I was contacted by a rep with AL on Friday that my LO's doctor had recommended a psych consult with a psychologist they often use She said it was talk therapy and would help her. I asked why this came about and they said due my LO's outbursts This is the first time I have heard about any outbursts. The reported to me that she had an argument with her first roommate several months ago, but she was moved and that has worked out well, except for a disagreement about the room thermostat. I haven't been told about anything further though. Just that my LO reports the problem to the office and staff about the thermostat being turned on heat when it's 90 degrees outside. I talked to the Resident coordinator about that about a week ago and no outburst were mentioned. I think it's understandable to be upset when your room is extremely hot due to the heat being on this time of year. i have personally arrived to the AL and saw the heat on.
Also, my LO hasn't seen her doctor in a few months. She has an upcoming appt. This doctor has diagnosed her with significant dementia and suspects Alzheimers. Wouldn't outbursts be from Alzheimers? Would they need and benefit from a psych consult prior to returning to her doctor?
Is this standard or will it put a negative mark on her file and hurt her chances of being accepted into another facility in the future. Anyone know? I want her to get all the help she needs, but the way this came about seems odd to me.
UPDATE on my situation. I explained to the ALF rep that I wished to get my cousin medically evaluated first. I had her consult with a Neurologist who specializes in Alzheimers and Dementia. He did his own test in the office and then ordered blood tests, an MRI and an evaluation by a Neuro psychologoist. The Neuro psych evaluation is 4 hours long. It's designed for people with dementia to determine many things about their thinking and mental ability. After all the documentation is in, the Neurologist will render his prognosis and we will take his advice on what meds and therapy she will need from here on out.
Maybe it helps, but I'm waiting to see what the doctor advises.
The very best of luck to you.
It's generally safest to go with the least sedation, so likely Xanax would be the first choice for the rep and with an elderly person, Xanax can be quite powerful. Yet, the doctor may have more insight - checking out the possible negatives to an IV with the doctor can help you decide.
Please update us!
carol
When you say sedate, are you talking about with IV and put asleep or do you mean relaxed with a Xanax? The MRI rep said if she cannot tolerate the MRI with Xanax, they will reschedule to do it with the IV.
Carol
I'm wondering if we should have her sedated and do both scans at once. ??? I don't know. This is so overwhelming.
The procedure they are tenatively advising is called vertebroplasty. It's outpatient procedure where they place a needle into the spine and fill the fracture with a cement like substance. It's known to really reduce the pain almost instantly. I hope it works out. They don't use a general either, so that's good.
I am worried that she's on Percoset every 8 hours for now. I'm scared it'll make her fall again. So much to deal with. Plus, the ALF didn't give me a file that I was supposed to take with us to the doctor. Apparently, there are forms they need to fill out. I signed her out from the facility and talked to the nursing staff 3 times before we left, but no one mentioned taking anything with us. I'm frustrated.
My cousin complained of back pain quite a bit, but other than that was okay. Her memory is quite bad of course, but on the way back to the ALF I think she suffered from sundowning. She grew very confused. She kept asking if she lived at the ALF. She asked how she could return there with no clothes. I explained her clothes were there. She asked if she knew anyone there and why I was taking her there. It was as if she had never been there before.
I explained she knew many people there who help her every day and that she has lots of friends. Once we got inside, things became familiar, but she sulked. She then said she wasn't even in pain anymore. It was so odd.
Lesson learned. willI never keep her out of the facility after 3:00 p.m. if at all possible.
We always seem to get more than we bargained for when we agree to care give. It is interesting, and I think somewhat unusual, at least for those on this website, that your cousin is compliant with you, despite her history of being used to getting her own way. I hope she stays that way. It would make life easier for her and those caring for her. (((((hugs))))
This is turning out worse than I had expected. Now she needs an MRI for her spine, before the vertebroplasty can be done PLUS, she needs the MRI for her brain. I'm so confused. I'm going to just inform the doctors and let them and the insurance company decide who to handle it.
UPDATE. When I spoke with the GP yesterday by phone she told me that she would proceed with the brain scans immediately as soon as I was sure if Medicare and/or Medicaid would cover. So, this morning I called a local Neurologist, who specializes in Alzheimers and other brain disorders and spoke with their rep. They said if the GP will refer her to their office, they will check with her insurance and get the prior approvals and have them scheduled ASAP. I asked about a psych evaluation and they said to wait and if it's necessary, they will order it. So, now I'm not sure what to do.
I faxed a detailed letter addressing my concerns to the director this morning. I hope she's had a chance to review it.
I'm going to the ALF soon. I have to transport my cousin to the ortnopaedic doctor as their transport person is out this week. I intend to tell the Director what the Neurologist's office said and if the ALF still wants the eval, prior to the brain scans, I'll probably go along with it, ONLY if there is documentation of these outbursts they are describing.
My cousin is an only child. She is spoiled and has always gotten things her way. I would not be surprised if she has outbursts, but I haven't seen ANY since she got the full blown dementia and I have required her to do some things she did not like, such as wearing a bra, brushing her teeth, etc. She has been completely compliant with me, but I will believe what they report if they have it documented.
I see we cross posted about the LO.
You said that this is a cousin who would not do this for you. Did she have some psych issues before she entered assisted living? I would request an account of the outbursts. I "made friends" with a coordinator at my mothers ALF and had regular though not that frequent contact with her which was invaluable and filled out the picture of mother's problems for me, along with the phone calls I had from mother. I care give at a distance. (((((hugs))))) for the often thankless job you are doing
selfadvocate - welcome - LO means loved one There actually is a thread for acronyms - somewhat humorous but also informative. :)
He now has Hospice coming in.... first thing they did was take him off the alz meds.
I will try to find a doctor in geriactics, but I thought that her current doctor does that. She is the doctor who initially saw her and diagnosed with dementia and filled out form for her to be admitted into the assisted living facility and get medicaid.
Remember you are the one calling the shots. Meet with the director of nursing at Assisted living and ask for clarification and specific problems; get appointment with medical doctor whose specialty is geriatrics. If there is a behavior problem, causing problems in her current living situation you need a psychiatrist to evaluate and make recommendations. I disagree firmly that a psychologist is the place to begin! Again YOU are in charge and can guid your mom's care, do not be bullied into anything that feels uncomfortable. Get all the facts first. Never assume they will do all the coordination of care. They usually do not jave time. Not a criticism, a fact I will be happy to answer any more questions if I can. I just have to figure out how to navigate my way around. I am not offering you professional advice but that of a daughter once caught in the system with my mom.
Good luck, I'd like to know the outcome
In the winter, they would like thermostat set to 80 or 85. Shorts season even in the winter at times. LOL!
Also, how can the psychologist even know what information the patient gives is accurate, imagined, etc. It makes no sense to me, but if the doctor recommends it, then I don't think it would be prudent to not allow it. The ALF may not want my LO to reside there if I resist and I don't want that. My LO tells me the people there are good to her and she likes them. I may not find that elsewhere.
I will inquire more about the person doing the evaluation, her credentials, etc. and ask to be present. Today, I'm requesting from the ALF for a list of when the outbursts allegedly occurred and the circumstances. The only problem I've heard about is the heat being turned on in her room and I think that's understandable for someone to be upset about that.
Yesterday, when I asked about the heat being on in her room and a Nurse there told me that my LO reports being cold and that's why the heat is on. I don't believe that, because when I got back from the ER yesterday (LO fell and broke her foot) the heat was on and my LO had not been in the room for 5 hours. Her roommate was in the room. AND, even if my LO does report being cold, if it's hot they should not turn the heat on. That's bizarre.
Why is it always something? I'm not sure how much more responsibility I can take. It takes so much time, energy and effort. This is for a cousin, who would not have done the same for me. Oh well, that's the subject of a different thread. lol
Time to readjust their programme. :)