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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Just trying to see if Dad's hallucinations are the normal range - if there even is a normal range. The doctors don't really know. Dad has about 4-5 hallucination in a month. Today's was a doozer!
For my brother his were sometimes brought on by stress, such as shopping, eating out in a restaurant. Sometimes by patterns (wavy intricate patterns in a carpeting or marbling on walls). More they hit at night in elaborate and intricate screnarios of garden or pool party, immigrant woman huddling in corner, etc. Some were story like and some involved frightening almost monster-like images.
He got many fewer when he went into ALF care. MANY fewer. His handwriting also improved and he could once again write letters. I was told some early cases do improve when someone ELSE takes over anything like rental payments, bills, POA, etc. There is less stress and anxiety and fewer hallucinations.
I think each case is so individual. My brother died of sepsis before his Lewy's could progress appreciably. Would have been as he wanted. So I cannot know where it would have gone.
Thank you. Interesting about the different things that brought it on for your brother. My Dad's are always during sleep and upon wakening. Today was another - yelling out for my Mom (She passed away 10 years ago) His are increasing - I have been handling all his affairs for years now. He doesn't even ask about his bills, bank accounts, or any of that any longer. I think the most stress he might have is no big projects. He still wants to use power tools and saws, drills & such and that's just not allowed any longer. Poor guy. He's always been a McGiver of the family - that man could fix anything. But, at 96 he's very limited - even his hands are stiff. So we just carry on as best we can. I'm just worried the hallucinations will increase. It's so frightening for him. Very sad. Thank you for your response.
Does your dad have a neurologist? My husband was diagnosed with likely LBD and his neurologist always asked in detail about his hallucinations, which were not frightening or disturbing to him and no antipsychotic medication was prescribed. He did have nightmares for years which he started acting out, a common early symptom.
I would definitely speak again to his doctor and preferably a neurologist since his hallucinations are distressing to him. The only time my husband had frightening hallucinations/delusions was a few times when he had UTIs, mostly in the night, so that might be worth asking about also.
Thank you. Yes, we have spoken with his neurologist. He gives us very general information - says what Dad is going through is quite normal. I did have him checked by his PC - no infection. And in regards to any antipsychotics - at his age - 96 - it was decided that he would do better without because he has falling issues as well. The meds made him dizzy - even at low doses, so it's safer to go the non-rx route. I guess everyone's journey with this would be different - I was just hoping for an idea. Thanks again for you input! I appreciate it.
My husbands hallucinations or delusions are a daily occurrence. Sometimes it’s just seeing little things on the floor, sometimes he thinks we are moving to a new house tomorrow. The other day he said there were little springs on the floor. Even after I showed him there was nothing there. So I told him that he saw things before when he had a fever. I gave him two Advil and said when the fever goes away, so will the delusions. He believed me and after only a few minutes he said the things he saw were gone. I’m not sure if this will work every time or not.
No. Every patient is as individual as his or her own thumbprint. There is no average for hallucinations. For my brother they were much more frequent in any time of any anxiety. Much less frequent when relaxed. They also could be brought on by patterns such as marbled walls, floors, hotels with patterned carpet, wallpaper with patterns and etc.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
He got many fewer when he went into ALF care. MANY fewer. His handwriting also improved and he could once again write letters. I was told some early cases do improve when someone ELSE takes over anything like rental payments, bills, POA, etc. There is less stress and anxiety and fewer hallucinations.
I think each case is so individual. My brother died of sepsis before his Lewy's could progress appreciably. Would have been as he wanted. So I cannot know where it would have gone.
I would definitely speak again to his doctor and preferably a neurologist since his hallucinations are distressing to him. The only time my husband had frightening hallucinations/delusions was a few times when he had UTIs, mostly in the night, so that might be worth asking about also.
The other day he said there were little springs on the floor. Even after I showed him there was nothing there. So I told him that he saw things before when he had a fever. I gave him two Advil and said when the fever goes away, so will the delusions. He believed me and after only a few minutes he said the things he saw were gone. I’m not sure if this will work every time or not.
Every patient is as individual as his or her own thumbprint.
There is no average for hallucinations.
For my brother they were much more frequent in any time of any anxiety. Much less frequent when relaxed.
They also could be brought on by patterns such as marbled walls, floors, hotels with patterned carpet, wallpaper with patterns and etc.