Does anybody else’s parents make them feel guilty for not doing enough. She lives by herself and can do things independently. She has Parkinson’s and arthritis and my dad died 21 years ago.
I go up 3 times a week and stay there all day. Not including if she wants anything dropped off. She tells me not to go up but if I don’t go up she is constantly saying she is by herself all of the time and does everything by herself.
She asks me to book hairdressing appointments then says her hair is too short so she doesn’t want to go then she complains that I never take her to the hairdressers.
She won’t go out by herself and I literally do everything I can for her even though I have my own family and work nightshift. I can’t share any joy with her as she says she wishes she could do that and that she doesn’t have the opportunity. I ask her all of the time if she wants to go out does she need anything, shall I hoover, do you want me to iron all I get is no but then she complains that I don’t do anything. I have an older sister and brother they go up maybe once a month and once a fortnight but when they go they are the best.
I'm just so tired and it’s really affecting my mental health. Just wondering if I’m alone in this or does this happen quite regularly.
Do you have DPoA? If not, this is a very important legal step to take. I would take your mother to a certified elder law attorney who can explain the importance of having a legally assigned PoA, an Adance Healthcare Directive, Will, etc. The attorney will interview your mother privately to decide whether she comprehends what assigning a PoA means for her. If she seems competent to understand it, then the attorney will move forward if your mother desires it. This is actually should have priority over the medical diagnosis, especially if you have siblings who might create a fuss over who has PoA, etc.
Your Mother is not really independent at all. If she is having cognitive and memory decline, this means she is losing her ability to work from reason, logic and empathy. So, arguing with her (or even trying to reason with her) will be exhausting and unproductive.
You need to decide how much involvement you want in doing her hands-on care, and then maybe consult with an estate planner or her financial advisor about how far her savings and SS will take her each month. This will determine if she stays in her home with outside paid care, or some other arrangement.
If you are thinking about having her live with you, please think very deeply about this since her decliine is only just beginning and her care will become more and more intense as she becomes less and less able to care for herself -- especially if you have a spouse and children.
You are certainly not alone in this dilemma. Keep coming to this forum to research or ask questions about caregiving. It is probably the most emotionally, physically, psychologically and spiritually challenging thing anyone will ever do. I wish you much clarity and wisdom as you make decisions going forward.
I picture them as three wise men/ladies in long robes... Waving from a train... 😆
As I sing "they took the last train to the coast."
Have family members they left - one has them there but started packing 😜
No, your r not the only one. There are many posters in the same situation. Parents treats them awful and the other siblings get all the glory. I would not go as often to visit or stay as long.
Ask mother to call YOU when she needs something next time and you'll check your schedule to see if you can fit her in. 3x a week all day long is WAYYYYYYY too much time to be devoting to someone who's treating you like dirt. Let her see and feel what it's like to have a daughter who "does nothing" and maybe next time you do something nice for her, she won't be so quick to complain and cut you down.
Good luck to you
All the other answers have to be right. You are ‘disabling’ your mother by doing so much for her that she doesn’t do what she can do for herself. You are acting like a doormat in letting her run you down – it really is abuse. You should make some boundaries and some conditions – she simply must go out on her own (to some sort of activity – there will be at least one if you look), as well as wanting your company. When she’s miserable, you walk out and say that you’ll see her when she’s feeling better.
But as well as all that, find an activity for yourself, and make it a substitute for two half days that you currently spend with her. If you feel worried about it, find an excuse – ‘doctor’s orders’ usually helps, even if you make it up. Fake dialysis springs to mind?
There will be no joy with her, only stress. Start pulling back, there are senior centers she can go to if she is bored, you are not her entertainer.
Get on living your life, you are entitled to do that, let the other two siblings visit more often, seems that she enjoys their company more than yours.
My parents would drive 50 miles to check in on my grandmother once a week. She acted like she never saw them. But her other son, who lived 3 miles away and rarely visited was golden because he would buy her something occasionally.
You think it's your duty to help her, ensure she copes, has all her needs met. We must care for our Mothers afterall!
You feel guilty when you can't meet all her needs.
So you help. But where is the edge? The stopping point? The finish line?
Resentment starts to grow.
More & more you seem to be living Mother's life with her...
What happens to your own life? Your own needs?
Is this kinda right? Or am I on the wrong track?
As others said, why do you go so much? If you're not appreciated, back it down to the frequency of the visits of your siblings. Once a month? Once a fortnight? Why are YOU going THREE days a week?
Usually when people get older, they do not want to leave the house. They feel comfortable in their surroundings and safe. Food becomes a major source of
interest and one of the last things they can enjoy.
I am not a big advocate of the elderly living alone. Senior housing, an apartment, condominium complex, co-housing are ok but solo in a house in my humble opinion is too isolating. Too much upkeep and usually they end up living in one or two rooms at most and camp out on the sofa.
Not everyone can afford Assisted Living, I am one of them. But there is a lot to be said about Senior Centers who provide lunch and also morning day respite programs. Transportation is provided. Mother's primary care doc can do an assessment and write the scrip for p/t and ot/, speech etc.
The outdoors, fresh air, Vitamin D and exercise are all important at every age.
You cannot be the sole provider for mother's happiness. The Church people come faithfully every Sunday with a Bulletin, the update on what's going on and Communion. They have never missed a Sunday. They are unpaid volunteers.
You' re going to have to widen your circle before you burn out. As I write this mother is getting ready for her "Tuesday's With Dementia Friends". She will have a continental breakfast, exercise, physical therapy, lunch, blood pressure reading and I will pick her up at 1PM today. There is a fee and the health insurance another co-pay for p/t and speech. Mother has Lewy Body Dementia.
Mother knows the routine, she picks out her outfit, has her kleenex and Burt Bee in her pocket and an UpWalker Lite which now other patients are now purchasing them. The nurse that is on site is recommending this walker to other families.
I, in turn, will get the car winterized, go to the pharmacy for Mom's med, fill the pill box, pick up Mom's library book, prepare Mom's meal when she returns and work tonight remotely from home. But I can do this with peace of mind know that Mom is safe and supervised. She like all the other patients are tired but the
exercise is needed and I don't want to walk in the door and find Mom on the floor.
It's sounds like the system you have now, something is going to turn up where a decision will be made for your mother.
Read all the answers and decide for yourself what is the best way to handle your mother with the resources that all of us mention here.
You can't go on like this. You will burn out. Your are in my prayers.
I’m trying unsuccessfully to think of ANYONE I’VE EVER COME ACROSS in a caregiving situation who who doesn’t deal with EXACTLY what you’re talking about.
So consider- SHE doesn’t “make” you feel guilty. YOU have create the thoughts of guilt in your mind, then continued thinking them until they’ve become your life pattern.
YOU NEED to break the pattern. She has no reason that I can see to do that, and trust me, SHE WON’T.
Can you offer her a set period of time that allows you to get off the three day a week merry go round, and promise yourself to stick to it?
Try “Mom, I have a (whatever reason) this week and I can’t come to take you to the hairdresser. I will see you on (whatever day is CONVENIENT FOR YOU). Then
stick to your guns.
Will she TRY to manipulate your feelings? Most likely. But you have major responsibilities in your own home, and you are also important enough to have a life for yourself too.
FIGHT THE GUILT. It serves NO GOOD PURPOSE, shows no love whether given or received, doesn’t pay any bills, never makes anyone happy. Not even your mom.
Repeating- most if not all of us have dealt in some way or another with guilt. Youare not alone with this!
You've got a tough row to hoe, you have gone through the looking glass, and you have to lighten up. Back off. If she's gone down into the world of misery and grumpdom don't let her take you with her. You have a mind. When she's acting like a kvetch, give her the raspberries (in your mind) and have a cookie.
Maybe you ARE doing to much. My sister use to go to my parents almost every other day. I knew they didn't want that but they were of the school of don't complain or we'll loose our slave. They would say in a very hard manner "we're fine, just fine", when ask how are they were doing. Meaning of course we're not fine but in nobel-fashion we're suffering in silence. Their grouchy sharp tongued "we're fine, or I'm fine" was not silence.
Out of curiosity ask your siblings if your mom says the same good words about you. Could be she does. Perhaps your siblings faces look less strained when they visit, because they see her so few times, and so seem more pleasant in her mind.
May I suggest that you attach to her fridg a large flexible magnetic white board.
At the top, write with indelible ink - What I need Sezbez to do next visit Tuesday. Write Tuesday in dry erase marker so that it could be changed easily. Btw, indelible ink will erase with the help of nail polish remover or acetone.
Give her a dry erase marker. And put some in a draw. Tell her that she's in control of getting things done as she'd like and when she'd like, and you will only do what she directs in writing so that it'll be smooth sailing with feelings of accomplishment for both of you.
Perhaps a large paper calendar would be more helpful. Tell her that you are reading books about mind reading but until you get it right she's got to help you by committing to a schedule.
I hate to add that if she becomes hateful and writes something crumby be ready with your smartphone and take a photo of it. Most bad feelings come from not being prepared and sucker punched. Go in there as a prepared-for-any-possibility champion. And when she gets to you, tell yourself, okay knuckle head she got you this time, but I'll be prepared for the next time with something witty, like "Oh mom, there your go again you sweet puss you", or a goofy audible sigh as you leave the situation perhaps by put the kettle on for a relaxing tea for yourself and as you walk away you can say - "Hey mom I'm having a tea would you like a cup?" If she keeps haranguing dust, go get the mail, talk to a neighbor pleasantly like nothing really matters in the universe. This is medicine for your nerves. Blow off what you don't like and let it be sweetly known.
It is very difficult, but start practicing becoming a plastic raincoat.
When she says "I wish I can do that" be a recorded machine with pat-answers.
"I understand". "Oh, that must not feel good." followed by "What a nice day. I wonder if the rest of the week will be as nice". Be creative.
Answers such as - "When you think you'd like to try, you will, or, let me know", will start an arguement. You must create your own flat unanswerable comments.
You may be helping her dig your hole.
It has been a long process especially since people aren’t taking caregiving jobs these days but it has been worth it. We can now enjoy each other’s company. I know her needs can change at any time and I will be back at square one but it is working for now.
I wish you luck with your situation. You can’t help her if you are not taking care of yourself as well. It is a juggling act that I think we all have to face.
I strongly urge you to find a way to hire a "good fit" to care for your Mom a few hours a day. She will balk at the cost, but if she eventually grows to like the person it will be well worth it. If Mom's resources don't allow, see if you and siblings can chip in. You all will benefit because you will get the break you need and she will get the companionship she is craving.
Animallovers posted some great suggestions too. You can do this!
You may want to get your mom evaluated for dementia. Take time for yourself however you can.
This isn't only a matter of your being too tired and with your own life; you have also a right to HAVE a life, leisure time, that window of years when you are retired, but still healthy enough to leave on great vacations and do what you have longed to do.
Three times a week for a day is, to tell the truth, enabling this. It is too much. It should be cut down at once to two, and with a goal of one day a week, and some added appointment.
You will need to gently and honestly tell Mom that if she cannot learn to function more on her own she needs to consider being somewhere that can take on the things she can't or chooses not to do. Tell her you are not only exhausted, but that you have a right to some leisure time, some plans of your own for your own life while you can live it. The sad truth is that Mom has already lived her life; you have this one chance at YOUR life.
I would consider a few counseling visits, preferably with a Certified Licensed Social Worker in private practice as they are best with life transitions work and suggestions. I sure wish you the best, but this is up to you. Not everything can be perfectly fixed. There is grief involved, but there SHOULD NOT be guilt. Try to choose your G-words carefully as the words we say to ourselves matter. You haven't caused this helplessness, and the path down into losses due to age are inexorable and certain (I am 80; I KNOW). They will continue and worsen, but they are not a matter of fault, rather of grief. You feel grief that your Mom is not satisfied, grief for her and grief for you. You feel grief that your Mom is no longer the strong able woman she once was and that you are confused and overwhelmed with your role now. Let the guilt luggage go, because the grief is plenty to haul.
Call "A Place for Mom" and/or care advisor on this site.
You need to change things ASAP. You have your own life and the time you spend with your mom is unappreciated and therefore almost a total waste of your limited time.
You need to STOP doing everything for her. She needs to start doing things for herself. Or an aide will need to be hired with her money.
If you see things that you think should be done - just do them, if you are so inclined. Or don't. But don't listen to her crap about it. Clean up and if she complains just say something vague like "well, I'm just going to finish it up mom so just relax". Or better yet, put her to work doing something for herself!
Cut your time substantially. She needs to get out of the house - senior center, etc. You can't be with her all the time and nor should you want to be. If things aren't to her liking - too bad for her. You can only do so much. And you deserve time for yourself and your own family.
Good luck