She lives with me in NC. Due to her diabetes, I have my mom on a meal schedule, count her carbs, test her blood sugar and give her insulin, and make sure she takes her medication. I have healthy high protein, low carb snacks for her close by. She is prone to UTIs due to her urethra not closing at all, and poor hygiene, and pressure sores because her arthritis makes it painful for her to walk so she will not move around enough, and fungal infections because it is a struggle to get her to bathe. My mother will raid the refrigerator at all hours, drinking a couple of glasses of milk at a time, eating a quart of yogurt in one sitting, etcetera, which sends her blood sugar soaring and all that sugar feeds the fungal and bacterial infections that she is prone to getting.
There is absolutely NO money for a decent nursing home, though her doctor says its getting to that point because she is so resistant to following medical advice. My mom is dead set against a nursing home, and with the lack of funds I can only imagine the sort of place she might wind up. It is getting to the point where if she doesn't comply, the doctor might take steps to take that decision from her. So, is it ok for me to install a lock on the refrigerator to keep her on track for her health? I have tried talking to her, explaining about drinking too much milk and overeating, and she would just snack and eat all day long and get no exercise if I didn't keep my eye on things.
I do have to work, and when I am out of the house ,all bets are off. There is no money for any sort of home health assistance, so I really need to keep her from raiding the refrigerator when I'm at work. I really cringe at the thought of locking the refrigerator but I need ingredients on hand to cook for us, and if I don't prevent her access to it, there is no controlling her blood sugar and helping to prevent the subsequent infections that come from it being too high. Another concern is that when I tell her that her blood sugar is too high, on occasion, she has gotten her insulin from the refrigerator and given herself 60 or 90 units to bring it down, and I am concerned about that, though lately she's been forgetting how to fill a syringe, so that's not the danger it once was.
When her doctor mentioned a nursing home, she got better about regular meal times and bathing, and for about a week, that's been ok, but the snacking continues and I'm having trouble steadying her blood sugar. I'm hoping with a few more weeks of regularly scheduled meals 3 times a day and a couple of low carb snacks, her urge to snack incessantly will stop. She eats when she's bored, and spends all her time on the Internet, so if the Internet goes out or she gets confused and can't remember how to log in, she gets bored and just eats and eats. If we could get her a new prescription for reading glasses, she would read books when she can't get online, but with her blood sugar up and down so much, new glasses would be useless because her vision changes from week to week based on her blood sugar and its effect on her eyes.
I feel like some sort of monster for even asking about the legalities of locking the refrigerator, that seems like such a horrible thing to do. I just don't know how else to keep her on track with her meals and blood sugar control and now that she's afraid of a nursing home after her doctor spoke to her about that two weeks ago, she is more willing to be compliant with her treatment but the snacking is a long ingrained habit.
Have you actually looked at nursing homes that accept Medicaid? Don't make the assumption that they are inadequate compared to those who only accept self-pay.
As to your specific question, I don't see a problem with locking the fridge, especially if she has access to a reasonable number of snacks and plenty to drink during the day.
My heart goes out to you. You are doing your utmost to help keep Mom healthy, and yet her own behavior is self-destructive. How frustrating and painful! You obviously have to work, and there she is, unsupervised, and offsetting all your hard work!
I suggest expanding your focus to advocate for some kind of financial aid for Mom. I know you are already overwhelmed with managing her health concerns, but in the long run spending some effort in getting her financial help to afford the daytime care she needs could be a very worthwhile investment.
Continue to do your best. But also accept that this is not entirely within your control. Your mother's inability to help care of herself is Not Your Fault. (It is probably also Not Her Fault, if that helps any.) Take pride in all the care you are providing, and PLEASE do not fall prey to guilt feelings. You are doing an awesome job!
Do like anyone would do with a spoiled child, no pull-ups, no computer time.
As for the food issue, keep those items that would give her a sugar spike out of the house, even if it mean stopping by the grocery store on the way home from work every day. Find fresh veggies that don't have a lot of natural sugar. I can't vision your Mom finishing off a stock of fresh carrots.
Frqflyer, I don't remember enough of the details of your situation -- do you have diabetes? Ever lived with someone who does?
I'm trying to think of how I would "keep those items that would give me a sugar spike" out of the house. Since with the exception of non-starchy vegetables, pretty much any food that has carbohydrates can cause a sugar spike in someone who has diabetes. Sure, the wrapped candies I keep in a pretty bowl on the coffee table would be easy to remove. No problem. But, no milk in the house? No fruit juice? No fruit? No cereal? Crackers, bread, frozen hashbrowns? Wow. It would tremendously expensive to buy only one meal worth of such items at a time. I think that this solution would be a big burden for Lost. Locking up the "dangerous" foods makes more sense to me.
And why should Lost suffer even more by not having what she likes in the house? No bun on a burger at McD's, for Mom? Fine. But never any buns or bread for the caregiver at home, either? Way too burdensome for the OP. And eliminating carbs is contrary to the American Diabetic Association advice, as well as that of most certified diabetic educators.
Being diabetic is NOT like being sensitive or allergic to particular foods or food groups that you can learn to avoid. It is needing to control how much and when you eat the foods you need to eat. Huge difference. And in this case it seems Mom is out of control if left on her own.
If your mom does have cognitive impairment, then she needs to be in a place that can handle her needs and you need to go back to being a loving daughter and not the food police/nurse/maid/poop cleaner.
If your mom doesn't have cognitive impairment, I'd give her the option of behaving like a responsible adult, or she's out of your house (assuming she lives in your house and not the other way around). You've taken on wayyyyy too much responsibility for her if she doesn't have a mental impairment.
Most persons with dementia cannot live alone beyond the very earliest stage. Your mother is alone while you work. That simply isn't adequate. Not Your Fault. Not Her Fault. But something must be done.
Given your career I'm sure you'll quickly become an expert and finding resources to make it happen.
And speaking of your career, it must be especially galling to you to see your mother's self-destructive behavior since you say, "All my professional life has been about helping people take more control over their own lives, and being responsible for themselves as adults. I am at a loss regarding how to deal with what is essentially, willfulness on the part of a competent adult."
Certainly your mother's behavior LOOKS willful. Even with dementia it is a best practice to encourage the person to take as much responsibility as they safely can. BUT with dementia there is a definite limit to what can be expected from them, and that limit gets lower and lower over time. There is physical damage to the brain and the person truly cannot always control their behavior.
There is a huge difference between falling short of the legal threshold for an "incompetent" ruling, and actually being "a competent adult."
Her doctor obviously knows she is not compliant with her care plan. Have you also told him about other behaviors at home, like not wearing incontinent briefs?
From what you've said, I believe your mother is mentally impaired.
If this is truly willful behavior then I agree with blannie and freqflyer. It is time to take charge and stop putting up with this disrespectful and harmful behavior.
(Tough love simply doesn't work with dementia and that is what I think you are dealing with.)
Yes, you can put a lock on the fridge. I've watched shows about families of Prader-Willi children and they lock up everything when the kids are alone, and overnight. Lock the cabinets too if there's cereal, bread, crackers, or anything else she should be having in excess But essentially I agree with what was said by jeannegibbs above - your mother seems to be mentally impaired. It may be time to let her be moved to a nursing home. And, in either case, take control of your own home back. If she's not mentally impaired, you need to stop putting up with this disrespectful and harmful behavior (thank you jeannegibbs!). Caregivers have rights too!
I wonder if you're under additional pressure because of your professional background. Just like the doctor's children always being the ones who are ill, I can only imagine how desperate the idea of your mother's care not being 100% brilliant must make you. You are, like it or not, a bit of a role model. Your higher level of expertise does mean that people will be watching you to see how it's done; and I don't envy you one bit.
But, especially because of your professional background, is it maybe time to have the quality of life debate with yourself? That is, with yourself and with others you trust - your mother's doctor, maybe colleagues, people you network with and whose opinions you respect?
Your mother, you say, is competent but wilful. You could say that about any person who smokes, drinks to excess, eats to excess, fails to take sufficient exercise… She is taking risks that many, if not most (it's most), adults take with their health. It's only a matter of degree.
The key difference, of course, is that you feel responsible for her welfare. Are you? In fact? And how far?
If no, then she can eat and drink what she likes. You can advise, you can provide a high quality diet, you can encourage and educate and inform. But you cannot decide.
If yes, then by all means lock your refrigerator if you judge that best. Your house, your responsibility, your decision. The only thing is, then: what are you trying to achieve? It isn't very likely, even if you do take that or similar steps, that you will be able to get your mother to A1 fitness. If you can get her to healthy and happy, then it's worth it. But slightly healthier and miserable? I wouldn't see that as a good enough reason to take away more of her autonomy.
I don't think you're going to cure boredom in three weeks. If she is snacking for that reason, is there anything else that could be done to divert her? Any voluntary organisations in the area that provide befriending services, outings, just something to occupy her?
I'd also look for resources online to find no-holds-barred pictures of diabetic complications and pin those up in the kitchen. Go to diabetes.org as a start - they also have an 'in my community' section which might have helpful ideas. If the threat of a nursing home made her shape up (briefly, alas), then surely amputation, blindness… get as gory as you like.
I'm curious about her computer usage. Is there any room for negotiation on that? If it's your computer you can just sell it and make her go cold turkey… wishful thinking, I guess? But it might be worth taking a closer look at what she's getting out of that chat room and seeing if you can't wean her onto something parallel that doesn't keep her immobile for so many hours at a time. Deadly.
You can get washable absorbent pads, by the way, on a practical point, to go on chairs. They're not expensive, hold up to a litre of fluid and save a lot of tears before bedtime. You wouldn't pick 'em for your loose covers, but there's a choice of colours so they don't have to look terrible.
Perhaps the one key thing is to remember that you do not have to carry all of this responsibility alone. Even if your mother were not competent - and I can't agree that making foolish choices is proof of dementia - you might feel more comfortable remembering that there is a whole community of people who will gladly support you; and I would have thought the diabetic community above all will get how difficult this challenge is.
Truly, I do understand how it feels to feel responsible for someone who Will Not Comply - for no good reason, yet! - and it is torment; but don't set yourself impossible goals for how much improvement you can achieve. It'll drive you round the bend and, worse, make you angry with your mother. Good luck with picking the battles, please come back to us.
She keeps very odd hours, and due to her diabetes, really needs to be on a regular meal schedule. Without that, and with her raiding the refrigerator all the time, her sugar has been out of control. That leads to fungal infections and UTIs and her refusal to get up and walk enough leads to pressure sores. Her doctor told her that to avoid a nursing home, she has to be on a regular meal schedule and go to sleep around the same time every day and bathe regularly. I have gotten her to bathe regularly by telling her that no, I will not help her log into this or that program until she bathes. Her refusal to use pull ups ... to be honest, a good deal of that is that she doesn't care that someone has to clean up after her. The way she sees it, she changed the diapers and bathed five babies, so one of them can clean up after her now. She actually shorted out her old power chair with urine, and now wants another power chair. I told her if she gets a new one, she has got to wear the pull ups and pads inside them and change the pads as needed, and if she doesn't do that, it will be back to a wheelchair. She can walk, but she has an extraordinarily low pain threshold and walking hurts her arthritic knees so she refuses to do anything but the bare minimum. When I say low pain threshold, her doctor was lancing a skin infection to drain it and she passed out cold, and when she has blood drawn, she gets faint at the pain from the needle prick and someone has to hold her arm or she will jerk away from the needle. This is not something new, she's been that way since I can remember. She has always refused PT because they focus on her walking, which she won't do. She won't take pain killers because she thinks they will damage her liver or kidneys, depending on the pain killer in question. I tried to point out that she is 84 years old, and being with less pain and possibly doing some long term damage might be all right in terms of quality of life. I spoke to her doctor about a PT consult, focusing on helping her with what she needs help with and will actually do ... she has got to be able to stand up and sit down with greater ease, and get in and out of vehicles.
I know that she can do for herself, she simply refuses to in a lot of cases. She can cook, she can wash dishes, she can bathe herself, she can dress herself. After a recent doctor visit in which her doctor mentioned a nursing home, due to her non compliance, she agreed to a regular schedule. So she gets breakfast, lunch, and dinner at the same times every day, and an hour before breakfast she bathes and then I watch her take her meds and I test her sugar and give her the appropriate amount of insulin. So things have improved except for the refusal to wear pull ups other than at bedtime, and the snacking. Her doctor scared her with talk of a nursing home, and she's been far more cooperative since then. Getting her bath ready, doing her laundry,taking care of her meals and meds, and mopping the floor are what I do to assist her. She folds and puts away her own laundry and does her own dishes when I put my foot down about it and tell her I am going to turn off the computer until she takes care of things. While she likes to go out for rides and to get her hair done, and to lunch, she is not really interested in socializing with people her own age. She prefers her online communities from which it is difficult to pry her away for more than a few hours. Until about 8 years ago, she was an avid gardener and belonged to a gardening club, but as her arthritis got worse, she stopped moving around, and once she got online, she got out less and less and has been in a pretty rapid decline since then. She doesn't need constant care or supervision. On good days, about three hours spent with her all told, with a few minutes here and there throughout the day checking on her and reminded her to elevate her legs, mop the floor, fix whatever she's done to mess up her computer, etc. Days she has appointments, a lot longer.
My mother was never "mother of the year" ... always short tempered, always quick to spank or worse. Of her children, I'm the only one who has any tolerance for being around her, carrying on a conversation, taking care of her because my siblings have long memories and do not forgive. My attitude has always been that she did the best she could as a mother, whether that best was dreadful or not, so in good conscience, I should do the best I can for her. Where we live, I am her de facto caretaker and can be held liable for neglect so there is no moving her out to anywhere but a nursing home and she will not hear of that. I'm pretty much stuck with her and trying to make the best of it.
Your mom has put you in an emotional prison of guilt - I cleaned your diapers so now you clean my urine and feces. The difference is that a child doesn't know any better and had no choice on being brought into the world. Your mom KNOWS better and can DO better and chooses to be non-compliant with her entitled attitude and disrespect for you, her daughter. My heart goes out to you, because you've got quite a burden to carry with your mom. I couldn't do it and wouldn't wish it on anyone else.
In your place, I would move her out. If she's actually capable of taking care of herself (except she won't), I'd move her into whatever little senior apartment she could afford on her own income, and I'd tend to her minimum needs at her house. I'd stop preparing nutritious meals altogether for someone who refuses to follow the meal plan and snacks indiscriminately the rest of the time. I'd make sure she took her meds, check her over for injuries and worsening of symptoms, and leave the mess behind me when I walked out the door.
It is hard to not try to control what they do when we know that it would be better. But we do have to remember that they are adults and inside feel that they are the same people as they were when they were younger. In some cases if you did things like lock away food, the person could become destructive. I don't know if that would be the case for your mother. There is so much that we just have to play by ear.
I find it better with my bull-headed mother to approach her at her level. If your mother wants treats, buy some of the sugar-free jello snacks or similar things that may satisfy her cravings for sweets without adding a lot of extra sugar.
If nothing works, it is something you can't control and you'll have to make hard choices -- to continue to keep her at home while she goes downhill or to get professional help for her. It worries me that she sits in her chair all day without bathing and with bed sores, but I know you can't make her do what she won't. My greatest concern here is for you. You happiness is being totally consumed, along with all the food in the refrigerator.
It sounds like you and I are about at the same point on this downhill ride. I am personally ready to say "Enough! I have to get my sanity back."
You got a lot more advice than that -- because as caregivers we can empathize with what you are going through and we'd really like to see your life improved.But your attitude that you're "stuck with it" and that there is a "reason" why every suggestion for change won't work means, I think, that you are indeed stuck in the situation. Could you get unstuck? Oh sure, but not with your present attitude and belief system.
That's OK. You are entitled to any outlook on life that you choose. You think your mother did her best and now you can do your best. Your life, your decisions. But I sincerely hope that you can accept your limitations gracefully and NOT go into the black hole of guilt.
Um. What are you going to do when she can't manage as well as she is currently doing? Will you be able to get help lined up ready for that time?
You mention that your Mom is bored. There are Senior Centers and Adult Day Programs that are income based. I don't know where you live or I will be glad to look those resources up for you. There are also programs in every state for in home care...call your Area Agency on Aging to find out how to have your Mom assessed. There will likely be a wait list but at least you would know that she will eventually get services. In the meantime, adult day programs and senior centers provide a healthy warm meal, socialization and activities for older adults...hopefully she would be engaged in something other than the TV and food and that would be a better quality of life for her.
By chance was your Mom a veteran or married to a veteran. There is a program for war time veterans and their surviving spouses to assist in paying for care in the older years.
Hope these ideas help! Sandra