After mom died and dad had to move out of his place due to no money and falling and being lonely, well I stepped in. My one sibling lived close by and worked with dad and was single and had a house, but no offer to help. The other sibling lived 5 hours away and made a paper-thin offer to take dad but dad called me and asked me to help (I am 7 hours away). Me having one child still home I made the best of it. Sibling #2 said "you take dad 6 months and I'll take dad 6 months. After the cleanout and move nothing. A few trips to #2s house once a year for a week or 2 for a few years but that was it. Now 8 years in and covid and I am stuck. #2 retires soon but has a grandchild on the way. So I ask for #2 to take dad for a month so my wife and I can go on vacation. Nope, "Covid" Dad gets his shots soon, She is retired and the baby is not due till summer. Nothing, "nope there is Covid here". But number #2 can drive 5 hours to get a haircut in another state because the state they are in does not allow the same way due to covid. Then another trip to the same town 5 hours away and will be painting a grandchild's room in their child's house (grandchild wants her grandmother to do it) in another state but that is OK, I guess no covid in that state? Did I mention #2 is a nurse? So it's OK for #2 to travel and go to all these places but not for our father to spend time and see his great-grandchildren some he has never seen.
I'm just tired, our marriage is suffering, not bad but we are stressed and I am asking for help from my sibling. #1 is a write-off so we don't talk. #2 said will still work a couple of days a week after retirement so to have travel money. Funny, I can't travel because our father is a fall risk and can't be left alone for a weekend. #2 calls dad every other day and plays doting child all the while I have to deal with meds, dr appointments, dehydration, altered mental status when a UTI appeared, falls, 3 surgeries, rehab daily visits after surgeries, cooking and shopping, technology support paying for the roof overhead and no financial assistance at all. Anytime there is a funeral I have to drive him many hours to it or in one case flew across the country with him and a wheelchair through airports. At the airport #2 went and got a wheelchair so he didn't have to walk back to the car from our gate after our flight got canceled and #2 ran back to her gate to fly to vegas and left me there having another night in a hotel and meals to get a flight back the next day.
Didn't think this one through when I stepped up to the plate.
Just burned out that siblings do not care one bit to help.
Can you get a sitter for any time at all during the week?
Does Dad qualify for an in-house aide for a break?
Any possibility that Dad can move to Assisted Living?
My brothers did nothing, one being 8 hours away with MIL problems and the other 30 min away. I excepted the fact that it was just me. The oldest and a girl.
I would not have gone thru what you did when it came to flying Dad. Sorry, ain't going to happen. Funeral hours away, because of Dads health, not able to come. You want to see Dad you come here. If you want him to visit, I'll meet you half way and you can have him a week or two or more.
You don't say how old Dad is? Does he now need 24/7 care? Maybe see if he could get respite in an AL or LTC facility to get you some time to yourself. It will cost u but it may be worth it. Does Dad suffer from a Dementia? If so, may want to consider LTC with Medicaid footing the bill.
Life is not fair. If you read other posts you will find your not alone when it comes to siblings and help. I found by just excepting that its just me, it made a difference. If you don't expect others to be a certain way, life is easier. I had POA and did what I thought best.
So, when it comes time when Dad needs more care than u can give, you make that decision to place him. If its questioned, u may want to say that if you had more help maybe you wouldn't have had to place him.
I hope you will consider for yourself how long you can go on now without help. Why not sit together and talk, tell them you are exhausted and burned out and didn't understand you would bump up against your limitations so fast. Honestly ask them if the are able to do more, and if not, then placement is likely the answer. So sorry. Hard realities biting.
CRY!
Put on a real show about your mental state so that it is CRYSTAL CLEAR that u need a break. Say whatever it takes!
Get #2 to agree to take dad for 2 weeks. Several days before dad is to return, refuse to take him back. Then go NC w #2 for several weeks so that #2 gets a FULL DOSE of reality.
If you want things to change you are free to change what you do; and you can do so with your head held high. But blaming your siblings, resenting their freedom of action, bemoaning their uselessness when they do make any effort, won't help.
I complained to my parents who did nothing to rope him in. I was helping a lot & left my parents’ house because I was burned out. I couldn’t take it & was afraid I would get very sick if my caregiving continued. I’ve been there twice for short visits in the last 8 months.
Please ascertain which resources are available to dad. Can he afford pt caregiving help? Does he need to go to a facility? You need a break before you get very sick yourself. He’ll have no help if you’re in the hospital or ordered to stay home to recuperate.
I thought my brother would blow off my parents & was afraid they’d decline. It hasn’t happened. My brother is now helping out. It was that or out of the will I’m guessing.
In fact, mom was in the hospital for a few days over New Year’s (mental health related which was what she needed as she has a chronic mental illness), went to rehab and went home. Medicare is offering a few hours of therapy per week for 8 weeks.
She went through this uptick in mental health symptoms in 2019. She needed the above. My dad didn’t want it since I was there. It angered me, I complained a lot, but I chose to stay to help her out. It trashed me & didn’t help her. It helped my dad & brother because they were off the hook for her care. Grrrrr...
What I’m saying is that things will not fall apart for dad if you leave. Set your boundaries & stick to them like glue. You never know. Things may improve for him. Good luck!
You should have thrown a fit as they prepared to leave you empty handed at an airport. I have this funny feeling that you tend to bend too much for them. Perhaps even saying 'it's ok, I'll be fine' as they ran for the exits. Then you do a slow boil over what they did to you. Stand your ground with them if you decide to have a family conference call.
Surely dad has social security and/or retirement income. Utilize it to pay for some in home help for his care. Use whatever assets he has to cover a break for yourself. Do NOT discuss any of the spending with sibs who refuse to help. Keep a really good check book register with notes, or other spreadsheet, to document expenses for his care. Later on if anyone wants to know why there's nothing left to pad their bank accounts, hand 'em a copy. --- There's always one who can't figure out why mom/dad has no money left when they were living with a child and others assumed parent was jut rat holing their entire income and savings.
I had to chuckle about the sib who will have to keep a PT job after retirement so they can travel. Write that down in your book, because it's gonna happen. Not so much to save travel money, but as an excuse to stay out of the caregiving position. One of my sibs actually got a job, after years of retirement to avoid being available. And quite commonly talked about 'heading out to the weekend house in the country'. I mean, what is someone thinking that they would even tell you about weekend after weekend of retreats and fun with their family?? Callous in my opinion. But, that's why I say be very prepared for the answers you get when you do the family conference. It hurts when you have hope they will step up - it is crushing when they tell you they won't.
Time to face facts. They can't or won't help.
Neither guilting, pleading, pressure or agro will force them.
'They should help' thinking has not changed things & is not helping you.
Time to flip the script:
Something like - I am a great caregiver. But I have limits. I will think about what help I need, research it & implement it.
Many many people (so so many) have had this sibling issue. I'm sure it makes siblings become distant... but it seems you can choose how to respond: to be bitter about them not doing as you would wish or accept their boundaries.
You may currently be the family *Resuer*. But I say your first responsibility is to rescue yourself.
So to tgengine, if having a sit down with them and laying it all out (either again or for the first time as a group) feels right to you, then go for it! Just know you may not get the response you desire but who knows, you may be surprised. Even though I know my sister will never initiate any help, and I have to find a way to make peace with it, it still is challenging. Look into the other suggestions here about finding help. It's available and you deserve to have relief!
I believe you said your father has no money - as someone else previously wrote, check social services and possible local department/commission on aging. If he needs A/L see if there are any that accept Medicaid - I know there is at least one in the area I live. If he needs more than A/L check into nursing homes/SNF/LTC facilities for medicaid beds. You may need to contact an elder law attorney. Social Services or Dept of aging can also guide you as to whether your father would qualify for in-home care.
You need to contact your siblings and lay down the facts that you can no longer take care of your father in your home and lay out the options found. As far as you and spouse wanting to go on vacation - some A/L facilities will take in (our used to before COVID) for short term. Find out what it costs for a month. Your siblings should (key word - should) pay to place him short-term while you are away, if nothing more than to say thank-you for all you do for dear old dad.
Let's face it, care of parents usually fall to one child. While my SIL did most of the looking in of our MIL, after she went on strike the 3 sons did step up; SIL did step back in while sons had to take their turns. My husband & his brothers and wives did make joint major decisions together. A rare happening.
Best of luck to you and your spouse.
One brother bought house I live in to give himself expensive reason not to visit and he's a pilot.
My middle brother used to take mom up north for month or 2 each year but had grandchild and feared for safety around mom so those breaks were over. Since pandemic it's been almost 2 years since I had respite now. Finally have respite but want to get my mom who is 84 with dimensia vaccinated first which seems impossible. I totally empathize with you and understand Dyer need for a break. I've figured out that I just keep going Hope for the best expect the worse and hope that I can do it. Don't get me wrong, not how I thought it would go either. I have 3 older brothers and I get phone support from one and excuses and whining from other 2. The minute her memory was gone was their excuse to sever ties for most part.
My theory is once one family takes on responsibility in any way at all.... you're stuck with it forever without much help. Sad there are so many stories like this. Good luck to you... take a deep breathe, count to 10 and continue.🤞👍🙏
DON’T fall for it: stand your ground. All kids should do what they can -not more - what can be managed while taking care of your own health & your other family responsibilities. It should never be the responsibility of one, especially just because that one is a daughter. Do what you think is doable AND fair; then tell your siblings to get their butts in gear to do the rest!
You literally have to sacrifice your entire life to be caregiver full time; either that you stick them in a nursing home. I could not bear to do that. You have to love your parent than yourself in order to become that sacrificial lamb, and mom was my entire world. Until she died. Age 90, three months. Her Alzheimer's did not kill her. Insulin-dependent diabetes, liver and kidney diseases did it, even with excellent controls on her sugars. Diabetes does its number even with great control. In the end I had a feeding tube put in my mom because I did not want her to die of dehydration. She did great with that until her kidneys and liver did her in. She died without a single mark on her skin, no bedsores, and she was only bedridden for 2-1/2 months because it was hard work keeping her moving until she forgot how to stand and could no longer focus on that.
Do I regret doing that? No. I love mom. She was my world. Her death really impacted me and, well, that's just part of life. We all die. Her ordeal of living is over with. I miss her, but I'm working and trying to get my Master's degree. You have to carry on. You just have to. I know mom would want me to, so I keep on going for her sake.
Mom died very peacefully and hospice never had to opened up that emergency pack. They came over daily to make sure she was comfortable and she was. I never had to give her any narcotics or psychotropics her entire life. She did great without them. I used exercise to control her behavior. I walked her in the park everyday for 5 years. EVERY SINGLE DAY. That really kept the "crazies" down, and for the most part "sundowning" was not a big problem. I kept her awake during the day and she slept good at night.
It was worse with my mom who had ALS, one brother threw money at it and never saw her alive again after her dx. The other disappeared more and more after her dx. He lived in her neighborhood, and I was an hour away, but my sister and I were the only ones in her life the last month and in her final days at the hospital.
that brother did manage to find a way to take out a second mortgage on her house to pay for upgrades on his house, and had her rewrite her will to forgive the loan. When she could still talk, I asked about that and my mom said “he is the only one who helps me”. What a blow to my sister and I who took care of her daily for over a year. 🙄
It is a thankless job, but I wouldn’t trade that time with mom for anything. I believe our rewards for sacrificing aren’t going to be earthly, call it karma or faith or whatever. But also, we have to be careful not to destroy ourselves or family and get outside help when it becomes too much.
if you still get no help then at least you know and can reassess your relationship with them. For example even if they don’t take your dad at all can they pool some money so you can buy in care or respite? Ask pointed questions so that they actually have to say “no I’m not willing to give any money to help you.” Or “ actually I’m not willing to take dad at all.”
I feel very sorry for your situation, though not unusual I can see it is exhausting. Your siblings also realise this which is why they will distance themselves so they don’t hear your stories. It’s not fair and they know it and so do you. I am absolutely certain that if your father had a major inheritance to speak of they WOULD be involved!
Ask those questions and get their answers in writing, you will be surprised how reading it in black and white will help you know where you stand. X
I have twin brothers with adult children and all of them live within 4 hours of the LTC and yet no one visited Dad for 18 months except my husband and I. We live 9 hours away in NY and have had to travel to Ontario, Canada to visit. This last year of course made things harder due to quarantining...so much so that we've had to refinance the house to pay off my credit card due to all the expenses of visiting and caring for Dad. (funny, all of a sudden there's a great deal of interest regarding what's going on with the estate, you'd almost think Dad had money to leave them.) The mantra I started to say (which gave me strength) was "no one is coming to save me". And it's true. As I type I'm on crutches in Canada convalescing so that I can make the 9 hours drive home. (3 days after Dad passed I ended up in the hospital with a dislocated hip replacement and have been alone without ANY support ever since because hubby is American and despite our efforts, we can't get him across the border even to so much as attend the internment or drive me home) So know, your sibs aren't likely coming to help you and if you can, try and make peace with that reality and see if there are any other resources out there that can give you a hand. Wishing you the very best and I'm so sorry for what you're going thru.
In the end, the only thing you have control over is your own behavior.
Have you considered seeing a therapist to determine why you are so "stuck"?
You should talk to both of them and let them know you are burnt out and need help, especially the one that promised 6 minth care and you 6 month.
Tell them you need a brake every weekend. Tell them that Dad will have to be placed in a facility if they can't help.
If neither will step in to help then you need to talk with your Dad and tell him the truth about your feelings and how things are at home.
Maybe he can talk to the other two siblings to help.
Bring up living in a facility and tell him you can take him to look at a couple.
Did he have his own home that could be sold to help with financial?
If your Siblings can't help care for Dad in their homes, then ask each sibling to each give $500 a month to use for Caregiving help.
You can hire 24 hr Caregivers for $10-12 an hour if you hire straight with then and not an Agency.
You go thru an Agency and they'll charge you $20-$25 and give the Caregiver $8 or $9.
I have a 96 yr old Dad that I was lucky enough to hire and pay $9 an hr and they do 12 hr shifts 24 7 which cost $1512 a week.
Does your Dad get Social Security?
Maybe you could use his Social Security money to hire a Caregiver for a couple days a week, weekend, ect to give you a break.
Prayers
Is he a Vet? Have you tried applying for help with them?
STOP taking him to funerals. Stop catering to him. Next time he falls, call 911, he goes to ER and tell the social worker you can no longer provide care for him.
And you need to nean it and not give in to his whining.
She's extremely difficult, and also has constant doctor appointments. She has a continual string of demands all day long. When she isn't at dialysis or doctors, she demands to go places meaning much preparation and a walker and scooter. As soon as we get there she wants to leave. The only help I get from my sister is about four hours a week when she takes mom somewhere. We also bear all the expenses for her care, my sister pays for nothing. I know how you feel, it's so unfair and lop-sided, yet many people in the world seem to just look the other way and justify their lack of fairness when it comes to elderly parents. Her excuse is simply "she can't do it". Then why can I, despite all the obstacles I have? My own retirement is ruined while my younger sister enjoys hers. All I can say is I believe God puts it in our hearts to "do the right thing", and we must hang on to that daily...and find our moments of peace when we can. I make the best of any little time I have.
I really sympathize with you. I am not a caregiver to a parent, but to my husband. I know that I am responsible for my husband, but his siblings live near us and doesn't offer to help. My husband has Parkinson's and I do it all for him. The times his siblings have been out here is when he's fell or somethimg else happens. Even then I have to call them for them to come help or even see their brother. I am to the point if I have to call his family to come see their brother, I say forget it. Anyway, I didn't mean to get off the subject, but don't expect anything from your sibling because it's not gonna happen. I'm not trying to sound like a debbie downer, but I have found out when it's time to depend on siblings, most of them disappear or find some excuse not to help. I would give anything if someone would give me a break caring for my husband. I don't mean a couple of hours either. I mean all day. Oh, before any of y'all say anything about an aide, forget that, aides cost money and we're on a limited budget. Plus, I am not impressed with home health care either.
Ok, with all that said I wish you well in finding an answer in helping your dad. It's not easy and you're to be commended for loving your dad enough to take him in. Caregiving is one of the hardest jobs I've ever had. I'm still trying to figure out the rewarding part. So far, I haven't found any reward in it. God bless you!
Great you are getting your Masters degree. You seem to be doing quite well. I am glad you are working and moving on with your life. It difficult I am sure, but good that you are keeping busy working and going to school. Wishing you the best in life and many blessings.
My sister was doing all the care for my mom and I could hear the stress as she dealt with my mom on her own.
I was 1,000 miles away and still working - mom's house had no internet, preventing me from working from her house. I bit the bullet had internet installed - $100 a month - and bought the router etc my self - when I traveled - I installed and then stayed and worked from there for 6 weeks - I had to come home but am going back to just give my sister some relief and as I left - she cried, I am not the only child (I felt so bad for her and promised I would be back) I am now preparing for a return trip. I have a home that has to be maintained and can not stay there full time. but the burden is hard.
The only son refuses to help - but he comes by and mouths do you need anything and when asked - oh, I can't do that. The other daughter only comes by occasionally.
You are a very kind and caring sister. Reading your post put a smile on my face. Both your mom and sister are fortunate to have you.