I have tried for 10 years to get my brother and sister to help with my mother who is very physically disabled. In the past 3 years, it has gotten much worse, and they seem unaffected. She has almost died many times, and I have been the only one there for her. I have always helped with her shopping, cleaning, etc. Recently, she had a very serious neck injury (chronic spinal cord compression) which made her mobility almost zero, and she became incontinent. I changed her diapers, fed her, did laundry, shopping, held her when she cried, everything. All I asked my brother and sister to do was to call her 1 or 2 times per week to keep her spirits up... they could not even manage to do that! She had the surgery, almost died, but did make it through. She is slowly getting a little better, but has been in a nursing home for quite some time. I am moving her to assisted living near me when she gets out. I have asked my brother and sister to help me many times with cleaning out and moving her apartment items. They continue to ignore my emails, texts and phone calls, or make amazing excuses. I have fully given up on my brother and sister to help physically, and really need them to help financially. I keep asking for help, but they keep avoiding me. My new plan is to do everything, and to start keeping receipts and billing them for each and every thing I pay out for my mother. I am tempted to start billing them for a portion of my caregiving hours just to prove a point to them. I have started keeping a log of exactly what I do, and how many hours I help her because I am not sure they know exactly how much I do for her.
I truly hate my brother and sister, and when my mother passes, I am going to let them know just how much I hate them. I am only being nice to them out of consideration for my mother at this point. I can't wait to tell them how much I hate them for putting me through 10 years of ABSOLUTE HELL.
I just read another post that affirmed that we caregivers don't volunteer or sign up for this role- which is what I've always thought- but rather we are "chosen" to take care of our loved ones and to make their last moments here on earth peaceful and memorable. That shed a different light on the whole "caregiver" role for me. Your siblings are the ones that are losing out because in the end you can rest assured, knowing that you loved and cared for your mom as best as you could.
As far as the financial support, if you were to bill your brother and sister, are you sure you'll be able to collect? If they don't return emails and phone calls, I'm almost certain that they'll ignore your request for reimbursement. I would suggest maybe trying your local Social Services office to see if there's any financial support that you and your mom may qualify to receive. It's worth a try... I can only imagine what you're going through. Be encouraged.
I'm sorry you've had to endure this fiasco, JulieBell and rosey, and add me to the list. The resentment simmers. I didn't wait until mom died, I let my sis know I hated her when I got ready to explode. Of course, she hasn't talked to me in 4 yrs, doubt she ever will. She never helped with our mom, never spent a dime so I should be the one not talking to her. Could it be guilt on her part?
If I were you, I'd try to get help elsewhere just to save your nerves. Your sibs aren't going to step up and billing them will probably hack 'em off. But if it makes you feel better, send them a list of expenditures, who knows, it might wake them up! I just hate to see you spin your wheels, you're under enough stress.
Just remember, you can't make your sisters care or participate, unless you decide to sue them and that opens up a can of worms you do not want to put on your plate. Your sisters have to live with their muddied up consciences. Yours is clear, you can sleep at night knowing you are doing the best you can for your mom. I wish you the best.
I know it sounds pollyanna but all those bad feelings can make you physically ill while the worthless ones go about their life as happy as can be. Be better to yourself than that!
Hopefully, you are doing a better job than my sister. I finally had to pull mom out of her own home to protect her. I can tell you from being on the opposite side of vitriol, that many times there is a reason. I did not visit as often as my sister 'thought' I should because it was a long drive and gas is expensive. When I did visit I had to do the laundry, including piles of nasty underwear because she wouldn't enter mom's room because it was so dirty. When I hired help for the cleaning she accused me of not wanting to visit. I choose not to provide Mom's care, so when I visit I don't want to spend the whole time cleaning up after mom and sis. She didn't care about that. She thought it didn't matter that we had discouraged her from moving in with mom. Mom had lived with us previously and we knew how hard it was. She was convinced she could handle it. I hope you really are 'being nice' but from my experience, I find that hard to believe.
Now that mom is safe and away from her and mom's money is no longer at her disposal, she won't visit or call. I don't hate her. I am afraid of her and for her. Mom is better off without her. There was constant drama and chaos. She hates everyone and will end up alone. When you are consumed by hate you cannot be taking care of yourself or anyone else.
I know I'll get hammered by people that think they are doing too much and everyone else should dance to their tune. I think I'm doing too much, but I know my limits and I cannot do more. I wish both my sisters and the nieces and nephews would visit more or at all, but I can't control them. When mom cries because she's lonely, it's just part of the disease and partly she brought it on herself, by being mean and manipulative her whole life. I don't hold it against her because she's helpless now, but some of the family does.
Sending them a bill will only make you feel, well I'm not sure what you'll feel, satisfaction maybe, then more anger because they are not financially responsible for you or their mother. You may not like that but that is the truth. Morally they should honor their mother, but other people don't get to decide how they do that. As long as they aren't stealing from her, it is no one else's business. They are morally obligated to care for their families first. I know that their mom is in the family, but she is not their responsibility. If you choose to make her your responsibility, then embrace it and live it, but you can't expect others to meet your expectations and have peace.
They do not owe you or your mother for money you have spent on Mother, unless they agreed in advance to contribute financially. And even if they did agree, they could change their minds. Don't waste the stamp sending them receipts.
If mother does not have enough money for her own care, apply for assistance for her. Call your county's Social Services and ask for a needs assessment for Mother. It is likely they will recommend applying for Medicaid, and/or they may have other resources to suggest to you.
It is time to turn your attention and efforts toward a source that can actually help, and stop wasting time on what you wish your brother and sister would do. Wishing won't make it so. Contacting the right agencies will get results.
Hang on to your hate if you want to. Sounds like you are entitled to it. (Although I suspect it will hurt you and your siblings won't be troubled by it at all.) But please accept that you have to do something to get help besides trying to control the decisions your siblings make. You have plenty of evidence that isn't going to happen. Move on to more productive efforts.
I have 2 sisters I hated. It tore me up inside because I want to be a loving person, not the bitter vindicative b*tch I was becoming. They give no help, rarely visit. I asked the therapist how they can be this way. He said they tell lies to themselves. I have decided rather than hate, I will have no interaction with them. They can tell any lies they want, to be able to look themselves in the mirror, but in my eyes they are scum. I don't like them, if they weren't family I would have no dealings with them, so now I don't. I haven't got to a loving acceptance, but I feel so much better. Better yet, I have jolted them out of their Lady Bountiful, Dad needs no help, Kathy can handle anything, fantasy. I feel great, and they don't get any reinforcement reward for their neglect.
Here are the guidelines Don't interact with them. Accept no calls, block emails, walk out when they come into the room. Say nothing bad about them to anyone.
I am working hard on not saying anything bad about them, but I feel free of hate, at peace with myself.
My family lived in the Midwest when my Mom was elderly. I have a sister who lived near her in the east and who resented her care giver role. As the sibling who wasn't there for her I felt badly - but was not included in my 2 sisters plans for her. My fault? Probably - but being the youngest of we three, I simply was excluded. After my sweet mom passed on, my one sister made it clear that she had been stuck with our mother - which I knew from some of the comments my mom would make to me. It's been 30 plus years since she died and honestly, I still remember the hurt I felt when I was reminded that I was not there and therefore should go back home. I guess my point is -- sometimes things are not what they seem. Each of us had our own guilt - deserved or not - that we need to deal with. (Never end a sentence with a preposition!)
We have so many mixed reasons why we help, and truth is, I enjoyed helping him, even if it cost me. My other siblings wanted nothing to do with me, because they felt judged when my explanations of my struggles were emotional. When they had different ideas on how care should be given, they accused me of not understanding "teamwork" - but they did not understand that the person closest to the situation, who plans the basic care, needs to have a leading voice in care planning - all others are essentially backseat-drivers. It is important and often valuable to listen to them, but the person doing the daily work, needs to have a prominent voice. This role often changes historic roles between siblings from the past, and it is confusing for all to adjust, including the caregiver sib. I had to learn to communicate and changed a lot and am grateful, many issues are improved. YES: SEND the receipts and keep copies. You may or may not get reimbursed, but you will know you communicated - and if you don't keep track, it is much worse to try later to explain all you did,. So keep them in the loop. When you can, try to say some nice things too. I learned over the years, to find value in other ways with my sibs, because arguing over care is like arguing over a family business: not as simple as many expect. Our society became much more mobile in the last half century, and many sibs remember days when neighborhoods were more stable and elders didn't live so long, so issues were not so isolating for many years, as today.
And many distant sibs think that professionals can replace family, but our professional system is fragmented, and care quality varies by year, by place, and the challenge is to coordinate to address all needs in a coherent way.
My family finally - after years of my shouting and crying, arranged to send me a monthly stipend from the estate, and I'm grateful for the increased goodwill. I use some for me, and some for my brother, and he is now safe at least in a nursing home, but his needs for community related to his age are missing. I now used the stipend to finally hire a Geriatric Care Manager to help me worry less, and I am just now making plans to send my siblings her monthly reports and her bills, and request a bit higher amount to include this. So, keep trying, try to drop the expectations for results, but express the judgments and the ideas of how it should be. Keep track of what you do, and eventually, the record will form a more solid background for future discussion, and maybe save your relationship with your sibs when the parent is gone.
Since the siblings are 'off the hook' so to speak - I have given myself permission to be 'off the hook' as well. I have decided that when the time comes again for 'round the clock, one on one care giving' - the kind that includes butt wiping and bathing and feeding and wheelchairs and 24/7 on call duty sleeping on her couch - when that day comes she will go to the nursing home when they dismiss her from the hospital. She will not come back here.
This decision - even though I have not actually DONE IT - has given me some emotional freedom. I have already FORGIVEN MYSELF FOR THINKING IT and for what will come when I follow through with the decision in future. I firmly believe that if the sibs feel NO GUILT for their neglect - then I certainly should feel NO GUILT for 8+ years of care giving. The sacrifice of the last GOOD years of my life. My future years will not be nearly as good 'health wise.' It happens to us all :0(
I no longer ask or expect ANYTHING AT ALL FROM T HE SIBS. And when mom dies - I will have no reason at all to bother with them. Mom is the ONLY reason they ever visit and that is only once every year or two for a few hours. So, they have told us 'loud and clear' that we mean nothing to them - even without actually saying it. We have accepted it and moved on. We do what we know we should and will for as long as possible and then it's done. I have finally let the 'hate' go and I feel much better inside. Get your help elsewhere and it there is not enough help - it's time for the Asst. Living facility or NH.
@Julie - the hate only hurts you, not them. I know it is easier to say that than to get rid of the hate, but it is true. They don't seem to care. I agree with those who suggest looking to other sources for help - financial and otherwise. You have two problems here. One is your feelings towards your sibs, and it may be good to get some help dealing with those (therapy) and one is your need for financial and physical help. If you could separate those issues, it would be helpful to you. It is good to keep records of your time and costs - that may pay off at some point. I don't suppose it will hurt to send them copies - registered mail - so you know they got them and request help from them, but I wouldn't hold my breath waiting for it. Who has POA here? You don't mention about what financial resources your mother has? Some of those can go towards expenses. Surely she has some source of income. If she is eligible, have you applied for Medicaid for an ALF?
Carrying the burden of such anger as well as care giving, can be crippling. ((((((hugs)))) to you. I know it doesn't feel good to not have sibling support but is a reality for many of us. Let us know how you are doing.
They are so not worth my time. It took me a while to just ACCEPT that they are jerks and move on and take care of stuff the best I can and when I can't - their mom will move to the N.H. I am ABSOLUTELY SURE neither of her other kids will 'save her' from the N.H. Nope. Don't have to worry about that.
We do what we can and when we can't do it anymore - usually when OUR health (physical, emotional or BOTH) fails - we should be able to take the next step of placement WITHOUT GUILT. I think I have finally moved past most of my guilt. It feels like a better place to be. I say this now - it could come back to haunt when/if placement is ever necessary.
We have dental colleges here in the states - inexpensive dental care. Are there such things on the Emerald Isle? Also, we have beauty colleges where you can get hair done for much less. And my FAVORITE - we have massage schools - oh my - they have saved my life! So, is there anyone who could stay with mum for a couple hours while you get away? (start putting your change in a jar and promise yourself you will not touch it for anything except something for yourself). Smokes and a beer don't count :0)
Do take care of yourself dear.