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I appreciate this forum so much. I need your thoughts on this. My mother is 94 and my father is 92 (he will be 93 in March) and they are both in the same nursing home. My dad was put on hospice yesterday. This is a good thing because he is in a lot of pain and hospice can make him more comfortable.


I feel strange asking this question, but my dad probably doesn't have long to live. My question is if my mother should attend his funeral? She has Alzheimer's and is in a wheelchair. She can be very mean and is sometimes combative. There are days that she says dad is either her son or her brother.

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It sounds to me like what you are really asking for is permission to have her miss the funeral. Given her inability to understand what is happening I think it would be pointless to take her to the funeral, your day will be hard enough without having to manage her care. 🤗
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At my mother’s funeral her sister who had Alzheimer’s loudly called out “where’s my sister?” while standing very near the casket. Honestly, we didn’t know whether to laugh or cry at that point. It was clear that the funeral was just confusing to her. I’d take what’s a stressful day and honor your dad, I think your mom in other, better circumstances would understand. As is, it would put more stress on you to have her there, and likely confuse mom
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I would not take her to the funeral.

my mom died a few months ago. Dad has fairly advanced dementia. He was very confused about mom’s death. We told him she was away at rehab and he accepted that. We still use that a year later if he asks about mom but his memory of her memory is slipping away now.

It would serve no purpose to explain her death to him and have to repeat it 30 minutes later. Attending her funeral would have been horrible for him.

find a story/fib that suits her reality and go with it.
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gdaughter Jan 2019
I picture myself in this scenario and would only worry if mom was told that dad was in a rehab, she might attempt to get herself out and go looking. She's not inclined at all to wander, but you never know. I mean, they will be married 70 years this summer, rarely slept apart...
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If my mother was not in control of her faculties, prone to outbursts, easily confused, combative, etc., I would want to protect her from making those demonstrations at the funeral and having people talk about her as a result. To me, it's more respectful of the living parent and their beloved spouse, to spare them those kind of scenes. Plus, it spares them from being confused and unnecessarily scared. And, she won't remember it anyway.
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AnnReid Jan 2019
I deeply sympathize with your kind thoughts and totally agree with them, but truthfully, I don’t think any of us who live this life, should give even the tiniest thought to someone who would be ignorant and unfeeling enough to “talk about” a victim of a horrific disease.
Some of us may need to be encouraged to free ourselves of “what others think” for our own welfare.
Most of the random talkers have not experienced caregiving, and quickly stop inappropriate “talking” when and if they have the first hand experience.
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I would not take her. If anyone were to ask where your mother is, "She was not up to this today. She is not well." would be enough.
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I agree with CWillie in that I think you must be guided by what you believe is best for her, first, and next for you and for anyone else who would be immediately affected by her presence at the funeral.

Having said that, I personally know of one family in just your situation who considered it proper to take their mother to her husband's funeral and managed her between them (two sisters in middle age). The funeral was a formal affair in church. Anyone there who was disturbed by the mother's questions and occasional straying out of the pew was too polite to say so.

So. Don't take her if you think she would be upset, don't take her if you think she'd be too much to handle, don't take her just because other people think you should. But don't either avoid taking her just for fear that other people might be obliged to keep their opinions to themselves. Whatever you decide is correct, is correct.
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My Step-Father and Mother were married 34 years, he died unexpectedly. My Mom was in the sun downing stage. I thought Mom needed to be there but I needed to be there as well and there wasn’t anyone who could watch her during the funeral.

We had a one hour visitation followed by the funeral. Mom was asking me why they had her picture on the screen with the man she knew from church. I told her it’s because she was a pretty lady, probably. She loved the attention she got from people she didn’t remember but loved the hugs.

When the service started the minister was saying how much my Mom and Step-father gave to the church and how they helped build the building we were in. He also talked about all of their travels (they traveled all over the world). Each time the minister said something about them he looked at Mom. She leaned into me and said, “I need to get out of here, they are telling lies about me!” I told her to not make a fuss, we would leave as soon as it was over, to just ignore what the minister said it shouldn’t be very much longer.

Then, came the time when they moved the casket down the aisle, Mom couldn’t understand why she had to be the first one following the casket. I told her we were sitting in the front row and they were getting us in order and that maybe someone told them we needed to leave quickly. She said, that’s probably right.

We got to the cemetery she couldn’t understand why she needed to sit. I told her it’s because she had a dress on and the wind was blowing and, probably, they were afraid her dress would end up blowing up and exposing her. She said, that’s very thoughtful.

If you want to take her to the funeral, keep it short and with a short visitation. If I had to do it over again I probably wouldn’t have taken Mom to the cemetery but I was driving and my brother came in from Florida. As I said before, she loved the hugs and attention she was getting from everyone even though she had no idea who they were or why they were there.
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gdaughter Jan 2019
Such a damn disease. People don't realize the mental energy it takes to be clever and FAST to come up with the responses you did. You did great...I only hope to do as well. I see Teepa Snow videos and so wish I could be more Teepa!
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YOU, yourself, are dealing with enormous burdens, pressures, decisions.
For starters, let’s TOTALLY OMIT ANY CONSIDERATION about what ANYBODY thinks of your mom’s “conduct”, OR YOURS.
Unless and until anyone deals with the same as you are dealing with or more, they have ZERO right to ANY negative opinion.
NEXT- Make a little mental list of why and how mom will benefit from attending the funeral. Anything? Probably not, and very likely, Dad won’t miss her.
Now make a list of why and for precisely what reason(s) you are obligated to take her. Blank sheet of paper, right?
Your last step is to totally ignore any negativity you hear from your well thought out decision, and grnerouslysuggest that a complainer spend a nice long visit with Mom.
Bear up, treat yourself extra well, get as much rest as you can, and be true to what is kindest for Mom, then kindest for yourself.
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gdaughter Jan 2019
Love your response. Only thing missing was to have a piece of chocolate:-)
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My advice is NO your Mom should not attend the funeral for Dad.
Who would benefit from her attending? The answer is no one. Not your Dad, not your Mom, and more importantly not You.
Your Dad’s funeral should be a time for you to celebrate his life with family and friends, without having to worry about your Mom. If anyone should ask just say she is sick, and that’s the truth.
I hope you don’t mind reading about my plans, as I will face this as well, and made my decision for when the time comes.
Mom, 91, has lived with me for ten years, has Alzheimer’s and physical issues. She is between stage one and three, is incontinent, and uses a walker and a wheelchair at times. Despite those issues she is happy and functional with help. We put my Dad, 89, aging Dementia, in NHAL a year ago. I could no longer care for both.
Mom does not ask to see Dad, but is happy to visit him. We go at least once a week for lunch. Both are VERY hard of hearing so not much chat, just me talking.
My Dad understands a lot. When I visit Dad alone he always asks where’s your mother. He tells me say hi to her.
My Mom is on a waiting list for a Medicaid bed in same NH as Dad.
If Dad goes before Mom, I won’t tell her he died, and not take her to the funeral.
I want her memories of him to be happy. I want his service to be a happy celebration of his and her life. If Mom goes before Dad I’ll tell him and leave it to him if he wants to go. I will hire an aide for him.
There are six kids only the three of us are involved with parents care. They are in same state with me, the brothers out of state. We don’t speak with other siblings and it was their choice! I decided on cremation, a small memorial service at the cemetery, and a luncheon for guests. My brother does not want siblings there and I agree. It’s been years over 10 years since any visited.
The siblings will be advised after service of passing. As far as reading of will, I told all siblings is they come for reading they should bring their checkbooks as they will own the “estate” money! LOL
I’m sorry you are facing this. Remember with Faith, Hope, and Love we can do anything.
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gdaughter Jan 2019
I have sometimes contemplated this issue myself. But my folks are so close that I believe if Dad goes first, Mom will most definitely notice his absence (we all live under the same roof). I also think that mom (who has dementia, mixed type) will be aware of the grieving, or as a former support group facilitator said, they pick up on the "aura" one gives off.
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I just attended my husband's uncle's funeral on Tuesday, and his family had the same situation. His wife has Alzheimer's as well, and she did not attend the funeral, but they had a private burial on Wednesday that she attended.
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