This is the deal. My mom has been on a slippery slope for the last few years walking problems and dementia. She currently lives in a facility, but within month she should be home permanently. My sister does not want anything to with my mom unless it some special occasion such as birthdays, holidays etc. It makes me mad that she leaves it all on me and my dad. I can only do so much and dad heath is good but he is getting up in age, so he has less energy. I wish she would just visit her once in a while and spend some time with her like I do. I try to find different fun things for me and mom to do to keep her happy Going movies and doing crafts. I am only one person and I can only do so much. I have other things going on in my life. I feel guilty when I don’t visit her for days on end, no more than 5. I would feel better if someone visits her. I can picture a big argument happening whenever my mom dies.
Unfortunately, I don't think anything will change in this respect. And often, when you do address your feelings to your sibling, it is often met with hostility or excuses. This is sooooo common. You are a wonderful and caring son. it is not fair, but really nothing you can do about it but accept it.
I say this from experience, as asking for help didn't work for me. You might try, for your own piece of mind, talking to your sister about it, if you think she would be open to discussing it. Try to not feel guilty about the frequency of your visits. You are doing the best you can. Take care.
In the long run your sister is the loser. She is missing so much during this special time in her parents life. There is no reasons to keep bringing this up to her; she knows in her heart what she should do and probably feels very guilty and frustrated with herself. Even if she doesn't feel these things...the conflict will only cause you pain. I am not letting her off the hook....it is what is.
I have 2 like this. Quick 30 minute visit whenever they have the time and nothing more. In 2 years, there has been no offer to help of any kind other than a take out meal brought in to share with Mom because my husband said "no" to me to preparing a grand family dinner for them every night. When I asked for help I was told we wanted Mother so deal with it!
I have Mother 24/7 with a companion that comes in twice a week for 5 hrs each day so I can leave the house and have time to myself. We hire a private duty nurse to stay here for vacation time together. Mom is totally immobile, incontinent and cannot be left alone.
Good luck and best wishes!
What is scary is despite the fact they are unable or unwilling to do anything...they are very mean spirited about me having help or leaving the house. We pay fully for the help and whatever else Mom needs other than her meds. Of course, Mom thinks these 2 are just the best ting since slice bread..taking time from their busy lives to visit her.
I think a TV special on caregiving would be quite the eye opener for lots of people in America. As we are an aging population, it is a subject that really needs to be addressed by all families before the need arises.
Here are some suggestions I give my families; first, take a step back, and take a deep breath. You are feeling the burden of being the primary caregiver for your family member and that is influencing your perception of the situation. And yes, it may be as bad as you think it is, but try to see if it is the stress you feel influencing you. Second, call for a family meeting. INSIST that whoever you want to help with the situation meet with you, but remember that old saying, "You catch more flies with honey rather than vinegar". As much as it may take to control your feelings towards them and your anger, you will accomplish nothing if you are confrontational. Meet with them at a nuetral site if possible. A coffee shop maybe. This will help everyone be on their best behavior. Next, write down notes. This will help you organize your thoughts and present them in a logical manner especially if you tend to get emotional.
Tell them, "here is what I do" and then ask SPECIFICALLY for the help you need. Say "I need you to help with Mom every other weekend." Sometimes I find that caregivers "assume" that when they say they need help that others can read their minds as to what exactly they need. If your other family members agree to help, slot them in. "OK, so starting next weekend, I can expect you at 9am and I will be leaving the house and returning at 7pm".
Now comes the hard part...if they refuse to commit. As hard as it may be, try not to get emotional. At least now you know where you stand and MOVE ON. Nothing you can do will change anything. Look for other resources in the community to help. If financial considerations are an issue, call your church and see if they can set up "friendly visits" even just to give you a chance to have a peaceful cup of coffee. Call your local Dept on Aging. Maybe they can set up caregiving services on a sliding scale, or even provide you with free services. If finances are not a problem, remember, it's Mom and/or Dad's money. They earned it, it should be spent on being sure that they receive the best care available to them. If possible, enroll them is an Adult Day Program so they have socialization and you get a break. If they can not get out of the house, get home care in. Just keep detailed records so that when the time comes, you can show where the money went.
In extreme cases, you may want to hire a professional advocate or case manager to act as a "go between".
Most importantly, once you know where you stand, as I said before, move on. It will not do you any good to hold on to the anger and resentment. To do that will prevent you from seeking the help you need and seeing other options. (Someone once told me to remember "YAHOO" as in: You Always Have Other Options) If you hold on to the anger you will come to resent the very person/persons you chose to help because you love them. That will not do anyone any good.
In tthe end, after the dust settles, you will be able to look in the mirror and smile, knowing you did the best you could and you were a wonderful caregiver.
To me holding onto anger and resentment means you are allowing someone to camp free in your brain. Life is too short to worry about coulda, woulda and shoulda....they've got their own set of problems! Don't let anything steal your joy!
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