Mom was moved to memory care after trying out assisted living for about a month. She didn't want to be there, and it made it hard for her adapt. She spends all of her time trying to get out and asking to leave. She cries all day long, despite being medicated and having activities. Will this calm down? I've internalized all of this and am still recovering from severe burnout from caring for her when it was just me. I don't want her to feel like I abandoned her, but I also need to let her get used to things and reset my central nervous system from caretaking her all those years.
Do remember, if you are next of kin, closest person, that you are the one who will hear it ALL, as you are seen by your loved one as the means to the gates opening. You are seen as the answer to all questions and as their salvation. Hence they will speak to YOU nearly constantly.
I would be scrupulous in honesty and I would also say that this is a subject that you cannot dwell on as it is not good for either of you to constantly mourn what cannot be changed.
As to your internalizing this, that is something you will have to stop yourself doing. The choice to marinate in this is a choice that will form the same circular HARMFUL path in your brain that your loved one is practicing on you. It will become habit. It will lead to unhappiness.
Happiness is not your responsibility. Moreover, if is impossible in the aging process. It isn't a happy time. And there have been many other times in your loved one's life that were unhappy and you were nowhere on the scene to blame. You didn't cause this and you can't fix it.
My own brother told me "You know, hon, I look on this ALF kind of like the Army when I was young. I don't much like it but I make the best of it." and that is what he did. That is the choice for all of us, isn't it. I have, since the beginning of the year, had a new diagnosis of a new cancer. I have to deal with it. What good will it do to marinate in the down side, the "what- ifs", the "when wills". One makes the best of it. Or NOT. And that now is the choice for both you and your dear mom. The universe, overall, will march on in its oblivious orbits, not caring a fig which choice you make.
If we are prone to worrying about the ‘what ifs’ we will have to practice distracting ourselves from excessively worrying. It can be done.
Alva, your assessment that dwelling on issues doesn’t make anything better, is correct. In fact, it only makes things worse.
You need a break and to stop internalizing HER misery. Do what you can to get her properly evaluated and medicated, and then allow her to settle in. Most do eventually. You're not responsible for any of her dementia and you've done your level best to care for her at home for so long, so now it's time for Memory Care.
Wishing you the best of luck with a difficult situation.
You haven’t abandoned her. You did what was needed for her. Be proud of yourself for handling things exactly as you should have.
Your mother no longer has the ability to be rational.
Think about when your mom was able to be rational. Wouldn’t she want you to lead a full life, free from excess stress?
She has Alzheimer’s disease. She doesn’t realize how much her behavior has changed, why she is in
memory care and how all of this affects you.
Extreme stress is so harmful for us. Do whatever is necessary to learn how to manage your anxiety.
Your mother is being cared for by her staff. If she needs additional help adjusting, find a way to help her, such as finding different meds, etc. and know that is all that you can possibly do for her.
Wishing you peace as you continue to advocate for your mom.
Any thought of low dose anti-depressant?
Any discussion with MD about medical MaryJane in the form of gummies?
Working very well, that latter, for a friend's mom in nursing home in TX.
I sure wish you good luck. I would speak with the doc.
Perhaps her doc would consider a med change?
Here’s an article about Ativan. It details side effects:
https://www.drugs.com/ativan.html
Best wishes to you.
Drugs affect everyone differently. My mother did well on Ativan but obviously you have an adverse reaction to it.
It is so interesting that you said that you were angry when on Ativan.
I have been friends with a woman over 20 years who has a son with severe autism. He is in his mid 20’s now. He is non verbal so he can’t tell his mom how he feels.
He has been on Ativan for a while and has extreme outbursts. I am sure that a lot of his anger comes from frustration but I wonder if he can’t tolerate Ativan either.
It’s really hard for his mother to understand how to deal with his emotions because he doesn’t speak. I know that he is on another drug too. I can’t think of the name. It begins with an L.
Look at this website: https://www.talkspace.com/blog/how-to-deal-with-guilt/
In part, it says:
Guilt is a self-conscious emotion that causes us to feel responsible for negative experiences or outcomes. While everyone feels guilty at times, excessive feelings of regret can interfere with your everyday life. These feelings can be overwhelming, but thankfully, with the right support and tools like online therapy, you can learn how to deal with guilt in a healthy way.
If you’re dealing with guilt, keep reading to discover coping strategies that can help you move past that negative feeling. The following tips explore some of the most effective ways to manage guilt in healthy, productive ways.
1. Determine the Source
People can experience guilty feelings for many reasons. Guilt can help us to learn from our mistakes and change negative behaviors, but it can also be toxic or irrational. An important part of overcoming guilt is figuring out why you’re experiencing these feelings in the first place. (read the link for the rest of it).
Interesting in googling, most / some seem to infer that a person did something 'wrong' or 'inappropriate' to bring up these feelings. No, not necessarily - as in this situation. "We" feel bad when our loved one feels: unsafe, scared, confused, not understanding the why of what's happening ... when they are going through a needed transition of care.
1. I would suggest: getting her a mechanical cat or dog to pet / care for to distract her.
2. As you feel appropriate, visit and tell her you are 'working on it.' Give her hope. I know some facilities suggest you do not visit. This is up to you.
3. Perhaps music (a CD player) could ease her stress and re-focus her attention.
4. I believe it is refocusing her attention is key - as best you can. It is a transition, it is not easy, she is scared and disorientated.
5. See if you can hire a volunteer to visit - someone other than family - to be with her as a support. The staff may be nice and caring and they are busy. A visitor a few hours a day might help her.
See website: https://careforth.com/blog/dementia-alzheimers-or-memory-care/
Partially it states:
In this transition process, it’s easy to get caught up in the planning and packing. However, this will also be a transition for you as you adapt to your new support role. Consider:
Remember that it will get easier –
In time, your loved one will grow used to their new environment and it’s important to be patient through this time.
Make regular visits following the move but give space for them to adapt – As your loved one transitions to the care facility, it’s important to visit often and support them through this transition. However, remember that this is a delicate balance, so be sure to connect with facility staff to determine the best days/times to visit and allow space and time for them to settle in on their own.
Be prepared for bad days –
It’s common for people transitioning into memory care to express negative emotions and comments, but it’s important to keep these remarks in perspective and allow time for adjustment. And remember, there are bound to be setbacks, but this is all part of the journey forward.
Stand firm in your decisions –
Staying consistent is one of the most important aspects of transitioning a loved one into memory care, but it’s also one of the hardest. Try your best to not bend or waiver once a decision has been made, but rather give your loved one the time and space to adapt.
Reassure your loved one –
The tone you set for the transition has an immense impact on how your loved one reacts and adapts to it. By using positive language and reassuring your loved one that this is a good move, it will ease their transition and mitigate anxieties.
Listen to your loved one and validate their feelings –
An important aspect of transition for you and your loved one is active listening. Often simply hearing your loved one’s emotions and validating their feelings and concerns can help mitigate anxiety and improve emotions.
Don’t feel ashamed –
Decisions like this can often come with outside criticism from family and friends, but it’s important to remember that as their caregiver, you know what’s best for them.
Process feel guilty – When you decide to transition your loved one into a memory care facility, it’s important to view this as a necessary step in your loved one’s health journey. Remember you are seeking better care and support for your loved one.
Be patient – Remember to take care of yourself and be patient throughout this process and transition. Patience with yourself, your loved one, the memory care facility and its staff will go a long way and help ease the transition.
Gena / Touch Matters
maybe Your mother needs more stuff around her to feel this is her home
she sounds like she has her faculties intact to know to want to escape so much which is distressing
i don’t normally recommend this but it sounds like your mother could do with some medications to calm her down a bit
short term to help her adjust
I would speak to her doctor asap
shes in distress and doctors can give her something to help calm down
it is draining emotionally and physically looking after elderly parents and watching their decline- you did what you could - you haven’t abandoned her and need to alter your thinking away from that guilt line of thinking. I know it’s not the same but let’s liken it to your child starting new school in a new area- they would cry and be upset until they settled in
its just something that u have to run with unfortunately. In the meantime speak to the doctor - your mothers mind is racing causing her distress -she needs some temp support to calm the internal chattering
best wishes I hope it resolves fast and best wishes to you too. You have nothing to feel guilty about.
Rely on the staff and take more time for yourself.