I found this article helpful.
https://www.agingcare.com/articles/caregiver-fix-it-mentality-leads-to-burnout-152629.htm
I realized, and I hope many of you do too, we can't "fix" old. As we seem to feel good about a living situation, a medical regime, a day to day routine, inevitably something else goes wrong. My question is, I still seem to constantly sit in an anxious state waiting for the "next thing." Do any of you have any suggestions for me on how to rid myself of that anxiety? I am an only child. My mother lives in AL in a retirement community 3 minutes away. I'm married and have two children (20 and 15). I have a full time job and am off in the summer.
The best advice I can give is to try to take time for yourself...go on walks, read a good book, watch public TV, see a funny movie. Also seek out a caregiving support group.
The link you posted is so real to me. Some things I fixed lasted only 2 or 3 weeks and involved a huge amount of time and expense (dad's cost). He enjoyed them and was grateful but then I needed new fixes for the next stage. It has occupied my thoughts pretty much non-stop for months now (which is better than years). The one thing I know is that when he dies I want to KNOW I did my very best. I don't mean that I was the very best caregiver in the world (I'm not a "nursey" type) but I certainly took care of every issue and made sure he had the best care.
What all this busy-ness did is keep me in denial that I couldn't fix dad and I am only now beginning to experience the grief of losing him. I need to work on how I'm going to cope when he goes. Yes, I have been grateful for the one on one time we've had this past year and we've enjoyed each other. I think that is only going to make it sadder when he goes though.
I'm not 100% "present" for anyone else in my life and my friendships are suffering as well. People understand but this could create some fallout if I don't take care of it. And my health as well. I'm going to try to spend an hour a day on "me-stuff" which includes my friends and other family and getting out into the world (post Covid).
l have to reaffirm that she is still in God’s care. That she always has been. And so am l.
I take Lorazepam daily right now, which helps, but does not take the anxiety away. It is an anxious situation and I have done everything; Lorazepam, therapy, hiking 7 miles every other day, etc.
I feel guilty constantly. About every little conflict she and I have.
I wish the best for you, for whatever this does.
I am 24/7 caregiver fir my husband who has Dementia and Parkinson’s also a 9.8 aorta aneurism bad kidneys , he’s in diapers can no longer get out of bed blind in one eye now loosing the site in the other one . He doesn’t know anyone other then me not his kids or grand kids .
so I can write a book on anxiety and depression. There’s been times when I didn’t want to get out of bed myself just lay there next to him and sleep through
the day . But I have no choice I have to get up , bath ,shave, change his diapers, feed cut his hair, do laundry and house work , pay bills , make every decision all by myself ,it’s only me. And it’s so hard on me . But again , I can’t just quit
my husband is at home with me and can no longer even stand or get out of bed .you at least get a chance to breath . Try sitting your self down , take a deep breath , and get a tablet write down things you are grateful for . Don’t leave anything out no matter how
small . Then write what upsets you , why are you anxious , why are you feeling guilty? Why aren’t you happy ? You
realize your mother is being cared for she’s safe , I’m sure a nice place to live where she can socialize with other woman there . she’s close by so you can visit any time your off work.
What if she didn’t have Ins or funds to live in a retirement community . Would she be there with you ? Now that would be real anxiety ! Who would watch
and care for her while you work? You would have no family privacy for your daughters , mom would always be there .
you would have to take on all her personal care Baths, hair , teeth feedings . It’s clear you love your mother and want the best for her . But putting such a guilt trip on your self isn’t fair to you or your family. You could end up hurting your own health . Stress is horrible , it clouds your thinking , causes you to turn away from those you love . Don’t put your own daughters through that . Show your mother you love her by visiting with your daughters , take her cards , give her a new night gown just small gifts or have the girls draw her a picture or hand make anything for her.
believe me when I say you have a lot to be grateful for . I hope you believe in Jesus ! Pray to him for guidance in this matter . God is always ready to listen I would not be able to cope with out Gods help. Give him praise each morning tell him how grateful you are for all he’s done in your life. Begin each morning and end each night in prayer . Through faith in the Lord there’s nothing that can’t be fixed .
I just started using this site myself.
I pray you get the help you need . I don’t think your mother would want you feeling so anxious over her . As a mother , grand mother and great grandmother I would never want any of my children stressing over me . I’ve made decisions in my own life that caused some Heath problems . I’ve had many neck and back surgeries I’m in constant pain but no way should my family feel guilty or stressed over it. I want them happy with their own families . I hope I’ve said something that helps you . God be with you dear . I pray you find the answers you need 🙏🙏🙏
I totally understand what you are dealing with, and really had a difficult time seeing my parents struggle with their health issues. I relied a great deal on the promises of God. The Bible says in 1 Peter 5:7 that we should “cast all our anxieties on the Lord because He cares for us.” He created all of us and He knows exactly what your mom needs and He will provide for your mom! He promises us in Matthew 28:26, “I am with you always, even unto the end of the age.” He also commands us not to be afraid because He is with us. In Isaiah 41, He commands us and attaches His promises to His commands:
“Do not fear, for I am with you,
do not anxiously look about you, for I am your God. I will strengthen you, surely I will help you, surely I will uphold you with My righteous right hand.”
Our lives and our times are in His powerful hands, if only we believe and receive His gift of salvation and forgiveness through His Son Jesus’ death on the Cross. It is through Him, that we will also receive the strength and perseverance to continue on these difficult journeys with our families. I hope this encourages you!! Many blessings to you and many thanks to you for loving and caring for your mom! As you seek what is best for her, I pray that He would give you His wisdom to know the right decisions to make and that He would give you encouragement as you walk this road!
Hope this helps and you can relax a little.
My brother & husband are very reassuring and helpful, as are the posts on this forum. Without all of these resources, things would be a LOT worse so thanks!
he wants to live alone so we settled on him getting a house seven houses away from us. We’re very fortunate he was able to buy the home. He won’t except Caregiver he won’t take Uber and he’s always angry at me. I try to make every day pleasant for him I will take him everywhere he needs to go and every doctors appointment. I make dinner every evening for him and bring him down to our home. My therapist just told me to stop trying to make him happy it won’t work. Easier said than done. I have constant guilt. I should be with him, I should be exercising him, I should be cleaning for him, the list goes on. Just keep feeling sad and guilty. I would hate to have my children feel this way about me. Hopefully I have made the arrangements ahead of time that will ease your burden. And I call it a burden because it’s a burden of guilt and sadness. Good luck to us in the days ahead.
Here are a few things that have helped me manage my anxiety more:
1. PAUSE & BREATHE to calm the brain to be less reactive. I have made early mistakes by being too quick to react because I couldn't sit with the uncomfortable feeling of anxiety. I am getting more comfortable with the not knowing. Taking time to pause and remembering "I can handle hard things".
2. TAKE AN HONEST LOOK AT "WHAT YOU CAN CONTROL" so you can take small steps to feel less overwhelmed about it. For me, taking well thought out action helps to calm down my anxiety vs. keeping it rolling around in my head.
3. Simple concept but hard to adopt....RADICAL ACCEPTANCE of what you can not change. My mother has Alzheimer's Disease. It's been a perpetual process of loss and having to accept very tough things. By accepting "what is", I have been able to reduce my suffering. Like I said, easier said than done. I am a work in progress, but it definitely has gotten better with time.
So many great suggestions here on this forum. Good for you coming here to ask for help. Be gentle with yourself.
1. Run daily
2. Eat Well
3. Drink lots of water
4. Prayer and Meditation......there is no easy solution.....
While you may not be a runner, exercise, move, stretech.
Move # 4 to # 1 spot: prayer and meditation.
Understand that (some of your) anxiety likely comes from not wanting to accept what is, and feeling grief/sadness. Understandably we want to push these feelings away although they do not go away, they come out in other ways (i.e., addictive behaviors, depression, anxiety, etc.)
I'd encourage you to start with conscious awareness and intention to:
1. be present; return to the present moment by moment. Observe colors, feelings, everything around you.
2. Do not 'try to' change how you feel / react to #1, the healing benefit is being aware without judgment or feeling you need to 'do anything' -
3. Start a gratitude list / journal. Find 1-2-3 or 5-10 "what you feel gratitude about" - even it if is hard to come up with anything. Once you get your mind around this concept, you will start to automatically 'look' for these things (positive qualities, or 'things' around that shift your feelings to neutral-positive.) If nothing comes to mind, look at a color of something, buy yourself a flower or two. Get a manicure.
4. We must train our selves to shift our 'patterns of behavior / thinking' - the more you do it, the easier it will work and become the new automatic behavior and response to what is.
5. Accept that life is both the yin and yang, the dark and the light. Be in both as you need to. Accept feelings (with curiosity). Do not push them away, even the anxiety. Be with it, with compassion, talk to it (this is Focusing; a skill I learned decades ago) * * * Gena
I could never get away from it, but I could hold the anxiety off by wearing "other hats". I watch my pre-school granddaughter 4 days a week, and her sister and cousins at various other times. I volunteer at church. Vacations helped too, since I trusted her situation.
You cannot prevent "the next bad thing" by worrying about it. If there is a new development, you and doctor and any care takers will address the new issue.
It is sad to watch our parents age and decline. They used to be our protectors in this world and now they are fading away and we feel left "out there" to fend for ourselves.
Enjoy the easy and "good" days and do what's needed on the bad days.
Sad it is but just keep visiting and put on a happy face, even tho it is depressing.
Praters your mom is in no pain because that just makes it worse.
I have a Dad 97 yrs old with Dementia and has a Cathiter and now monthly UTI's.
I pray that my Dad stops getting the urinary track infections because he's gone thru all the antibiotics that can help him and his body is now use to them and most do nothing to help him.
So, I now pray that God will just let him die in his sleep before going thru severe pain from kidneys non functioning.
I know he's lived a long and full life and he use to say he's going to live to be a 100 and that would be great as long as he's not in a lot of pain.
Prayers
Time now to take a deep breath. You have done your best and all that you can do. Does your anxiety come from a place that you have not done enough or from a place you are fearful of her dying and want to consciously or unconsciously prevent this? Who do you have that you can talk to, your spouse, a friend, a clergy person, her doctor or social worker Tell them your story -you need to be heard. You don’t want advice, just to be listened to.
Each time you feel anxious, remind yourself these are old tapes and you now are focusing on all the good you have done. You no longer have to live up to these false expectations. Blessings
Dr. Edward Smink - Soul of Caregiving
Exercise covers a multitude of problems. If nothing else, you sleep better!
good luck!
it is such a hard situation to be in. Myself I lived with my mother who had Alzheimer’s (but she didn’t believe anything was wrong other then a forgotten word here or there) and then had to do the gut wrenching thing of placing her in memory care for her safety and to hopefully improve her quality of life. Logically I knew it was the right thing to do but emotionally I was a wreck about it. When my mother was at home and when she was at memory care I constantly worried about her, like I was constantly in flight or fight mode readying myself for the next unexpected emergency. I was in therapy which helps and the main thing I would do that helped me (everyone is different so please don’t feel bad if what worked for me doesn’t work for you), what helped me would be sort of being in the now. What I mean by that was when I was living with her and I would wake up in the middle of the night in a panic over her health and safety and what may happen. I would check on her (make sure she was still home in her bed and was breathing) then when I saw that she was fine I would repeat to myself « I know that right now my mother is safe, I know she is alive, I know she is sleeping so she is alright » I would repeat that to myself especially when the anxiety would begin.
i would do the same when she was in memory care. After I called the residence and spoke to her I would repeat to myself « mom is doing well, she is alive, she is safe and she is well cared for. » this worked really well just after I spoke to her because I knew it was not likely that anything bad would’ve happened in the few minutes since I spoke to her. Sadly the anxiety would come back after an unknown amount of time but at least for those moments it helped to calm me with the logic of the now. If that makes sense?
oh and calming teas took the edge off a little (chamomile, valerian etc). But of course be careful drinking them until you know how you will respond to them. They can make some people really groggy and less alert and of course if you are allergic or taking certain meds please be careful. I am not a doctor so I don’t know if the teas are healthy for you.
it is so hard to live with the fear that you are currently going through. I have been there and oddly even though my mother passed away a few months ago I seem stuck in that anxiety, just waiting for that other shoe to drop. Please know you are not alone in your anticipatory anxiety and it is normal and shows how much you love your mother.
big hug for you. I am sorry I couldn’t provide more help for you.
“Cast all your anxiety on him because he cares for you.” 1 Peter 5:7
Whenever anxious thoughts come to your mind immediately stop them and instead recite one or both of these scriptures and believe them in your heart. Do it each and every time and slowly watch your anxiety flee.
It’s hard to retrain our brains if we fall into anxiety and depression. I had to see a therapist to help sort out my emotions regarding watching my mom deteriorate. As you know, there is no cure for Parkinson’s disease. The meds help to control the symptoms but it is a dreadful disease. My mom recently died at the age of 95. I miss her but I am so grateful that she is at peace now.
It is hard to relax and not think about the next fall, knowing that they are living in pain or experiencing tremors. My mom had some anxiety and depression. She was ready for her life to end so she could reunite with my father in the afterlife. We mourn the loss of our loved ones long before they die. They are merely existing, waiting for their time on this earth to end.
You are fortunate that your mom is in assisted living. I had my mom at home with me. Still, you feel the same emotions that I did. It’s hard, whether they are in a facility or at home.
Be glad that she is being well cared for at her facility. I’m sure that you are grateful for that. Try not to let it consume your every thought. I don’t think that your mom would want that unless she is a ‘self centered’ individual. You don’t sound like a chronic worrier to me. You will work through this situation. It’s a difficult and stressful situation. I have been there and I feel for you.
There are in person support groups for caregivers. I did attend one and I met very nice people in similar situations. The woman who started the group is a social worker and she was very helpful.
Online forums such as this forum helped me also. Take the advice that is applicable for you.
Being prepared helps too, such as knowing when to set up hospice care. Some people wait too long before starting on hospice. You can speak to a social worker to guide win the proper direction.
Wishing you peace during this difficult time in your life.