VENT: My dad has suddenly decided he wants to go to the beach. He is weak, we've been through a heckuva year. Actually it's been five years - some good, but this one really stretching me - so much, it's the first time I've quit a job in less than a year, in part because it meshed so poorly with the amped care my father needs. The thought of taking him - when he increasingly snarls at me and the kids, when I need to transport toilet seats, and hope there's no problem with dialysis (he's been to the center before and it's been fine) is making me sick. Mostly, to be honest, because he's not very nice. He's starting to have cognitive problems. The condo we go to is a favor from a friend. I'm so tempted to tell him that the elevator isn't working - which would kill his ability to go (my husband stays at home - and Dad lives with us) But how crappy would that be to 1) lie to my Dad 2) deny him the beach trip when this has started to feel like his Holy Grail. On the other hand, thinking about hauling all of the stuff, taking care of him, dealing with his snarky comments, makes me sick to my stomach. Plus I have normal mom stuff with two teens and a 23-year-old and his girlfriend. I want to cry. Actually i want to go to the beach without any of them. Help me. I'm seriously thinking about lying.
Of course I don't know exactly how the system works where you are; but in general most healthcare systems have formal complaints procedures, so it would be a matter of going online and digging about to find out what applies in your neck of the woods. It might well be that you should simply write to the practice manager. First of all draft your letter, saying what happened and what the circumstances were. You also need to decide beforehand what you would like done about it. He apologised, okay, but what for? Are you satisfied he was apologising for the right thing?
What concerned me most about what you described is that he seemed to be making all kinds of unfounded assumptions about how your father's care is being managed, and what authority and responsibilities you have. I mean, what did he mean by "if you'd been doing what you're supposed to." Who says you're "supposed" to be doing anything? And what was that "get your father back here in two weeks" order he barked at you? Does he have any reason to believe that you have the authority, even, to tell your father what to do?
So I'd suggest that one thing you might want to aim for is a meeting where you outline more precisely what your father's support structure is, so that the doctor gets a better understanding of the practical realities; and the doctor can explain more satisfactorily what his thinking is, and listen to your understanding of your father's history with proper attention; and you can both agree what to expect of one another in future. But ordering you about as if you were some kind of half-witted menial-cum-chauffeuse is not only not acceptable but also deeply unhelpful - to your father, the patient, as well as to you.
And would you believe that even after an ambulance took her from an airport to a hospital that the inlaws still thought they would get to go on the next vacation? Well it's true. And that was when my husband and I told them we couldn't possibly do that because they were in no condition to travel. The more you give, the more your father will accept and expect.
Well, I got her into the store and I stopped in next door for an appointment that lasted only 1/2 hour - back to the grocery store I found her and she exclaimed that's she'd barely gotten started - I said I've really got to be getting back to work - I thought she was picking up only a few things - well obviously a misunderstanding her as she'd come to buy up lots of stuff to 'stock up' - however the caregiver was supposed to come over and clean out the (stuffed, filthy refrigerator) and packed freezer - and she's buying pork roasts, sausages, 5 quarts of creamer, milk, etc. I asked her to wait until after caregiver gets fridge cleaned out - that was the second time on this trip that she started yelling at me - making snide remarks about 'why don't you just do what I'm asking you to do for me!!! Refused to let me help her to the car; refused to let me help her put her credit card in the machine at the check-out. Made a real scene. I finally got the car loaded in the pouring rain (at her insistence that we not wait any longer for the rain to pass - since I'd rushed her to wrap up the shopping - because I had to get back to work).
It was a lunchtime mid-day outing - but she forgets that only the day before I'd taken 4 hours off work to help her order some flooring/window treatments for her apartment - two days in a row of being unavailable at work is pushing it. My boss is very understanding, but will only tolerate so much of my absence.
At any rate she was so angry on the way home (10 minutes) she spewed so much hatred at me - incredible, disappointing and saddening. She brought up everything she could think of in those ten minutes to tell me how awful I was, how I should get in to see a psychiatrist because I must have schizophrenia (my sister does) and other insults hurled at me until she was out of the car and headed back inside her apartment...basically told me not to come back and she'd never go shopping with me again...ugh...she fired the caregiver who was scheduled to come in today to clean out the fridge; called and cancelled all the improvements we'd ordered. I have no idea what to do about her now. She lives 3 miles away....I have a full time job, a home, pets, husband, etc to take care of, so life goes on - but not sure what to do about her and her anger issues...
I think her mental state is declining and I've called her doctor and left messages but he will never call me back. Instead he asks her about me - and then she tells me ' I think my doctor is 'sweet on you'. He's never met me! I'm at a total loss today as to what to do, if anything. I'm burned out and exhausted after the last two days of dealing with mom...I guess I'll go bury myself in work, etc and wait to see what her next move will be - maybe she'll get someone to come in and help her. I could have someone contact her (from local caregiver organizations, but I'm completely out of ideas)...
1. You mother is NOT your responsiblity. If she wants to live unsafely, it's on her, not on you.
2. You can call the local area agency on aging and ask for a needs assessment. It would probably be great if you were there for it, because she will "showtime" like crazy and tell them that she's just fine.
3. You can go with her to her next doc's appointment and tell the doctor what you're observing and that you'd like to hear doc's assessment of what level of care Mom needs.
4. If your mother wants you to quit your job to take care of her she either a) is a gold plated narcissist, b) has dementia or c) both. We have careers. We need to save for OUR retirement. No mother in her right mind wants to clip her child's wings like that.
5. You might ask if she's going to replace your current salary and benefits.
Start your own thread!
Our parents are living much longer than the former generations and they often develop debilitating conditions that require years of care. Paid care, assisted living and nursing home care is far more expensive than a lot of elders can afford. The big push right now is to keep them in their homes and put the burden of care on the children (daughters usually). In the end I think this is unsustainable.
I certainly don't want my own children to ever be in this position. My husband and I have already started talking to our kids about it.
And of course the elders want to stay in their homes. The medical personnel most times (?) just want what makes it easiest for THEM. Someone in the family will take care of the elder? Oh, that's great -- removes the medical folks from any kind of responsibility!
It just sickens me the way all the care is usually dumped in someone's lap (usually just one child, usually the daughter). I am so glad that more and more people are beginning to realize that it's very UNhealthy for it to be dumped on one person. And glad that more of these adult children are simply saying, "NO WAY."
Have a great time and don't waste a second on guilty feelings if possible. A person can only take so much. Having taken my mom on beach vacations several times, well -it's not much of a vacation. No wonder you were dreading it. Have a great time and when you get back you will have more energy for the challenges ahead.