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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Jay, I’m very sorry you’re dealing with this. You’ve received some wonderful advice already. My mom passed away after a horrible turn of rotten health events, it was the worst thing I’ve ever witnessed. She was a faithful Christian woman and I have certainly spent a lot of time wondering why she had such a hard road in the final years and sad death. Ultimately I just have to believe that God had a plan in it all that I’m not capable of understanding, I do know that many people were positively influenced by my mother’s last years, and awful as it was it did serve a purpose. I cried many a tear after leaving my mom’s side, but tried to make the time with her positive and enjoyable to us both. I told her a new joke every time I visited. She enjoyed a good laugh even through horrible circumstances. I held her hand, I took her outdoors to see flowers, I talked to her about everything and nothing. I hope you can find your way to not spend this valuable time not being angry, but focus on your mom and what will help you both. I wish you peace and blessing, it’s so hard, but I so want you to have memories of time well spent
I'm so sorry to hear the news about your mother. I can understand why you feel the way you do. It seems so unfair when wonderful people are taken too soon. It's just heartbreaking. I can only hope that the doctors are wrong and you have your mom here for much longer and she is comfortable and not in any pain.
No one can truly predict tomorrow. But, if not, I hope you have family or friends to help you through this. Your mother certainly knows you are feeling the pain, so, I'm not sure that I would hide that from her. If her faith provides her comfort, then, I'd try to support her in that, even though you are so disappointed.
Do you have other family members or friends to help support you, as you support your mother through this time? Please post as to how things are going, if you feel like it.
Jay, I am sorry that your mother has been given this diagnosis. I would definitely not look at the time as written in stone. I have known many people to live far beyond what the doctor predicted. You have been given some wonderful advice in the previous posts. Being strong for her means that you are honest about your feelings without burdening your mother with them and making sure that her days have as much meaning as possible and as much comfort as you can give her. With that said, I will address your references to God. My first thought was to let someone else do this, but I decided to respond in the hope that I could help. I can only speak from a Christian perspective. First of all, it is OK to be angry at God. He is big enough. He can take it. Rail away. Shake your fist if you want to. The God of the universe understands our human emotions and frailties. I am going to look at this through the eyes of your mother since you said “her God”. If she is a Christian, whether she followed Jesus all her life or just in the last few moments, she is looking at eternal life with God after death. We were never promised eternal life on earth, or for that matter, a life free from turmoil. We don’t serve God to be rewarded in this life or even the next, so God didn’t renege on a deal though your mother served Him all her life. She served God out of joy and gratitude for the forgiveness of sins, grace and mercy found in this life and eternal life to come. Her serving God was not a bargain, it was a natural response to being born of the Spirit. Again, through your mother’s eyes. She will be sad to leave you, she will worry about leaving you, she might be afraid of the physical act of dying, but rest assured that your mother’s eternal life with God began the moment she believed and put her trust in Jesus. Be with your mother one day at a time. Take your eyes off the timetable. For today, comfort her, laugh with her, brush her hair, talk to her, pray with her, (or if you can’t, ask her to pray for you out loud if possible). For today, let her tell you stories of her past, or you can play “Remember when?”. Let her know by your actions and words that you are going to be OK - for today. For today, your mother is alive. I pray that these final days with her be a time of growing peace for you.
I know that a lot of people think that THEY are the ones who have to deliver "the bad news" to their loved ones. I'm hoping JayC doesn't think that it's his job, and that's he's distraught over the general discussion of EOL with his mom.
Doctors are the folks who should be doing this; they have the training and can answer the hard questions that inevitably arise during discussions of end of life issues.
Jeanne, you made good points about acknowledging the situation. And Barb, you also raised an issue I missed - discussing the situation with his mother. Both of your suggestions are very insightful.
Your profile says your mom had a stroke/heart issues. Is her life-limiting diagnosis based on those issues, or is something else going on?
Have mom's doctor's talked to her about her diagnosis? Is she willing to talk about palliative care or hospice? Those services can be of great comfort to both the patient and their loved ones.
I'm so sorry that you are going through this pain with your mom. Be gentle with yourself and let us know how things are going with your mom, and with you.
I agree with GardenArtist that you don't want to spend all your time with your mother in a state of grief and sadness. But if I had a diagnosis of a short life expectancy I think I would be very hurt if everyone just bucks up and takes it in stride in front of me. Gee, isn't anybody broken up over this? Don't spend the next three months wringing your hands and using your limited time with your mother being miserable. But I don't think you have to totally hide your feelings.
GardenArtist has given you some good advice on focusing on what is pleasant and meaningful.
Jay, I'm sorry to learn of this sad diagnosis. Perhaps you can manage to view it another way, i.e., as spending quality time with her, easing her pain and anxiety, and being the best daughter you can when she needs you the most. And that last point is important - this is probably the time when she will rely on you more than at any other time.
I won't address the religious issue as I'm not religious. Perhaps your rabbi, priest or pastor can help you with this aspect.
As many years as I cared for my father before he passed, I still think of things I want to say to him. And I also wish I'd just set aside the time to just do the things we both enjoyed. Those times we did enjoy those activities are more precious than all the doctor appointments hospital visits, and all the medical activities.
Eventually I'll forget about the trauma and nuisance of the medical visits, but I'll remember when we planted morning glories along our back porch, and came out every morning to count the number of blooms. I'll remember how often we checked the pumpkins in our garden, anxious for the harvest so we could carve the pumpkins for Halloween. I'll remember when we went for walks at the local state parks. I'll remember the times we just sat and talked about life. And I'll remember the times when we worked on projects together and he explained how to use various woodworking tools.
Perhaps you can think of that as your mother proceeds on her final journey. What do you want her to remember you by, and what do you want to remember most of her? What do you want to share with her about your life together?
If you have to cry, make an excuse to go to the restroom and cry in private so that you can continue to be strong for her, and not concern her with your own grief. It might only make her sad that she'll be leaving you. Since you're religious, perhaps you can take pleasure that you're honoring her in her time of need.
Learn as much as you can about her illness(es) and act on her behalf with the care staff to ensure she receives a high quality of care.
Bring her favorite music and play it for her to help her relax; decorate her room with flowers, photos of the family, things to help calm and soothe her.
I wish you peace and solace on this challenging journey.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
No one can truly predict tomorrow. But, if not, I hope you have family or friends to help you through this. Your mother certainly knows you are feeling the pain, so, I'm not sure that I would hide that from her. If her faith provides her comfort, then, I'd try to support her in that, even though you are so disappointed.
Do you have other family members or friends to help support you, as you support your mother through this time? Please post as to how things are going, if you feel like it.
With that said, I will address your references to God. My first thought was to let someone else do this, but I decided to respond in the hope that I could help.
I can only speak from a Christian perspective. First of all, it is OK to be angry at God. He is big enough. He can take it. Rail away. Shake your fist if you want to. The God of the universe understands our human emotions and frailties.
I am going to look at this through the eyes of your mother since you said “her God”. If she is a Christian, whether she followed Jesus all her life or just in the last few moments, she is looking at eternal life with God after death. We were never promised eternal life on earth, or for that matter, a life free from turmoil. We don’t serve God to be rewarded in this life or even the next, so God didn’t renege on a deal though your mother served Him all her life. She served God out of joy and gratitude for the forgiveness of sins, grace and mercy found in this life and eternal life to come. Her serving God was not a bargain, it was a natural response to being born of the Spirit.
Again, through your mother’s eyes. She will be sad to leave you, she will worry about leaving you, she might be afraid of the physical act of dying, but rest assured that your mother’s eternal life with God began the moment she believed and put her trust in Jesus.
Be with your mother one day at a time. Take your eyes off the timetable. For today, comfort her, laugh with her, brush her hair, talk to her, pray with her, (or if you can’t, ask her to pray for you out loud if possible). For today, let her tell you stories of her past, or you can play “Remember when?”. Let her know by your actions and words that you are going to be OK - for today. For today, your mother is alive. I pray that these final days with her be a time of growing peace for you.
Doctors are the folks who should be doing this; they have the training and can answer the hard questions that inevitably arise during discussions of end of life issues.
Your profile says your mom had a stroke/heart issues. Is her life-limiting diagnosis based on those issues, or is something else going on?
Have mom's doctor's talked to her about her diagnosis? Is she willing to talk about palliative care or hospice? Those services can be of great comfort to both the patient and their loved ones.
I'm so sorry that you are going through this pain with your mom. Be gentle with yourself and let us know how things are going with your mom, and with you.
I agree with GardenArtist that you don't want to spend all your time with your mother in a state of grief and sadness. But if I had a diagnosis of a short life expectancy I think I would be very hurt if everyone just bucks up and takes it in stride in front of me. Gee, isn't anybody broken up over this? Don't spend the next three months wringing your hands and using your limited time with your mother being miserable. But I don't think you have to totally hide your feelings.
GardenArtist has given you some good advice on focusing on what is pleasant and meaningful.
I won't address the religious issue as I'm not religious. Perhaps your rabbi, priest or pastor can help you with this aspect.
As many years as I cared for my father before he passed, I still think of things I want to say to him. And I also wish I'd just set aside the time to just do the things we both enjoyed. Those times we did enjoy those activities are more precious than all the doctor appointments hospital visits, and all the medical activities.
Eventually I'll forget about the trauma and nuisance of the medical visits, but I'll remember when we planted morning glories along our back porch, and came out every morning to count the number of blooms. I'll remember how often we checked the pumpkins in our garden, anxious for the harvest so we could carve the pumpkins for Halloween. I'll remember when we went for walks at the local state parks. I'll remember the times we just sat and talked about life. And I'll remember the times when we worked on projects together and he explained how to use various woodworking tools.
Perhaps you can think of that as your mother proceeds on her final journey. What do you want her to remember you by, and what do you want to remember most of her? What do you want to share with her about your life together?
If you have to cry, make an excuse to go to the restroom and cry in private so that you can continue to be strong for her, and not concern her with your own grief. It might only make her sad that she'll be leaving you. Since you're religious, perhaps you can take pleasure that you're honoring her in her time of need.
Learn as much as you can about her illness(es) and act on her behalf with the care staff to ensure she receives a high quality of care.
Bring her favorite music and play it for her to help her relax; decorate her room with flowers, photos of the family, things to help calm and soothe her.
I wish you peace and solace on this challenging journey.