I have tried for 10 years to get my brother and sister to help with my mother who is very physically disabled. In the past 3 years, it has gotten much worse, and they seem unaffected. She has almost died many times, and I have been the only one there for her. I have always helped with her shopping, cleaning, etc. Recently, she had a very serious neck injury (chronic spinal cord compression) which made her mobility almost zero, and she became incontinent. I changed her diapers, fed her, did laundry, shopping, held her when she cried, everything. All I asked my brother and sister to do was to call her 1 or 2 times per week to keep her spirits up... they could not even manage to do that! She had the surgery, almost died, but did make it through. She is slowly getting a little better, but has been in a nursing home for quite some time. I am moving her to assisted living near me when she gets out. I have asked my brother and sister to help me many times with cleaning out and moving her apartment items. They continue to ignore my emails, texts and phone calls, or make amazing excuses. I have fully given up on my brother and sister to help physically, and really need them to help financially. I keep asking for help, but they keep avoiding me. My new plan is to do everything, and to start keeping receipts and billing them for each and every thing I pay out for my mother. I am tempted to start billing them for a portion of my caregiving hours just to prove a point to them. I have started keeping a log of exactly what I do, and how many hours I help her because I am not sure they know exactly how much I do for her.
I truly hate my brother and sister, and when my mother passes, I am going to let them know just how much I hate them. I am only being nice to them out of consideration for my mother at this point. I can't wait to tell them how much I hate them for putting me through 10 years of ABSOLUTE HELL.
Three years ago my dad had a stroke and my sister decided that "we'll take care of dad" based on emotional reaction that he was ill with no conception of or checking into what it really means to care for an elder. She would not even consider any of the help available from the county my dad lives in. He qualified for five days a week of in home care for eight hours per day etc. I live 3 hours away, work full time, and have a family. I sat her down and told her what i could do and how often i could visit my dad and be hands on. (manage his finances, find resources for in home help, one weekend per month Friday through Sunday night) I also told her in no uncertain terms that when, not if, things got too hard for her, not to expect more from me - but to look at the resources i had put together to help - if she wouldn't consider using them now - then do so later. The hospital, county adult social services, were great and were really helpful.
Fast forward three years - and all i hear is how awful i am because she is overwhelmed, stressed, and burned out. Because dad will not consider any of the services provided by the county, she won't use them. She is 7/24 except when i come for the monthly weekend. Because my dad will not consider anyone but family - she insists that i am the only one who can stay with him and should be giving up all of my free time and vacation time to do so because she is burned out. NO - there are county services - he qualifies for FREE and reduced cost services in home to provide daily and respite care. But she and my dad won't consider using them, have decided for me that i'm on the hook, and i'm a horrible person for saying "no, i have told you what i can do, and i am doing it, but i cannot take on any more". All of my relatives think i'm horrible for "abandoning them in their time of need" i get frequent phone calls, emails from them and even a call from my dad's pastor.
Those of you who hate your siblings (as mine now does), did you all agree what should be done? Or did YOU decide for your sibling what they should do, and then feel like the martyr when they wouldn't or couldn't?
I know this post will probably bring me alot of critical responses but i felt like i should put out there my viewpoint. Please know that i sincerely respect and admire the sacrifices family make for their elders and while i do believe we should help our parents when they can no longer make decisions or care for themselves, i do not feel that it necessarily translates to needing to provide the 7/24 hands on care ourselves. We need a broad network to do this well to make sure our elder is safe, has competent care, and is treated with dignity and respect.
I no longer have any contact with my brother, he did nothing to help with my parents. I don't resent being the one who carried the whole load(I knew years before if it came to that it would be me) I resent the lack of concern about my parents, never saying to me "thank you for putting your life on hold and moving to take care of mom and dad", or "how are you doing".....nothing. When he would "visit" he would rent a car and take off, barely spending anytime with them or me.
He couldn't be bothered to come see our father as he lay dying in the hospital for 4 days, I really wrestled in mind to even let him know, but I told myself it is his father, he said he would and didn't come, but the DAY AFTER he died he was on a plane for his cut. As bad as I imagined it would be, it was worse.
This is a warning my friend, once the parent goes if there is ANYTHING and I mean ANYTHING, they will be on the scene.
Like nohelp4me, if people now ask I just say I am an only child, because when it really counted I was. Other than this board and one relative I don't discuss him.
I know many siblings do not help. I know their actions are selfish, but it's too easy to assign motives to others based on past statements. We're usually right, but not always, but if we assume they are wrong, it shows. Maybe if we say, "I know you're busy and I hate to ask you but, I get so overwhelmed in board meetings - could you possibly come with me next week?" Or, send them a list of the people who will be present, so they get some sense of being included without being blamed. Or ask them for a specific care chore. We can use the moral judgment about them but it doesn't help us communicate well, and so we add more and more grievances, each time we "stuff" one of our needs, or hurl them at others in frustration.
It can help some to keep and build a list of people outside the family who can help with specific needs. I can feel less resentful if I think I can find someone to go to the board meeting with me for example.
These polarized non-communicative relationships are so hard to deal with, and at the same time, our siblings ARE the ones who know the individuals, the behaviors, the history, the circumstances, we need and want their support and help when they can give it. Not as easy for them as for us - for we get skilled at helping, even skilled at failing sometime, we know it's part of the effort sometime, but they don't know that, and may be afraid to get involved and make a mess. Where it's my life skillset to think of others' needs before my own, to a fault, leaving myself in a mess.
My brothers are more "stingy" with their time - but if there's some one-time situation when they do help, they are "all-there", which is why I want their help. They are "all there" because they DON'T run to fix each need they hear of - they conserve energy and resources, for when they see they are needed....
My mother has Borderline Personality Disorder and now has vascular dementia She is a handful but does need a family member in her corner. I have always been "IT". - POAs and executor. I have one sister who is narcissistic and has been plotting for years to get all the inheritance so she cowtows to mother, has taken holidays with her, where she manages to get mother to bear a lot of the expense, and generally tries to please mother to stay in her good books. She also badmouths me. About a year ago, she interfered and alienated a lot of mother's support people. I finally cut contact. after she accused me of having a vested interest in mother's demise. Talk about projection!!! It is no loss to me except for the loss of someone who delights in putting me down. She won't lift a finger to help mother, in fact, wants to be waited on and criticizes me. I communicate about what is happening to mother through my niece. I have had it and feel only relief.
For example: there is a Care Conference scheduled once a year at my Mom's nursing home. This is just once a year and already everyone in my family has a ready made excuse why they can't attend the one coming up in April. Work meetings, doctors appointments etc. etc. They could reschedule them but no. Part of me feels they are lying.
This is a formal conference sitting around a boardroom table with all the directors etc. of the nursing home. Its not something you blow off.
When did it become alright to prioritize your life in such a way that Mom is put last? I'm so upset right now I feel like crying. Partly cause like you Charliebuoy I don't want to hate or resent my family and part of me feels like I should just suck it up, go to the meeting and not give it a second thought.
But I'm a shy person, intimidated about sitting in a boardroom without family support but I will do it and then I'll go home after and stew about it for days and make myself sick.
Your not the bad guy Charliebuoy and I'm not the bad girl. Its easy to feel resentment but in the long run I have to be the bigger person and just get on with it. If pretending and putting on an act with siblings is how you get by without exploding at them then thats what you and I and other people in the same position have to do.
I've tried the lets be honest and get everything out on the table tactic and just when I think we've come to terms with each other something important comes up and they all scatter to the winds. So what does that leave me with?
And how would she know, eh? To comment credibly on your caregiving and your actions, she'd have had to have turned up from time to time. Sorry, I know one shouldn't criticise other people's kin, but I think she's contemptible.
I will ask myself that question often...
So - I really see this custom as a cultural legacy. It might not have been disastrous, in days when clanspeople lived closer together in villages, for there are then more reporters than just the caregiver who often has so many issues and feelings to report, that it's not easy for distant sibs to hear them. This tendency for society to do research aimed to help elders and disabled, but NOT to find best ways to support local caregivers who are ALREADY engaged in helping them - leads to an unfairness that is widespread and hard to crack.
I have found that finding others to help me develop my own life plans - like Underearners Anonymous, or Business Owners Debtors Anonymous - to try to find someone to help me with MY life, instead of hoping my family will finally fill some of this gap - when the whole family focus rushes now, as they did in my childhood - to try to rescue or help the disabled ones - ignoring the trials or fears or challenges of the quiet background helper. It's a societal challenge to advocate for caregivers, not just patients or students or disabled.
Do what it takes. Make yourself proud as you have. Forget about the worthless siblings.
I come from a huge Catholic family. I know exactly what you are going through. I hope I never have to put my mom in a Nursing facility, but we discussed it before and after she was sick. I promised to care for her until her last breath. Unless My health deteriorates and I can't do it anymore. In that case, her assets and money go to whatever facility she goes. It's her assets and there's no reason why it shouldn't go toward her living expenses. If the siblings don't help, then they don't have a say in nothing. You'd be surprised just how nice those same siblings can be when it comes to the root of all evil!
But AGAIN, that is not the case with most people on here.
And you don't have to have decent parents to find it wrong that people who do have decent parents and one adult child does all the caregiving and the other does nothing.
I have had more than one person tell me who didn't have the best parents say "I don't get your brother, you guys had great parents, why was he like that"....and I can't answer that, because I don't know.
Honestly if someone has horrible parents by the time they usually need caregiving the adult children are middle aged. So there should be years of no contact in between anyway. If I had abusive parents and was out of the house by age 22, I certainly wouldn't be in contact with them when 25 yrs later at age 47 when they need help.
Griping and arguing is counter productive. (thats my humble opinion)
She may have had a hard time(which is understandable) in the beginning but after awhile you deal with it.
In many cases, they don't bother because they simply don't want to bother, I believe in calling a spade a spade, and telling the way it is.
Excuses are just that ....excuses.
But let me tell you when the last parent passes they magically now have the time to show up. They couldn't come to visit or help you, but they're there for the reading of the will and to get what they can.
Herabalizer, it's not impossible for those of us who had good parents to understand why you resent your parents.
Here is what I don't get. By the time most of us start doing caregiving we're in our 40's and 50's. If the parent/parents were so bad wouldn't you be estranged from them for years? I mean most people are out the house by their early 20s.
I have a friend who had a terrible father, she never saw again after age 25 or so, found out he died when she was in her early 40s.
I don't blame anyone who had abusive and neglectful parents who don't want to be bothered doing caregiving, but again wouldn't you be estranged from them for years anyway?