I live with my mother who has Alzheimers(I'm the caregiver)At times she thinks my father is still alive(he's been gone 7 yrs) and my 2 younger brothers live here-which they may call ( for 5 minutes)once a week or stop by once a month for a qiuck visit.
My mother every so often,is now saying she doesn't live here, and wants to go home. I tell her, she is home, but keeps insisting that she lives somewhere else and is not going to stay here. I'll call my brothers and tell them whats going on and they tell me- try and distract her into thinking something else-which for some reason she keeps bringing up about going home. Does anybody have that problem- which they found out how to handle it?
Yesterday, she said about going home-so I took her out driving for about an hour-and she said it's getting late we can find the place tommorrow.
This is driving me crazy-I've got 3 brothers and 1 sister and when I tell them I need help-they say your living there-your the caregiver-what a caring family I've got. I don't know what to do?
Jim
Is she getting PT? Is she cooperating? Can you tell her she has to make progress first?
Can you empathize with her desire to go home? It is sad that she can't be where she wants to be. Can you validate that sadness, while not promising to take her home? "Yes, Mom, I know you aren't happy here. I'm sorry it's taking so long. What would you like best about being home? Yes, being all by yourself in your own room is so much more relaxing. I wish you could be there, too."
A book said, grant her in fantasy what you can't grant her in reality.
With somone who has dementia or Alzheimer's we have to crawl into their world, we can't expect them to be a part of this one anymore because they can't.
Weve had threads on here about therapeutic fibbing before. I know I never told my Dad my Mom did not want to see him any more, just that she was not well and was working on therapy and getting medicine to try to get better, and I would bring pictures back and forth. Its possible that older pictures of familiar loved ones would help comfort in the Alzheimer situation.
She also wanted to know who was coming to bring her home. I told her that the weather was bad outside, and it would be better to stay the night to avoid dangerous driving.
For some reason she believed me and calmed down. In later months, I saw her and she seemed to be settled in just fine.
What does it say about my character that I'm proud of the convincing lies I told to a poor old lady?
This is different from having your own loved one constantly asking to go home. That would be sad, painful and guilt-producing. But this is a case when the truth will NOT set you free.
My Father wants to "go home" everyday, usually starts getting anxious early afternoon. What I did that seemed to help was take him for a drive...my hubs and I live about 40 mins away. I called my hubs, told him we were stopping by, told Dad that my house was the 1/2 way point and I needed to pick up a few items for the rest of the trip "home" and he thought that was a good idea.
He thinks he is living in Louisiana, but we are actually outside Houston Tx.
While on our drive, in his mind the purpose switched and all of the sudden it was about my brothers car not working and Dad and I were going to pick him up and Dad was going to give him money to fix his car and so on. We had quite an in depth conversation about a plan to get this taken care of the best way possible and Dad was in charge, and he felt really good about that.
We got to my house...Dad said what a nice "facility" it was, met my hubs, they met in 2005 before we married but of course he does not remember.
Asked if hubs was "manager" of the "facility" and oh hell yes...hubs is the BEST manager that this facility has ever had!
Dad and hubs talked a lot...not about anything that made sense, but Dad was happy. Next he wanted a tour of the facility, so we walked him around and showed him our home, again..he'd been there on several occasions but did not remember. He moves slow these days and shuffles his feet so we are very careful with him.
He decided that the facility was "a damn good one" and hubs obviously knew what he was doing running the facility.
On the way "home" Dad wanted to look in to buying an apartment in the facility, and I told him that next time we do a tour, we well have to ask hubs his opinion about checking out an apt in the facility, and Dad loved that idea.
Finally I drove him back to his house and it took us about 3 hrs round trip, so he was more than ready to get back to his house.
It worked that day. The next day he had a really horrible time, but that is another story that I'll share soon.
Love and Hugs to all :)
I also agree with sentiments expressed above going home especially for depressed, lonely, old and sick individuals means moving on to a better life or joining a deceased spouse or loved one.
Today, the hospice nurse told me the same thing, Just agree with your mom--enter her world. So, I tried, OK mom soon I'll be ready for you to go home.
This may seem weird, but I'm wondering if the "home" is a metaphor or some sign that they want to move on from the earthly life. I know it's just the dementia and confusion, but part of me feels like the elderly really have grown weary of living and partly living, especially when they live in nursing homes and such. When they can't see well, can't eat well, have pain, can't hear, who can blame them. So, I told my mom today when she asked about going home, When it's time for you to go home I'll be okay. And I'll miss you. She stopped asking. Tomorrow, we'll no doubt have the same conversation. Sigh.
tellin our parents no and aruge with them is a no no . just go along with it and go with the flow . remeber mom and dad are always right ... cant aruge with the elders .
Anyways, I'm coping with this by collecting stories from people that have funny stories to tell because humor is the only thing that works to help us all get through these times. Please share a story with me about a situation that happened to you that was gutwrenching and hilarious. We plan to publish the stories. I will give you the title after I get your story.
Your mother (and my mother) does not recognize where she is. Her next logical conclusion is - I want to go home where things will be familiar. It does not help to explain to her she is already home. You are pointing out that her memory is not working. She will continually deny that it is her memory problem and get defensive. Lots of back / forth - as you try to calmly convince her and then over time you get exasperated and tense. Your mom will feel your tension and react to that. She gets more stubborn and you get more tense. And the cycle continues.
Instead - just agree with her. Say something that she will accept - you will learn what are acceptable statements. For me - my mother was OK with " you are visiting Robert (my husband) and me". I found this work after much trial and error. For example - I tried "you are living with me" - she got upset. Anyways - the bottom line is - keep agreeing with her to keep her calm. When she says she wants to leave now to go home - say something like "No problem - will take you home right after I finish cooking (or some reasonable time that she will accept)".
This calms her down by confirming that she is right (she is not home) and that you will do what she wants (take her home). Once she is calm - then I try to distract her onto another topic. Meanwhile - each time she says I want to go home - I just go through the whole thing again - all the time agreeing with her.
Another thing - try and see if there is a pattern when she says this. I found out with my mother that if she was hungry (or tired) - she tended to get more "negative". Alot of times - I think of Mom as a baby - who is feeling something but unable to tell me in words. She is no longer able to tell me what she is feeling. Instead - I observe and then try to figure out patterns.
I hope that helps.