I have tried for 10 years to get my brother and sister to help with my mother who is very physically disabled. In the past 3 years, it has gotten much worse, and they seem unaffected. She has almost died many times, and I have been the only one there for her. I have always helped with her shopping, cleaning, etc. Recently, she had a very serious neck injury (chronic spinal cord compression) which made her mobility almost zero, and she became incontinent. I changed her diapers, fed her, did laundry, shopping, held her when she cried, everything. All I asked my brother and sister to do was to call her 1 or 2 times per week to keep her spirits up... they could not even manage to do that! She had the surgery, almost died, but did make it through. She is slowly getting a little better, but has been in a nursing home for quite some time. I am moving her to assisted living near me when she gets out. I have asked my brother and sister to help me many times with cleaning out and moving her apartment items. They continue to ignore my emails, texts and phone calls, or make amazing excuses. I have fully given up on my brother and sister to help physically, and really need them to help financially. I keep asking for help, but they keep avoiding me. My new plan is to do everything, and to start keeping receipts and billing them for each and every thing I pay out for my mother. I am tempted to start billing them for a portion of my caregiving hours just to prove a point to them. I have started keeping a log of exactly what I do, and how many hours I help her because I am not sure they know exactly how much I do for her.
I truly hate my brother and sister, and when my mother passes, I am going to let them know just how much I hate them. I am only being nice to them out of consideration for my mother at this point. I can't wait to tell them how much I hate them for putting me through 10 years of ABSOLUTE HELL.
The ophthalmologist said it is "brown"........no wonder he can barely see. I do all the driving.
After he had the vitrectomy to repair a macular hole, the cataract surgery will be a walk in the park.............I hope, and I know he will be fine.
Mom will have to stay home and wait... she is doing better at giving us space. I am thankful for that.
No we haven't told her we want to go visit Warwick NY in October. As well as Patterson and Wallkill. The least time we give her to stress ahead of time, the better it is for all 3 of us.
Oh, I overhauled her closet yesterday morning, and we were both WIPED OUT, hahahaha...............she had forgotten she owns a whole left side of a wall to wall closet full. So, shopping in her own closet was fun. Pushed the winter coats, etc, to the farthest wall, and packed the scarves, winter pj's, etc., since we are melting slowly here in Cali. Crock Pot on slow roast till about mid Sept.........
M 8 8
It went well!
Exactly what I had read here, so I was prepared.
Therapist said first time in the office is for gathering data. However, she's kind and empathetic. I liked that.
Too many issues with me, but not necessary to come once per week, but every other week.
Our first real session will be next time, 6.30.16
I attempted to give her a "hug", and I could tell it was inappropriate, due to the context of the relationship between patient or client, and her.
She was polite.
I didn't cry --- this time.
I felt relief as I was leaving the office.
My hubby is so patient and supportive.
Mom has been behaving BETTER, -------she heard me telling her shrink that she "is so bored that she clings to me too much."
I cannot believe I had the opportunity and courage to speak up to her shrink, in her presence.
Well, the pressure has eased tremendously. I believe she understood or realized it was happening.
I thank God for the first bit of space in five years!
Mom is very intelligent, and she doesn't want to burden anyone.
The dementia kicks in, and the incessant repetition of the same stories begins.
I have noticed that she picks the same clothes every day. This is new.
She had dressed in solid black and I said, oh no!, went to her closet and did some changes.
I teased saying, are you in mourning mom? NO!
She forgets to open the left side of the closet where all her suits and light jackets are..........
Generally speaking, things are going well.
I have lots of catching up to do with the discussions here,
Hugs,
M88
Take 3 deep breaths.
Feeling better now?
Say to yourself: "Nothing bad is happening now". It is okay to lie until that comes true?
HOWEVER.............she is awal since 4-1-2011, no idea where, with whom, no calls, she does not even know if mom is still alive (91).
Therapist: "What do you mean?" "You do not know where your sister is?"
Me: Exactly. She used to live with mom, until she could see the very beginnings of the decline............(We lived in different countries). So, I GUESS she decided she did not want ANY part of ANYTHING and left. An 8 page letter awaited mom on the dining room table after mom had spent a 1 month vacation here with me.
Therapist: "Did YOU have a close warm relationship with your sister?"
Me: No, never. She is 6 yrs. older and my mistake was I was born and wrecked her world.
Therapist: "Explain that."
Me: Well, she was the only child, center of the universe, and then I show up! In her view, to totally mess her life up."
Therapist: "Did you play with her, read with her, do any activities with her?"
Me: Zero. Nada. Zip. I could not even borrow her toys.
..................................................................................................
Summary:
I am GLAD she stepped aside, stepped OFF, stepped AWAY, because even though I am alone in mom's care, it is better than if she were involved. She has a Science Degree, but cannot tie her own tennis shoes if her life depended on it, hahahahahaha....................
You know, those people that are brainiacs, and therefore stupid? Yeah! She will be 61 yrs. old, and who knows ---------she had no friends, no relationships, no boyfriend, much less a husband------------She hates the entire world and its inhabitants for she is so mega superior to all. UUUUHHHH, I'm scared........ha!
Honestly, I am glad she does not have anything to do with us. I have PLENTY with the care and decisions that need to be made; thankfully, mom still fires with about 1 spark plug at times, so, all paperwork is done.
Burned out, yes!!!!!!!!!!
She wants ME at 100% of the time, wants to know what I am doing .........aaaarrrggghhhh................and then hubby comes from the other side asking me what's my take on taking a vacation in October for 11 days to go to the East coast...................WHAT!?!?!?!??!?!?!??!?!?!?!?!?!?!?
Yeah, that just happened about 1 hour ago. The 3 of us live together. He says that we can ask M.... and Y...... to take turns in being with mom.
And now I need to take my own advice, which I posted here a while back, when someone wanted/needed/deserved a vacation and was GUILTY AS HECK for even thinking about it (like I feel right this minute?????????)..................and I was one who said: GO!
GO!
GO!
How do I eat my own advice??????? 2 lumps of guilt and 1 of creamer???
I know what you guys are thinking....................I am thinking the same, but even the thought of TELLING mom our plans makes me feel AWFUL............she gets hyper anxious knowing we will be gone, and (like last time it was for 1 weekend), when we got back, she did not even know we were gone for 2 days..................
Meltdown here in Central California........106°F expected for today..............
Meltdown with mom and hubby coming at me in stereo, but what´s new....
M 8 8
The fact is there will always be better people who go the extra mile and dedicate a majority of their lives to making other people's lives better, and there will always be the lesser people who make excuses for their behavior and lack of compassion and support. In the end you have to do what is best for your parents and yourself, and leave the heartless and worthless siblings to their myopic and worthless existence.
I wish you the best and peace of mind and heart with dealing with all these issues, and I wish I could knock some sense into the narcissistic and selfish people who leave the burden of taking care of their family to other people. In the end you cannot help them be decent people, they were simply born broken, and the best thing you can do is cut them out of your life completely and try and fill it with people who are worthy of your love, time, and good heart.
I need a break a two week break to recharge in order that i can care for Mum.
Now you know and I know that will be met with raised eyebrows and various objections. Whatever their argument is keep repeating yourself
Say: Regardless of your comments I need a two week break and Mum (or you) have to pay for it
If they say no way then you have to play hard ball and say if you cannot support Mum for 2 weeks between you so I can have a break then she has to go into a home.
Keep seeing the scenario and keep saying it until you are saying it confidently.
Then call em in and go for it
Whatever you do don't go into the comeback scenario from the get go. If you want something say what you want and state why you want it and keep saying it
It hadnt been for them dont know what i would have done. But what i finally realized was again, i had no regrets to live with. I did what i could. THEY ARE THE ONES WHO WOULD HAVE TO LIVE WITH THEIRSELVES, WITH THE REGRETS IF THEY EVEN HAD ANY. I NEVER FORGAVE THEM BUT I CAN BE AROUND THEM AND BE CORDIAL TO THEM NOW. AND now im going thru this with my mama. They including her sister's 2 cents being put in just want to put her in a nursing home. I will not allow that to happen. I dont work anymore, so my daughter and family are going to move in and i am going to move in with my mama. We have talked and her response to the question " What would you prefer. Her answer, she would rather remain home if i could take care of her and really meant it. With the options i gave her and one being if at all possible she would never be in a nursing home. So that is what im doing. Moving in with her where she would be happier and more comfortable. Even thou she will eventually not even know where she is. But the main thing, please remember, you will have no regrets to live with, but the others will. Hope this will give you something to think about going thru this situation. It has helped me but it took me many, many years to think of this and it has finally helped me.
It seems that your sister is obviously overwhelmed, husband, kids, mother and I am sure she is expected to be the caregiver to all of them, i.e; making meals, laundry, cleaning, etc. I can relate except I thankfully chose not to have kids or I think I would be in the looney bin right now! Both of my brothers DO have time to spend with Mom (who lives with me) and one was showing up regularly which I gave him credit for until I found out everytime he was here, HE was extorting money from my Mom from free lunches to helping him financially. It never was just to spend quality time with her. My other brother shows up twice a year, once for Mother's Day/Birthday since they are days apart and Christmas. Am I angry? Yes. Do I talk to them? Only if it is absolutely necessary. They both live close by and one has been on disability for over 15 years. I have never expected them to contribute money, I manage Mom's finances to make sure she has enough to live on comfortably and I have to work part time to take care of her so now I am the one who is personally broke all the time, I have just enough to pay my bills. I would be happy if they just came by once every few weeks to take her out and give me a break but it never happens. Instead, I am veiwed as the bad one because they think I am getting her money. She does help me a bit for all I do for her but it is very little, it would cost her 30 an hour for outside help, I know this because I am a caregiver part time for a company that only pays me 12.00 out of that 30.00. I wanted to learn it so I could save her money and she wouldn't go broke within a few years. I have no freedom, no money and lots of responsibilities so it is hard not to resent my brothers. If they came to me and asked what they could do to help, I would be ecstatic! Unfortunately, one wants to take her $$$ and the other thinks she should be in a nursing home even though she spent her whole life working in one. Maybe you can arrange to spend an evening having dinner with her once a week or something since you cannot afford to help financially. Take her out on your day off once a month? It seems time is what you may be able to offer even if it is in short intervals. If your sister sees you are making an effort to help however you can, I would hope she would be glad of this and encourage you to do so. I do not know how she works but that is the best solution I can think of. Be her ally and hopefully things can change, hell I would show her your paycheck & your bills and say, "As you can see, I just can't afford to help but I can help with giving time so you get a break." Sorry for the long winded answer Gabe, I try to look at both sides of a situation and being a Wife, Mom and caregiver to a parent is an enormous amount to deal with, especially when you are going it alone. Try to look at it from her perspective and then you can talk to her with more empathy. Hope my little sermon helped!