Is there a time period for these stages? My 86 yr old father was diagnosed with congestive heart failure about 5 years ago . We are not sure what stage he is in or what to expect. Can anyone give me some information on this or tell me where to find some. I have checked online, but I didn't see anything about stages or a timelilne.
He also has dementia, so sometimes getting a straight answer from him about how he is feeling or if something is wrong, is tricky.
Can anyone give any info??
Thank you.
My mom gets winded with her COPD, as she has aortic stenosis too, so her aorta is narrowed and she can't get enough blood to keep her from being winded with any exertion. If the cardiologist didn't give you the kind of information you need, do some research on Google about your conditions and make sure you're following doctor's orders. My mom's cardiologist told her to keep walking and to stay as active as she could tolerate, even though it wears her out. Ask your cardiologist about exercise, since it would help both your diabetes and blood pressure, particularly if you're overweight.
I don't think any of the things you have are an immediate death sentence and if you take good care of yourself, you should be able to manage all of them well into the future. But it's important to make lifestyle changes if your lifestyle has lead to any of your conditions.
You can gauge how badly affected the heart is by its "Ejection Fraction" which is measured when a cardioechogram is done. A normal EF would be around 65%, I believe - this means that the heart is squeezing more than half of its contents out with each contraction. The EF can be difficult to measure accurately, though, so don't panic if you're told that it's 10% - my family doctor explained kindly that this was the cardiac physiologist's polite way of saying that she couldn't measure it at all, and it did not mean that my poor mother was about to drop dead on the spot.
I find that it helps to visualise the heart as a mechanical pump with its rubber wall beginning to perish and slacken. The other major mechanical problem is that because the left ventricle is slack and distended, it pulls on the valves between the heart chambers and prevents them from snapping shut cleanly, as they should. Valves can be replaced, but this is futile if the dilatation is severe: the new valve will fail in the same way.
The medications given can be aimed at improving heart function, relieving symptoms of heart failure such as breathlessness and swollen lower limbs, and protecting the heart itself and other organs such as the kidneys. Different medications suit different patients; if side effects are ever a problem, don't hesitate to report them because there may well be better options for him that your father's doctor will be happy to try.
Pacemakers can be implanted either to regulate heart rhythm (2 leads), or to synchronise the left and right chambers of the heart so that more blood is pumped with each beat (Cardiac Resynchronization Therapy, which requires a device with 3 leads).
The big problem, of course, is that a poorly operating pump means a decrease in the supply of oxygen to the whole body: so all of the major organs, including the heart itself, and the brain are inevitably affected as the disease progresses. Lack of oxygen supplied to the heart muscle leads to angina and (ultimately) heart attack; to the brain - TIA's, stroke and vascular dementia; to the kidneys - deteriorating kidney function, leading to fatigue and poor excretion of various toxins and sometimes poor drug metabolism (so you can get accidental overdoses, for example, or unusually high levels of blood electrolytes such as sodium and potassium - but your father's doctors will already be keeping a close eye on these things so don't worry).
Dementia is proving particularly tricky to diagnose. Vascular dementia is a common result of longstanding CHF, but of course having CHF is no guarantee against Alzheimer's or any of the other dementias either: so you could be looking at a very complex picture. When my mother's being especially loopy, I don't know whether it's because she's fatigued, deaf, fed up, bored, feeling ill, not in the mood to concentrate, actually demented or having a stroke. I hope your father's still a long way off this stage, though.
If your father does have this type of CHF, with no other presenting heart disease, and his doctors have succeeded in finding a good balance of medications for him, he should continue to have a good quality of life for some years to come. My mother was diagnosed in about 1986 and remained reasonably fit and well until about two years ago. The normal rules for healthy living apply - eat well, exercise as much as he's comfortable with, watch his weight, don't smoke… nothing you wouldn't include in your New Year's resolutions anyway!
I agree, it would be wonderful if there were some sort of timetable or clear prognostic chart; but because there's no knowing what will fail first or how individual patients will respond to drugs or lifestyle changes… it all seems to remain anybody's guess. My mother's had 15 decent extra years from the medical profession so I'm not really complaining; but all that my medically qualified daughter, even, can tell me is that my mother will be on her family doctor's "Don't Be Surprised If They Die" list. With the when and how, exactly, nobody's taking bets.
Wikipedia is always good for diagrams. Most of the medical schools will have some helpful online material, but make sure you're looking at the right species of CHF or it all becomes impossibly confusing. And if do you find any kind of crystal ball toolkit out there, please let me know!
On Christmas morning however he woke up fine. Better then I've seen him in months to be honest. Only change was a beer he drank with our son Christmas eve. Christmas dinner he had another one and again he looked amazing on the 26th. We were totally prepared for this to be end of his journey with us but now I just dont know. He still wont take the water pills and hardly uses the "dreaded" O2.
Is it normal to suddenly get better like that? Is it ok to think we got lucky and he will be around for awhile? I'm so confused over what to expect here. We had planned he would not go back to the hospital but now I just dont know what to expect?
If you or your wife were "coerced", that's when you should have been asking what stage her cardiac condition was, what the prospects for survival were, what other options there were.
If you really want to pursue this, you'll need to get your wife's medical records from her cardiologist, the cardio or electrophysiologist who performed the implantation and d/c of it, probably some pacer readouts and of course the hospital records of the surgery.
You should also investigate whether or not the defibrillator had a defective lead. Some leads were defective and could activate w/o cause, resulting in the person in whom the device was implanted to suffer shocks and bodily trauma. In my father's situation, the Medtronic defib lead was defective, and I did agree to have it turned off. But (much to my surprise) his cardiac condition had improved and the defib lead wasn't as necessary as it was when it was inserted when the pacer was changed out.
Unfortunately, the option to remove it was much more complicated, so it was left in but wasn't active. It couldn't accidentally shock him, which could happen with the defective lead left active.
There are a lot of issues with these kinds of pacers with defibs.
If you feel there's grounds for malpractice, you'll need to find a med/mal attorney who will consider the case, order the records for you (expect the cost to be several hundred dollars just to get the records), have them reviewed by a cardiologist or electrophysiologist or other similar expert who will advise whether or not grounds exist for a suit.
Years ago tort reform pushed attorneys in Michigan into the position of having to find a physician who would testify that malpractice had existed. It was a good move, b/c prior to that some aggressive attorneys would "make" a case into a med/mal case, even if it was one.
I am sorry for your loss, especially since your wife was so young. I think it might bring some peace to you to explore whether or not there was malpractice, as the process of an attorney's and medical practitioner's review might provide some insight into what the real situation was, assuming that cardiac arrest was in fact the cause of her death.
He was told by his cardiologist that he is too old for a valve replacement as he wouldn't survive it. I know that 90 is a good age but I'm just not ready to lose him,mi d you I never will be.i have a vacation oozed for June and I don't know whether I should cancel it,my brother has told us to go as if. It's going to happen it will and I could not stop it so I am to go away.
It's hard not knowing how to plan our lives,I'd out everything on hold for him.
Also, I don't see an anti-clotting medication in that list, is that right? But again, there could be good reasons if you're not taking one.
All the same. If you are experiencing symptoms that interfere with your life, speak up to your nurse, don't suffer in silence. Some things can't be avoided, but that's no reason to assume that nothing can be done to help you. Hugs to you.
You may not want to be saddled with oxygen but it will improve your breathing and allow more activity. Yes you can drive with oxygen there a small portable tanks or a battery operated concentrated. Ask to have your oxygen level checked. If the level is below 88 without oxygen medicare will pay for it.
Warfarin is only one of the anti coagulants available and the downside is that there are diet restrictions and you need regular blood testing. once a month once you are stabilized. The effects are fully reversible. There are several newer more expensive anticoagulants on the market with no restrictions but they are more expensive and they are more difficult to reverse.
There is procedure called an ablation that may be able to control Afib. It is done by threading a catheter through a blood vessel in the groin and advanced to the heart and offending nerve connection are destroyed. it is usually done with sedation but you can insist on general anesthetic as it can take several hours to complete.If you don't already have supplementary insurance with your Medicare it is advisable because the costs can be astronomical unless you can qualify for medicaid. There is a lot of help out there but it takes the effect to find it.
With CHF, there's retention of fluid, so you would want to avoid foods that contribute to that - specifically salty foods. Junk foods like potato chips fall into this category, but many frozen dinners are also high in sodium, as are condiments and sauces.
Research the ranges of tolerable sodium levels, check labels on all the foods you buy to determine the sodium levels, and plan accordingly.
You can find heart healthy menus and recipes online as well. I just did a quick Google search and got hits on both heart healthy diets, recipes, and more.
I also got several hits for "CHF Diet."
I'm wondering though if you have chronic CHF b/c of underlying conditions; if so, those would be a factor in the effectiveness of your diet, so this is something I would really raise with your cardiologist. E.g., some of the foods which can contribute to hypertension can affect CHF as well.
One thing you can do is substitute herbs for flavoring in lieu of salt and all those high sodium sauces.
Make it a challenge and it'll be easier if you have to give up high fat and high salty foods you enjoy.