My mother makes choices in her daily life that could affect me. Some now and some in the future after she dies. She is in her right mind so she can make her own decisions. But they are bad decisions a lot of the time. And I have to get involved because of her decisions sometimes. And dealing with her is very difficult. Or she might end up in the hospital because of a decision. That hasn't happened yet. But it could have. It's very stressful dealing with her. Even though I try to keep my distance emotionally. She is co-dependent with my brother that has a personality disorder that complicates things even more. My father died six years ago. There is no one else. She would not listen to anyone anyway. She is rigid. I just wish she would die or just go away so I wouldn't have to deal with her anymore. She is 88 years old and can't walk without a walker. But lives in her house alone. Brother stays over three or four days a week. But won't help her much. So I can't just go no contact. Actually I hardly visit and mostly use the phone to communicate with her. Still wish she would just go away. My life would be much less stressful.
Hang in there - you are making an investment in your children and I believe it will pay off for you in great dividends one day. You are not alone. You are doing a great job.
My mother has called the police, lying about things, threatening to call them on me and my husband, due to her thinking we stole a plastic cat figurine or something silly like that.
We deal with accusations, threats, insults, hatred, tantrums and more.
I firmly believe we should protect our frail and our weak, but things have gone out of hand in other extremes.
I would in many ways like to see my mother put away in a home (well, a dream home that's clean and bright and cheery with great help and fun activities, etc), but as it stands, it's so hard to get help.
She's diabetic and thinks meat is a source of fiber or that drinking a 2-liter of Sprite is good for her, or she takes too many xanax, falls, chain smokes, makes up accusations, thinks the 22-year-old guy at the corner store is in love with her, that her neighbors are obsessed with her or jealous or something (or that I'm jealous), if she doesn't get her way for her cigarettes she's tried to walk to 7-11 and cannot walk the block's distance and stands in the street or crosses it slowly putting herself and drivers at risk. And more and more!
I tell this stuff to her doctor and the doctor refuses to believe it. She's been in so many hospitals the last four years and it's just a shrug. Oh well. She's acting up in here, but fine to go home...
My mom comes in and answers questions alright and the doctor thinks she's just a cute old lady. Then I get Mr. Hyde...
My husband thinks my mom finally changed her phone number (we had a cell for her under our plan) and she tried to call before he left for work. He told me he thinks it was her calling, some kind of test call from the phone company, probably trying one number from her cell out, and it made my blood run cold. I haven't talked to her in a few weeks, and I am both thrilled with it and worried that she's not getting the care she needs. I feel like I'm being torn in two over it all!
Yes - we do need far more appropriate resources to help us as carers and adult children of extremely negative parents as well. Just wondering if there is a way to get a 2nd opinion on your mother etc
I've hit a lot of dead ends with my mom, and get very little cooperation from doctors, etc., because she answers questions correctly. They think she's a bit dotty but fine. Then I get the rages and the confusion and the accusations. Sometimes I wonder if it's just me (she has major issues with family), but that's another conversation.
But I'd like to see more to help caregivers. Every time I help my mom for doctor's appointments or hospital trips, I have to take unpaid time off. I've spend countless hours in hospitals and doctors offices and picking up medications or taking her shopping or shopping for her. I've looked at paperwork, sorted out confusions, checked on billings, cleaned and more.
Sometimes it's a labor of love, but when her hate and rage boil up, it's agony.
I end up canceling doctor's and dentists appointments because of time lost at work, or because I'm not in the mood to get a lecture for gaining 10 pounds the last six months due to stress eating, etc.
Finally after the last round of accusations I've walked away. It's temporary, I'm sure, but I need a break. I need to get to that doctor's appointment finally so I can keep track of my borderline-high blood pressure, I need to get some new glasses, I need to see the dentist, I need to do my taxes, clean my house, enjoy a day off, and so on.
My mother insists she knows everything better, and finally I am just throwing my hands in the air and saying whatever.
So I'm not technically a caregiver, but it's hard work to deal with an adult who society believes knows better, but clearly she does not. It's like having a child, but a child will grow more independent (ideally) and more capable, whereas this is having a person who grows ever deeper into delusion.
As the POA I did everything, but suddenly my father doesn’t trust me and after being prodded by my brother, voided the POA and now wants to do things on his own, but can’t. In spite of the doctor telling him he has cognitive issues he insists he is able. So now I am working on guardianship, even though he was not capable of making the decision to void the POA. This all occurred at the beginning of February and almost on a monthly cycle I have an issue with Dad.
Today I get a call from my aunt, staying with Dad. His phone doesn’t work. After the litany of-I want my checkbook back and I’ll handle my bills, I don’t know what money I have, someone didn’t pay the bill, etc, etc. I called him back to see if it wasn’t just that phone. So the call went through to his kitchen phone. The phone at his chair wasn’t hooked up properly and instead of checking things or troubleshooting he immediately calls me 100 miles away to b*tch and whine. Like I said, monthly drama, almost like cramps and then it subsides till the next month’s issue.
I don’t wish him dead, but I do wish he wouldn’t fight me when I try to help. It is all part of the disease. I was told by a priest to be patient and remember I am the adult. I don’t want more government intervention in my or others lives. I don’t think it’s a matter of we live too long, not everyone gets this disease and many live clear minded lives in their 70s, 80s, and 90s. So, I have come to the conclusion that life is not supposed to be some sort of paradise because that has been pushed on us by the movies or some social club sense of joy. We were never promised our parents wouldn’t get sick or demented. As for that we can’t count on tomorrow either. I know it sounds archaic, but we need to pray; for our parent-child, our siblings who live so close it hurts, and for the situation that is unfolding. We need to just seek help and pray that God gives us the strength to survive our parents regardless of their age. After all when we were crying, wet and hungry they didn’t put us away. At least mine didn’t so I have to try and help til Dad goes. God help me and God love all of you dealing with this mess in your lives. It isn’t easy. At least now there are more things we can do. I remember a guy who lived by himself in a house a block away. No one bothered him and he was nuts. Just kept shut in and everyone was afraid of him. He just lived there until he died. Who knows he might have been like my Dad with no family to care for him. Sad, but we have come a long way with dementia care and handling.
God bless you all and help you with your mission of care.
1.get her assessed ASAP for a home to cater to her needs - let this be a sharing with other professional carers to give you immediate peace of mind and respite
2.sign youself up with a carer support group
3. have your brother assessed also as he might need to be in another care facility
4. get legal advice as well
I keep involved with her because she is my Mom, I love her, and has no one else to care for her. Of course, her decisions are her decisions. Sometimes she "listens" to her son-in-law (my husband) because my husband talks "nice" to her. He doesn't see her as often as I do and I'm always the "bad guy" -- suggesting things that are for her own good -- he can do not wrong in her eyes. Geez. Anyway, I am always waiting for the other shoe to drop because of her poor decisions. Unfortunately, there is nothing you can do or say to your Mom that's going to change her behavior. Until there's a crisis (like a hospitalization on her part), you will have to either stay away (I know the guilt I would feel would prevent ME from doing that) or just deal with the situation day to day.
To be blunt here, you need to speak with your doctor and get help for your own mental sake. You sound clinically depressed and would benefit from some kind of medication and talk therapy. When you wish someone would die (especially a parent), help for you is needed ASAP. Good luck and ALWAYS feel free to come to this forum. Let us know how you're doing.
Maridel13, you are not a personal and spiritual failure. I, too, have had these feelings you shared in your post. My Mom is 86 and I am NOT an only child, but because I do all the caregiving for my Mom and get absolutely no help from my other 2 siblings, I might as well be an only child. At least your mother talks about other living arrangements (a nursing home). My mother won't even discuss it. She wants to live in her home until she dies no matter want. Of course they don't want to spend their lifetime of savings on nursing home or home care. They want US to care for them. Sounds reasonable in their minds, no? You are lucky that she "agrees" to having home caregivers come into house. My mother refuses -- doesn't want strangers in her house. Our elders are clueless about how much healthcare costs, senior housing costs, nursing home costs, just about how much anything costs these days. They want to still buy a loaf of bread for a nickel like they did in the 30's and 40's. My mother could easily afford Meals on Wheels ($6 per day for 2 daily meals) but that's "too much money" in her mind and she "doesn't need it". So, she eats like a bird and is constantly losing weight at each doctor appt. Her doctor suggested Meals on Wheels to her or drinking Ensure to supplement her nutrition and she just "makes a face" at him and tells him "ewww, that Ensure stuff tastes like crap", so what's a daughter supposed to do?
I just try to support her wishes as much as I can as I know it's horrible to give up your independence and let others "take over". Eventually, I know when the "sh*t hits the fan" (excuse my language) and she is hospitalized for her poor decisions, I will have to step in and be the bad guy AGAIN and make the decisions. This is my life and I have just accepted it. She's 86 -- how much longer can she live? Perhaps another 5 years, maybe. I just try to do the best I can -- I keep telling myself. I hope when it's her time to go, she goes quickly and peacefully. The drama that ensues when a crisis occurs (like a fall, sickness or hospitalization) makes my anxiety skyrocket. Growing old is no picnic. I hope I have everything in order before I get this way with my own kids (my Mom has no will, doesn't want to talk about it, makes her cry). You never know what the future holds.