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She isn't sleeping good at all because it gets worse during the night. They have told us that the cochlear implant might help, any ideas on that? We need help, it's driving her crazy.
I took my own advice and borrowed Oliver Sachs’ book from the library. Musical Ear Syndrome is not normally medication-induced. It occurs when people have lost all or nearly all hearing, and the brain fills in the gap with other sounds. It’s very difficult to control, but cochlear implants can provide some ‘sounds’ that seem to satisfy the brain. Interestingly, hallucinations can be similar for people who are blind or have very little sight – again, the brain fills in the gap with ‘visions’. It is another indication that we actually see and hear with the brain, not the eyes and ears. When the eyes or ears aren’t doing their job in collecting information, for some people the brain takes over. Brain damage can also cause this, as can sensory deprivation or lack of food or sleep.
Your mother’s problems with lack of sleep might be helped by meditation or self hypnosis, helping her to minimise the artificial noise. Even understanding what is happening to her might help – she shouldn’t be worrying about whether this is a sign that she is going crazy or that anything else will deteriorate, because that isn't the case. Love to her and to you, Margaret
Have you tried playing, very softly, gentle music? Birds singing etc. I have tinnitus and night time is always more difficult as there are no other distracting sounds.
My on line research tells me that MES is kind of like phantom limb syndrome in that the brain is "hearing" something that isn't there. Unfortunately it looks like the condition is very difficult to treat, the idea behind the implants is restoring some level of hearing, however small, gives the brain something real to do so it will lessen false signals. According to verywellhealth "Today's cochlear implant surgery is a relatively minor operation of just a few hours. Your procedure may be a day surgery and you will need to arrange for someone to drive you home (you should not drive or take public transportation the day you have anesthesia)Or, you may spend the night at the hospital." (verywellhealth.com/cochlear-implant-surgery-1048484)
How old is your mom - is there a concern with having surgery?
What medications are driving the hallucinogenic hearing? You would want to check that first. Cochlear implants would be the last option. It requires implantation into the back of the ear.
I am late to this party, but my mother heard Christmas and marching band music. She kept getting the people at her independent living building to come to her apartment to listen. She was very angry and said they were lying. I found an article about it and shared it with her and the staff. It explained the hallucinations were caused by her brain making up for a lack of stimulation. I was very surprised the staff was not familiar with it. They actually shared it throughout the facility. My mother felt much better after reading that it was caused by her hearing loss, and no longer went into her rants about her neighbors or staff playing loud music. I talked her into hearing aids after telling her I could no longer shout for extended periods. The music stopped after she started using hearing aids, although getting her to continue is a whole different drama. I do not know about the implant, just that when mother saw the reason for her hallucinations in print (not in conversation or on a screen), she was no longer upset and out of control about it.
My understanding is that cochlear implants provide a different sensation that the brain can learn to interpret. This way deaf people can learn to interpret speech – it isn’t just making the person hear normally. It is clearly a specialist situation to work out whether this would dampen hallucinations of music. Wikipedia refers to a book by Olive Sachs entitled ‘Musicophelia’ that talks about cochlear implants for Musical Ear Syndrome, which might give more information. Oliver Sachs is usually a great author, well worth a read (especially if the library will get it for you). You could also try the cochlear web site – I can’t enter it into this answer but just do a search for cochlear. The site gives quite a lot of information about hearing loss of different types, which might be helpful as background. You probably also need to think about how your mother would cope with the implant operation, and check whether sleeping medications would be appropriate. What a difficult situation!
Medications are the first place to try. In my own case, that is an issue.
Also, if you and mom try to keep time records of what she eats and drinks, as well as the time of consumption, you might figure out some of the irritants. Some days/nights my ears are buzzing , ringing, hearing "people talking on the radio" and these always pass. By recording intake I figured out some of what in my life brings on the noises. I usually wear 2 hearing aids, but the night sounds are all w/o these. I feel badly for you mom, since she can't mask the noises. I wonder if meditation practice would help? I hear it recommended for all sorts of issues.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Your mother’s problems with lack of sleep might be helped by meditation or self hypnosis, helping her to minimise the artificial noise. Even understanding what is happening to her might help – she shouldn’t be worrying about whether this is a sign that she is going crazy or that anything else will deteriorate, because that isn't the case. Love to her and to you, Margaret
Have you tried playing, very softly, gentle music? Birds singing etc.
I have tinnitus and night time is always more difficult as there are no other distracting sounds.
Just a thought and good luck.
Buzzy
(verywellhealth.com/cochlear-implant-surgery-1048484)
How old is your mom - is there a concern with having surgery?
My mother felt much better after reading that it was caused by her hearing loss, and no longer went into her rants about her neighbors or staff playing loud music.
I talked her into hearing aids after telling her I could no longer shout for extended periods. The music stopped after she started using hearing aids, although getting her to continue is a whole different drama.
I do not know about the implant, just that when mother saw the reason for her hallucinations in print (not in conversation or on a screen), she was no longer upset and out of control about it.
Also, if you and mom try to keep time records of what she eats and drinks, as well as the time of consumption, you might figure out some of the irritants. Some days/nights my ears are buzzing , ringing, hearing "people talking on the radio" and these always pass.
By recording intake I figured out some of what in my life brings on the noises. I usually wear 2 hearing aids, but the night sounds are all w/o these.
I feel badly for you mom, since she can't mask the noises. I wonder if meditation practice would help? I hear it recommended for all sorts of issues.