I live in Phoenix, AZ. I'd love to talk to people who are taking care of spouses who deny that they have any symptoms of any cognitive deterioration, refuse to discuss it with a Dr. and get angry when I have to take over financial tasks that were previously his purview.
Is there a support group in my area, or something online, or can I rely on you dear people to help me through this period? I know if will only get worse. Thank you!
Your spouse is suffering from anosognosia. Here is a link to an Agingcare article on this very subject:
https://www.agingcare.com/articles/anosognosia-dementia-patients-cant-recognize-impairment-210090.htm
Best of luck to you.
As to support group I happen to love Facebook and think you will find support for your very specific needs on some of their pages. Look up dementia or Alzheimer's groups.
In all truth, as an old retired RN I can tell you that denial is typical in the early years. Often the more vehement the denial, the more certain the diagnosis.
Many here don't enjoy or use FB. I have found it an enormous help, esp when my brother had probable early Lewy's dementia diagnosis.
You are going to need to contact your husband's doctor (if he/she is also your doc that's an enorous plus) with evidence you find of his illness prior to his next appointment with his MD so that his MD can handle some of this. Reach his office to find out how best to do this (letter, call?). Medicare exams are now a requirement, so your husband's doc can call in this "yearly checkup" and the doc can make the moves from there.
I would contact an elder law attorney. It is concerning that finances may be at risk in all this. If you have spent a lifetime married and not a part of financial things that is a huge complication that can endanger money. Executive functions often fail as much as a decade before things are coming clearly into focus. You are going to need a way to get into the financial loop, however it is done.
The certain thing here is change. You are going to need a tough and savvy approach that is honest and upfront. I am so sorry you are going through this.
Contact Alz.org to try to reach out for some groups that may be in your own specific area, or a way to research where they may be. Good luck and again, Welcome.
If you have specific questions, do ask them here; and welcome.
You might google "support groups in Phoenix", and please contact Maricopa County community relations or similar office, and ask for information if they can help guide you to some support groups. I know they can give you some info. Helped me quite a bit when my husband had dementia and Alzheimers. Hope this helps.
Good luck!
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