Mom is in LTC and about to requalify for Medicaid and enter the spend-down process. On April 1, her benefits will go to the nursing home, except $50. She has stage 4 lung and liver cancer and they have recently started her on morphine to ease her breathing. Hospice thinks she has maximum 3 months left. LTC will be $11k per month, which we will have to pay back through Medicaid after she dies. Mom has some assets and a 2nd loan we could use to try to get her back into her house for a short-time on private pay before she passes. She would need 24 hour care. For the few thousand $$ extra per month for a short while, I would love to get my mother home. I know that’s what she wants. Has anyone else done/tried this? Is it realistic? Would welcome thoughts and experience.
It was tough, but what he wanted and I'm glad we did it. He was much happier there than he had been at a nursing home. He died at home with me holding his hand and an aide at our side. After he died, hospice came in and helped me make the necessary phone calls to have his death legally pronounced and his body moved to the funeral home for the cremation we had pre-arranged. And a chaplain from hospice came to pray with me. I don't have enough good things to say about hospice support.
I was running a business at the time that had to be put on hold, I didn't have a lot of money saved so that part was hard.
Hospice was something I resented at first because I didn't like the idea that they said my parents were dying, and didn't have much time left.
Ultimately, my parents got to stay in their home with family around until the end, and the people from hospice by that time actually felt like family.
They are very unique individuals, that truly care, and know how to help people through this phase of someone's life. I couldn't have kept my parents at home without them, and will never forget them for their efforts, care, and graciousness.
If you have a way to stay home with your mom, do it. It's not going to be easy, but you'll feel better knowing you did all you could to help her stay at home through the end.
If you can't do it, at least you know you tried your best to bring her home.....Best of luck
Wishing you peace during this difficult time.
I do encourage you to bring your mom home! Be sure and have the help you’ll need though. Next to impossible to do it all yourself for any length of time. Good luck and God bless/
at first my son could walk to the living room then gradually stayed longer bed till he died. I slept on a mat on the floor. I slept when he did except for some times i spent with my husband who worked a regular job.
he lived 3 months from the time he entered in the hospital till he died.
i was 52. He was 32.
it was virtually exhausting, i think
due to stress more than anything else. I slept on a mat on the floor. I slept when he did except for some times i spent with my husband who worked a regular job so wasnt home all the time.
yes i would do it again but i dont know how many times i could do it since im older now.
i think it all goes to health, age, and determination of the caregiver.
You took care of your lovely son until he stepped across to the spirit world where the Angels took him and cared for him. Im sure he will be there to greet you when you too, return home.