I’ve done everything I can for her as her Power of Attorney and am the ONLY person that didn’t walk away when she was hospitalized 3 months ago. I’ve arranged the best care I can find for her. She is bedridden, incontinent, diabetic and on continuous oxygen. She cannot go home. I’ve taken care of her home repairs, bills, car…you name it. Her care has become my second full time job. She is my aunt, not my mother. She led a selfish lifestyle. At 86, she never planned for long-term care. So here we are. Everyone has an opinion but has done nothing to help. I’m overwhelmed every single day. All of her so-called “friends” have never done a thing. They all backed away when she got sick. Has anyone else experienced this? What did you do?
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I see you have a very busy life in your profile and aunt is in assisted living. You are not the only answer to aunt's needs. Tell the brow beating cousin to get a geriatric care manager.
https://www.nia.nih.gov/health/what-geriatric-care-manager
My son said to me once "Thank you. But I don't remember asking for your opinion". Well oops! Sorry about that son 🙄 (Cheeky young man!)
You could use that in a clipped business like tone & a steely stare.
Or handball to them: I am ALL ears - just what would YOU do? Would YOU like to take over?? No??? Didn't think so... So zip it.
Many people try to offer *solutions*. When you may want is a kind listening ear instead.
All ears here.
But as to the why anybody should think you should be doing anything, you answer the question in your first sentence - it's because you accepted power of attorney for her. That's why.
The only [non-professional] opinion besides your own that you need attach any importance to is your aunt's. What's she saying?
If your true feeling is that this lady doesn't deserve your support, or that supporting her is somebody else's job and not yours, or even that it's simply more than you can reasonably manage, you can resign your POA. I don't mean to suggest you use that as a threat or a bargaining tool, I mean it seriously. If this is beyond you, talk frankly to your aunt and the senior staff where she is and make arrangements. It can be done.
OF COURSE the “loving relatives” X hundred miles away benefit from your efforts, as does your aunt.
But if you aren’t willing to say “No, I’m not able to do that”, to turn off your phone and check it only once a day, to treat yourself properly because of the kindness you’ve extended to Aunt (and presumably the rest of her vocal but nonfunctioning
pack), and MOST IMPORTANT, to let any and all comments/criticisms/“opinions” of the non-worker busy bodies roll off you and fall wherever they may, YOU NEED to seize those rights and play by your own rules.
Consider- what will happen if you STOP allowing yourself to be made your cousins’ tool/whipping target.
No reason for this except your reluctance to rock the boat.
Your peace is more important than the opinion of absent voices from far away.
Reclaim it. See how good it feels to ignore/silence/tune out “the voices”.
YOU DESERVE IT.
Simply tell the person “You are welcome to take over as POA for ALL of her care. Otherwise i do not wish ti hear your comments.”
What you are experiencing is quite normal in today's society.
My step mother is in memory care, she has a son who has not visited her in 20 years. Out of courtesy I contacted him when we placed her and my step dad in AL, that was 3 years ago, never heard another word until one day recently he tried to call her and she had been moved to another room from AL to MC, he called me, wanted to know why I did not tell him, well it just happened the day before and she had no phone in the new room as of yet.
I gave him an earful and asked him to take over her care...guess what...no go, he can't do that as he works and lives in another state.
He thanked me and my brother for caring for her and hung up. Don't think that he will be calling me anytime soon.
I guess he calls her once every 6 months or so.
I don't really have advice but wanted to say how much I can relate to the frustration and the feeling of burnout that comes with this. Plus all the anger and resentment, followed by guilt for feeling that way. The best advice I can give is take care of yourself. I have an apt with a therapist next week, and I wish I'd done it sooner. I am hoping it helps.
Also I blocked the meddling cousins from contacting me or my dad on phones, social media, email. It's a nice feeling. If people aren't being helpful and only critical, why let that negativity in? Something to think about to help your sanity. Good luck, this is really, really hard and no one should have a say in what you're doing to help your aunt, when they've not been in your shoes.
You should NOT be paying anything for her out of your money.
I would do a resignation letter and hand it to the social worker at her AL. Give them the cousins number.
They will do an emergency guardianship if she is unable to take care of things.
Then block your browbeating cousin from being able to contact you.
What they are both doing is taking advantage and you don't have to accept that.
Then tell Auntie you'll visit her on X day each week or month, and that's it. Take X amount of phone calls from her and let the ALF do the job she's paying a lot of money for them TO do for her each month. Hopefully you are not contributing any of YOUR money towards HER care. You'll need it for your own senior days when they get here.
You are not a gopher or a personal hand maiden for your aunt, so get that message across to her asap. Do what you need to do for her, and let the rest of it all GO. Ignore the calls and messages from the armchair critics, after you tell them to STEP UP and take over your job, if they don't like how you're doing it.
The end.
Wishing you the very best of luck taking care of yourself now, b/c you deserve to!
I bit my tongue from Thursday morning to Friday lunchtime - be proud of me! :)
What relation is the East Coast cousin to your aunt?
Does this cousin *ever* put in an appearance?
It won't win you any friends but these aren't your friends anyway.
Your title for this, however is disturbing to me, because people offer up too much of their own opinion, usually, when it is accepted. The best way to make it stop is to stop it right in its tracks. If a comment is made to your that is inappropriate tell the person so. If they are giving you input you don't want, tell them so. If they are overstepping their boundaries as friends, neighbors, family members, tell them so. If this is a problem you are having from more than a few people then there is some way you may be contributing to it. You may be asking for advice and opinions of others.
So practice the following: "I am doing the best I can and I really don't appreciate your advice."
As you can imagine you can elaborate on this all you wish. Start a practice journal. Write what someone has said, and then write your response. Make it fun.
"I am doing the best I can; your advice is not helpful. As you can imagine, you are not alone in knowing how to make this all perfect. If I had a penny for everyone who knew the answer better than I did I could hire on full time help."
You may get back "I am only trying to help. " If you get this say "Great. Buy us a bag of groceries the next time you shop; be certain it included a bottle of good red wine".
You don't owe your aunt anything. You are not financially responsible for her bills. Let the bills go unpaid. She's not living at home anyway. You said you are doing everything you can to make sure that she is taken care of. That's all you can do. You really don't even need to visit her. All a durable POA does is make you responsible for decisions regarding her medical, financial, and legal matters. You are not in any way obligated to do anything else.
It took me almost a year to grow a thick enough skin to tell my relatives where to stick their advice, but I feel so much better since I've done it.
Or "if you think you can do a better job I will turn Moms care over to you"
If the comments come on the phone, a ‘semi-polite’ way to deal is to say “I’ve been having trouble with my phone recently”. If they keep going, hang up (faulty phone, of course). Don’t answer the call back.
Is auntie in a nursing home? If so, this shouldn't be a full time job anymore. The facility should be meeting most of her needs. Find ways to simplify everything in regards to her as possible. As POA I guess you will be selling her house and car, etc. assuming the money will be needed for her care. Or I guess she could go on medicaid and she'll have to pay them back from her estate some day.
Good luck.
At that age most of their friends have passed on. And their friends are people they meet out at places--senior center, etc.
If you find a handful of people to build your care team, this may buy you some time. Although it sounds pretty advanced. We all have those relatives that need help and it's going to be even more so in the future with the high divorce rate in the U.S. and families living farther apart.
If your Aunt is a homeowner, you don't need the long-term insurance just meet with an Elder Lawyer and they will advise you. The long-term insurance is expensive so few people can continue with it because the premiums increase with age.
The hospital Social Worker can help too. You are not a one-man show so to speak.
When you're in your 80's you have all you can do to take care of yourself. This is nothing new caregiving. My mother God Bless Her took care of so many relatives in our home. Looking back, I don't know how she did it.
Sell everything soon. Doesn't sound like she should be driving from what you write. You are not stuck. Your Aunt has resources and you need to do this legally. Sounds like your Aunt needs around the clock skilled care, basically a nursing home.
Just recently a lady from Church told me her relative refused to go to a nursing home. She wants to leave the hospital, signed a form for no medical care, and was assigned a 24-hour hospice worker. Basically she will return home with no extraordinary means but will not die alone as hospice will be by her side. Her family is not in agreement with this but she has the right to make her decision.
These situations are not a one size fits all. Oftentimes the one doing all the work gets all the flack.
The goods news is your Aunt's primary care doctor (PCP) and a Church, hospital chaplain's office are all good resources so you can lighten your load, visit her without worry and make sure your Aunt is not in any pain and is cared for.
You should be commended. I, too, was always the one who showed up. Usually it was always 2AM. I'm older now and I have more knowledge about how to handle these situations. You learn the jargon and the chain of command, who writes the orders, etc.
We all need support and need to know we are not in this alone. But if you feel you are in this alone then build your team--Primary Care Doctor, hospital Social Worker, Elder Attorney, Church, Hospice if your Aunt refuses going to a facility.
The PCP Nurse Manager usually know more than the doctors. I have had good luck with the Nurse Practitioner's in the PCP's office.
Sign up for the the PCP portal. If your Aunt goes to a facility then that doctor at the NH now takes over along with their pharmacy.
I hope this helps. You look young. When I was in Grad School I had to do all of this just like you. I loved all of my relatives and wanted to do it and even with the love I found it so hard and exhausting since I was also working full-time.
Now I am in my 50's with a wealth of info to share. I hope I have given you some hope and I will pray for you today. You have some phone calls to make and I have always found medical personnel helpful.
If your Aunt goes to a facility kiss up and bring in pastry to the staff, tulips at Easter, etc. Your Aunt will get treated even better. Let them know you'll be around without being a pest and praise them! Amen Sister...
welcome to my world
I've started living this quote:
'Don't get the impression that you arouse my anger. You see, one can only be angry with those he respects.'
Richard M. Nixon
My elderly aunt once told me the 'cleaning lady' I hired for my father wasn't doing her job. I informed her that I hired a companion for him, not a cleaning lady. And it was only one day not two because my father was too cheap. He was perfectly capable of cleaning his own apartment at the time but his level of cleanliness was not my aunt's. The companion actually did laundry with him every week. My aunt looked at me like I should be cleaning his place. Since he was a man and all. My aunt was a life long housewife who thought that was what women do...take care of men. I had a full time job, my own house, kids and I was spending a lot of time managing my father's life. I was not about to add cleaning his apartment to my list. I will say, she actually did clean it for him once.
Then there is my cousin. She had nothing going on in her life so she tries to latch on to others. I received several urgent messages from her over Facebook, home phone...and the line crosser...my work phone demanding to know what WE were going to do about my father's situation. I have no idea how she got my work phone number. WE weren't doing anything with her in AZ and US in NJ. Unless she was volunteering to run him to his many unnecessary doctor appointments, there was nothing she could do that would make life easier. And I didn't need the added stress of her demanding to know what was going on. I ended up cutting her off. She cried to all our cousins about what a meanie I was...all she wanted to do was help.
now I travel to return my mom to her final resting place … the anxiety is real.
I would for you sanity sake consider finding another arrangement a different person to do this, you can legally resign as poa or if that isn’t something you want to do as I said simply block their numbers so they can’t contact and insult you
I have found that most of the folks giving their opinion have never taken care of an elderly family member and have absolutely no idea what is truly involved.
My mom had a very vulgar saying ...."an opinion is like an , everybody's got one".
The second saying that I've heard is "don't take criticism from someone you wouldn't ask advice from".
I hope I have given you a chuckle for the day!
Who knows one of those extremely rare seniors who don't offer their totally unsolicited opinion and two cents on anything and everything?
If you actually do know one then you've got a unicorn right there.
Family who do nothing always offer their advice and will often demand hourly updates on the condition of their beloved relative This is for show. If they are not willing to take on any of the care burden for the elderly "loved one" they are not owed an explanation. If you have relatives who live a far distance away but want to keep them updated, start a group text. This is what I did when my father was sick and I was his POA. I updated the text at my leisure and that was it. I did not take questions. My siblings were totally cool with it and did not criticize one thing I did. They didn't want anything or expect any inheritance and were grateful to not have to handle any of it.
Your aunt belongs in a nursing home. How can someone in her condition be properly cared for at home unless you get very lucky and find some serious homecare CNA's and can arrange them 24-hours a day?
Even then, she likely needs more care then can be done in the home.
Send an email out to your family and your aunt's friends and tell them this. Her elderly friends might not have email so write up a newsletter and send it to them. Let them know that she cannot be cared for at home and if by the Grace of God she improves and does not have to live the rest of her life in a nursing home, she will go to an AL facility or into a senior community.
Then include a 'PS'. It should read as follows:
Ps. None of this is up for discussion. No one needs or will benefit from your two-cents and unsolicited advice.
If any of you think you can do better, I will gladly turn the POA (Power of Attorney) for Aunt ______ over to you and with my blessing. Thanks.
This should do it.