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My Mom (76) has been hoarding for decades with increasing severity. My Father has M.S. is barely walking now, and he also has COPD. Her hoarding is basically killing my Father and I have to watch it happen from the sidelines; and do or say nothing otherwise I'm the problem.



The pain this causes me is not something that I was prepared for. After 2 decades in Chicago, I relocated to rural Ohio to be closer to them so that I could experience this chapter of my life and theirs, with them.



I have tried to help from various angles and perspectives; i.e. the caring approach, trying to get the local Pastor to help, my sister who lives in Texas has been called in to help. Nothing has worked. My relationship with my Mom is basically gone not that we ever had much of one. I try to have a relationship with my Dad but I cannot even go over to their house at this point. He's barely walking and the likelihood of him tripping over junk resulting in him loosing any remaining mobility, is very high.



In the past 6 years, I've been through at least 6 or 7 emergency hospital situations with them much of which has been my Mom going into emergency surgery. She eats yogurt that is over a year old which I was screamed at for asking if I could throw it out to make space in the fridge. Theres no doubt she would be diagnosed with narcissistic personality disorder, possibily histrionic personality disorder as well; and that has been the case for a very long time. However, with the added dementia, she's nearly impossible to be around.



I've had numerous conversations with my Father who is of sound mind. He doesn't want to "rock the boat" otherwise he'll pay for it with her basically harassing him for days, weeks on end. She's relentless.



This last round resulted in a lot of damage to me; physically, emotionally, damage to my health, and may have lost my business that I have built over the past several years. I am at the point where I am ready to walk away but the thought of leaving my Father in this alone is absolutely breaking my heart.



Its like watching a car crash with the people you love inside of the car.



I'm 50 and am single with my rescue dog. I cannot do this alone; not anymore. There has to be help out there, yes? I cannot be the only one out there to go through this tragic experience?



Any help or guidance on who to call and when it is the "right time" to call would be very appreciated.



Much gratitude,
Amy

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No one has mentioned it yet, but next time your mom has to go to the hospital, you immediately tell the hospital social worker that she CANNOT return home as she is an unsafe discharge and there is no on there to care for her.
And you tell them of the horrid living conditions that both she and your dad are living in. The social worker will then have to find the appropriate facility for your mom and perhaps your dad too to be placed in.
And if you want to speed up the process(meaning you don't want to wait for the next hospital stay), you can call 911 and tell them that you think your mom has a UTI, and that she needs to be looked at. You can then start the process of not having her discharged, as she is an "unsafe discharge." Don't forget those 2 magic words.
And don't fall for any empty promises that the hospital may throw your way to try and get you to care for your parents(as they're all lies)but instead stand your ground and get your mom placed in a facility.
Best wishes in keeping your dad safe and getting your mom the help she so desperately needs.
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Geaton777 Apr 10, 2024
Yes, this! At some visit if you can discretely take pics of the home, all the better to have this ammo in case the discharge person isn't convinced enough to keep her.
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The right time to call APS is right now. You say your mother has dementia. You can file for emergency consevatorship/guardianship of her in court if your father without dementia doesn't have the backbone to do it himself. APS will help with this. You should also visit the local police department and ask them to do regular wellness checks on your parents. Tell them what's going on. They can expediate action from APS.


Can you offer to have your father stay with you for the time being while you work with APS and the court to get conservatorship/guardianship over your mother? This is the only action you can take to help them both. Your mother is unwilling to "allow" (this is ridiculous when a person's brain doesn't work that they're still "allowed" to be in charge) any help or change. So it will have to be forced on her.

When APS sees year gone expired yogurt in the fridge and the home, they will force changes in your parents' living situation. The state may even condemn the home if it's bad enough. Please call APS today. Your parents may hate you for it, but it's the right thing to do.
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Call APS or their local county Area of Aging, report them as vulnerable seniors .
Your Dad should not have to live like this .
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BurntCaregiver Apr 10, 2024
Neither of them should be living like this. If the mother is ending up in the ER because she's eating year-long expired yogurt, she's mentally incapacitated and there needs to be a conservator appointed over her to safely manage her life.
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Would your dad leave your mother if he had a place to go?
If he would I would work on that aspect. If he won’t then you must come to terms with the fact that you are powerless to intervene. That this is their choice.

We have so much mental illness in this world it is truly heart breaking. I am so sorry you must deal with this.
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BurntCaregiver Apr 10, 2024
No one is powerless. These are elderly, vulnerable adults and one has mental illness and dementia. Call the police, call APS, and have a consultation with a lawyer to see if there's anything to be done legally like getting conservatorship/guardianship. Even if nothing comes of it, a person can know that at least they tried.
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Hoarding is a mental disorder. It is not based in reason or logic, or facts or empathy for others. This is why all your attempts have failed -- not because you're somehow inadequate, but because your Mother is sick and needs professional help. And your Dad is choosing to go along for the ride for whatever reasons.

The best thing you can do is consult with a therapist who specializes in Hoarding disorder. This will help you develop healthy boundaries and also strategies that may allow you to have a relationship at whatever feels comfortable for you. But please understand: you didn't make this problem and you can't fix it. You aren't responsible for your Mother's happiness. You can't have her hoarding recovery for her. Talk to a professional to figure out your piece, if any. You are not responsible for their care and wellbeing. In fact, a court-appointed guardian will probably make better headway with her since there's a layer of non-family caseworkers who will orbit around her. As long as you're not directly involved, she can't blame you for anything. Report them both to APS. Keep reporting them. This is how you help them.

The root of hoarding is often trauma based. Your Mom will have to figure this out if she's willing and able to. May you receive clarity, wisdom and peace in your heart as you work on your boundaries.
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Muf3538 Apr 11, 2024
Thank you for this. It brought a lot of tears but thank you for being so gracious in your approach and delivery. I have been in therapy most of my adult life and I gather that I focused my masters in behavioral sciences for a reason that I was not aware of at the time.

The covert narcissist behavior in my Mom has been there since I was a child. It has increased in severity as well as the hoarding. The dementia is a newer piece that seems to be the icing on the cake making it next to impossible.

Regardless, contacting APS and finding a guardian or case-worker as well as pursuing elder law seems to be a solid next step. The after-math that I am left with, well .. that's mine to deal with and I'll probably be in therapy for the rest of my adult life. But that I can handle. What I cannot handle, is walking away from them without seeing this through. It's just too severe now.

So, perhaps that is why we are all on this site .. learning how to walk through fire and face the very difficult stuff.

Much gratitude for you @Geaton777
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Time to place Mom. Dad should not be her caregiver. Stress makes MS worse. You see an elder lawyer about having their assets split. Moms split will pay for her care and when almost gone, Medicaid is applied for. At that time, Dad remains in the home, can have a car, and gets enough or all of their monthly income to live on. I am giving u the basics andvelder lawyer will go into more detail.
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Muf3538 Apr 11, 2024
Thank you for this; very helpful and appreciated. IDK that we would be able to "place" her as she refuses to take any type of cognitive evaluation. Additionally, there are medical power of attorneys in place. They are financially independent, meaning they have a considerable nest egg. However, I have to start somewhere and an elder lawyer seems like a very good option to start. So thank you JoAnn29, much gratitude to you and your family
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Your father and your mother have chosen their own lives.
It is a kind of hubris to think you can change them.
Children aren't responsible for changing their parents, nor for rescuing their parents.

I have said so often lately here on AgingCare that the best place for children is at LEAST 1,000 miles from their parents (after they are grown).

You have chosen this. I think you need to take responsibility for this bad choice, cut your losses and move away again. This is the life they chose. This is their life.
It is time now, as a grown up to live your own life.

Sorry, that's just my thinking on all of this.
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I’m so sorry you’re dealing with this. First and foremost, please resolve now not to lose your own health and financial security over this. If you don’t guard your future, no one will do it for you.
I have a sibling who’s long been a hoarder and long had undiagnosed mental illness. He’s rude, often mean, and virtually impossible to deal with. After many frustrating years, I’ve learned from the Boundaries book and class both how to keep him and his poisons at a safe for me distance. We have a minimally friendly relationship. I’ve helped clean out the hoard twice, at his request. Both times, it immediately came back. I’ve vowed the only time I’ll do it again is if/when he has died and it’s the final time.
As I see it, the true power here is with your dad. Too bad he’s become conditioned not to challenge mom and now accepts poor treatment and a horrible environment for his needs. Any chance he’d come live with you or in assisted living by himself if there’s no movement on getting mom out of there or getting help for her? Will he listen to reason on doing what’s best for him?
If he won’t consider saving himself, you’ll need to call APS and report the situation. Again, I’m sorry and truly wish you peace in the storm
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My mother tortured my father for the entirety of their 68 year marriage. Yet when I tried to help him, he stuck up for HER and got pissed at ME.

When he finally had the opportunity to be away from mom, what did he Do? He pined for her and waited for her to arrive at his AL like a lovesick puppy.

I gave up trying to rescue dad because he did not Want to BE rescued. If he'd wanted to, he'd have divorced her years ago, as your dad would've done.

They're cowed by these women.

Ask dad if he'd like to be moved out of the hoarding den and see what he says.

You may be shocked at his response.

Then you'll know to back off and keep your help to a minimum.
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You need to step away. This is the choice they have made and you cant so anything about it.

Please find a therapist that works with trauma. You clearly had an unhealthy childhood and have no boundaries and you sound enmeshed. None of this is good for you.

Good luck.
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