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What is the doctor's position on whether your mother should have someone wit her at appointments and at her or not she an continue driving?
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Annessister Feb 2020
I like your question. Repeating things does not make a bad driver. I have two friends, older than me, who had their drivers licenses taken away by doctors, due to relatives that reported complaints to doctors. The complaints from one's sister was, "she has alzheimers", so the doctor removed her driver's license and told her she had Alzheimers. She had to go to the DMV , and tested 100 percent on her written test, then passed her driving test. She changed doctors.
The other friend had her license taken away due to a letter to the doctor from her daughter-in-law. She described her house as being messy, and said she had dementia, or Alzheimers too. That doctor told the senior he was taking away her driver's license because her vision was poor. She was a college graduate with a Phd. degree and knew she had no vision problems. , She just has a spiteful (vengeful) daughter-in-law. That senior went to one of the stores that sells eyeglasses, and got a 20-20 vision result on her eye test. When she returned to her doctor he admitted that the daughter-in-law was concerned about her possible Alzheimers and gave her the letter that her daughter-in-law wrote. She requested her medical records from the doctor who wrote that she was unable to see, but she never got them. Doctors are making many mistakes and looking at ages, then removing driving licenses. I would hope that all who read this know that if they live to be 80, their rights can be removed be lying relatives and stupid doctors. If an older person repeats themselves, it does not mean that that they should have their rights removed or that they have dementia. Dementia occurs when a person is unable to complete daily chores, (dressing, eating, preparing meals,) without help. Getting lost all the time when driving is another sign of possible dementia. My own sister lost her sense of direction but was able to care for herself, and write down directions I gave her, and follow them to get places. She had memory loss,, but not to the point of self care and home chores.
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The DL was easiest for me because my moms expired and I told her at 54.00 I didn't have money until I get paid at end of month. Then from there...medical bills need to be paid and it didn't take but 2 months before she forgot but my mother's memory is not so great. Even now with almost no memory left she still tells me ocassionally she has to go pick someone up and I remind her she blew motor which she did and just tell her it's not ready. Its a terrible thing watching the mental decline but it does make it easier for reasonable excuses to work. Hang tough as we all try to and vent in this safe place. 🙂 Perfect place we understand. I'm just starting to use this site. Do a lot of venting on Facebook. So many things to vent about in there...lol. 😉
My caregiver doesnt not go to appointments drs prefer me but take her to lunch or whatever meal appropriate or use as motivation... we need to stop here (at dr) real quick then we'll go to lunch or store or whatever they like best. As condition worsens going out doesnt have to be specific I need to run a couple errands want to go? Good luck.
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My dad had his license taken away by DMV but continued to drive for over 6 months. It was not until he hired caregivers to come in several days a week to take him places did he finally quit. He refused to use any other type of transportation.
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Has anyone ridden with her when she drives? This would be a good way to determine how much if a menace she is on the road. If you find she doesn't follow traffic laws or gets list easily, you need to act no matter what her response is. As for forgetfulness, check whether she is properly taking her medications. Any problems in this area indicate that she definitely needs help. Again, her response isn't relevant. If she is no longer capable of taking her medication properly, she needs assistance of one form or another.
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Too bad. I won't be happy either, I am now 67 and I hope I have the sense to know when I am not longer safe to drive. Driving gives you freedom but it does not give you the right to risk other people's lives. Elderly people who still drive past the point where their reaction time is too slow to handle an emergency situation are a threat. They are as impaired as someone who is drunk behind the wheel. We took my mother's keys. I started on my FIL a year earlier, we got him a private driving evaluation which he passed, (to my surprise about a year earlier). Turns out he had cataracts and macular degeneration that he failed to mention to us. He did get a letter from his eye doctor every year stating that his vision was adequate for driving. He finally stopped driving because his cataracts worsened to the point that he no longer had enough vision to see to drive; that is when we found out about the cataracts. He had surgery on the worst one but I intentionally scheduled it after his license expired and told him he would have to take written test to get it back. (that might not have been true but he believed me. )After he had not driven for 2 months, he agreed that he was not going to drive anymore. After he stopped driving, he told me that although he was not ready to stop driving, he realized he should have stopped sooner and said that when he thought back to some of the things he did when driving, he knew I was right. I was lucky that he went along with it but I was willing to take his keys if necessary.
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Yeah – yourself how would you feel if someone came to you and say I want you to stop driving I want you to let me go to all your doctors appointments?

I won’t be too happy with my freedom being taken away for me either and driving as it is a privilege And it gives you freedom.
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RayLinStephens Feb 2020
Awesome answer Scarlettrene!

We all have memory issues - everyone just seems to focus on the elderly, and many are doing exactly the same things.

I hate it when people tell me, "you already told me that," but have repeated themselves constantly - I was taught it is rude to say you already told me that so I get the brunt of the criticisms when pretty much everyone repeats themselves.

Thankfully I am still a safe driver - but I'm also smart enough to drive closer to home and at hours that are not "rush" hours.

Kudos to you for your answer!!
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My Mom still did not allow me in her follow-up neuro appt, after her hospital stint in Nov. where diagnosed with mild NCD.

Being far away, you’ll need to partner with her PCP via mail, detailing the changes you are finding with your LO. Send it regular mail, return receipt requested, to know they have received it. Follow up with doc office via phone. Maybe they will share info. If not, you’ll need their HIPAA form for LO to sign.

i understand she is stubborn. Mine is too. Just keep the conversation going as much as you can.

Prayers for all our situations.
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If this were my MIL I'd be suspicious. Is there any way to find out from the doctor what results were?

MIL was telling us what she wanted us to know about medical appointments and her health. Once we all got involved and started going to appointments, we discovered that she rarely told us what the doctor truly said/diagnosed. She told us what she wanted the truth to be -- and this was pre-dementia. She's just stubborn and refused to accept the limitations that doctors were putting her under.
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cherokeegrrl54 Feb 2020
My moms best friend did that, but she had severe heart problems and ended up having triple bypass, aortic valve replacement etc. it was a real shock to her grown children who live many states away. And it was hard as heck to have to call them and tell them, thinking they knew....at least now, i take her to her appts, go in with her and call her daughter so she can be involved....works much better this way....
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I have only read a few responses. I think that you need to consider how she is going to be transported to take care of her life, dr. appts, grocery shopping, pharmacy and such. You can not get her license revoked without a plan in place to get her transported. She will drive if you don't and that is a whole different can of worms.

You can not implement huge changes without a plan. Period. It is unfair to the person that is already struggling. Someone that loves her needs to be present to help make transitions.
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Lealonnie on these memory test that your mother took, are they timed tests? Do they care how long it takes to do one of the tasks? My mother could draw the face of the clock with the numbers and hands and the time but it would take her forever!!!! I was just wondering if the test taker lets them take all day to do these tests.
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lealonnie1 Feb 2020
No the tests were not timed.
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From experience, make sure hard copies of your letters detailing changes in your LO are sent regular mail, return receipt requested. Email
correspondence doesn’t always get printed out and
placed in patient’s chart.

My Mom won’t complete the hospital financial assistance form-cause she cannot. Ive tried numerous times to get the information from her, e.g. her utilities, insurance, etc. and other expenses. She puts me off and am sure she doesn’t ‘want me to know’ that she can’t fill out a form. Although I’ve seen her in action and her inability to fill out a simple form, but guess she thinks I haven’t recognized her decline. WHO would not want a reduction on their hospital
invoice??
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Okay, so if we rule out dementia for whatever reason(s), bad memory issues can be attributed to many other issues such as:

Medications. ...
Minor head trauma or injury. ...
Emotional disorders. ...
Alcoholism. ...
Vitamin B-12 deficiency. ...
Hypothyroidism. ...
Brain diseases.
Normal Pressure Hydrocephalus. ...
Problems with Vision and Hearing. ...
Disorders of the Heart and Lungs. ...
Liver and Kidney Disease. ...
Hormone Disruption. ...
Infections.

Living out of town, I don't know how you'd be able to help your mother unless she were to give you Medical POA. Either that, or arrange to visit her for a period of time when you could accompany her to the doctor to express your concerns. You could also write him a letter with your concerns and ask that he administer the right tests to determine what might be at the root of your mother's memory problems. But again, I'd wonder exactly WHAT 'memory tests' she was given and if they were extensive enough to make an accurate determination as to whether or not she does have dementia.

Tough situation, I know. Wishing you the best of luck moving forward!
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NeedHelpWithMom Feb 2020
Thanks for explaining that memory issues can be related to many things. I find that too many people automatically assume it’s dementia. Not all old people have dementia!!!

You understand that there are specific tests to prove if dementia is present.

Sometimes dementia is the cause. Sometimes not. It really is important to look at all possibilities.
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Ditto to what lealonnie1 asked: if you are not going to the doc appts with her, is she just telling you she passes? 73 is pretty young to have the symptoms you describe, so maybe there is something else going on, like a UTI or depression, etc. Please let us know as this makes responses very different. Thanks!
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anonymous1017765 Feb 2020
She has had memory issues that have gotten worse over the last 6 years. Everyone around her knows it too. She has about three subjects she talks about on the phone and constantly repeats them. She also has a hard time understanding any kind of direction. I have to repeat it a bunch of times and she keeps writing it down (over one phone call).
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Write a letter to the Dr outlining what you said here. Ask him to please inform the DMV that she should not be driving. He could ask her to come in because he needs to do the yearly exam Medicare requires.

Now we seem to be living longer, laws need to be put into place concerning those people who have been found to have a Dementia. As soon as a Dr. confirms it, he needs to report his findings to the DMV. Then the DMV mandates that the person be tested. And not the average test. Something that tests reflexes. Driving to a particular place and making sure they can get back. (My Uncle drove to Delaware Park for years. This one time, he forgot how to get home to NJ.) If they pass, they are required to come back in 6 months. A sticker can be put on the windshield for the police to see. And there should be restrictions. Only drive in town and no night driving. Why do we have to wait until they kill themselves or someone else.
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anonymous1017765 Feb 2020
Thanks! I think I’ll see how her dr appt goes in a couple weeks and also send another email to her PCP about her driving before hand. I have a tracker on her car (that she doesn’t know about) to see if she’s getting lost. She’s definitely staying closer to home these days.
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I have a question: if she refuses to allow you to go to the doctor with her, how do you know she 'keeps passing the memory tests'? Have you heard that information directly from the doctor, or from your mother?
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anonymous1017765 Feb 2020
She reads the letters to me from from the dr giving her the results from each visit - probably to show me she is just fine. I’ve also seen them.
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I had the very same issue with my mom.

I did an anonymous report to the DMV listing my concerns including Dementia, Macular Degeneration and fainting spells. DMV promptly sent her a letter to be reevaluated. The BIG mistake I made was HELPING her fill out the extensive paperwork they wanted from her. Even with my help, because she did not show me the paperwork early enough to be completed by their deadline, they temporarily suspended her license! I was thrilled as she is a "law abiding citizen" and would not drive with a suspended license. However, here's where I made the mistake. I continued helping her get the paper work filled out, proper papers to different doctors, etc. I ASSUMED once DMV evaluated her, that they would permanently suspend her license. But no! Her doctors were fooled by her ability to maintain her social graces and said she was ok to drive. AND, she passed her driving test because she knows the town like the back of her hand. (But her car has multiple dings from minor accidents that she has no idea how they occurred.) So she got her license back! If only I had NOT helped her do the paperwork etc, her license would have automatically been revoked. Sigh!

She also got very irritated that I wanted to go to all her doctors appointments with her. So I just showed up anyway. After awhile, she got used to me being there and even allowed me to just pick her up and take her. The big no-no was if I piped in and told Doc of symptoms she was not telling because she forgot. THIS REALLY aggravated and embarrassed her. So I learned to slip a note or tell the nurse on the side what the issue was.

So she continued to drive, and I continued to take her to appointments. I was more clear with her primary care physician and staff about her dementia and my concerns. (No more assuming everyone was on the same page!)

She eventually had a mini stroke along with a seizure that allowed for a clear reason for her to stop driving and accept more help.( She recovered fine.) She still asks me why she can't drive and says she wants to go to DMV and talk to them. I tell her it is because of the mini stroke and seizure, which she doesn't remember. I don't mention the dementia because she would argue about that.

So, see if there is a trusted friend, someone she knows, who you can pay to go with her. (Maybe mom doesn't have to know the person is getting paid?) If she will accept it, even though it will make her mad, she will eventually get used to it and even look forward to it. Then you will get accurate reports on her health.

This is tricky! If the license could be revoked first, then it would be an easy excuse for someone to start taking her and sitting in on Doctor's appointments etc.

Good Luck. Don't let up because she will need the help. Think of her as a teen, sometimes you can't ask permission from them. You have to insist. (Easier said than done!)
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I was the Remote son for both parents. Had all the issues, dementia, mobility, driving and refusing any help. (except from me of course)

i hope you have POA and have her finances under control.

There is not much you can do except wait for the inevitable crisis. For me it was a bad fall, hospitalization then I moved mom to assited living then dad a few days later. It was a big hot mess, almost killed me but I’m glad I stuck to my guns.

The driving is a a worry. You may have to step in and end it before she harms someone else. You can’t let this go on if she’s getting bad.
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anonymous1017765 Feb 2020
The POA just has to be filed through the lawyer now. She signed it already. I also have access to her accounts so I can see her spending and put a watch on her credit since she thinks she gave out her SSN to one of those IRS scams. Thanks for your advice.
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I think that without the memory tests telling you that there is any diagnosis of dementia you may need to consider that you are helpless to make any decisions here. What signs are you seeing that Mom needs a caregiver other than forgetfulness? Without a diagnosis you will be helpless in this. How far out of town is Mom. Is there any support system for her? If Mom is going into Dementia, diagnosed NOT to have dementia, and you are pushing her, things will get worse. The awful thing is that waiting for some crisis may be all you have. Do ask Mom if you can check in with her morning and night, and then you and Sis take up the phone calls, one in a.m. and one in p.m. So sorry you're going through this. Try very gentle loving support "what can I order delivered to you Mom?" and so on. She may be more forthcoming about needs then. "Can I get you someone to come in and help with cleaning once a week, Mom". Whatever you can think of to keep the lines of COMMUNICATION open. Because pushing her may make her shut you out, especially if she herself knows something is happening, and usually, early on, people DO know this.
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How old is she? My mother drove until she was 94 and basically did her day to day stuff, she did not have someone go to the doctor with her. We wanted her to move to AL, she always said No. Finally she had a slight stroke and started having panic attacks and was afraid to live alone, we jumped, she is no longer driving and in AL.
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Well my mother lives in a condo right next to mine and she still pulls all the stuff you are describing and I can't do anything about it, and believe me I have tried.

If you think things are bad inside the home and she needs an assessment you could call APS.

Also contact the DMV and tell them she is not safe to drive. Most states allow for anonymous reporting.

As to the anger, I have no advice there only empathy. Mine is the same way. Fierce denial and anger. I've been trying to limit my contact for my own sanity.

If you read the posts here you will see that dementia never gets better. It will progress and get worse no matter how your mother feels about it. The charade of independence will eventually crumble. What you can do is to research now and figure out a plan for when the charade crumbles. By plan I mean placement in an appropriate care home.
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