I volunteered to take my in laws in to live with us 5 years ago. Things were different then. They lived in our finished basement. Now, my mother in law is gone (passed) and we have since moved to another state and we see him more in the house. He's 78. He is stubborn, egotistical, selfish, cold, distant, has 'THE' poorest social skills, a know it all, and doesn't listen to instructions. What makes things more tricky is that the only reason he and my mother in law moved in with is because I'm the one that urged them to do it. At the time his father was a year post stroke and being his wife's primary caregiver he could no longer handle it. And his wife's family wasn't not going to take them in. So I thought to make them happy why not spend time with the grandkids? But it turned out to be a nightmare. My mother in law had serious mental health issues. And I had some of my own and we clashed like oil and vinegar. We always loved each other at the end of the day though. And her passing was very hard on me and my kids. But my husband had a TERRIBLE relationship (or lack thereof) with his parents his whole life so there isn't much emotional connection there to begin with. So he doesn't have a lot of patience with his father. Fast forward to now. My father in law has worsening dementia which I'm very familiar with. And so how in the world do I get past this unkind, selfish, ungrateful person's personality so I can continue to try to be a good human and take care of him without being an a******? Because I feel like too often my attitude isn't what I would want if the shoe were on the other foot. I try to be conscious of things, my tone etc. But many days I fall short. I have 3 kids, him and a house to take care of. I also help my father with a lot of online stuff who lives hundreds of miles away because his health stinks and my mother has frontotemporal lobe dementia. I don't know. I'm exhausted. Ha!
Know yourself, know your limitations, and don't try to get blood from a turnip. Dementia usually reaches a point where in-home care becomes impossible for most of us humans, and this may be that time for you & your FIL. If placement is not possible for whatever reason, then find a good therapist who can teach you some coping skills, and get out of the house for several hours a day after you hire in-home caregivers to relieve you (or whoever is doing his primary caregiving now).
Wishing you the best of luck moving forward.
I highly doubt you can change HIM...in fact, if he's happy with the current dynamic, you are in for an epic fail.
Your first priority is your own family. whether you think so or not, your anger and frustration about caring for FIL is seen by the kids. And they may come to resent grandpa and how much time of yours he takes.
A big issue is that DH isn't stepping up to help. That has to rankle the soul. My Dh didn't/couldn't help with his dad at his EOL. He just fell apart and let me handle it all and then was critical of what I was doing and how I was treating him. I refused to let FIL move in with us and DH still reminds me of that, 16 years later.
Time for FIL to move to a community setting where he can be dealt with by professionals who won't crash and burn b/c one of their clients is grouchy. He probably won't be 'happy' but then, what would you expect of him? At least he'd be somewhere with safe care and 3 meals a day and probably some grouchy old guys who will be his best buddies.
Just b/c at one period of time, you felt that you could/should have MIL and FIL live with you doesn't mean it's still the best dynamic.
You'll completely burn out and he won't even notice nor care. Doesn't make him a bad person, that kind of behavior is normal, yet annoying.
Prioritize your life and put FIL where he will be 'like' the people he's around. He can still be a part of your family, wherever he goes.
Good Luck!
I would sit with my husband and explain that I cannot go on caring for his Dad. That if the Dad doesn't move now to care, you will have to consider moving as well, much as you love your husband. That you will attempt to find a home nearby during the separation, but will need a legal separation; that you will attempt to support him in ways that you are able, but that this cannot continue.
That would be me. Not a difficult decision for me, in fact. But only YOU can weigh things and make the decision best for you. What the past was is irrelevant at this time.
I wish you the very best.
Your husband and your children should be your number one and only priority. It's time for your FIL to move out. I don't know if your husband will help you find the appropriate facility for him or not, but that needs to be done ASAP. The damage it's doing to you and your family, having him in the same house, is not good or healthy for all involved.
I wish you the very best as you find your FIL a new place to live.
This has got rather beyond what is reasonable, no? - and from there, this being no reflection on you whatsoever because you are a human with human limits, it may risk developing beyond what is safe.
So. What are the options? What are you and DH thinking and saying to one another?
No one ever thinks it will be as bad as it is and sometimes it ends up being worse!
I believe in miracles but I have to tell you that I don’t see a miracle appearing in this situation. It actually sounds like a nightmare!
Many of us have been haunted by continuing nightmares in our dream world.
This situation is ‘real life’ and it is long past time to wake up!
I am not judging you in any way. I was in your situation.
I had my mom living with us for 15 years. Too much togetherness is difficult, no matter who we are caring for. You have it especially hard!
I also cared for my dad and brother.
Caregiving is most definitely a challenge and can also be a heartbreaking experience.
Very often we don’t see how damaging caregiving is in our lives until we step away from it. The weight of the world is then removed from our shoulders.
Wishing you all the best.
The help for the issues that you are all facing for the broken part of his body NOW, will look very different from the simple broken part of his body 5 years ago.
There is nothing wrong with trying to get help that looks different for different issues. It will just take a different approach.
You’ve been given great advice by other posters, as to how to proceed going forward.
Best wishes.
That said, it is important to bring up some topics:
1) does he have decent income/assets?
2) does he have other medical conditions?
If he has sufficient income to cover the cost of MC, this should be the planned new "home." Will he be happy there? Maybe, maybe not, but he certainly doesn't sound very happy now and YOU certainly aren't! Hopefully all the POA documents, will, etc have been taken care of already. POA doesn't allow you to force him to move, but with dementia there are "ways" to facilitate it. POAs merely allow you to manage finances and health concerns. IF no one has the POAs, he may be beyond capability of granting them, so guardianship would have to be applied for. Neither POA nor guardianship means you have to take care of him, they just give you the means to facilitate his care.
If he does not have sufficient funds to cover the cost of MC, then you might have to consider Medicaid. This can be highly dependent on what state you live in. Each state has it's own income limit, and most don't cover the cost of AL or MC, primarily NH. The problem with NH (and Medicaid) is there usually has to be a medical reason for needing SNF.
Navigating POAs, guardianship and Medicaid are best done with help from an EC attorney. Some will give you a free initial consult, limited, so have all questions drawn up, have some indication of income and assets, and hopefully a medical Dx. If you do end up hiring one, FILs income/assets should pay for this.
If he were to qualify for Medicaid and NH, but his assets are over the limit (~2k), you can spend it down on approved things such as a prepaid burial plan, and the cost of the facility. Once the assets are down to 2k, his regular income and Medicaid would cover the cost of the facility.
If he qualifies for Medicaid, but not the NH, you would have to explore options with EC atty and Medicaid. Some will pay for limited in-home care-givers, which could take some heat off you until he does qualify for NH. Some states do cover MC, but the facility choices are limited.
Another option: Are there any elder day care places near you? If so, even one day a week would give you a breather until you can resolve the living arrangement.
It was GRACIOUS and NOBLE of you to take in your in-laws and care for them all this time. It is especially notable since your husband, their child, had no interest in a relationship with them! Caring for elders can be challenging, but also can be rewarding, esp for the grandkids. BUT, when they are (or become) just miserable AND then develop dementia, all bets are off the table! He is NOT going to get any better, only worse, so it is in YOUR best interest to take this bull by the horns and start making plans. Even though hubs doesn't participate in the care of his father, you just might be able to offload some of the footwork needed to get information, find daycares and MC facilities, find EC attys, etc, to get the ball rolling! Since he doesn't really care for his dad, he should be willing to help get him into another place to live out his remaining time!
Keep us posted!
There's a reason for that. I'm not going to get religious on you here but there is a quote in the Bible that is very true. 'You reap what you sow'. If your husband doesn't feel any great obligation to take care of his father (or his mother when she was living), he is not wrong. You describe your FIL as an unkind, selfish, ingrate because that is what he is. You're the one taking care of him and describe him this way. You and your husband owe him nothing.
Your FIL needs to leave your home and be in a nursing home or assisted living facility. If he doesn't have money or resources to afford it, that is not your problem or responsibility. That's for your state's Department of Social Services to work out because it's their job, not yours.
It's not selfish of you and does not make you a bad human if you may not be willing to sacrifice your home, time, and family to become what I call an elder care-slave, and it sounds to me like that's exactly what you are.
You can still help and take care of your FIL, just in a different way. Finding him a new living situation that is decent will be helping and taking care of him. It will also help and take care of your husband and kids as well.
Kindest thing for all of you is to get a little space apart. Your family in your place - FIL in his own assisted living or memory care room. Where his cognitive, physical & emotional needs can be met - without undue burden to you.
Your patience with him may really improve when it is a visit instead of the daily grind.
You can be a good human being while you go back and reconsider the choices that you made 5 years ago. You can support your husband and your children, as well as your own father. Your FIL does not NEED you to go through this. Find another option!
Perhaps your “attitude isn't what I would want if the shoe were on the other foot”. But equally, You would hope that your own attitude then isn’t what you are trying to hard to put up with now.
Put your immediate family first. You'll all be happier.
GOOD point!!!
You had good intentions, but this is a mistake, and that happens. You gave it an honest effort with him living with you, but it is not working. You could have the patience of Jesus himself and it still wouldn't be enough to continue this.
How much hands-on work is your husband doing with him? Does he have any interest in mending their relationship? Doesn't sound like it, from what you say here. He isn't interested enough to take care of FIL, anyway. That's been thrown on you. You've been given another child to take care of.
As for your kids... I don't know their ages, but consider what they're witnessing. They're seeing their mother be disrespected by their grandfather. Do you want them thinking that this is normal? Would you like it if they grew up to have a spouse like your FIL? Because they're learning that it's okay to walk all over Mom.
If you have sons, they'll learn this is how wives/moms are to be treated. It's what women are there for, to serve and treat harshly.
If you have daughters, they'll learn it's okay to be walked upon and disrespected. That they must never show anger or emotion or objection at being mistreated. Just smile and make nice, be sweet and patient, be a people pleaser, just be quiet! Because she learned from your home that she isn't worth defending and abuse is okay.
Hey, if granddad can do it, why can't they?
Correcting them will be a lot harder since they aren't learning by example... no point in telling them to be polite, respectful, etc if it keeps happening in the home. And you keep allowing it.
You're approaching this in a casual "omg I'm exhausted haha" manner and this is concerning. It sounds like you've already gotten accustomed to being treated badly. This stuff is not a joke and I fear you're not seeing how serious this is. It's causing what could amount to permanent damage to your marriage and kids. It's already damaged you!
FIL needs 30-60 days and he needs to be out no later than that.
But, everything you said about the kids, their world view, esp of relationships between men and women and how they are viewed/treated, are among my biggest concerns and contribute the most to saying this man needs to move! The sooner the better (30-60 is being generous!)
Finances will need to be considered. IF he has enough income and assets for private pay MC, find the best one you can, where most/all have been vaccinated and get him on the shortest list(s)!
Honestly, although I've posted some minor suggestions, this REALLY sounds like the best solution for all, and the sooner the better....
1 - If family members seem happy and well-adjusted, there is no need to find another place for FIL. Consider getting more people to help with his care: family members, friends, members of faith community, paid help... The goal is to create balance in your life and your home life. Balance will look like everybody getting 7-9 hours of sleep daily, 3 regular meals, "time off" for fun, and alone time as a couple. Each person's health needs should be able to be met as well.
2 - If you, your hubby, and/or the children are not happy having a "grumpy grandpa" in the house, Consider that FIL needs some mental health counselling. You and your hubby need to talk about how to handle unacceptable behavior with boundary-setting and appropriate consequences. I like the books by Townsend and Cloud about boundaries. I suggest reading their books along with joining a counselling group or seeing a therapist to help you with implementing changes.
3 - Please take your FIL to see his doctor about his behavior problems. The doctor may refer him to a geriatric psychiatrist for behavior/mental health issues. The doctor may also refer him to a neurologist for testing for dementia. Based on their examinations, they can let you know what to expect in the future of your FILs disease processes. If dementia patients live long enough, they come to the point of needing 24/7 care. That level of care is beyond the abilities of one caretake in the home. It may be more appropriate for a memory care placement.
It's sad and can be painful at first, but you will be so glad that found some assistance you can get back to your normal existence and it will better for everyone, especially you.
Am I hard about this - YES - having grown up in a household with a mother like your husband's father I still tried to do the right thing and have her to live with us when she needed care - within 3 years it was her or me and I had to admit I have been stupid through a sense of duty and although it caused a few months very unpleasant behaviour (and confused stupidity which had to be sorted out) she went into a AL facility - we still have odd weeks where we have to deal with anti behaviour (I feel for the staff she is so rude and obnoxious to them) but at least there is sanity in our home for my husband.
I do think this would be best for all (OP, on the edge, DH, who really has no working relationship with his parents, and the kids, especially the kids, who could bear the brunt of this for a long long time!)
"Where to depends on his needs for care, but he is not your responsiblity."
This also depends on income/assets FIL might have. If he can afford MC, that should be the plan. If he can't, could he qualify for Medicaid? If not (and even if), consult with EC atty to explore other options.
SOMEWHERE, ANYWHERE but not living in their home! There is no way to change him, OP has tried her best to work around him, AND the kids are going to get the worst of all this!
For those who think doing a move would teach the kids it's okay to "throw away our elders", NO. Done right, with discussions at appropriate age level, they can learn valuable lessons. Keeping the status quo is NOT benefiting those kids - they are being exposed to obnoxious unkind behavior which can affect their own futures negatively.
Also, kids are not mini-slaves. If we are having kids so they can bow down to us in our elder years and provide any and all care, no matter how abusive we might be, no matter how much it affects their current physical and financial lives AND future physical and financial lives, no matter what, just so WE get what WE think WE deserve, then WE have no business having children.
I've already told my kids I don't want them taking me in and caring for me. Oversee my care, visit if you really want to, but live your lives! I didn't have and raise my kids as an old age pension. I tried to instill the best values and education in them so they would be productive caring adults. That doesn't mean giving up their current and future lives for me. Mothers have kids, nurture them, teach them and then sent them free.
It's hard enough to take care of someone that you like and love.
Depending on his dementia, you might try talking to him and letting him know he needs to start acting differently if he's going to continue living with you.
You can only pray real hard and try to let what he says go thru one ear and out the other.
Maybe he's bored?
Try to have things for him to do.
Pain't by number
Color
Play with kids magnetic blocks
Have a pet.
Play music he likes in his room.
Let him look at old family pictures.
See if your can get a family member to take him for the Weekend to give you a break.
Hire a Caregiver to come by once a day for 2-4 hrs or a couple times a week for a couple hrs.
Prayers
"You also must protect yourself..." AND your children. Sometimes as adults we can put up enough barriers, blinders and ear plugs to tune out some of this, but the impact on kids can be really bad. WE can't see what's going on in their heads, truly know how it might be affecting them emotionally or physically. We can talk with them, if they are old enough, to explain at their age level, but that might not be enough. They might also "learn" some of his bad behaviors and exhibit them, either in the home, or worse, out in the world!!!
Note that initially it was OP's idea for them to move in, despite husband's poor/non-existent relationship with them. Also note that they lived in their own space in the home, so not underfoot/in-your-face all day every day. While losing his wife may have contributed to some of his behavior, it really sounds more like this IS who he is and the stroke and dementia have not made it any better, perhaps made it worse.
I have other reasons I couldn't take in my mother, but I was already saying that the MAX time I could spend with her was 4 hours, generally if others were around. She could get under my skin with things she would say about others and me. Definitely prejudiced, but would also say very negative things about her own family members, our spouses, even her own friends! All day every day? One can only tune out so much.
I'd also have serious issue exposing young children to these behaviors. The tension will impact them and the bad behavior can rub off on them (much as I'd hoped my own kids GOOD point would rub off on their friends, it was usually the other way around!) Thankfully, in the end, the good outweighed the bad influences!
I don't think her dislike of him has made him more difficult or changed her perspectives on him, it is more likely that the constant exposure to all his behavioral issues have increased the tension and dislike. You can't change someone else's behavior, esp not with dementia in the mix, but it doesn't sound like OP has any more room for adjustments to herself!
Everyone here is giving good advice and I hope I won't over-step when I weigh in on this too.
First, you are NOT being an a******!! You have a husband and kids (and yourself!)--all of you need to come first. My FIL was EXACTLY like you describe. When he got sick after my MIL died, I told my husband I would take him and I still had two children at home. He said no. He told me that a man like that would ruin my life and our marriage and he wasn't willing to do that. My FIL went into a facility, and my husband was right. He tortured everyone who ever cared for him, calling them the names he used to reserve for the women in the family.
Some people can't be helped. Some don't appreciate the help given. You've done your stint in hell. Think of how differently you'd feel if he were different. You'd still be exhausted--you do a LOT. But you would be calmer, happier, and feel better about yourself than you do now. He brought a lot of this on himself.
Please take care of yourself.
--Essie
"But my husband had a TERRIBLE relationship (or lack thereof) with his parents his whole life so there isn't much emotional connection there to begin with. So he doesn't have a lot of patience with his father."
I don't think she considers herself a "flunkie." She initiated and facilitated the move, anticipating, as many think (and some suggest) that it's just a matter of providing some care for elders, not so hard, keeps family together, kids get to "enjoy" their grandparents. All too often, strokes and dementia can throw multiple monkey wrenches into our plans. Sounds like he was perhaps a bit like this before moving in, but having it in your face all day every day changes our perspectives!
Although I didn't have the best relationship with my parents, I had considered some kind of in-home care, several times. Thankfully my better working brain cells enlightened me! Mom's refusal to consider moving anywhere contributed as well. By the time she needed to be in a safer situation (she was living alone, with dementia), there was no way I could physically take on the task - she was over 90, I was considered a senior myself and have back issues that require me to be careful what I take on! Her weight and inability to do stairs also negated moving in here.
When my grandmother (on mom's side) needed more supervision (NOT dementia), my parents and mom's sisters took turns, months at a time caring for her. Their experience was more like those "good old days", in that Nana was easy to care for, didn't have dementia, could be in the home alone while they worked, etc and it was fun for me when I could "hang out" with her. She passed on well before anyone else was "older" and retired, so they ALL had a GREAT LONG FUN retirement. Mine so far has been just managing to get by and spending more and more of my time helping her in her own place, finding a place for her, overseeing everything for her, doing all I could to spend time with her, almost TWO years clearing out, cleaning and repairing her condo so we could sell it, etc. Hardly a dream retirement!
Lots of grace for you is needed. Stroke and dementia can bring out the worst in any person. I have hear women who were SAINTS before disease become horrible!
if FIL is able to comprehend and learn/ remember- it’s OK to set boundaries- which you and hubby agree to. They may need to be written on a poster.
Love. Lots of love. For your spouse, children, yourself, THEN FIL.
as this response says- it’s OK to change your mind. Circumstances have changed. Illness has changed. If you cannot peacefully live together, then don’t.
of you have NO option, find help now! Council on aging, state Elder Care, Federal programs, Daycare, private hire through church or ? Agencies. give yourself permission for a time out/ away.
find a support group where you can be honest.
mostly God bless you for your efforts. One writer said it well- take cate if you. If you get sick, who will take care of the kids?
oh, and “no” is a complete sentence.