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I'm making the Advanced Healthcare Directive POA for my mother. Any of you guys have any pointers to add in the form that has been helpful for your loved ones in any institutions?
OBM - here are some links to info that might interest you.
Advance Care Planning: Healthcare Directives
What Is Advance Care Planning? Advance Care Planning Decisions Getting Started with Advance Care Planning Making Your Advance Care Wishes Known How to Choose Your Healthcare Proxy Making Your Healthcare Directives Official What to Do After You Set Up Your Advance Directive Be Prepared
For those who want even more control over their final exit, there's an organization call Final Exit Network that advocates for right to die and peaceful ways to end one's life. If it's not for you, disregard it.
Your profile says Mom has Dementia/ALZ. Depending on how far into her Dementia she is, she may not be able to assign POA. She has to be of sound mind. Health directives are based on the wishes of the person having them written up.
My Moms medical POA read like a living will. She didn't want extraordinary measures. No feeding tube. She had a Do Not Resuscitate Order signed by her doctor. The lawyer asked her a list of questions and she answered yes or no.
She is still aware and can answer questions as well as communicate her wants. Her diagnosis is more towards cognitive decline due to her age and last neuro told me her case is not alzhiemer but some sort of dementia or age related decline. By the way the CAN NOT diagnose alzhiemer before an autopsy of the brain. He said most doctors jump into diagnosing it incorrectly(like ADHD)! Hers is given to us by an attorney. Living will and AHD are the same. Correct? At least that's what I heard.
my advice is to have a lawyer prepare the document. Do not use an online form or book to create one. A lawyer will be familiar with local provincial/state laws and can be an ongoing resource.
If you use any online forms, be sure that they are approved by your state's Bar Association, but I would recommend retaining an attorney anyway - that way, you are sure to have documents that are appropriate for your mom's particular situation. The Advance Directive can be confusing.
I had an attorney draw up my mother's Advance Directive, Health Care Power of Attorney and Durable POA just before she started on opioid pain medication. In the absence of a Last Will and Testament (Mom had nothing of value to warrant one), he also drew up a brief document giving me the sole rights to her personal letters and papers, as I was getting ready to publish a book that contained them.
The cost for these documents, including the recording fees, was $300. That may seem like a lot, but it gave me great peace of mind. The attorney carefully questioned her on each item to ensure that her wishes were indeed being stated clearly, and he explained every clause before she signed anything.
Having a disinterested third party create and witness everything also provides a "stamp of legitimacy" that could prove valuable later on.
Thank you. I have consulted with an elder law attorney. She helped me to fill it up since mom dosen't know English. But my concern is, I need to know if anyone has had any bad experiences in some institutions, despite having the AHD and if they wished they had that detail mentioned in the POA. I like to have it notarized but want to make sure before signing, that I have considered any possibilities to make her experience as comfortable as possible, in any institution.
A document called a POLST is much more detailed than a DNR. there is a pamphlet you can get on line called Five Wishes and it has a lot of good information and it is pretty easy to complete.
I think it is very important to have the statement that any measures outside of what is specifically allowed is to be not allowed. Mthr's AD states that on the first page of the document, but hospice just kept the check boxes in her medical chart. It would have been nice to have that statement on the check box page.
The MOLST form (Medical Orders For Life Sustaining Treatment) is used in New York State. The person is supposed to carry this form with them whenever they leave their residence. The social worker at my mother’s AL facility completed the form with my mother. It was then witnessed by two people and notarized.
We live in AZ and had an attorney draw up Advanced Directive, which is called a Living Will here. But there was quite a bit of confusion about what is really needed by different agencies, so here is what I was told by our attorney... 1. A DNR is for the paramedics. We got it from the fire department and kept it by the front door of ALF. The facility also had a copy as did hospice. 2. The LW is a general document that the hospital and medical personnel will honor. When mom fell and went to hospital, we had to get them a copy ASAP, so they knew her wishes. Hospice also had a copy as did all of her doctors prior to hospice stepping in. 3. A hospital will require their form filled out if you go in for a procedure. It is only good for that procedure.
Crazy, huh?
Also, PLEASE have a list of all of your LO doctors and phone numbers printed up. When my mom broke her hip, and before we could get all the forms to the hospital (paramedics would not take them), they had scheduled mom for surgery. Due to Covid19, we could not go to hospital. Anyway, when we got the forms there by FAX, which the ALF did for us, the hospitalist called me. She then called the pulmonologist who told them mom was too high risk for surgery. Amazingly, I had updated all the information the day before mom fell and had emailed it to my dad. It turned out to be critical to moms care and for following her wishes.
Follow your state's guidelines. Make sure that the facility,local hospital,ambulance company,local ambulance company, and her primary care physician have copies. Keep one for yourself. Make sure the completed document honors your mother's wishes. I found out when my mother was dying that the E.R physician reviewed her advanced directive to ensure that I didn't wish to override it. It is important that the surrogate understand and honor their loved one's wishes even if they do not agree. If your mother dies not wish to be resuscitated, the primary care physician must write a DNR order to place in her chart. If a person is person is unable to execute an advanced directive due to dementia, an advance directive document can not be executed for them.
By the way a POLST or DNR should be carried at all times. If in an emergency if a person is taken to the hospital they will do what is necessary to save your life, as will paramedics on the scene if the POLST or DNR is not available. Even if you say the person has either document if it is not there it "does not exist" until presented.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Advance Care Planning: Healthcare Directives
What Is Advance Care Planning?
Advance Care Planning Decisions
Getting Started with Advance Care Planning
Making Your Advance Care Wishes Known
How to Choose Your Healthcare Proxy
Making Your Healthcare Directives Official
What to Do After You Set Up Your Advance Directive
Be Prepared
https://www.nia.nih.gov/health/advance-care-planning-healthcare-directives
https://www.everplans.com/articles/checklist-creating-an-advance-health-care-directive
For those who want even more control over their final exit, there's an organization call Final Exit Network that advocates for right to die and peaceful ways to end one's life. If it's not for you, disregard it.
https://finalexitnetwork.org/about/mission-and-vision/
My Moms medical POA read like a living will. She didn't want extraordinary measures. No feeding tube. She had a Do Not Resuscitate Order signed by her doctor. The lawyer asked her a list of questions and she answered yes or no.
diagnose alzhiemer before an autopsy of the brain. He said most doctors jump into diagnosing it incorrectly(like ADHD)! Hers is given to us by an attorney. Living will and AHD are the same. Correct? At least that's what I heard.
I agree about the diagnosis of ALZ.
Make sure the Will and POA are up to date too.
I had an attorney draw up my mother's Advance Directive, Health Care Power of Attorney and Durable POA just before she started on opioid pain medication. In the absence of a Last Will and Testament (Mom had nothing of value to warrant one), he also drew up a brief document giving me the sole rights to her personal letters and papers, as I was getting ready to publish a book that contained them.
The cost for these documents, including the recording fees, was $300. That may seem like a lot, but it gave me great peace of mind. The attorney carefully questioned her on each item to ensure that her wishes were indeed being stated clearly, and he explained every clause before she signed anything.
Having a disinterested third party create and witness everything also provides a "stamp of legitimacy" that could prove valuable later on.
But my concern is, I need to know if anyone has had any bad experiences in some institutions, despite having the AHD and if they wished they had that detail mentioned in the POA. I like to have it notarized but want to make sure before signing, that I have considered any possibilities to make her experience as comfortable as possible, in any institution.
there is a pamphlet you can get on line called Five Wishes and it has a lot of good information and it is pretty easy to complete.
1. A DNR is for the paramedics. We got it from the fire department and kept it by the front door of ALF. The facility also had a copy as did hospice.
2. The LW is a general document that the hospital and medical personnel will honor. When mom fell and went to hospital, we had to get them a copy ASAP, so they knew her wishes. Hospice also had a copy as did all of her doctors prior to hospice stepping in.
3. A hospital will require their form filled out if you go in for a procedure. It is only good for that procedure.
Crazy, huh?
Also, PLEASE have a list of all of your LO doctors and phone numbers printed up. When my mom broke her hip, and before we could get all the forms to the hospital (paramedics would not take them), they had scheduled mom for surgery. Due to Covid19, we could not go to hospital. Anyway, when we got the forms there by FAX, which the ALF did for us, the hospitalist called me. She then called the pulmonologist who told them mom was too high risk for surgery. Amazingly, I had updated all the information the day before mom fell and had emailed it to my dad. It turned out to be critical to moms care and for following her wishes.
Thanks.
You can go to your states statutes and codes and pull up the form and fill it out yourself