My sister in law was diagnosed with Alzheimer's 3 years ago. Her disease has advanced, e.g. difficulty with personal hygiene and trouble dressing, putting on footwear before anything else. She had failed to get routine tests such as mammography and colonoscopy until prompted by her sibling. Fortunately all tests were negative including blood work, which was in normal range. Her sibling uttered the words to me - "She is healthy as a horse." That to me seems to be an inaccurate statement, as her brain is broken. What say you?
In that same follow up visit with the simple cognitive test performed, my mom failed.
In summary, my mom can use a shovel to dig a hole to plant a landscape shrub. It's just that she quickly forgets why she's digging and soon after forgets that she ever did.
Your sister in laws sibling just might mean 'as strong as an ox'. You're correct that the statement "as healthy as a horse" may be inaccurate but isn't that just semantics?
This was at a time when my mother's cognitive impairment was fairly mild and some abnormal cells were found in a pleural effusion. The hospital oncologist wanted to do a spinal tap.
Would this person be a candidate for treatment of breast or colon cancer?
Please post the doctors name so I can avoid that one.
Second, anyone with dementia I would not push to have a mammogram, colonoscopy or other testing along those lines. I say this for several reasons.
1. to put someone with dementia through some tests is difficult and in some cases they would have to be sedated. Dementia and sedation do not do well together.
2. IF they were subjected to the tests and IF one came back indicating there was a concern would you actually opt to put someone with dementia through surgery and possibly chemo and or radiation? (I would hope not)
I have to say my Husband was healthy in all respects EXCEPT the Alzheimer's (and maybe Vascular dementia) and I opted not to have him have a colonoscopy. I went through 1 bout of Norovirus with him and after cleaning diarrhea for a solid weekend and doing 40 loads of wash I can not imagine having had him prep for such a test! Toss of the coin what would have killed him faster the Dementia or colon cancer.
Her body is as healthy as a horse, it's just that her brain doesn't work as well as before.
You can have alzheimers for years and years and years if you're as healthy as a horse.
If you're sickly tgen you will die from something else before the alzheimers takes away all your brain.
However, many relatives are in denial because they don't understand how a person with no other health issues can possibly have Alzheimer's disease. There is also a big myth that if you "stay active" and do crossword puzzles daily to stimulate your brain, that you are protected from this awful disease.
This is one of the heartbreaking things about early-onset Alzheimer's - especially when people in their 40s and 50s get it. Many of those people are quite healthy otherwise, have full-time professional careers, etc. (A friend of mine's mother was a college professor - and got it in her early 50s.)
Also, I wanted to mention that I stopped getting mammograms and colonoscopies for mom because if she did have cancer, I would not put her through chemo or surgery to prolong this demented state that she is in. When mom was in her right mind, she wanted quality of life over length of life. I am following through with her wishes.
I think I would tell her siblings that horses don't get Alzheimer's!!
I know you understand that her brain is broken, but they need to educate themselves about the disease! As they are her siblings, they need to be aware of how the brain controls the body and that they too may be susceptible to Alzheimer's.
My heart goes out to you!
It's hard to make someone understand!!
Hang in there!!
It bothers me that my mother is as healthy as she is..........b/c she's 100% miserable 100% of the time and constantly saying she 'wants to die'. Knowing that the dementia is NOT going to take her life any time soon is a point of frustration precisely BECAUSE she says she is ready to die. She has a lot of pain in her legs/feet from neuropathy, which is an ongoing thing too, but not life threatening.
Could it be that your SIL is feeling frustrated that her sibling is 'as healthy as a horse' and nowhere near the end of her life at this stage of the game?
Healthy as a horse means physically. Dementia is a neurological disorder. My Mom had no physical problems. A little high cholesterol and B/P but her heart was good. No signs of Cancer. And she was strong at 89.
You might get an angry reaction if you said something like, “I have sadness when I see X person with Y symptom/behavior.” That way you’re not forcing them but disclosing yourself with the reality that you see. This may help to chip away at their denial while your not pushing them to leave their denial.
I guess she meant "physically" but of course mentally she is not healthy. You are absolutely correct; her brain is "broken". Our brains are an organ as well, and whether we label hers as failed, or injured, diseased, full of plaque, failing white matter or gray, frontal or parietal failure or vascular, it is all semantics. And it all adds up to, all equals the very loss of the one system that defines WHO WE ARE. I am certain her sister did mean, as Barb suggests, except for her brain.
The sibling who uttered those words did not include "except for her brain."
This comment appears to have really upset you. Many times we see people post here about their demented family member being otherwise healthy. Why are you finding this comment so jarring?
Being aware that a family member who has dementia is otherwise very healthy helps a family to understand they are in it for the long haul. It was a bit of a blessing that my step Dad died of cancer before his dementia got too bad. He was still capable of his ADL's and the cancer took him quickly.
I know my Mum has two fears, losing her mind and losing control over her body. At 86 she is in fantastic physical shape and her mind is mostly sharp.
As far as the mammogram and colonoscopy go, if a person would not take treatment, then there is no reason to have the procedure, it does not matter if they were not done in the past. Neither one is comfortable and the prep for a colonoscopy is no fun at all.
But, the brain, a different story for both. She is fortunate to not have the physical issues as that would make the caregiving even harder.
I wouldn't think this was said out of ignorance as in some ways she is as healthy as a horse. Let it go.
Could be denial or maybe just a throw away line - an innocent quote looking on the bright side.
My family say things like this too. She's doing really well. A bright side answer. (The reality is stroke survivor with multiple comorbidities which are life limiting).
Was there some particular reason that the statement struck you as being particularly inappropriate? Is the sibling responsible for your SIL’s care? Has SIL’s care been neglectful?
If your SIL’s sibling acknowledges the diagnosis of Alzheimer’s and observes the behaviors in day to day life, perhaps she’s comforted by the fact that there are still some positives in SIL’s life.
My Covid survivor LO has very little short term memory left, but as a survivor, she’s doing amazingly well physically. When asked by people who know her how she’s doing, I take it for granted that they realize that the dementia is still there and still about the same, but that she’s amazingly well, all things considered.
Horses can't use toilets, clean their homes, cook, etc either.
In terms of defense mechanisms that folks employ, denial is the one that is most protective of the individual. Seeing that a sibling has significant deficits, that she has a life-limiting, progressive disease must be devestating to a sibling.
I must say, if I had dementia, I would NOT be getting colonoscopies or mamograms. I would not want treatment for anything that ailed me.