The Dr found a mass on dads liver about 2 yrs ago. They only recently biopsied it and found cancer. His ammonia levels have been high but were under control with medication. His skin is jaundiced and he is in pain and won't eat at times. he can barely swallow and his mouth and lips are dry and cracked. Last week the NH found him unresponsive in his wheelchair and had him hospitalized. He had no urine output until they hooked him up to a IV. They couldn't catheterize him because he has a large prostate. (their words) and had to use a condom cath to catch any urine. His ammonia levels were ok in the hospital so they sent him back to the nh after a 2 day stay. He has slowly woken up. Now dad is back in the hospital again with high ammonia levels and low platelets. He was admitted this time for aggressiveness and agitation. he won't take his meds, eat, drink and has thrown himself off the side of the bed and he is hitting the staff etc. This started 4 days ago and they said that he didn't want to see me. he has said that before so it was no surprise. The big surprise is that he didn't want to see his "DO NO WRONG" son. The one who wants Guardianship even though he hasn't visited more than 8 times in the last 4 yrs. The nurse said he is quiet and drowsy right now. What I want to know is if this erratic behavior and ammonia and platelet levels are a sign that he's nearing the end of his life. Has anyone gone thru this before? Maybe you can answer from your experience with Liver Cancer.
From what you are telling us I would expect your father to pass within the next two weeks. Now I caution you with what I am about to advise because I am not there. Make sure there is a DNR in place. Comfort care includes nursing care to insure his skin remains intact and mouth care which he is not getting now. His mouth should be kept moist and lips lubricated. ice chips or sips of water are helpful. If he can't use a glass a sippy cup may help or take a straw dip it in water, hold your finger over the end to contain the water and put it in his mouth and release drip by drip. Another way is to use a syringe without a needle but only a drop at a time so he does not choke. Let him eat when and if he wants too. Offer things like jello and ice cream. Do not allow them to tube feed or use IV fluids. They may tell you he "needs" them because he is dehydrated. He does not dehydration is not painful,. it is thought to release endorphins which have a calming effect. Artificial rehydration and nutrition actually put an added stress on the body and the failing organs that are shutting down. Medications should be stopped, the only things he needs are pain meds and sedatives. There is a psychosis that goes along with liver failure and that is very distressing for patient and family to observe. The size of his bladder should be monitored because this also causes agitation if overfull. They may need to call in a urologist to place a catheter as his prostate is enlarged. Also his bowel function should be observed because constipation also causes agitation. Because someone is not eating or drinking it does not mean they are not producing feces. This is best managed with a rectal exam every few days followed by a small enema if indicated. If you find him in wet or soiled bedding, start by asking nicely and if that does not work quietly demand and stay at the nurses station till someone is sent to take care of him. Don't make loud demands this will only get you removed by security. You are there for your grandfather's comfort not to vent. If hospice is involved call them at once if you are not satisfied. Lying in a wet bed is a good first step to getting bedsores.
Now about bedsores, and other nurses may disagree with me they can not always be prevented and it is not always a sign of neglect. Even with two hourly turnings ,immaculate skin care and pressure relieving devices they do happen. I have even seen them on a patients ears. it is horrible but true. Antibiotics are also usually avoided. Pain medication can be given, orally by injection, IV rectally or by patch. As the circulation shuts down the place that maintains the best blood supply for the longest time is the mouth. For this reason a good medication to use is liquid morphine or it's synthetic counterpart. It is of very small volume given with a dropper of tiny needleless syringe. If the patient can not swallow it is absorbed in the mouth. Can even be given to an unconscious patient if they are showing non verbal signs of pain such as moaning. For the restlessness Ativan is very useful. it is a small pill which can be crushed and given in a little apple sauce , jam etc or rectally.
I seem to have written a text book here and if you have hospice they know all the tricks of the trade but I felt this might help others coping with this at home.
Expect to hear a lot more from me next week as I am having bunion surgery and to my surprise will not be allowed to weight bear for six weeks. did not know I was signing up for that!!!!!!!!!!!!
Thinking common sense, the patient would have to be cognizant and aware of the ramifications of a DNR, and this guy sounds like he really is not thinking rationally. Therefore, trying to get a DNR now may be impossible, but I am not completely sure.
Just a thought.
That is what I would suggest with or without hospice. Enlist drs and care managers help to get this ordered.
You cared and you were there till the end. May that give you peace. The loved one appreciated it. I know it.
Check bloodwork for Liver (Enzymes, ALT, AST)
Reasons and alternative help for malabsorption.
Hepatic (Liver) Encepalopathy
Good flora, vits, minerals, enzymes, amino acids
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