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Your parents seem incredibly spoiled and likely have always treated service people like servants in one way or another. They left a care home because they hated it. Let them suffer the consequences of their own behavior and do not help them find new caregivers. They will come around when the burden of caring for themselves becomes more important than the exacting standards they place on others. Your parents need to learn this lesson the hard way. Unfortunately, word gets around about people like your parents and pretty soon, no agency or person will be willing to take them on. They sound like they have enough money to stay in their home, but not the survival instincts to make it happen. Too bad. Unfortunately, their inflexibility will also increase the risk of accidents in the home, poor nutrition, etc, so it’s important that you step up your physical presence in the home to evaluate emerging risks.
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rovana Oct 2020
Problem with stepping up physical presence is that may be just what they are trying to accomplish - OP gives up on carers and moves in themselves. Unless OP is willing to do this, I'd suggest being very careful about stepping up.
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TRyan to find someone they know to help them. Don't use the word care for them. I am always a helper. Find someone from your church or again, someone they know or someone close by but not to put caregivers that work for a company, but a regular person just needing extra income always seems to be a better fit. Someone who is a right fit for them is out there, be patient.
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tornadojan Oct 2020
Had to reply. Yes and yes. Do not call the person a caregiver or in any way imply the person is there because they cannot handle things. (I tried to use the Angelina Jolie example - Angelina is totally competent, but she has assistants to handle things for her. You are the supervisor. Let the helper know what you want.) Do your best to hire someone for a limited time at first to get them used to having someone and hopefully helping the helper get used to them as well. Try to support the helper as much as possible with encouragement, positive notes, gift cards. I used an agency and the helpers were pretty adept at deflecting rudeness because they were so used to it. Don't give up! Good luck! I had the same issue with my mom.
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This is not a problem you can solve for them. The only thing you can do now is to make sure they both subscribe to a home monitoring system like Lifeline.

Unfortunately it will take an emergency to change their minds. I just pray it will not be a life-threatening one.
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we all have certain ways we like things. You might have to tell them "look, either show the care person how you want it done or do it yourself".  And if they personally can't do it (and if they need help doing lots of things), ask them what difference does it make how things are folded.  And just because they were in a care home before and didn't like it, oh well....they will have to learn to adjust.  it sounds like they are throwing "tantrums" and when they get what they want, they know what to do the next time, and they push the stakes higher each time until people give in.  Maybe someone just needs to say "no" this is how it is being done now and just continue on with the task.  Now being rude to the care people is not right.......are they suffering from dementia starting?  that is a phase that they can go thru.  If not, it might be because they are in pain and hate the fact that they have to have others do things for them.  If they keep acting up and forcing people to either quit or they tell them to leave, you need to let them know that they will soon be put into an assisted living place, no ifs, and, or buts because there is no one else willing to come to the house and YOU can NOT do it either.  wishing you luck on this
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TouchMatters Oct 2020
Talking logic doesn't help.
Leaving them with wrinkles or inappropriately folded clothes, as perceived by the person inflicted with dementia, may be the required action/response. In other words, just leave the clothes . . . and the caregiver go do something else ... or leave for 5-10 minutes if they are being screamed at/abused in any way. Letting a person know there are consequences of behavior (rude, screaming) = caregiver will leave may or may not result in lessening the behavior. As mentioned above, medication may be needed.
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Are they able to understand what their choices factually are? Adjust to the fact that their lives have changed and they need to be flexible and very cooperative with their caregiver? Hint: Don't treat people who are trying to help you rudely. Because if you do you will soon drive away the potential helpers you need in order to stay in your home. I'm curious - what do they think will happen if they drive potential carers away. Do they expect you to move in? Unless you are willing to do so, have you been downright blunt about the fact that you are not a solution?
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Imho, as one ages into their elder years, they are not actually able to change the way that they do things easily at all, i.e. if they've always gotten up at 4:30 A.M., they will still want to arise that early. I tried to amend things with my mother such as the time that she arose daily because, after all, there was not a whole lot thay occupied her day, so there was no real need to arise that early. But it was to no avail - I wasted my words. Similarly, your parents may not be willing/"able" to change. Prayers sent.
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I googled "anger and dementia" and found this (there are many articles). I worked with a very abusive woman and it took me a while to realize it was part of her dementia. I gave her (and me) time outs. This helped a lot. Realize that your parents' behavior will not likely change. You do the best you can and that is all you can do.

When Caregivers Are Abused-How to address anger and aggression from a loved one with dementia---by Marc Agronin, M.D.

Determine the cause of the abusive behavior
A geriatric psychiatrist or other clinician who has specific training in both mental health and neurocognitive disorders can help you understand why one is suddenly cruel or angry. 4 most likely causes can be summarized by four D's:
DENIAL, DEPRESSION, DELUSIONS, DISINHIBITION___________

Denial. Some people are oblivious to their cognitive changes and tend to get angry and erupt at anyone who suggests that they are impaired.
DEPRESSION_______________
Depression is extremely common in the setting of neurocognitive disorders, sometimes as a result of knowing the diagnosis but more commonly due to pathologic changes in brain structure and chemistry. Depression may manifest in irritability or anger instead of sadness, and is accompanied by symptoms such as insomnia, poor appetite and weight loss, lack of energy and interest, and physical aches and pains.
DELUSIONS________________
These are defined as false but fixed or deeply held beliefs, and more than half of people with Alzheimer's and other neurocognitive disorders tend to have them at some point. Delusions often involve paranoia (they might believe that someone is trying to harm or steal from them) or jealousy (accusing one's partner or spouse of having an affair, for instance). Delusional beliefs cannot be altered by logical reasoning or argument, and can lead to intense fear and anger.
DISINHIBITION_____________
Characterized by inappropriate, uncharacteristic or strange behaviors, disinhibition is seen in early stages of frontotemporal dementia and in later stages of Alzheimer's. In addition to verbally abusive or inappropriate comments, it may include behaviors that seem out of control, crude or embarrassing.

3. Treatment
Once the doctor has a hypothesis of what may be driving the verbal abuse, a relevant treatment plan can be devised. Denial is difficult to address but does not always require confronting the person with the diagnosis. Instead, the doctor needs to build a supportive relationship around issues that the afflicted person is concerned about, such as poor sleep or nervousness. Depression can be successfully treated with both antidepressant medication and various forms of talk therapy. Delusions often require antipsychotic medications, while disinhibition may respond to certain medications that temper the lack of brain control.
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Find a care giver that can say ok ..and ask them fold the towells and show the care giver how they want it done ..sin charlina..some times its respect they want dignity respect its hard to.have some one do every thing for u ask them to help u.and show u how they like things done get them.involved with the activity ..let them.show u.how they like there food done ..then they will get there self respect back..
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Just stay strong and hang in there no matter what and always tell them how much that you really love and care for them and just remember that your still a young person.
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It appears that lucie65 has left the building.
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Frances73, about the no-kneeling rule - how do these agencies' caregivers help clients get their socks on?
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Your parents wants you to be more available to care for them. I had the opportunity to care form an aging mother who had three grown children. The son and his wife lived around the corner from their family home. One day the mother asked me to walk with her to her son house. We could walk from her backyard into the son's yard. Once she saw his jeep gone, she knew they had went to the mountains. She came back to her house and while I was sitting outside on the patio she hit me in the hit with a broom and told me to leave her property. She knew as long as I was there her son and his wife would not be there to help her. She was put out of every assistant living facility her children place her in. Nevertheless, I stopped working and did not sue the patient because I understood her rationale for hitting me. It had nothing to do with me but to do with her children taking care of her. The patient was 90 years old at the time. It is the caregiver responsibility to ask questions. It is your parents home and they want someone who can do things their way. Nevertheless, they want someone who is going to show genuine love and care and not just drawing a pay check. Believe me they know when you genuine care for them. You need to be more visual and their behavior will change when you begin to listen to their complaints and do something about it. I hope this help your situation.
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rovana Oct 2020
The problem so many times is that the children of failing parents have lives of their own, family, work, etc. etc. The parents want the kids on hand full time, but why shouldn't the kids have their own lives? They are not indentured servants. They have the right to decide how involved they want to be in hands-on care of their parents. In cases of abuse, it might be wise to do no hands-on care. What the parents prefer does not control the decisions. And explaining bluntly to them (I'm assuming dementia is not the issue) that they have certain choices and those choices have consequences but their children are not going to be manipulated. by childish behavior.
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MIL late stage alzhimer has not slept in 4 days. We are having to grinde the food, even the rice. Whats going on? Any advice?
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Well thats the situation..TWO options.. so tell them straight. YOU are not their slave. either they accept home help or go back into a care home. give them one week to smarten up.
My father was like that. kept firing the carers but then if he liked one he would give her more money, even tho its against the law here. and it became real hell for my sister to manage.
Home help must be aware, can you ask them to let you know the complaints or the firing and then go and have a right family fight regarding their total patheticness.
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I have no answers for you but would be in the exact same situation if I could arrange home care for my 84 year old mom. Your parents sound like sweethearts compared with mine, whom we call Satan due to her lack of filter, verbal abuse and filthy language. In rehab now, she wants to return to her home but medical staff say she needs 24/7 care. Even tho agencies swear up and down their staffs could handle anything mom dishes out, I feel certain it would only take her demanding they get the you-know-what out of her house and that poor care staff would be out the door, even with me as POA and paying the bill. I feel for you!
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