My mom is in a small ALF. She’s end stage Alzheimer's and has hospice. Hospice sends a bath aide 7 days a week. My mom is bedridden so she bathes her and changes the sheets everyday. I appreciate that she is being kept clean but one thing really bothers me. I’m allowed to have a camera in her room so I observe how she is being bathed. The aide will come in very early in the morning, wake her up then start to take off her gown. My mom is still sleepy from her medications and fights to keep her clothes on. Then after she removes her clothes she starts washing her whole body and doesn’t cover her up or dry her right away. Leaves her naked and wet as she turns her from side to side to change the sheets. Her bed is under an ac vent and she’s cold!! So many times I’ve asked them to please keep her covered at all times. My poor mom looks so uncomfortable and struggling to keep herself covered with her arms. Every bath aide she’s had does the same thing. I’m so fed up. Don’t they get training? How should I handle this?
Even when we were bringing him to the handicap bathroom down the hall, I would get him into the shower wheelchair and she would make sure he was covered with either a sheet or a throw before we would leave the bedroom.
I would talk to the Care Manager of the Hospice Team you have and request that she be covered.
I also suggest that when the Aide comes in she begin talking to your mom and begin to get the items she needs before talking off her nightgown. This will give mom a little bit of time to wake up.
The CNA that bathed my Husband would also talk to him the entire time and tell him what she was going to do before she did it so that (if he could comprehend) he was not surprised about a movement or touch. (I did the same thing before Hospice was even involved, I think it calmed him just having the conversation. He was always calm and compliant.
If there is a way you could be there when the Hospice aide comes to give mom a bath that would be great.
Have you talked to the aide about how you would like her bathed?
Is there any possibility of moving her bed away from the AC vent? The beds are not affixed to the floor so moving them should not be a problem.
If you have talked to the aide and your request has been ignored I would call the Team Manager.
From "Skills for dementia care" from the Michigan Coalition for Dementia:
2.8 Recognize that every person has a need for:
• Relationships with others
• Inclusion (being part of a group)
• Occupation (having things to do)
• Individuality (feeling unique)
• Dignity
• Feeling secure emotionally
• Privacy
• Intimacy and touch
• Socialization (being with others)
• Meaning
• Physical comfort
• Meaningful activities
So - don't these people get training? I'm sure they do. Whether or not they are given the leadership that reminds them to make it part of daily practice appears to be a different question.
I'm too cross just now to find the right words to suggest you might put to the manager - in your position I'd be too apoplectic to speak.
Does your camera record these images? You might make an appointment to see (or Zoom, or MS Team, or whatever) their manager at hospice, ask them to observe what you've seen, and tell them you'd like to hear their comments.
We are taught to bathe one area of the body at a time, keeping the remainder of the body covered and dry and warm and to maintain the person's dignity. Period. To force a person be essentially all-over naked and wet violates training and, I have no doubt, the standard procedure for the facility. This is offensive to me on so many levels.
The only thing I can--almost--understand is the aide trying to get your mother bathed before she's fully awake. Most facilities don't have enough aides and there's just no extra time. Since this is a small ALF I would hope they'd wake everyone, if needed, than return later when the client is more awake.
I'd get photos or video of these occurrences for documentation, then meet with the DON (Director of Nursing) and complain like crazy, then threaten to contact the State. Even if the aides are overwhelmed, the clients deserve--AND NEED--to be warm and dry and to allow them their dignity.
Side note: The ALF where I took my practicals had a fluid schedule and allowed the elders to sleep until they woke up (aides often checked on them), then they were assisted with dressing if need be, bathed, and wheeled to breakfast, et al. This facility was Native American-owned and their clients were treated as the honored elders that they were, which was SO beautiful. How the aides performed and how the elders were treated should be freakin' national standard.
In fairness, he was pretty young (21?) and elderly people 'grossed him out'--so he should have been in a different field.
I don't CARE how old you are, how demented, how sick, everyone has the right to be treated with a level of dignity. I know what I said to him resonated, he actually didn't last long in the field.
I remember having my babies (c-sections) so I wasn't allowed to shower--the nurses were SO GENTLE and made the bathing experience so pleasant and comforting. At no time was I exposed to cold air--I was covered completely in a very warm, wet blanket and then parts of me were slowly uncovered and washed and then recovered. A backrub follwed this bed bath and a fresh gown and I felt so much better. I always had long hair and they even made the effort to wash my hair.
Yes, it took about 5 minutes longer to do my bath than if they just dumped a basin of tepid water on me--but it was a sweet and gentle gesture.
I've had to bedbath DH many times and while that is a whole different dynamic--I used the method the nurses used and he would always feel so much better. Even if it were just a 'bath wipe' bath, we took it slow and gently.
I would ask that they show up after breakfast. I did this with the "in home" agency Mom had for therapy who also handles Hospice. Explain that the aides wake up Mom. She is one disoriented, and two frightened. Not a good experience for her.
If this does not work, you have the right to change Hospices. And I would tell them that. They make money off of Medicare.
My husband does not agree with me on this...telling agencies when a time is not convenient for me. I figure my home and I have a right to dictate the time convenient to me. With my Mom, she did not wake till 8am. It was get her up, get her dressed and feed her breakfast. If I woke her up, she would be disoriented. The agency wanted to be here at eight for therapy. I said No, 10am would be better. Because after I got her ready, I then got my shower and dressed.
I would absolutely follow through on this. Call the hospice organization and explain or better yet offer to share the photos from your camera.
This is why I love when cameras are allowed. Pictures don’t lie!
Best wishes to you and your mom.
Going back in time to the strictest interpretation of assault and battery,
one cannot even touch the person/patient without permission.
Having Dementia or Alzheimer's does not take the patient's rights away.
How you handle it?
Follow the advice of others, change the hospice company.
It is not your role, and especially during this difficult time for you and your Mom, to even consider educating the aide, correcting the aide, or changing aides with the current hospice. Current hospice has sent out an unqualified aide. Report them to the Ombudsman for the home and the hospice company if that will help you.
Refuse anymore baths until a qualified staff can give the bath.
You are exactly right, this is not okay! And not okay for your dear Mom.
This is done all of the time. We recently changed organizations because we love a particular nurse who works with mom.
This nurse loves mom but she was interested in working with the other organization. She told us the name of her new hospice so we switched to it.
I will get it straightened out or I’m dropping hospice altogether. They’ve caused me more stress and aggravation then the help they offered.
thank you all.
They do not care.
Yes. Good idea to report HOSPICE to APS. And, tell Hospice what you are doing. They will not like that and will address the issue immediately. Good idea.
Leave a Big Written Sign saying keep mom covered while cleaning.
I would only have them clean her up 2-3 times a week as you know she doesn't like it and she can't be dirty, just wipe her bottom area off if she's peed herself just like you wipe off a Baby's bottom.
Also see if the Vents can be partially closed.
It's very chilly to be wet and naked, it's a wonder she doesn't catch a cold.
I have bought long full body with bath towels to use as covers while they are bathing her. I make sure there is enough for one a week in case of a washer or dryer break-down. (This has happened several times and after a week, I had 17 loads of laundry, 2 were from my teenage son and myself and the rest were my wife's)
Call the hospice agency , ask for a different aide, time and attitude.
Since they aren't following your instructions I would go to the agency supervisor and let them know that they aren't following your instructions. And to send you someone who's more compassionate towards your mother that their behavior is unacceptable and disrespectful to you. If you don't get immediate results I would go over the supervisors boss until I got satisfaction. I have done it. This person is being deliberately mean. She sees but she doesn't care.
I too had a camara in my mother's room. When I saw something that I didn't approved of I candidly explained what I thought was best in that scenario. What I did was showed my mother's aid how I expected my mother to be bathed.Then I observed and assisted if you can. The aids are obligated to follow your instructions. And explained why it's important that your mother could get pneumonia be kind. You have all the right to have expections. I put a portable heater in my mother's room and the room had to be warm before mom could be bathed after her bath and clothed her they could turn it off. You can turn off the ac before she is bathed.
Also why is she being bathed everyday and her sheets changed its not necessary. My mother was bathed 2 times a week and lotioned down ( every Thursday and Monday) sheets changed at the same time unless they got messy.
You must take a stand for your mother! I didn't allow anyone to do what they wanted to do towards my mother. Don't be afraid you are your mother's protector, and advocate. The agency will understand your concern. So many parents don't say anything. I wish you well.
The ALF probably is grateful your mother is one they can scratch off their list as they can force the care and any complaints onto Hospice. WHich is where I would be going first, and demanding a new aide that is trained and respectful to tend to your mom. Not to mention considering a rearrangement of furniture so her bed is not below the a/c vent. There is absolutely no reason to wash and dry someone limb by limb, keeping the rest of them covered. IT's an outrage and assuming this person knows of the camera in place even more horrendous. Go to the top and let your complaint filter down. And if there is no change I'd be looking for another hospice program or AL facility. You might want to also get some guidance from your local long term care ombudsman office, and drop a hint to those at hospice that if the matter is not resolved to your satisfaction ASAP, you will be filing a complaint with the state! It's not just for your mom,but for the rest of us god forbid that may follow in her path.
I'm hoping that you did this already - before asking us. What did they say? do?
Request another aide, someone more experienced.
Stand there and watch what happens and show them how to cover up your mom for her dignity. These aides should know this already - or they should not be employed by Hospice.
Aides - and all Hospice workers - should be more than adequately trained to do their jobs. This is not acceptable.
I also agree that bathing 7 days is not good for skin integrity. Smaller “pit stop” wash ups with 2x a week full baths would be so much better for your mom.
You could also post a note with clear instructions and tape it in her room somewhere? Provide some things that are hers in her room to be used specifically for her (I know sometimes it was hard tracking down towels sheets etc when I would bathe mom on my own). I brought my own stuff as a back up.
Wishing you the best of luck to get the care your moms deserves 🙏🏼
She is blessed to have you.
Uncovering and handling a person without that person's consent is assault.
What that aide said was emotional and mental abuse. [Not to mention - B1TCH!]
And I'm not failing to take into account the time pressure the caregiver is under - she probably has 15 minutes (maybe even less, awful but possible), whereas I get 45, but then I also have to get the client transferred, showered, dressed, mobilised, medicated and breakfasted. And there she is, snuggled under the covers like a little demented squirrel, one beady eye on me and absolutely no interest in starting the day..! It STILL isn't okay to bully her.