I'm very angry after caring for husband for 6 years who has cognitive decline & hearing difficulties. I’m angry at everyone that doesn’t do the right thing (while driving behind slow drivers, people who don’t realize I’m having psychological pain from constant worry about husband etc).
Can you say a bit more about what your situation is and what is making you angry?
Be kind to yourself. Who can stand that much stress for that long and not have it burst out one way or another?
I'm so glad you've found AgingCare! If it works as well for you as it did for me, it's the first step to feeling immensely better and so much less alone.
One tiny bit at a time: what respite do you ever get, what support do you have, what activities do you enjoy that relieve stress and might burn up some anger?
Oh my goodness!, what CM says!
What respite do you get? Should your husband still be driving? Have you discussed that with his doc?
I so feel for you. Small irritations become unbearable when your time is so taken up with the serious big issues.
Is there a day centre or anything like that your husband might go to? It would be a change of occupation for him, and would help him get tired - in a good way, I mean.
What about local resources? - caregivers' groups, specialist organisations, that sort of thing.
And what about proper respite breaks? Genuine down time for a week or two, at regular intervals?
How old is the dog? Does he provide companionship for DH too or has he become more dependent on you as time has gone on?
But you have more material issues, and I don't think in-patient admission counts as respite care.
So. Now what?
Did the very real health issues come up before or after your husband began his decline?
Hardly like to ask, but if or when you look ahead at the shape of things to come, what are your thoughts about that?
Anger crying, irritability? They are all symptoms of depression. Have you considered getting and evaluation for that?
Dealing with inappropriate anger is one thing. Dealing with entirely appropriate anger, now...
Of course the trouble is that it is bad news for you, and makes you feel worse.
Don't yell at me (though you can if you like, actually) - has anyone suggested a pain clinic? I appreciate you have had lots of people poking your back with a stick and "let's try..."-ing; but the point of a pain clinic, specifically, is that it takes a holistic approach rather than picking up problems one at a time and hoping to solve them individually. They're not stingy with analgesia, but I expect they'd probably also suggest things like low-dose amitriptyline and CBT - just guessing now, obviously.
You're clearly already doing a lot of the right things - busy social life, good support network, plenty of exercise, dog.
Which of them would you say is the best tension-reliever so far?
What about planning a week away, with the budget to include a high quality live-in caregiver, supervised by the children on a rota, while you go away somewhere - beautiful and tranquil or hip'n'happening according to preference?
Is it do-able?
Please find ways to take care of you.
She said this in front of the entire family, including my grandchildren and younger cousins. Soooo....that was my limit until AFTER Christmas. She is not going to ruin my holiday.
I've enlisted the assistance of a cousin for Christmas Day who has agreed to take her to dinner. I will be with my kids in a peaceful environment. I refuse to allow her behavior to affect my health. I am not taking any medication but I do take natural supplements, get acupuncture and massage which is getting quite costly. I also belong to a gym that is open 24/7...This helps immensely.
As far as her threats are concerned...we (family) are all on top of it. She's very dramatic. It's not the first time she has said it...and I have warned her after the last episode...that if the wrong person hears this...or if she says it one more time to me or any other family member, it's a short drive to the psych ward.
She said to take it when I feel myself unraveling. I have had it for 3 months and I’ve taken a half of one pill! It’s probably just mental- knowing that I have the pills in case I need them....
My brothers and I were concerned that Mum would die before dad did. We wanted him in a Nursing Home, for HER sake. Yes, we tried helping, but I had limits, like living 4 hours away, working full time, and I just could not change my own father's diaper! We all talked with her, and she agreed to the NH for him. She then lived another 20 healthy years.
What are your other options? With your health issues, YOU need more rest and care.
You're very fortunate that you have helpful kids nearby. A lot of people here don't have that. When I saw you write that you get irritated with the little dog, who wants nothing more than to be with you, I thought this person is stuck in a mind rut and needs a change in her perspective.
I suggest that you do an online search for "anger management near me" and go to their meetings. It will provide a space to vent but in a way that they want to get beyond just venting. You could go to a therapist of some sort, but I"m not personally sold on the benefits of that. You'd have to have a really great therapist who can dig deep to get you to see the true source of your anger, and that could take months or years, when you need help now.
I'd also suggest being around other caregivers while they're caregiving. Take your husband to social gatherings for people in similar circumstances. Get out. Take the dog to the dog park. Look up local clubs on Facebook where your interests are shared.
The best remedy I found for when I feel resentment about what I"m going through has been to see what others are going through. Put yourself in others' places:
think about how you would want your husband to be right now if the roles were reversed.
Consider that the person ahead of you who is driving slow may be having car trouble, may be an elderly person who is afraid, may be looking for an address on a busy commercial street where the addresses are placed inconsistently, may be on the phone talking with a doctor about their elderly mother who is in the hospital.
Here is what I have done to cope so far. (1) I too had a meltdown during my annual physical and my lovely and understanding doctor prescribed an anti-depressant (Wellbutrin works well for me; not for everyone). It does take the edge off and brings my coping skills back to the surface where they are more readily available. (2) I am being very open with our grown children and with a couple of good friends about just how difficult it actually is. Just talking about it with them helps them know how important their emotional support is, and when they can give practical support as well, it’s a great bonus. (3) I have gone back to part time work doing something I absolutely love doing. What I earn pretty much cancels out what I pay for someone to stay with him as well as for some alternative treatments that are not paid for by insurance. The time away and the positive reinforcement of being out in the world is re-energizing. (4) I keep reminding myself that I’m not mad at him; I’m mad at this damnable disease. He is a sweetheart and does not deserve anger, but when stress is high and respite is low, I’m much more likely to adopt an angry or sarcastic or condescending tone of voice for which I am immediately ashamed - which, of course, then fuels my anger at myself and the rest of the world. So when I do catch myself before I do that and switch to a kind and loving tone of voice (whether I feel like it or not), I find it calms me as well as him. And when I shout, that loud angry voice just fans the flames of all the things I’m so sick and tired of with the disease. And I’m still in early stages, so who knows how long these approaches will keep working? I’m working on finding a support group, but at this point, he does not want to do that, as he is still in denial about many of his limitations.
One more thing - years ago when I was furious with the ex-husband I had just divorced, I found physically throwing or kicking or stomping things WAS very helpful as a cathartic. But instead of people, drivers, and dogs, I did things like getting a case of empty bottles, finding a metal dumpster (preferably one that would recycle the soon-to-be-broken glass), and throwing the bottles, one at a time, violently against the back wall of the dumpster. The sound of the shattering glass was somehow oddly soothing. (Weird, huh?). I also built thick walls of pillow that I would kick as hard as I could. Once I even hurled eggs into the bathtub, then washed the mess down the drain. Physical release of the anger in ways that don’t hurt someone else (or make a mess for me to later clean up, which would only make me more angry) has been very useful for me, especially in the early stages of realizing how angry I was — once it’s out of my body, I cope better. So maybe yoga, yes, but also maybe boxing or karate or kick-boxing - something where you can punch and kick and yell and be angry in a setting where anger is just part of the deal.
Okay, hope you have found something that encourages and supports you. And thank you all for not reporting me as some psycho. I really am quite harmless — but it is in large part because I accept the anger and have learned ways to keep it from hurting others. If I just shame myself for it, it makes it worse, not better. Hugs and best wishes, and please share the things that work for you as you go along. I may run out of available beer bottles and need some alternate strategies!
In a book called Sabbath, which discusses cultural sabbath traditions, one line stuck in my mind to the effect that if you fail to take a ritual rest, illness will become your sabbath. I see from your earlier posts that has already proven itself true for you. Heed your lesson and do whatever it takes to get some free, unstructured, idle time and do with it as you wish, even if you just wish to sleep.
The mind-body connection is powerful and I notice that lots of the caregivers here and in my support group, including myself, now require medications to manage problems we didn't previously have or have conditions that have progressed under the constant stress. Cortisol, the hormone meant to sustain our fight/flight response, was never meant to be our body's chronic state of activation. Understanding this underlying situation can help you focus your efforts through any means to reduce it for some small interval of time.
You'll still have times of feeling angry because there will always be hardships, struggles, and things that feel unfair about life. You just try to find the counterweights wherever and whenever you can. Blessings.
Best wishes! Have a good evening.
At the very least, adult day care would provide a 5 day a week respite for at least 5 or so hours a day so you can 're-charge' enough to face the caregiving.