My mother recently moved into AL. She has yet to eat in the dining room, and it's been literally 2 months. She has any and every excuse, from not feeling well to being contagious, from not feeling like getting dressed to being full from the previous meal. The staff, of course, bring the meals to her room, and then she complains about the food. I have told her that if she goes to the dining room, she can choose the alternate, but if they bring her food, she gets what they pick. That has fallen on (literally) deaf ears. Finally, she tells me she has diarrhea and can't go to the dining room, but she wants me to take her out to lunch. (UGH!) So frustrating.
Any advice on how to motivate her to socialize with the residents? Driving me nuts, as she feels it's my responsibility to entertain her.
(She's been that way all of my life, relying on me and my life, which is a whole 'nother topic. Or better, therapy for me, haha! I don't look forward to the day she finds out that she has to be in a double room to get Medicaid. We are not made of money.)
I'm of a mind to stop visiting altogether until she starts participating.
Signed--Only Child who would like to get on with her Only Life, which was the point of AL.
Your mom is allowed to refuse to socialize. You may need to let her be.
In the meantime, I'd have a chat with the ED of her AL and ask them what their policy is on delivering meals to the residents' rooms. In my mother's place, they really DO charge $5 per meal after a certain # of meals for room service. I think they get around 5 meals a month free or something like that, then there's a charge. The CGs have a lot better things to do than schlepping meals around to residents' rooms! My mother's place strongly discourages holing up in one's room, and in Memory Care now, there can be NO meals at all eaten in one's room unless the resident is ill.
Ask the ED to help you out here by coming up with a plan to get your mother OUT of her room and interacting with the other residents. Otherwise, I'd do as you said and refuse to visit her until she agrees to cooperate. The activities director used to come knock on my mother's door to urge her to come to social events every single time she didn't show up, too..........what's YOUR AD doing about your mom hiding out in her room all day? Find out!!
Good luck!
Eventually, she may like a roommate. Even if you have a roommate, they may not be in the room much. Once in MC, my LO spent most of her time wheeling around, sitting in tv room, etc, She did like most of her roommates quite a bit. As she progresses, her reaction might surprise you.
I wouldn’t stop visiting though. Just reassure her she’s fine and support her with her choices. Often, people with dementia know things aren’t right in their mind and they need that support from someone they trust. I’d keep in mind what you tell her may be forgotten each day, so each time it’s like the first time she’s heard it.
@BarbBrooklyn: She's never been a joiner, I certainly don't expect her to start now. I just want her to get out of her room, moving around a bit, and meeting some of the other residents.
@lealonnie1: I've mentioned that. The threat of running out of money doesn't seem to faze her. I'm not sure if that's a good (happy go lucky) or a bad thing (can't figure it out). She's never been financially savvy. I thank my father for teaching me how to handle my finances.
@SunnyGirl: You know what? You are absolutely right. I'm sure that she is embarrassed. She has days where she can't see out of her new glasses. We just got estimates for hearing aids (O.M.G. are they expensive!! But I will pay for them out of my own money if she just stops saying "what?"). She definitely needs a bunch of dental work. She wants implants ($$$$$$); I want new dentures ($$$$). So we have some work to do so we can meet in the middle.
All you have really done is change her accommodation (pretty expensive motel...). These places should already have activity coordinators that bring residents together to develop familiarity and ultimately friendships (consolidated in the dining room as each comes to rely on the other). Your visits, although supportive and well intentioned, may be inadvertently breaking down this natural process.
As per your request... Therapy for you:-
Never think for one second that people with dementia lack intelligence. Many years of life experience, combined with the willingness of their children to be readily exploited, can be a potent mix of guilt and manipulation - hey, you might even be thinking all of this is what you chose to do!
Stop enabling your mother. Treat her gently and with respect, but understand that beneath that frail exterior, there lies a veritable factory of scheming and plotting to get their own way.
Do you consider yourself indispensable? Your mother may only see you as a resource in her present condition. Pass on the baton of responsibility as you have facilitated, and enjoy her company in moderation - for your own rehabilitation/transition to living a normal life.
You don’t have to stop visiting altogether unless you want to, but cut back to short visits every other day or so.
Absolutely true that she has to accept those who are helping her where she lives.
Her roommate, when she arrives, may temporarily change the dynamic she’s established for herself, but YOU should not be paying for her anyway, and a roommate’s activity may be helpful to her.
If you’ve chosen a nice place for her, and her helpers seem kind and interested in her, back up a little and let them become part of her life.
she won’t eat in dining room. She complains about the food 7 days a week that is delivered to her. It falls on deaf ears (more choices in DR)
she tells me she has gained weight because of the food. She has actually gained 50 pounds since the lockdown. She’s very in active lifestyle. Won’t leave her room. Won’t socialize. Thinks everybody’s old and she’s young. Treats the staff badly. Treats me badly. Demands I bring her food.
but she is a hoarder and will not throw out takeout containers to go that are delivered to her. They sit on her table covered in mold. She yells at me and staff if we trying to throw them out. She spent one night overnight in the hospital and I cleared out and scrubbed and cleaned the apartment.
but otherwise I can’t get in there to clear out. I’m so afraid she will be thrown out for her bad living. She is very lazy. She throws trash in the floor rather than the trash barrel. It’s so gross!
hard to walk away from it because I want it clean for her and other residents.
ugh!
I am at a loss really.
I know the AL mom was in still won't let anyone visit outside the resident's apartment. But if your mom's allow it "take her out to lunch" in her own dining room.
Try and accompany your mom (if possible) to attend some activity.
Other than that have the staff work with her to get her out of her room. Maybe you need to not visit as often and leave her to her own devices and the staffs'.
Where mom was they'd bring meals to the room only when the resident was ill otherwise there was an additional charge.
Sometimes it takes time to adjust - let the staff do the heavy lifting here and stay more in the background. If mom is suffering depression or anxiety have her see her doc - maybe with some meds to take the edge off - or therapy she may "come out of her shell/room."
BTW, Mom just moved from the old AL where everything was still pretty much locked down to a new IL facility - that was wide open - however with the rise of pandemic again visitors have to sign in get temp check. Her food is not the institutional food served at the old AL facility but actual food - she's only complained about one of the meals. She was originally in AL because dad needed the additional care, but after he died I tried to get her to move closer - she's now 3 mins away as opposed to 30 minutes.
Good luck with mom.
Tell her.."mom we are going to go have dinner. (or lunch) Get yourself ready"
I am sure she will expect you to take her to the car but instead walk her to the dining room.
Just like a child's first day in a new school she may be nervous about meeting new people, new places. She may be afraid she will not know what to do.
Is it even possible that she is afraid she will get lost in the building? Not know her way to the dining room, back to her room? If she has spent 2 months in her room she probably has not "explored" much of the building at this point and may not know her way around. (some of this I could blame on the staff for not doing something more to welcome a new resident.)
I do have to add that if she has always been this way then it is futile to expect her to change what can change is your expectation that it will or should change and realize it is not your job to make her happy nor to entertain her.
As far as getting lost, I suppose that's possible, but everything is a loop and it's not all that big. She says she goes out at night when everyone is sleeping. She says she does her own laundry at night, doesn't want the staff to see her soiled garments.
Honestly I don't know what to believe. She's good at looking good to outsiders.
But, yes, I agree and understand in theory that it's not my job to make her happy. I tell her that all the time. I can't decide if she understands me or not, but I can say that she has always lived vicariously through me, and I understand that's how she is. It's my job to separate myself, in my own mind, and compartmentalize her in her place so I can get on with it. Sometimes it works, sometimes it doesn't.
My suggestion would be to have a meeting with the Director of Nursing and ask that she be escorted to the dining room for two meals a day. She can have one delivered. My next suggestion would be to get her a clock which is designed for seniors which has the date, time, and temp on it. Next to that write in big letters/numbers on a piece of paper what times she needs to go for meals. This helps. It might be a bit overwhelming for her and she doesn’t want to be embarrassed. If she has dental issues that needs to be addressed with the Director as well. They will steer her to meals that she can easily chew and swallow. I pick up my mom (she meets me in the lobby) and take her to my house for dinner. She comes for a few hours and I drive her back to her place. She lives 3 minutes away. Try this a few times a week and make her wait in the lobby (say you hit some traffic, got stuck at work) and she will meet people waiting for you to arrive and swing by and pick her up. I got my mom a weekly bridge game as I was loading her walker in my trunk. Just chatted up a couple and now she plays bridge on Monday afternoons. I wrote that down in big letters next to the clock too!
Best wishes!
She is in a place she doesn't want to be and no one would.
You might ask her now if she would like a Roommate.
You should visit her at meal times and go with her to the Dinning Room to eat and after a few times she may feel comfortable to go by herself.
Doesn't hurt to treat her out to lunch once a week either.
I just might ask her if she's ready for a roommate. I'd have to explain to her that, no, I'm not kidding, and that she needs to start thinking about it.
Does you mom like coffee time (dunkin doughnuts or favorite local cookies from a bakery) along with crosswords/puzzles/crafting/painting - get a box of Joe - doughnuts or cookies and a few games/crafts/puzzles/reading book club etc and say hey let’s go down to the main room on Saturday and we will bring in some treats and have a bit of a social (maybe her place offers an outdoor space) or even ask one of the activity directors if you brought an idea in and dropped it off if they would set it up for you and get it started if ur not allowed to participate due to covid restrictions). I have no idea how many people are in moms place but if you think of something that mom had as a hobby asking to have a sign up sheet fir the first 10/20 people and you drop off an activity or a pizza party/with moms favorite movie - or outdoor game with ice tea and treats etc.
Something that is a hobby to her and she enjoys and having her offer it as an hour social and u provide a few things for it? I know all places are different as to size - restrictions but if she likes to crochet - or garden - or paint - create something out of her interests that she might find others with the same?
The second one had dementia problems causing her anger and violent acts against my mom. She liked her anyway and did still things together, while being punched in the arm, and having her possessions stolen. (that's where we got involved).
She hated the NH but loved to be around people.
We pay FICA and other taxes our whole lives in the unexpected times we need them. It's hard visiting your mom in a NH being drugged into submission each day, especially when it's time to leave - with that look in her eyes.
Learn to live your life, and explain what your doing to your mom. But do not neglect her at the same time. There is a happy median, find it.
Professional advice may be helpful in balancing whether to “enable” by visiting or take a break while being attentive by phone, etc. It is difficult to know where the lines are. Is her mind still good enough that bargaining will work? You go to cafe today and we’ll go out tomorrow, but not if you stay in your room? That generation can be more compliant if doctor’s orders are given (for example - group exercise class) - worth a shot - but from what you describe this route likely won’t work either.
Good luck - with you in solidarity amidst this frustrating situation!
My father is her enabler. He brings their meals back to their rooms. I used to get so upset with this situation but now I realize it is the ALF job to get her out and about.
So it just is what it is.
One idea that came to mind is how about “taking her out to lunch” in the dining room, do they allow families to join residents in the dining room? Maybe doing that with her a couple of times would help her through he fear of the unknown? Also you could either spontaneously on your terms take her out to lunch so she isn’t controlling it but she knows it does happen or better yet schedule a day or two a week that you have a lunch date so she can look forward to and count on it giving less room for asking you to do it all the time. Your answer that way can be “we have a date to do that on Thursday remember”?
She told me the other day that my one brother visits maybe twice a month. She says it is because he feels obligated to visit, yet she never says anything about the other brother who has only seen her once in the 10 months she has been there. So I'm wondering if mom feels my brother visits only out of obligation, is that how she feels about me? I visit at least once a week. I try to straighten up for her, but that is met with I guess you would say "disdain." She says I am the only person who does that.
Mom still has "fresh" flowers from when she moved in, as well as a planter that has been there for ten months. She won't let me remove them, or even water the plant. She touches the dirt and says it's still damp.
She complains when people visit. Or, she may not even know who the person was who visited her for over an hour. She has told me that my niece and her husband are dingbats. Lately, she says that about a lot of people.
I don't really care to eat in the dining room with mom. She can't hear, and even though I write a lot of things, I don't want other people to know what we are talking about. It is a privacy thing. Her facility says they are charging $5.00 for every meal they eat in their room. So far, I have not seen a charge on her bill. I know she only eats two meals in the dining room a day.
Oh, and you can't force them to participate. Moving your mom to a facility is a big change for her. I can only imagine how she feels about that. I know mom has a lot of depression over the move yet she realizes she can't go home. If mom has ever participated in a crafty thing, a staff member usually helps her. Not sure if mom comprehends what is to be done, or she just doesn't care about doing it at all. You have to look at the different things your mom did when she was at home. Was she social, or was she a loner (other than you being her best friend?).
I've asked the doctor to see if they could get a psychiatrist to speak with mom. Perhaps he/she can find a way to motivate her.
I stayed away from my mom for about a month because of the way she treated me. Of course, she has/had no clue at all what she did to hurt me, or that it was wrong.
Mom really wants to go out to eat as well, but personally I am afraid to take her. I am afraid of her falling on my watch.
It is not your job to entertain her.
Good luck to you. I for one appreciate this forum.
My MIL just moved in with us, and I imagine she would be very similar. She has zero outside interests beyond the television, and really, she only wants to watch tv in the evenings. Her days are nothing short of boring, but I’m at a loss as to how to engage her and she doesn’t want to do anything. I finally got her to sit outside, and now that’s been part of her daily routine and she enjoys it. She likes the quiet, the fresh air, and the flowers.
What we’re going to do in the winter, I have no idea…
But in regards to your problem, I’d ask for help. I’m sure she’s not the first they’ve seen like this.
Best of luck, and please keep us updated.