Follow
Share
Read More
Find Care & Housing
Belle, I realize your post was a few weeks ago, but couldn't the doc move your mom from the hospital to a nursing home? This way it is not YOU who has to do it, it's the doc. My mom is pushing 90, has a host of self-imposed physical problems, and dementia. Every day she wants to be more and more helpless. I push back and tell her that if she cannot or will not walk, she has to go to a nursing home. If she cannot or will not get out of bed, she has to go to a nursing home. If she will not allow me to bathe her, then the home health care people who come from time to time will tell the state, and the state will come and put her in a nursing home. I cannot lift her to put her in a wheelchair, and frankly, she needs to be walking. There is no reason she can't, she just doesn't want to. After we have our little "chats" she reluctantly gets up and walks (with her walker) to the bathroom or the living room, etc. I would never harm her, but there are times I wish she'd end up in the hospital (which she does from time to time) from where the doc could move her to a nursing home. Then she'd be there and it wouldn't be because we "put" her there.

My family takes care of both Mom & Dad. Dad tries a lot harder to be independent, and he is cheerful and appreciates our help (most of the time). Mom is cranky and nasty and verbally abusive.

You do NOT owe your mother your life, no matter what she says.
Helpful Answer (2)
Reply to DGinGA
Report

I did not exactly wish Dad would die per se but I did feel sad for him being in such an unpleasant and undignified state in his final weeks. (He had hallucinations, lots of anxiety - and whe had to change his diapers) I liked thinking of him reuniting with his loved ones and riding his horse "across those endless skies."

On the other hand, I miss him terribly. :(
Helpful Answer (0)
Reply to EggshellWalker
Report

oh by the way, I really believe that so many elderly people are unhappy that it HAS to be related to the lack of dopamines and serotonin. I imagine the brain slows down making that too as you progress. I know for my dad, it has made a huge difference. I would recommend that all of these folks who are so miserable consider having them evaluated. There is no reason they can't be somewhat less miserable. One can hope.
Helpful Answer (1)
Reply to butterflygrl
Report

I have a question about the weekend visits part of this thread. My father has recently gone to NH. His insulin levels have been regulated but he has dementia now. In the beginning he was so upset that I went up all the time. Every other day or so and also because I was getting his room setup. I started to dread going because I am a softie and will feel guilty and move mountains to make someone happy if I can. I was extremely confused about whether I should move him in with me but I can't afford it. I would read on here how exhausting it is. My father has spent most of his life angry and can can be cruel and sometimes violent. He was so agitated when he first went in with the diabetic shock that he scared the personnel. They placed him in a behavioral hospital and started giving him depakote and anxiety meds which are for bi-polar disorder. He is like a different person now. He got really upset when he got to the NH and they further prescribed anti-depressants and he actually has chilled out and smiles more than I have ever seen him. he still doesn't like being there. Back to the visits. Since I was starting to dread going up there I stayed away for a bit longer like 4 days. Since I was there reminding of the outside world, he was blending in and getting more settled to the routine. He said nothing about leaving that time. I was amazed. I have since noticed bowel incontinence and I now know that even though I feel guilty, he needs 24/7 care and I can't do it. He is getting stronger physically and can get around better than he was before. I am thankful for the nursing home. It is like dorm living or hotel but it's better than him living alone. My question is this: I'm afraid of bringing him home on the weekends that I won't be able to get him to go back. @jobdennis, do you think it's beneficial for them to have that small break of freedom or will it interrupt his progress. I don't want him to get his hopes up and dash them every weekend that he is home with me. That would be like breaking his heart and I don't know if I can handle it? Since the visiting thing was counter to what I thought I should do, I am now questioning the weekend visits. Holidays and such of course I would have him. what do you think?
Helpful Answer (1)
Reply to butterflygrl
Report

I can sympathize with so many of the situations. My Mom was "kind and helpful" whenever someone needed a hand, after an illness, needed a little extra help with their groceries to feed their children, etc. However, she is also extremely narcissistic, in her 90s with dementia, osteoporosis, confined to a wheelchair, yet very unkind and demanding to her aides and to me, which did NOT begin with dementia. I have finally learned to leave her room at the first sign that she is "pushing my buttons". I tell her that when she can speak nicely to me I'll return for another visit. Since she is in the early-mid stage of dementia, she can still understand why I'm leaving and she will try to be "nicer" for a day or two. When she returns to her old behaviors, I again tell her why I'm leaving, tell her I love her and that I'll see her again in a day or two. Unfortunately, I have no control over how she treats those who help her day in and day out; my admiration for these people and their patience is great...I don't know how they do it. No one here should feel guilty; ours is a tough situation indeed. You are in a safe and supporting place on this site!
Helpful Answer (2)
Reply to AnOnlyChild
Report

No one with any compassion can day in and day out be able to endure what care givers endure without the Grace of God. It seems every day I ask that the Lord be merciful and to not let my husband keep on going like he is. He is not angry all the time, only when he wants to get up out of bed and I'm not able to do this all the time. I am trying to make each day as easy on him as possible. Hospice allowed me to take a 5 day respid just recently, and to tell you the truth, part of me hated to come back to reality. I truly needed it, and am hoping that the Lord will not tarry much longer. I use to say to my husband, we're going together and I wasn't going to be left here without him. If the Lord decides for my husband and I to join Him when He comes to get the church, then I say let it happen! If not, then keep me strong and allow me to serve You at least till You do come Lord.
Helpful Answer (1)
Reply to southernyankee
Report

Does anyone really want to live with the ravishes that advanced states of Alzhiemer and dementia does to a human being, loss of dignity and no quality of life? The 24/7 care for these individuals is beyond what one person can do. Death is more acceptable for both the individual and the one caring for them.
Helpful Answer (1)
Reply to Labs4me
Report

In 2005, my mother passed away. So did two of my pet ferrets - all within six months.

I miss the weasels a whole lot more.

If you don't like ferrets, they do have one big thing in common with other animals: they don't judge; they can't give so-called constructive criticism; they'll never call you a "weirdo..." (Ninety percent of anything you may have heard about ferrets being mean or dangerous to people is urban legend; eight percent due to their owners' not knowing how to train or handle them; two percent applies to the rest of the domestic corner of the animal kingdom).

I always knew I'd feel some sadness at Mum's passing, despite knowing it'd bring much relief, because a) her abuse was "only" because of mental disorder(s) rather than evil, and c) nobody should have to be in the position to look forward to a parent's passing.

I'm not sure it's possible to be a long-term caregiver for a loved one and never have that feeling zing through one's mind, especially during times of stress or when the elder/disabled person is abusive.
Helpful Answer (1)
Reply to EggshellWalker
Report

My grandpa who has dementia is a bully to me. I am his full time (weekday) caregiver. I care for him at his own home. I have to walk around the house in trepidation that he may attack me. He has violent outbursts. Everyday he verbally attacks me and puts me down. He complains that I put toothpaste on his toothbrush, how I put it, and tells me to never do it again that he is not a child. He asks me everyday "Why don't you work?" even though I've been taking care of him for quite some time. My son is afraid of him. He would rather stay at home and have some peace than go to his house. Grandpa is a very challenging person to take care of. Believe it or not, when I actually had a "paying job" it was alot easier compared to this caregiving hellhole. Caregiving is one of the toughest jobs out there. You must be thickskinned and guard your feelings otherwise you won't survive the job. Tip: always go outside and get fresh air to help relax you. It works for me!
Helpful Answer (1)
Reply to caregiver75104
Report

With 161 answers before mine, I doubt the original poster will see this. But, hopefully someone here will get what I'm saying.

My Mother had many of the illnesses and challenges the original poster's Mom had and more. There were times when I prayed to God to take her. Her suffering was unbearable for her and I can't describe how seeing my Mom go through what she did... how it affected me. Still affects me.

I did the best I could for her. I was there for her. I tried to make her as comfortable and happy as possible.

That's all anyone can do. It's OK to wish peace for someone you love when you see them suffering so. The guilt that comes with the wish for an ending to suffering ... IGNORE it. You are doing right. Your heart is in the right place.

Anyone that watches a loved one suffer and doesn't care. That's the scary picture. That's the person that should feel guilty.
Helpful Answer (5)
Reply to bpryor01
Report

I try not to think about how I feel about that, with my mother in her 90's and in good health she could live to be 105. There are times though, that I wonder why my mother worries about herself so constantly when she is so miserable, unhappy, negative and enjoys nothing in life. If I were she, I wouldn't want to live being so unhappy all the time. I have to admit that I do hope that as her dementia progresses she doesn't become almost a vegetable and unaware while her physical health keeps her alive for years in that condition.
Helpful Answer (1)
Reply to AmyGrace
Report

I know how all the yrs. of our marriage, I use to tell my husband that we were going to go together. Now that he's been confined to the bed more and more, I see that this may not be, and I so get to feeling guilty also. Than here I am living and walking and having a life, and his life seems like it has just stopped. I get angry sometimes, and then I find myself asking the Lord to be merciful and not to let him suffer any longer than needed. My whole world seems to have just turned upside down planning for things I never could have imagined myself doing. How do we get through this? I am so empty sometimes, and even though we talk, and he smiles and puts his one arm around me I so cherish these moments, and tears just roll down my face as I sit here writing this. I just don't want to lose him, but I know that there is a perfect healing and freedom for not just him, but for all of those who are trapped in their bodies. It is okay to want to let them go, or ask the Lord to take them home. Why would He mind if we wanted better for them than what they have now. I know that this too shall pass, but it is so hard.
Helpful Answer (0)
Reply to southernyankee
Report

I too, often wish Mom would die peacefully in her sleep. I don't wish it because she's a burden. I wish it because I do not want to put her in a home. It would kill me to do that. Plus if Mom realized what she's become, she would be mortified. She's told me a few times that she would rather be dead than have AD.

To some it sounds horrible to wish death on a parent or loved one. But, I don't feel guilty over these feelings. I feel this way because I love her so damn much.
Helpful Answer (1)
Reply to donnacecilia
Report

we had been caring for my mother at her home for 9 years after her 2nd husband died.thankfully after having been with him for over 10 yrs she had a different mindset than she did when we were growing up .mom always said how she should just kill herself all the time when things were said or done that she didnt like. when my dad died 3 weeks after my daughter i knew that i could not be around her without doing her physical harm if she said anything nasty about them so i stayed away 8 yrs. giving her up for that time also stopped any of my sibling from talking to me. but mentally i could only handle my own grief. when my husband died of cancer they couldnt understand why i did not get in touch with them.it was hard going back but i discovered that moms personality had changed. (i was the one picked out to take her rath) Mom has a personality disorder too. still all 4 of us took turns going to her house to take care of her , making sure she ate and took her medicine and had company every nite. my sisters daughter started coming in the daytime as moms dementia got worse. It was a hard decision to put her in a home as we felt guilty for doing so. But it got to be that she would not do anything for herself. not even bathing. she wouldnt do it for us either. she has been in the nursing home for 5 months now. we still take turns seeing her every day for a few hours. she doesnt know if anyone saw her the day before. everyday seems like years to her.
but now she is in the nursing home all of us have had some peace of mind and can enjoy our visits with her. I had surgury at the beginning of this year and couldnt drive for 3 months. mom didnt even realize that i had not been there.
i also have wished that God would take her out of her misery but really she is no more miserable than she had been before the dementia.
but in the home she is safer and has the care she needs and we have peace of mind. we also know the worst is to come and pray we can handle it when she doesnt know who we are.
God will take her when her time on earth is done and not a moment earlier. this disease has brought us kids more together than we were ever allowed to be growing up. so some good has come of it. Just love your parents as long as you can.
Helpful Answer (1)
Reply to mistymom
Report

Do not feel guilty about wishing your mother could go to a better place. You can't change the way you feel only the way you act. don't be too hard on yourself.
Helpful Answer (3)
Reply to Veronica91
Report

Treadingwater, sorry you loss your mom recently n thank you for sharing your story. I had done the same with my husband's dad when he was n hospital on a oxygen n spitting up blood due to cancer. Everyone their were praying for him to hold on n it was just too painful to watch. He would gasp then stop n the family would all start crying. Then he gasp again for air n they tell him to fight n this went on n on for what seemed to be a lifetime. My husband was taking it really hard n he wasn't saying anything but tears. I silent prayed to take this man n take away all his pain for the sake of himself n the family. Then he passed. "Praying for peace n no pain," is great advice n the hospice idea. That is why this site is such great place to visit. We have some people that understand n have already walked those shoes.
Helpful Answer (1)
Reply to lildeb
Report

Eddie, I agree 100%! That is just pure evil n selfish-greed to wish for that just to get their possession!!!!
Southernyank, sorry to hear the nurse notice some signs of Ad. You are in my prayers.
Helpful Answer (0)
Reply to lildeb
Report

My Mother just passed away on March 2nd at 11:55 Pm. Dementia had taken it's ugly toll on her and she could no longer move, swallow or talk. I spent a week in the gentle care of Hospice with her 24/7.......watched as she struggled to breath and wiped her brow as she fought off the tremors and finally fever on her last day. The last night the nurse said that her heart and lung functions had not changed in the past few days so I should go home and take a break. I told them that I knew the end was near and didn't want her to die alone. At 11:30 I got my "futon" ready to sleep on and said really loudly for the first time "Good Night Mom". Then I laid down and prayer that God would take her because she had suffered enough. Now, I am not a very religious person but I think I am reformed. Not 5 minutes later I heard her take a deep sigh.....then another softer sigh I went to her bedside and she took one more soft sigh and she had passed. I didn't cry because my prayer had been answered. Her suffering was over.............
To get to my point, NO, don't feel guilty about wanting your mom to go....When God is ready he/she will take her. Just pray for peace and no pain....
If possible consider Hospice care ---It was the best decision I ever made for her.
Helpful Answer (4)
Reply to TreadingWater
Report

when my bather from hospice came today, she said she noticed some symptoms of dimentia/alhiezmers. i have no idea what course this stroke will finally take, but i pray he will be as much without pain and discomfort as possible. whatever it takes i'm in for the duration y'all. it's only been since nov. 20th, of last yr. and sometimes it feels like a yr.
Helpful Answer (0)
Reply to southernyankee
Report

Now that u two put it that way, that makes more sense. For I am guilty of wishing my mil will pass soon for u can tell she is not happy n slipping away more each day in confusing with moderate alz. Their is a time where we just have to let go n let it be what it is n when the time is right it will come, I guess.
Helpful Answer (0)
Reply to lildeb
Report

If we honestly want their suffering to end, I don't see anything wrong with it. ... But if we wish they'd hurry up and keel over their cream of potato soup to swoop down on their worldly possessions, that's not wrong either. It's outright immoral.
Helpful Answer (2)
Reply to Eddie
Report

Sandfox, I couldn't agree with you more. We don''t wish someone dead but instead, wish them peace and no pain. It's completely different in my opinion.
Helpful Answer (3)
Reply to Bhenson
Report

Bhenson, you said, " It drains you so that when the time comes...I think you're almost at peace with it. " I think this is a very normal process that you describe. It is a kind of emotional preparation for us to let go of those who spent enough time on this earth and will be much better off when they shed the body they are trapped in. I'm going through this process right now. It's really not about "wishing they would die" which we are conditioned to think is "wrong" in this culture. The culture is wrong. It's about being kind enough to stop demanding that they "stay the course" and try to prolong life almost forever, another cultural conditioning. The medical profession would have you think that unless you try extreme efforts to prevent the inevitability of death, that you are a bad person. Hopefully, I think this attitude is changing.
Helpful Answer (2)
Reply to sandfox
Report

I feel very relieved when I read everyone's posts. I am not alone. Dementia is so cruel. I thought I was the only one that prayed for my Mom to be at peace. Some days she is almost cheerful, and others, she's everything that everyone has mentioned. I am her only caregiver, and it has nearly cost me my job, my health is terrible, and I see no way out.
My love and hugs to all of you who are caregivers. We are not alone.
Helpful Answer (3)
Reply to eyemtink
Report

I guess unlike many, my mom went real quick. she was put in a hospice house after a massive stroke and 2 days later went to be with the Lord. Now, i am in a place of seeing my husband suffer after having a massive stroke which has left him paralyzed on the left side along with his shoulder being dislocated. Also, his mind has been effected to the degree of having hallucinations. I have been going through this for the last 2 and a half months, with the last month at home with a bather twice a week and a pt and nurse all from home health. All this to say, he has regressed so much, and we're trying rehab at a NH facility in hopes that he will regain some much needed weight and strength. At the same time I have become completely drained, both physically and emotionally with his not only being bed bound ;unless PT got him out of bed and that was only 2 or 3 times during the whole time of 10 visits, but also the lack of sleep I found myself asking the Lord if you won't heal his mind then just take him home. I know he would not want to remain here if he really knew how he was. he is my life and has been for the last 18 yrs. I don't think it is wrong for us to want our loved ones to go and be where they will no longer feel anymore pain or discomfort. signed, southernyankee
Helpful Answer (1)
Reply to southernyankee
Report

No it is not .. My mom tells me almost everyday she prays everyday that God will take her home. She is ready to go, but God has other plans right now. I also hope she will go soon, not just for her peace, but mine as well. It is very hard to care give for her and I want to enjoy my time with my husband. We are both newly retired and want to be "selfish" now. You are not alone. Sending the best wishes and hugs to you.
Helpful Answer (3)
Reply to mrsbones99
Report

OH BOY! Can I ever relate! In fact, I just had this conversation with the minister who comes to see mother from Hospice. I've been taking care of my mother for 10 years now. The last year and a half has been full time (I'm sleeping in her storage room or on the couch).

Mother is seldom pleasant to me, and quite often refuses to even speak to me for hours on end. She has been lazy her entire life. She doesn't want my attention until I start to do something. THEN she wants to wander and try to get into stuff she needs to leave alone. OR... if I go anywhere, she does all kinds of odd things... such as pooping in a waste bin in the bathroom, or something else equally as odd. She will wake up from a sound sleep if I WHISPER to someone that I'm going to lay down and rest for awhile. Within 5 minutes she is raring to go! This is not an exaggeration! For 6 weeks after I started staying in her house I existed on less than two hours of sleep every night!

That said, the point is, if I had put her in a nursing home, she would probably already be dead. Since I give her around the clock care, she is still doing well. But I am tired! I haven't gotten to sleep in my own bed for more than a few nights in a year and a half! She is lingering, and growing lazier by the moment (as well as growing weaker from inactivity). Is it any wonder that I am ready for this to be over? But then I feel guilty for feeling this way. So, I spoke to the minister. His words to me made me feel much better. I hope they help you as well.

This is a completely normal feeling. Please do not feel guilty for wishing your mother would just let go and quit making your life miserable. If she were a dog or cat and were in pain and suffering from the amount of confusion there is bound to be associated with Alzheimer's, then you would do the humane thing and euthanize them. We cannot do this with our elders. What we CAN do is to choose to ignore their nastiness, and take the high road and be pleasant to them in return.

I find this difficult quite often... but I also realize that my mother takes perverse pleasure in being difficult, cantankerous, and quite frankly MEAN. When it gets too bad... I just smile, walk away, and say... "I'm okay with that. You are the one that will have to suffer the consequences of your actions. Not me."

It works! Good luck!
Helpful Answer (3)
Reply to laurabmundy
Report

I too have an NPD mom - loving in some ways, but so dependent and needy and now developing dementia. My wonderful husband refuses to have her live with us - and that will probably save my health and our marriage. She is in a CCR and will be able to move into memory care when the time comes, but I pray for her sake (and mine) that she has a fatal stroke before that happens.
Helpful Answer (0)
Reply to Leslie61
Report

I am sorry for every ones pain . But my mother just passed away & I would give anything to take care of her again. But there is a big difference . When I tucked her into bed EVERY NIGHT she said good night I LOVE YOU . I am only writing now because it hurts so much that she is not here . there were a couple of times she made me feel like a slave. , especially when the QUEEN came over. But now my mom is gone& it just really hurts, but like I said things only happened a couple of times. MOM I LOVE U XOXO
Helpful Answer (1)
Reply to tanner56
Report

When longevity goes beyond the quality of life, there is nothing wrong with wanting someone you love to have a peaceful existence beyond a life on earth. People are living longer, but not necessarily healthier. Seniors deserve a quality of life with dignity. Hopefully there will be a cure someday for Alzheimer and Dementia.
Helpful Answer (1)
Reply to Labs4me
Report

Ask a Question
Subscribe to
Our Newsletter