I am caring for a woman who has progressive Alzheimer’s as well as dementia. I have been here for about a month now & I know it’s important to try and keep them on a daily schedule but at this point I feel like it’s impossible. She has the ability to walk, and stand up but is very apprehensive about the getting up part..but that’s another issue. Right now my biggest issue is getting her showered. We try to do every other day (66yrs old) but yesterday as well as today she flat out refuses & she will fight you every step until (normally) she’s actually in the shower. She will Not wash herself AT ALL, I’ve tried multiple times & it just doesn’t register with her besides I’m sure she’s forgotten what that even means. So I wash her as best as I can. I feel like I can’t do my job like I should because I can’t force her to do anything but the constant pressure of her husband wanting her to stay on a schedule as much as possible (I’m aware that’s the best thing) but what do you do when they simply will not cooperate??? Since I’ve been working for this particular patient my anxiety & stress level are insane! I am literally emotionally/mentally exhausted every single day I leave work to the point that I’m so tired when I get home that I have to fight with everything in me to get anything done in my own home. Needless to say my home is a mess & I have read everything to try and understand what I can do but so far I haven’t been able to figure out how to get her showered or even coax her into using the bathroom @3 times a day bc she will not get up and go on her own. HELP!!!!
I'm not sure showering every other day is necessary. When my mother grew up she showered once a week. I think the spa-like environment is a good idea. Maybe you know what kind of music she likes? Sometimes singing a silly song or a song from the patient's teen years can put someone in a good mood and make a tricky task more pleasant.
"The pressure of her husband wanting her to stay on schedule..." that statement makes me think he needs more understanding about the disease. Routine seems like a better word. But an every other day required shower that is a struggle for you and her is not good for anyone. A schedule should be a helpful tool to maintain comfort and serenity, not a source of frustration if you cannot "stay on schedule." And with Alzheimer's patient, every day can be different. Every day the patient can present new behaviors, or seem to have improved for no apparent reason. Remaining flexible and not trying to live up to anyone's expectations. I plan things, but sometimes plans don't work out or they change. And that has to be OK. There are so many things we cannot control as caretakers. We just have to be as creative as possible.
The last part of your paragraph sounds like getting up is a big part of daily frustration. Is she using a walker or cane? Is she sitting in a chair or a sofa that is too plush and hard to get out of? If so, there are many alternatives, mechanically rising chairs, hard back chairs. It's possible that if leg muscles are atrophying physical therapy would help. Medicare may pay for in home physical therapy. My husband likes to just sit around a lot all day, but if I find something that he wants to do, schedule it, then let him know that we have to do these other things in order to get ready for the thing he wants to do.... but your patient may be more advanced and not understand. It's a really hard disease to manage.
Do your best and know that your patient's old self would love that you are taking care of her new self.
So what you have to do is get into a support group and talk with other caregivers about their issues and she how much their information can help you.
Also you need to read up more on the behaviors and effects that the disease has on people and see how it relates to what is happening in your home. For many years I tired to put the behavior in a catalog of what I was use to my mother doing but that does not work. We as caregivers have to remind ourselves that things will be different; ie different talk, different interaction, different foods, different care but we must recognize that they really don't understand their actions, so as the bigger person in God, we MUST understand the process of the disease and move on.
It's hard but you gotta do it! As Nike says: Just do it!
De clutter the bathroom so the room is as “low stress” as possible.
Try some gentle massage, use fragrant soaps (if she can tolerate the smell of them) and play relaxing music. Use lotion when she is done. (Try some different kinds of music to see if one type relaxes her more than another).
Talk to her as if she is normal (even though she might not respond accordingly).
I’m sure your client’s husband is stressed because he just wants his wife back. 66 is young for dementia and this must be very disappointing and scary for him. Listen to his demands patiently- he can’t help but feel frustrated.
Do your best to keep her on schedule. Surely, if you ever have a day off, he will realize your great contributions and will understand that staying on schedule is a goal that simply is not always attainable.
1. Her disease is progressive, so even if you find something that works today, it may not work next week.
2. Her husband is being unrealistic.
It sounds like your client may be ready for memory care or a different facility. Only her husband can decide that for her, and it seems he is unable to see the extent of her disability. My mother was so deeply frightened when my Dad developed Alzheimers that she just could not bring herself to learn more about it, despite understanding it would help her. Even seeing a book about it on the table made her shake with fear. Maybe this husband is experiencing something similar, and that's why "he is hiding his head in the sand."
Whatever the reason, this situation is affecting you and your life in a very negative way. It is NOT failure if you put forth your best effort (which you did) and thought things through (which you did) and tried lots of tactics (which you did). So maybe it's time to step away from this client. As caregivers we know there will always be another client needing help.
So raise your head high, pat yourself on the back for doing your best here, and resign the post.
Best of luck to you. And to the couple you have worked so hard to help.
Just give bed baths for cleaning her.
As far as getting her to the bathroom, don't make her go, let her wear diapers.
Or when I want my Dad to do something he doesn't want to do, I promise him ice cream afterwards.
Do whatever works.
If husband doesn't go along, quit.
Prayers
I start talking about it in advance, how we’ll make her hair nice etc and how she’s got clean, beautifully smelling pj’s to look forward to.
I heat the room up half hour in advance with a portable heater fan as well as heating lamps. For me it’s actually too hot, it’s more like a steam room lol. But for her it’s the desired temperature, besides I’m not in the water so hence the experience is most likely different.
BUT key factor!! I play her favourite songs!! I make the shower time a concert she can look forward to.
This way she goes in there dancing! She may still hesitate at the undressing part but I distract with words from the song to get her singing.
In saying that,.. it still is tiring putting so much effort in for a shower,.. by the time I’m finished,.. I’m ready for a shower myself and bed!!
we don’t always do a full shower,.. sometimes it’s only a bottom wash. I do this if I sense she’s in a more difficult mood. I let her keep her top on and I hold the shower head for her while she quickly washes her bottom parts. I’ve been able to reason with her for this as she has realised how much better it feels after and it only takes a few minutes. I usually announce it as we are changing her depends - “time to do a rinse”. This way she’s already undressed at bottom and less likely to be against it.
But overall the music has been a winner for now!!
Check Teepa Snow's website. She is a fantastic trainer and coach for those caring for people with cognitive loss. Another source: "Bathing Without a Battle." This husband may also need to understand dementia better, to see that he may need to let go a little. Good luck.
Try the product Calm, OTC powder found at local drug store until you get a doc to prescribe anti- anxiety meds.
Your home and your life should not be suffering because of some client. You should not have such a level of stress and anxiety over her. She's a job and not worth it. Quit her.
If you insist on remaining with her and need to get her into the shower try this approach which has worked well for me for many clients with Alzheimer's/dementia.
When it's time for the shower both you and her husband have to approach her together. You do not ask her if she will go for a shower. You tell her it's time for your shower and you're going to do it now. When we're finished you can have (whatever her favorite treat or activity is). Try this approach. If it doesn't work then her husband should look into care facility placement for her.
Let me explain the home dynamic so maybe that will help you better understand..Her 92 yr old father lives with her & her husband. Her husband is a few years younger (60) and works from home right now for an automotive corp. their 2 sons are grown & live out of state. So her husband is working while also taking her & her father to any Dr appointments, he does EVERYTHING involved with running a household plus working a full time job. I couldn’t do what he does! I don’t know how he does it & I’m younger than him! How he stays grounded and sane is amazing to me.
That being said, since my initial question was posted she had also began to be combative when taking her to use the bathroom..I say everything as simplified as I can when telling her what we are doing & sometimes I feel like some of her bad behavior is on purpose..has anyone else ever felt like that? She will fight after I’ve told her we’re going to sit on the toilet (bc if you ask her if she has to use the bathroom it’s always “No”) but before she sits I will ask her to pull her pants down then pull her underwear down & she’ll say ok, but make no move to do either so that’s when I will tell her I’m going to help you & as soon as I go to pull down her pants she’ll try pulling them up, same w/underwear so I will rip the sides so she can’t fight that…then the act of getting her to sit down is another issue bc she’ll try walking off with her pant around her ankles so I’ve had to resort to almost forcing her to sit on the toilet which I don’t like to do but becomes necessary. Then she won’t adjust herself on the toilet correctly so I wind up with a mess to clean up & forgive me if this makes me sound harsh bc I’m not (I’m frustrated bc everything is a battle with her) I don’t mind (as much) having to clean her afterwards & I do the best I can always telling her what I’m doing but when she’s agitated she will try to walk off before she’s completely clean & I’m mentally tired at this point so I don’t even try anymore bc I have another battle ahead of me which is getting clean underwear on her. She has stood I front of the toilet, after I’ve tried getting her to sit down, and literally pissed herself standing, pants around her ankles..3 times so far & I expect it will continue. She was bent forward the other day after her shower & I knew she had to use to bathroom so I’m telling her we’re going to sit on the toilet bc she needs to try to use the bathroom (otherwise she pees herself) & she’ll keep saying WAIT! Then I look down and notice she’s began pooping so I proceeded to aggressively and quickly get her to the toilet & sit her down otherwise… and I’m not going to stand there and let her poop wherever! I’m the one who has to clean up those messes & honestly I don’t get paid no where near enough to deal with the constant combative behavior. I am a naturally caring person & I do my very best at trying to help my client bc I REALLY DO CARE & in this industry that’s rare bc most do the least possible for a paycheck. Im at my wits end at this point bc I feel like I can’t do my job without bothering her husband to get her up and where she needs to be & im there so that he can do his job?
Dementia...you know its a stove just forget how to use it
ALZ...you forgot its a stove.
Consistency will be the best approach with your client. She will probably be more amenable to a bath in the earlier part of the day - make it the same time every day. If she doesn't allow a full bath, do that airplane bath and move on with the other activities of the day.
I would also suggest you need to find ways to minimize the anxiety and stress you are feeling when working with this client. Maybe keep a log of which activities are the most stress-filled and the time this occurs. Folks on this post may have ideas on how to make those moments less stress-filled for you.
If her comprehension skills are so low, her care needs to shift to be at her level, instead of the fantasy land level her husband is asking for.
You need to find a way to deal with the stress you are feeling from this. While being a caregiver is very stressful, for you, it is a job you get to go home from and live your own life on your off hours. Take advantage of that - I think you could benefit from some exercise after work to blow off some steam, etc.
I suggest the two of you work as a team on learning everything you can about how to handle an Alzheimer's patient. The videos mentioned are a good resource, as is the Alzheimer's Association. (Alz.org)
Teepa Snow is an expert on helping people living with a dementia. You may want to start with her videos, then try out the others.
https://www.youtube.com/results?search_query=teepa+snow+bathing+without+a+battle
“Since I’ve been working for this particular patient my anxiety & stress level are insane! I am literally emotionally/mentally exhausted every single day”. This is obviously not the job for you. Are you a paid caregiver or are you volunteering to do this? In either case, it appears you do not have the skills to continue with this particular patient, you are in over your head. I don't mean to embarrass you or make you feel your efforts are not praise worthy, they certainly are, but you don't need to do this. Showering is only one problem, there are many more to come.
If I were you I would excuse myself from this job after looking for an agency or individual who has experience in dementia care to replace you. I appreciate that you are a caring person, and I applaud you for wanting to serve others, but you cannot do this at the expense of your own health.