intended to write all this. ScratchieCat, your situation sounds a lot like mine. "She has a long history of mental illness but she is functional and very smart." Yep. I got it! Frustrating, isn't it? Especially when others have pat answers that don't work or help. Just adds condemnation.
Thanks for listening.
2. Notify her doctor by call or in writing of your concerns and meet with the MD if you can, discuss medications and see if she is actually taking them properly.
3. Notify her county senior services that she is at risk and have them check on her. Depending on how bad things are, they may have her taken in for evaluation. 4. When you are there, quietly clean up and ignore the protests. I would tackle the cupboards one at a time, and told mom I was getting rid of bugs and was careful not to criticize her, just the bugs. I arranged the boxes and cans that remained on the front of the shelves, so the cupboard looks full.
You may have to call in APS. Sometimes it takes an outsider to make things happen by giving an alternative. That is still taking care of your mother by watching out for her. Sometimes we think we have to do it all ourselves, but we cannot. As children, we are perceived as a non-authority over them. My dad made that perfectly clear to me one day (and he had dementia).
Don't feel guilty if you need to call in the troops of professionals who handle these extreme situations for geriatric patients. They have tools and techniques and sometimes our parents see them on their level and we are still the kids. You can still protect your parents, just in an indirect sort of way. It can be more work, but emotionally it may be a whole lot easier than arguing or fending off aggressive attacks.
I didn't accept absolute rule over me, I fought it, every single chance I got. I fought for the right to be MYSELF. With controlling parents there are two options...fight, or break. And I knew even as a kid that h*ll would freeze before she'd break me. Most people, or so it seems, do break under the weight of such intense pressure and abuse. I just...didn't for some reason. I refused, something in me wouldn't let her win. To break me was winning for my mom, and there's no way she was going to win if I had anything at all to say about it.
I remember what kind of kid I was, I'm the same today...a tomboy, who loved nothing more than to get dirty and play in the mud, explore cool bugs, turtles, snakes, you name it. My mom was absolutely horrified. I was told what a rotten 'weirdo' I was, what a 'freak' I was, what a lousy child I was almost daily, simply because of what her idea of a 'girl' was and meant, and my idea of what it meant were polar opposites. My mother was determined to change me, beat it out of me if possible, come h*ll or high water... She'd buy and put me in frilly little dresses and socks...she actually enrolled me in ballet...ugh...I mean, really? The second her back was turned, I ripped those dresses and frills off, and I was out the door, up a tree, in the creek, or in the mud. Oh! A beating for defiance later? Better that that give up my soul. I refused to do a d*mn thing at ballet classes... I sat uncooperative and sullen and refused to budge. Oh, beating again? Well, what was another? Every chance I got I fought for my life, and who I was, before I ever knew what I was doing. My dad would tell her, 'Christ, leave her ALONE, Hilde, leave her alone already..' and she never would....then she'd turn her wrath on my dad, assaulting him physically sometimes in rage for standing up for me... God, my poor dad... He should have had her committed. I look back at all that and kind of have to laugh about the lengths my mom would go to to suppress what she couldn't...my very nature. In the end, in the long run, I won, not my mother, and all things considered, she should thank God she wasn't able to break my spirit...I wouldn't be here for her otherwise. .
There's a goodness in my soul that my mom has never beat out of me, and that extends to anyone, even strangers. I'm not the type that would walk away from a hoarder situation, those extreme ones, and do nothing. Especially if it was my own mom. I HURT thinking of people living in those conditions, I'd want to HELP them, especially if it was my own family! I mean, what else? Walking away would not be an option. How can people, authority figures, just...leave people in filth? I don't understand it. Can't people in dangerous situations be removed for their own safety? If someone says no, and they're mentally sound, can't they be forced to clean up at least? Aren't there some kinds of laws against hoarding situations? If someone doesn't want to leave such a home, what kind help is there for them? Isn't a hoarder situation, that's clearly unhealthy, proof enough that the person isn't mentally competent?
If the house is that bad, perhaps the city might be able to condemn it and, after a certain amount of time, the cops may come and force her out, but that would be very sad.
You or a sibling might go to court and file for guardianship (expensive and time consuming) and if you get it then control is in the families hand and out of hers. Then you can all get together, descend on her house and clear it out. She will thank you in the long run I'll bet.
Good Luck
If you've watched hoarders much, you see that most the intervention doesn't work in the long run and
Sometimes they feel over whelmed by the mess and want it clean but cant get around to it AND refuse help as they dont want you to think they cant manage you will only know when the house is cleaned and her reaction?
If she refuses help then i would threathen her with NH worked with my mum I had her in respite for a week and decluttered the garage she didnt even notice or get upset which was a clear sign of dementia otherwise she would have gone nuts (oops sorry she is nuts!)
I took no more crap one day and cleaned her house OR noone would visit also threatened to call her doc up to see her bedroom you wanna see her face she then sat and said nothing and i cleaned and decluttered the lot.
OT nurse called last week she still not happy as stuff a danger to her I declutter the stairs EVERDAY but it will be cluttered within an hour again!
Groundhog day!
Good luck
In my professional life I have gone into many homes where the patient is close to death and it is clearly is unsafe to leave them there. If they say they won't go to the hospital that is the end of it . I do what I can tuck them into bed and lock the door on my way out. I know someone else will visit the next morning and I may go back in the night but I can not force some one to leave their home. F***k that I hear you say Barbara I'd just call an ambulance and make them go to the hospital. Been there done that when the paramedics turn up and wheel the gurney into the house and the patient firmly says NO they have to pack up and leave and so do I because I have a 25 patient caseload that night and a 970 sq mile county to cover. It's not right and it shouldn't be allowed but it is a persons right unless they are officially declared incompetent and try getting that done. I hope we hear from scratchiecat when she has seen her mother's home and made her own assessment.
My ex boyfriends mom is a hoarder to a certain extent...there's so much stuff in the house that there's literally only one path you can walk all through the house...the rest of the house is PILED with...stuff... That being said, the house is CLEAN. I could live with a clean hoarder and not feel any need to take action...but walking into a house with dead rats laying around, cat and dog...and human...feces all over the d*mn place, no running water, maggots, you name it...No. H*ll no. I don't care if it's right or wrong in anyone's eyes...If I was confronted with that scenario my conscience wouldn't allow me to leave my mom in an unhealthy and unsafe environment like that. But then, I'm talking the extreme end of things, not just someone with piles of stuff... It's not the stuff I have a problem with...it's mold, and unsanitary conditions, like a slum or something...no, I'd have to act on that. One way or the other.
I have found one type of hoarding that doesn't require follow-up. It is hoarding due to laziness. It is a lot easier to just put something in a back room than it is to take it somewhere to donate it. If laziness is the problem, than someone just needs to come in and clean things up occasionally. Lazy people tend to stay that way. But when memories are tied to things, or when there is a fear that something will be needed, or when people are trying to build a fort to wall out others, or when there is compulsive buying/keeping, then follow-up psychotherapy is the only way I know to keep them from just falling back into it.
We have chosen to make this a free country, and over the centuries and decades, we have made the country more free for slaves, women. minorities and the mentally ill. I am not happy about schizophrenics being able to go off their meds and ending up homeless, but that is allowing them to have the right to determine their destiny. The government used to be able to decide who you could have sex with, and I think 90% of us would never accept that again. Make that 98%. Some people want to legislate who other people can have sex with, but think that they themselves should be exempt from the law! In the future, there may be carefully written laws that permit legal action under limited conditions, but we don't have those laws yet. This is the land of the free.
As a small possible compromise, as a hoarder I suggest asking the hoarder to agree that the stairs need to be clear for safety reasons. With her agreement, help her clear that one area. Then find another small area, like near the stove, that is also hazardous.
The eventual outcome will be a fall or illness, meaning that she has to leave her home. Ask her what things she would want to keep in that unpleasant circumstance, when a stranger would come in and throw out everything.
Those are two strategies that would get my cooperation.
I have no experience whatsoever with a hoarder parent, and yes, you're right, I can totally see how my actions with an elderly person NOT in those extremes could result in a restraining order... Again, I was basing my view only on the hoarders shows that I've seen...which were mind boggling, and the only example of hoarding, with the exception of one of my mom's renters, that I've ever seen. . In THAT case, I would do as I said in my previous posts.
The way you described how it all works is unbelievable...that adult children could and are trying to help their parents, but get blown off because it's 'not bad enough', then get blamed later when it is...I mean, can I say wtf? Talk about wanting to beat your head against the wall with frustration! No, I admit, I have no knowledge or experience with all of these dynamics at all....I'm only going by what the tv show itself is presenting, which are really inhuman conditions... And yeah, I've often wondered to myself watching that show how in the world it came to that...it's not just where were the kids, but what about friends, neighbors? Don't they notice anything, or try and help? I didn't realize that a lot of these hoarders were mentally sound...I assumed, based on the show, that they had serious mental issues and couldn't look after themselves...
I appreciate your perspective on it all. I admit to being fascinated by the show, and I've always had questions but no answers...thanks for shedding some light on this situation for me, it clears up a lot of things for me now, and helps me to understand the whole thing a little better... *hugs*
My situation was different but similar, and yours is about your mother---which you will have to choose how to handle it. The dirty house isnt the real problem, its a strong indication that her condition is worsening and she is unable to handle basic chores. She may be suffering from depression as well, and denial that she needs help can also be her pushing people away due to that. Or the senior who fears that someone will come in and harm them, so never accept help as it may be a scam or con artist. (My father would tell off neighbors who offered to mow his lawn!)
If I could imagine a scenerio that would work for my parents, it would be to offer them a little getaway---load them in the car and go with them to a place they always loved or wanted to see that wasnt dreadfully far and keep them in a hotel (cost $450) for a couple of days (to see beach, ride train, see grandchild or see a specialist in a city) and then have the Servicepro people come in and do the house in 24 hours (cost about $1500---worth it!) Have a home inspector come out at the same time and make sure the house is safe (cost $100.) Then when they come back, the house would be clean, you would know if the fridge actually keeps food cold or the a/c works, and it would be acceptable for home health care aid to come and see your parent weekly. And you would have the home inspection to know what needs to be done and can prove it to them. Of course, they would be angry but you just tell them it is their birthday or anniversary present and you are sorry they dont like it---so you wont do it again. Well, that is my daydream scenerio and things dont work that way except in a daydream...but you do have multiple siblings that can come up with a sneaky solution like that to make it seem more apt to happen. To me that is better than fighting and dragging someone out the door of their own house, stressing their already fragile body and psyche.
It is still their life. But you want to ease the burden of cleaning and upkeep on a house. Assisted living or a senior community apartment is really the best solution but you have to have money and someone who will agree to that. But it will help your sisters and you not worry so much.
My heart goes out to you. It is a difficult situation and you must make a decision. Make it with love and courage and perhaps you can avoid the trainwreck that ultimately comes with going down this hill.
And Veronica, the way I see it, if a human being is living in sub par conditions, then they've already been reduced to the level of animals...and that's exactly how I'd treat them. They'd be out of there, just like a dog tied in someone's yard that I saw... Our neighbors had a puppy long ago. The dog was outside, chained to a dog house. No food. No water. Temps in the high 90's. I went over there and fed and watered that dog, after I noticed that the dog was literally in the sun all d*mn day, day after day, with nobody in sight... I went over there one day when they were gone, unchained that dog, and stole it. I had found someone to take it in before hand, and it ended up with a family friend of ours. They still have it.
An elder in these conditions, I consider to be one h*ll of an abused animal. As far as I'm concerned, certain feelings in the hoarder at a certain point wouldn' t really matter much if they're lying in a bed covered in fleas and cat poop... Yes, you respect them...but you don't ask what they want in that situation, you act in an honorable way and get them the h*ll out.
I'm not talking about someone who has one room full of say, a doll collection that stuffs the room, every corner in it, and reaches the ceiling...let them have it. I'm talking about feces, pee, and utter filth. I wouldn't care what my mom had to say if she were in a house like that. Frankly, her feelings be d*mned at that point.