I have been easily manipulated my entire life. Spent much of my time trying to make those around me happier than I ever could make myself. I appreciate time by myself, but don’t get more than an hour or so at a time a couple times a year.
If something isn’t important to my mother then it isn’t important. If something isn’t valuable to her then it has no value.
There is just too much stuff I could elaborate on but I just couldn’t explain it.
I write this knowing exactly how you are feeling about being manipulated and having reached a point when I felt I needed to tell my mother that the world did not revolve around her. It took several events to make her realize that I was actually an adult person rather than merely an extension of herself.
I should also tell you that I was not able to do this without the help of several counseling sessions with a psychologist.
I love my parents, but they learned (in their 50s and early 60s) that the baby could and would leave them. They planned for me to have a career that would have provided certain opportunities.
Opportunities that would have afforded them options, in their own old age.
I have decided that I will help them, as best I can. I will not surrender my future, to them.
Please take care of yourself and your partner. Once your parents are gone, you will have your partner and yourself.
D
Heartless to say no? Hardly. I made my decision before mom developed dementia that no way could we be in the same place 24/7. Dementia firmly cemented that decision! She was early 90s when we had to deal with that. First was helping her with grocery shopping and getting to appointments (we took the car away.) Financial takeover had to be done next, as she was messing it up. Plan A was to bring in help as needed, to keep her in her own condo (her wish at that point) as long as possible. We only got to stage 1 of that plan (1 hour/day, mainly to check on her and make sure she took her medications.) That didn't last 2 months. Given how she dealt with that and her adamant refusal to consider moving anywhere, she likely would be a lot like your mother, with a dose of dementia on top! She did tend to be critical of decisions and life choices I have made, but it IS my life! **(see add'l comment)
So, you need to start putting yourself first. If she really needs assistance, you could start pushing for her to move to AL, if she has the means. If she doesn't need that much help, then you need to allocate more time EVERY day for yourself.
"I have been easily manipulated my entire life."
Many of us can say this. Once you realize it and acknowledge it, which you have, then focus on changing that.
"Spent much of my time trying to make those around me happier than I ever could make myself."
I am a giving-type of person, and get pleasure from helping others, but at some point some of those we try to help out and bring some happiness to step over the line and start TAKING. It's okay to be a giver, to a point. When the helping hand is grabbed and dragged down, it's time to pull back that hand!
"I appreciate time by myself, but don’t get more than an hour or so at a time a couple times a year."
TAKE the time. Given your description of your mother's conditions, she doesn't need you 24/7.
If she is safe to be left alone, GET OUT and do what YOU want to do! Granted it's a tough time for that, but you can go for walks, drives, sit in a park, set aside space in YOUR home for projects, activities, crafts, etc that YOU like to do, and shut her out. It's your home.
If she isn't safe to be left alone, use her income to hire aides to watch over her while you do what you want. She's your mother, not your task master, not your boss, just your mother. Ensure her needs are met - NEEDS, not wants, and ignore anything else she has to say. She obviously is opinionated and critical, but that doesn't mean you have to listen to her or internalize ANYTHING she says. She starts in on you for anything, walk away. Let it bounce off or roll off your back. Words can be painful, but they can be ignored as they are only words and come from ignorance.
"If something isn’t important to my mother then it isn’t important. If something isn’t valuable to her then it has no value."
Fine. But finish the statements thus:
"If something isn’t important to my mother then it isn’t important TO HER."
"If something isn’t valuable to her then it has no value TO HER."
Whatever the "somethings" are, they ARE important to you and they ARE valuable to you! She has no real power over you. If she starts to criticize and/or complain, cut her off and just state calmly that this isn't a topic for discussion, then walk away. Don't let her rule over your life!
You CAN do this. It'll take some effort, it'll take some time. There might be some back-sliding, but don't let that deter you! TAKE BACK YOUR LIFE AND HOME!
Anyway, she will be 97 in a few weeks and is still in MC (this is year 4). Your mother doesn't seem to have much in the way of life-threatening conditions, so she could live for a LONG time! Are you willing to continue with this arrangement, with no respite? You really need to think long and hard about that.
Instead of getting an hour or so every year, consider planning a get-away, even if it's just to a fairly local hotel, where you can spoil yourself for a week or 2.
There are some ALs that offer respite care. If she can't be left alone for that amount of time and care for herself, you either use her funds to hire someone to watch over her or find a place that offers respite and use her funds to pay for that.
You never know, she might like it enough to consider moving there, where she can direct her "staff" to do her bidding! I think that might be why some offer respite - to entice people to consider moving in! If she gets treated like royalty (obviously her wish now!), she might like it! You can still visit, take her out, have dinner at your place, love her, do little things for her, but have your life back! You are in the early stages of retirement, don't piddle it away!!! By the time she passes, you might be too old or compromised to enjoy any of your own retirement!
I say that last bit truthfully. My parents had a GREAT retirement. Condo in FL for winter, condo up here too, travel here, there and everywhere, cruises, get togethers with friends and family, etc. Mom still had this condo and friends, a few family after dad passed, but she was okay dealing with things herself and wanted to stay there. She managed alone for 8 years, then dementia crept in.
Just prior to dementia starting, or at least when I realized she had early stage dementia, I lost my job - I was caught between 2 houses and near to early retirement age. Between age, mom and various issues, I decided on retirement. BUT, that meant trips to help her out (grocery, appts, etc) and she was about 1.5 hours each way! Then I had to take over her finances... Then deal with hiring aides, ensuring she was getting enough food and supplies, etc. Meanwhile I was dealing with fixing TWO houses, in order to sell one and live in the other! In "spare" time, started research on dementia, checking out places, getting everything set to move forward - yadda yadda, lots there, but just leave it at it took a LOT of my time and energy, even though she isn't living with me!!! Next came cleaning, clearing, fixing and selling her condo = 1 and 3/4 YEARS!
Fast forward - despite having 2 brothers, one who is also POA, I get to manage and handle EVERYTHING for her. My place still isn't done. I am going to run out of retirement before it gets finished!!!!
Don't wait, please. Ensure that YOU get your full share of time. Whatever mom demands can wait. If she truly needs something, see to that, but not everything is necessary or needed NOW. She could AND SHOULD also be helping do some chores, if the medical conditions are only what you listed.
Because you are dealing with someone suffering from dementia you are allowed to be sneaky... In other words you can justify a white lie or two--- you could tell her the house has burned down... or that it has a dangerous black mold problem and you are going to have to sell it to someone who will destroy it and build again. But in any case you and your mother will be homeless. So your doctor will advise your mother to go to an independent living facility. And you will have to go rent an inexpensive apartment. With dementia -- sometimes you are allowed to not tell the truth, but offer a distraction. NOW once she is settled in, she will forget everything and learn to enjoy sitting with women her own age as they eat their lunch. Make sure you get her to agree to you being her POA. Good luck.
You have to also understand that with this caregiving thing, the more you do for someone the more you create a decline for that person. When you jump up each time she wants thing, you are slowly removing her ability to walk. Look at every single thing you do. Even the simplest of chores/tasks that you do (just because it's easier than to talk about it) you are creating the debilitated patient down the road. Always keep that in mind.
You created the problem by allowing others to have their way with you. You've spent many years creating this environment. So change will come about slowly with you being consistent in making the changes. Say no when you have to and stick to it. Define the boundaries and stick to it. The first time you back down, you will be back to where you are now. It's hard. Best of luck to you.
Hopefully you are finding a way to live in your own home, peacefully with your mom knowing that you are mistress of your domain and she is a welcome guest.
Please come and let us know how you are doing. We learn from one another and love to hear how others are implementing change.
have no idea that they've been, manipulated for his/her entire life, and write about their situations in a completely different manner, from a victim's perspective.
Your writing is ...
You already have the answers.
What exactly are you seeking?
Tell her exactly how you feel and for ya'll to continue living together, changes must be made.
Have your changes listed znd give her the list as ya'll go over them one by one.
Include your mom's feelings, thoughts and ideas and come to a mutual arrangement.
If this isn't possible then mom or you will have to move out