I have tried for 10 years to get my brother and sister to help with my mother who is very physically disabled. In the past 3 years, it has gotten much worse, and they seem unaffected. She has almost died many times, and I have been the only one there for her. I have always helped with her shopping, cleaning, etc. Recently, she had a very serious neck injury (chronic spinal cord compression) which made her mobility almost zero, and she became incontinent. I changed her diapers, fed her, did laundry, shopping, held her when she cried, everything. All I asked my brother and sister to do was to call her 1 or 2 times per week to keep her spirits up... they could not even manage to do that! She had the surgery, almost died, but did make it through. She is slowly getting a little better, but has been in a nursing home for quite some time. I am moving her to assisted living near me when she gets out. I have asked my brother and sister to help me many times with cleaning out and moving her apartment items. They continue to ignore my emails, texts and phone calls, or make amazing excuses. I have fully given up on my brother and sister to help physically, and really need them to help financially. I keep asking for help, but they keep avoiding me. My new plan is to do everything, and to start keeping receipts and billing them for each and every thing I pay out for my mother. I am tempted to start billing them for a portion of my caregiving hours just to prove a point to them. I have started keeping a log of exactly what I do, and how many hours I help her because I am not sure they know exactly how much I do for her.
I truly hate my brother and sister, and when my mother passes, I am going to let them know just how much I hate them. I am only being nice to them out of consideration for my mother at this point. I can't wait to tell them how much I hate them for putting me through 10 years of ABSOLUTE HELL.
Today i was sunbathing mum stayed indoors as too hot and the peace i had for a few hours made me realise just how happy i am going to be when this is all over just to sit and not have to think about anyone but you!! THEN like a bolt of reality mum appears with a weeks washing in her arms she wasnt watching TV all calm like i thought she was upstairs causing hell took out ALL her summer stuff and demanded i wash them NOW. Yep 3 wash loads so a quick end to my peaceful day but still had a few hours without being interupted and thats not much for a carer to ask for! Gosh we dont ask for much do we? maybe we are mad maybe madder than any of them some days i feel like a robot.....get up make her breakfast, clean house, make her lunch, make her afternoon tea, shop, think of dinner, try and get her to have a bath, come on here while she watches her "CRAP" on tv then pray she goes to bed soon so i can just watch one programme then sleep then get up and do it all over again............SPAIN, tapas, sangria, sun relax gosh its like a mirage.........
I know how you feel about the running away fantasy. Mother's off to respite care for a week, and said "you won't forget to collect me, will you?" Nooooooo, no, of course I won't cough cough...
A previous poster mentioned how their type will say how I "chose to be the caregiver"...the reality was it was either me, or a nursing home, because one brother wasn't really capable, and one really doesn't care..
then today threw a "wobbly" with mums shrink as she dosnt think shes showing any signs of dementia????????? im still shaking i meant if mum can fool a shrink what hope have i got? on a positive note made me realise im alot more clever than these so called professionals! Gosh i hope i never have to be mentally assessed by idiots i mean if they dont think mum has dementia there could be millions walking the streets who are in fact "MAD" but doc says no they are scoring in the memory tests so they must be normal!
Oh goodnight world! am going to snuggle with my cat he knows mums nuts and the stress im under! What a day am totally drained after 2yrs of hell seems like im back to the start of "has mum got dementia" crap. Lucky im seeing her geriatrician next month he seems to be more intelligent PHEW dealing with stupid shrinks all day is enough to drive anyone "potty". I was wondering today if i am going to make it through all this i feel like the last few years ive been trying to climb out of a huge hole in the ground and when i finally thought id reached the top.....some asshole comes along and kicks me back down the hole again!
Stay positive i mean how can ya? after this nothing will ever be a challenge again i just dont think that anything else could be this much! oh sleeping pill here i come zzzzzzzzzz time!!
I cut my siblings off entirely. I even blocked their phone numbers. It was like a frustration was lifted from me.
I often wonder if ill ever speak to them again when mum goes BUT then i thought hey what the heck i will let them know at every opportunity how much i cared for mum the presious time I HAD with her and make them feel like crap!
My brother never forgave dad and didnt go to his funeral thats ok thats his choice i wish he had for his sake as he still has so much anger inside. My sister was hysterical at dads funeral as she had a row with him over her driving (yep shes a crap and dangerous driver) and they hadnt spoken in months? How on earth is she going to feel when mums gone and shes never been there for her and hasnt seen her for almost 4yrs? I dont know how some people can live with themselves? My poor mum lost her own mum at just 17yrs she was in US when her mum died from kidney failure and in those days couldnt get back in time for the funeral by ship a catholic funeral the person is buried within three days so mums ship wouldve taken longer! mum still at 77yrs has nightmares that her mum is calling her? i beg my sister to wake up and make her peace with her but she wont listen and shes a christian? Ive learnt to give up on her my brother is in denial cant cope? my other sister is in cloud cookoo land wondering where her next holiday is going to be? Thankgod i have one "saine" brother who is preparing and phones mum every night even if she cant hear him!
Oh families dont you just love them! My brother and I discussed this the other night he says do you have any idea just how messed up they will be when shes gone? Oh yeh but i am trying to let them know now but its not going in?
We will all here walk away with peace knowing we did everything possible to care for them the only thing i ask for is that i am there when mum passes I think i deserve at least that i want to be the one to hold her hand when her time comes will be pissed if another sibling takes that from me!
Agecare, the heartfelt thought that it would be quite a relief if we never had to see certain family members ever again is one - sorry Ino! - that I share. But if their help would actually, as a matter of fact, help you or benefit your parents, then do persist. It's worth it. The worst that can happen is that you continue not to get help from them; but there is always a chance that things might improve. We're going to see a respite care home tomorrow, and to my (I hope well-disguised) astonishment my brother rang this evening to say he'd see us there. My mother's thrilled to bits (eye roll!), so she's looking forward to the trip now. A mixed blessing, I expect you'll agree, but… not nothing. People don't offer because they'd rather not think about the situation. If you give them specific things to do, sometimes they'll surprise you pleasantly.